Greetings

August 11, 2003

judi, please don't overdo it!!! geez i sound like my rheumi!!! she gave me

crap today because i've been busting my butt at work. didn't even realize i

doubled my hours last week. just took advantage of my free time and energy from

prednisone. but come yesterday i was a mess. my neck, back arms, lower back,

hips, my calves and my feet and ankles were in pain. but then i took another 2.5

mgs and was better. today i've stayed at 10 becaise she wants to get me off of

this. dt t injected my ankle today so hopefully that will help. still no $,

but waiting for him to take care of the nurse first since she had the evection

notice.says his new bank will be up and running by thursday. they said when

they bounced our checks there was over 7000 in the account. who knows. are your

wounds healed for aqua therapy?? kathy in il

December 23, 2003

i wish you a happy holiday too judi. hope you feel better. kathy in il

July 28, 2004

It would be especially good for an A.

gooday,,

P <>< I.C.

----Original Message Follows----

From: " DJ Tech " <candida@...>

Reply-candidiasis

Subject: RE: Re: Hello from californina

Date: Wed, 28 Jul 2004 11:13:32 -0400

Just make sure your not an atheist!

> RE: Re: Hello from californina

>

> Hiiiiii

> I know of a great book called the purpose driven life, by

> rick warren..

> Check it out. It's all about our purpose in life

_________________________________________________________________

Don’t just search. Find. Check out the new MSN Search!

http://search.msn.click-url.com/go/onm00200636ave/direct/01/

September 6, 2004

Sorry about the SPAM from this member, he/she has been banned from

our group.

-- In Plagiocephaly , " muhuratha " <but2_2000@y...>

wrote:

> Greetings!!!

>

> To introduce myself, I am a practising Astrologer (Hindu Astrology)

> from Bombay, India. Hindu Astrology has time honoured authenticated

> means of helping and advicing people with such problems

>

> I offer free advice to all couples who seek my help and guidance.

>

> This is my first message and I hope that this will be a beginning

of

> a long association with fellow members.

>

> Muhuratha

November 11, 2004

Hello Nieema,

Received your e-mail and were

interested in buying the

electronic book, paid with

credit card, didn't allow me

to download, send to them two

e-mails, and they just don't

reply back.

Have you had this experience?

Regards

Conrad

Greetings

I have uploaded the actual

cleanse from s book.

Just this information is not

all you really need to know to

get the

total picture he presents so

very very well.

I have had permission to share

this little part of his book

for a long

time and now.

I would like to just say

this...

He gave me permission to share

part of my copy of the book

with a few

people and so I am but, I

would suggest that you go to

his site or the

link below and buy his books

and get the full understanding

of what we

need to do to get ourselves

healthy.

http://www.authorhouse.com/Boo

kStore/SearchCatalog.aspx

The Amazing Liver Cleanse

He is a great and generous man

but we do not need to take

advantage of

the.

His books are under $8 for and

Ebook, well worth the money

less then a

meal and information that

will last a life time.

I will leave the PDF on the

group for a couple of days and

then I must

honor the man and remove it.

Good Health to all and the

means to maintain it!!!

nieema

------------------------

March 13, 2005

Why do an inconvenient enema when it can be done herbally? I believe

there would be no additional benefit with that clumsy method, the

last cleanse I did was in the 80's, and maintained it by taking

herbal capsules, bentonite, and Psyllium twice daily every Monday &

Tuesday since, one can tell if it is still clean, -but I won't go

there....

-- In bowel cleanse , " nieema " <nieema0@y...> wrote:

>

> Welocme to all you new people!

>

> I am sorry that it has taken me so long to say that!!!

>

> I am on the digest form and the list has not been busy enought to

> send anything!

>

> Doing a Liver cleanse is a very good thing to do for the bod!

> I have done many and am feeling really good about the cleanse

itself

> and the overall place I am in with my body.

>

> As in many of the books we read, it took our bodies a long time to

> get this messed up and it will take a while to get better. We

will

> also have a healing crisis or two along the way! I thing that the

> fever is part of the healing crisis. I have had my body heat

> up...that is a natural thing...heat kills the bad stuff and helps

to

> get it out of the body. Have you heard that the body when healing

> goes back thru all or many of the times you have been ill. If that

is

> true you will have many hard days. But, the health you will gain

is

> wonderful. It is like having a baby...nine months lots of hard

work

> pain then the joy of that little one...your body back to it's well

> self or getting to wellness is worth the wait just like waitng for

> the baby...and besides like the baby, good health either comes or

the

> other comes...the choice is yours!

