Guest guest Posted December 17, 2009 Report Share Posted December 17, 2009 Hi group! I am not sure about last year, but 2 months ago I asked if anyone was interested in a meeting. A banquet, with Dr's and information, genetisits, etc. I am in the beginning stages of planning this. If there is anyone already doing this I would love to talk to them so maybe we can combine our efforts. I am looking at October of next year, hopefully. It is a lot of work to find specialists and ones who are willing to help out. Everyone has a price. This meeting, persay, would include a banquet, dinner, entertainment, special guests, pre-dinner will be stations for people to go and get information etc. Thanks, Murray OXO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2009 Report Share Posted December 18, 2009 Payton and I will be there! I will start planning now. I will send you my suggestions for dates and ideas for the reception. Thanks Ann! Hillsboro, Oregon USA From: Ann <themamacatt@...>Subject: blepharophimosis Re: USA Meetingblepharophimosis Date: Thursday, December 17, 2009, 1:52 AM Hi Dana!Over the last couple weeks, my husband and I have decided to try to plan some sort of get-together, but we are planning for the summer of 2011. We are planning to hold it here in Colorado. Your post didn't mention where you live. LOL I guess this is my announcement to the group as well. I'm looking to hold a get together in the summer of 2011. I want to give people some time to save up. I would love to hear from anyone who would be interested in attending. It's open to anyone anywhere, friends and family welcome. I'm not the best at planning events, so if anyone has any ideas or suggestions, I would greatly appreciate it. I'd like to plan it for a weekend, so people don't have to miss too much work. Again I would love input from anyone. I haven't picked a weekend yet. I don't want to do it on a holiday weekend. All suggestions are welcome.Always, Ann>> Good Morning Everyone!!> > Its been some time since I have posted, but as my daugher is getting older (she is 7 now...boy how time flies!)and she is beginning to ask more questions and feels like she is the only one with 'different' eyes. No one else in our family has BPES and thought it would be nice if she was able to meet other people whom she could relate to. I see last year someone was trying to organize a USA Meeting, but did not see anything further as far as a meeting scheduled?> > If anyone has information I would greatly appreciate it!> Quote Link to comment Share on other sites More sharing options...
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