Guest guest Posted December 23, 2009 Report Share Posted December 23, 2009 Hi, My name is Cimmy-lou , I am 22 years old en I`m having BPES. I`m living in the Neherlands where I live with my boyfriend and our dog and cat in a appartment in Tilburg. My boyfriend askes me a lot of questions about my eyes, my Bpes and actually I don`t have answers. I`m born this way had some surgery`s and that`s it. I have learned to live with it and my eyes are a part of me. Cause they are different still I feel normal and some times I even feel me pretty. The reason why i joined this groep cause I was curious of there were any people with BPES of my age? I don`t know If my boyfriend and I could have kids. My doctor had never tolled me that there was a change that If you have BPES there was a change that you couldn`t be fertile or less. I just find out last year when ik was just looking on the internet. Not that we wan`t childeren right now but maybe in the future. I`m scared to ask it on my doctor. What`s the answer is that I can`t have childeren? I`m just 22.. Soo this story is a little bit longer as planned. I look forward to other messages or contacts. Bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2009 Report Share Posted December 23, 2009 Dear Cimmylapre I Live in Kentucky, USA I have a big, big family, so we have a lot of BPES in our family. I am sorry you have no one with BPES around you with whom you can share! My older sister that has bad BPES was the only one in our family that has a child, Her daughter does not have BPES, neither does the daughters two children, If you would like to become friends with my younger sister who has BPES I will help you get in touch. She is a very pretty woman and someone you could talk to, she is a little older than you but would make you a good friend. I'm sure she would send you pictures of her self and cousins also when she got to know you. shirley From: cimmylapre <cimmylapre@...>Subject: blepharophimosis Bpesblepharophimosis Date: Wednesday, December 23, 2009, 11:01 AM Hi,My name is Cimmy-lou , I am 22 years old en I`m having BPES.. I`m living in the Neherlands where I live with my boyfriend and our dog and cat in a appartment in Tilburg.My boyfriend askes me a lot of questions about my eyes, my Bpes and actually I don`t have answers. I`m born this way had some surgery`s and that`s it. I have learned to live with it and my eyes are a part of me. Cause they are different still I feel normal and some times I even feel me pretty.The reason why i joined this groep cause I was curious of there were any people with BPES of my age? I don`t know If my boyfriend and I could have kids. My doctor had never tolled me that there was a change that If you have BPES there was a change that you couldn`t be fertile or less.I just find out last year when ik was just looking on the internet.Not that we wan`t childeren right now but maybe in the future. I`m scared to ask it on my doctor. What`s the answer is that I can`t have childeren? I`m just 22..Soo this story is a little bit longer as planned. I look forward to other messages or contacts.Bye, Quote Link to comment Share on other sites More sharing options...
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