>

> Doing a coffee enama during the cleanses is a good thing to

do...only

> with organic coffee...less chemicals to go into the body.

>

> I also am a firm believer in garlic often each day. I have done

as

> much as 4 cloves in a day in veggie juice with eggs or just

chewing

> them. This makes things in the bowel get really moving. It will

> clean out your parasites, kill off any Candida and help get the

body

> the many nutrients it needs. ( cooking it is ok but it is better

to

> use it a few minutes after you peel and crush it.!!)

>

> So, I personaly think all of you are on the right track with what

you

> are doing.

>

> Listen to your bodies and remember that it takes one month of

healing

> for every year you have been sick...so it might take a long

> time...but that is where this group comes in...talk vent and get

> healthy.

>

> Again welcome and enjoy the beauty of the healing of your body.

>

> yours in good health

>

> nieema

March 13, 2005

>herbal capsules, bentonite and Psyllium

Which ones do you use and what strength, thanks for the info.

Randi

April 16, 2005

Hi Sally,

I'm curious which WB relates to psych issues? My son has a lot of

those!

Sorry to hear about the physical problems

regards

paisley

April 17, 2005

Hello I am new to this group, however, I am curious also which WB bands are

the indicators. My daughter, 11 now, had a nuero psych eval at Columbia.

Looking to compare. Eval did not indicate bi polar issues. Cognitive issues.

ty aep

May 7, 2005

His band was either 83 or 93, which typically are considered to be

the same. Fwiw, there is Bipolar in his Dad's family.

He has depression, anxiety, bipolar, and likely a borderline

personality disorder.

He began quite young with the first two issues.

Sally

>

> Hi Sally,

>

> I'm curious which WB relates to psych issues? My son has a lot of

> those!

>

> Sorry to hear about the physical problems

>

> regards

> paisley

June 22, 2005

Tom-

Welcome to the group. This has been a good resource for me since I

first started feeling symptoms of hypogonadism this year (I'm 31).

Feel free to discuss any concerns you have. It's a pretty supportive

group- even Mr. Gene Bowhay, who is self admittedly a

bit 'cantankerous' LOL.

Cheers,

Dano

> Hello all, my name is Tom Sharp , im 22 years old and i live in

> London, england. I was diagnosed with hypogonadism about 6 months

> ago, and have been on testim (androgel)ever since. It is only now

> that things are moving forward that i feel i can discuss this with

> others. Im looking forward to talking to all of you and sharing some

> experience.

> *Sharpy*

June 22, 2005

Hey Sharpy - welcome to the group. It is very beneficial to review the archives.

Several of your questions may already be addressed. Don't hesitate to ask - this

group has all kinds of experience and knowledge.

Arkansas

tom_ed_83 <tom_ed_83@...> wrote:

Hello all, my name is Tom Sharp , im 22 years old and i live in

London, england. I was diagnosed with hypogonadism about 6 months

ago, and have been on testim (androgel)ever since. It is only now

that things are moving forward that i feel i can discuss this with

others. Im looking forward to talking to all of you and sharing some

experience.

*Sharpy*

---------------------------------

June 22, 2005

Welcome to you Sharpy:

Open up and feel free to discuss anything straight away with this

Group. We are anxious to hear YOUR story. I guess I'm the resident

cantankerous sex machine around here but, don't let me scare you. I'm

harmless most of the time.

How are you doing on the Testim and/or Androgel?

Please let us hear from you again soon.

WELCOME TOM SHARP!

Best Regards,

Gene

> Hello all, my name is Tom Sharp , im 22 years old and i live in

> London, england. I was diagnosed with hypogonadism about 6 months

> ago, and have been on testim (androgel)ever since. It is only now

> that things are moving forward that i feel i can discuss this with

> others. Im looking forward to talking to all of you and sharing some

> experience.

