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Good Morning Everyone!!

Its been some time since I have posted, but as my daugher is getting older (she

is 7 now...boy how time flies!)and she is beginning to ask more questions and

feels like she is the only one with 'different' eyes. No one else in our family

has BPES and thought it would be nice if she was able to meet other people whom

she could relate to. I see last year someone was trying to organize a USA

Meeting, but did not see anything further as far as a meeting scheduled?

If anyone has information I would greatly appreciate it!

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Hi Dana!

Over the last couple weeks, my husband and I have decided to try to plan some

sort of get-together, but we are planning for the summer of 2011. We are

planning to hold it here in Colorado. Your post didn't mention where you live.

LOL I guess this is my announcement to the group as well. I'm looking to hold a

get together in the summer of 2011. I want to give people some time to save up.

I would love to hear from anyone who would be interested in attending. It's open

to anyone anywhere, friends and family welcome. I'm not the best at planning

events, so if anyone has any ideas or suggestions, I would greatly appreciate

it. I'd like to plan it for a weekend, so people don't have to miss too much

work.

Again I would love input from anyone. I haven't picked a weekend yet. I don't

want to do it on a holiday weekend. All suggestions are welcome.

Always,

Ann

>

> Good Morning Everyone!!

>

> Its been some time since I have posted, but as my daugher is getting older

(she is 7 now...boy how time flies!)and she is beginning to ask more questions

and feels like she is the only one with 'different' eyes. No one else in our

family has BPES and thought it would be nice if she was able to meet other

people whom she could relate to. I see last year someone was trying to organize

a USA Meeting, but did not see anything further as far as a meeting scheduled?

>

> If anyone has information I would greatly appreciate it!

>

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Sorry Ann, I am located in Iowa! Colorado would be great to hold a get-together

and our family is for sure going to join. I mentioned the possiblity to my

daughter last night and her face lit up! She is beyond excited!

What city in Colorado are you thinking of?

Talk to you soon!

Thanks!

> >

> > Good Morning Everyone!!

> >

> > Its been some time since I have posted, but as my daugher is getting older

(she is 7 now...boy how time flies!)and she is beginning to ask more questions

and feels like she is the only one with 'different' eyes. No one else in our

family has BPES and thought it would be nice if she was able to meet other

people whom she could relate to. I see last year someone was trying to organize

a USA Meeting, but did not see anything further as far as a meeting scheduled?

> >

> > If anyone has information I would greatly appreciate it!

> >

>

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