> *Sharpy*

June 22, 2005

Sharpy,

Welcome aboard. We'll be lookig forward to hearing of your experience.

Were you on Testim and AndroGel at different times? If so, would like

to hear your cmparisons of the two as it seems people on this Board

and a couple other ones have had siappointments with AndroGel and

liked Testim quite a bit better...

Larry

> Hello all, my name is Tom Sharp , im 22 years old and i live in

> London, england. I was diagnosed with hypogonadism about 6 months

> ago, and have been on testim (androgel)ever since. It is only now

> that things are moving forward that i feel i can discuss this with

> others. Im looking forward to talking to all of you and sharing some

> experience.

> *Sharpy*

June 29, 2005

Sorry to hear about your Dad Nieema, I will pray for you to be at peace

when the time comes. I just recently went thru this with my dad and it was

hard, but my family was a great support. Be well,

-- Greetings

I hope these days are great for you all old and new!!!

I want to inform you that my Dad is dying and might

have days or weeks only to live.

So please excuse me while I deal with these events.

For you new people it might take a bit longer for your

mails to show up on the group, but I will do the best

I can.

If anyone has any complaints please email me

personally

nieema0@...

I will deal with them accordingly, but I know I do not

have to ride shotgun to much anymore... :)

Be well and healthy.

I thank you so much for your understanding and

patience.

yours in good health

nieema

PPD Push the Positive Daily!

I hope this message finds you and yours in the

best of Health and Spirit.

Our Health is Our Responsibility

http://a-healing-village.com

Have a look, see some of the new information.

nieema

Looking for A wonderful place to live:

http://www.thasing-immo.com

July 13, 2005

How are things with you and your Dad going, Nieema? If I've missed an

announcement, forgive me.

new guy...

Bill

Bill Asenjo, PhD, CRC

Consultant: www.billasenjo.com

The Write Way www.asenjo-writer.com

basenjo@...

(P/F) 319-351-1528

" Good judgment comes from experience, and experience comes from bad judgment. "

Mark Twain

Greetings

I hope these days are great for you all old and new!!!

I want to inform you that my Dad is dying and might

have days or weeks only to live.

So please excuse me while I deal with these events.

For you new people it might take a bit longer for your

mails to show up on the group, but I will do the best

I can.

If anyone has any complaints please email me

personally

nieema0@...

I will deal with them accordingly, but I know I do not

have to ride shotgun to much anymore... :)

Be well and healthy.

I thank you so much for your understanding and

patience.

yours in good health

nieema

PPD Push the Positive Daily!

I hope this message finds you and yours in the

best of Health and Spirit.

Our Health is Our Responsibility

http://a-healing-village.com

Have a look, see some of the new information.

nieema

Looking for A wonderful place to live:

http://www.thasing-immo.com

August 6, 2005

, I've been asking myself that question for about 5 years. I now have a

bit more pain, but I figure the surgeons also have 5 additional years of

experience.

It really is a tough call. My dad is 78, and he had Harrington rod surgery

2 years after mine, when he was 46. His torso is now is bent like a cashew

and he has so much foot pain and difficulty walking that he didn't even make

an attempt at vegie gardening this year, and he was a real die-hard

gardener. His respiratory system is so compromised from the scoliosis and

flatback and years of smoking, that I'm sure he's not a revision candidate.

So I'm very aware that every year I wait I'm also a year older. I do

believe exercise helps, but I'm pretty much resigned to the likelihood of

revision surgery, maybe a year or so from now.

I hope this helps.

Sharon

[ ] Greetings

> Thanks to for posting the link on the Scoli site. It's nice to

> see the familiar names again. I had my cervical surgery on June 27.

> He did a laminectomy of C2-7 with no fusion.

> I am glad he did not do the fusion as with my flatback leaning -

> don't know if it would have really fused. I am praying I did not

> make a mistake in doing this. It is not healing as quickly as I

> would have liked but I guess I am a lot older than my 81,83 and 88

> surgeries. I go back next Tuesday and I know he will pressure me

> about the revision surgery. If I am not in pain and can do most

> things, can I get away without revision?

> Best,

>

> scoliosis veterans * flatback sufferers * revision candidates

>

August 7, 2005

Hello ! Always nice to chat with another . In response to

your question of can you get by without revision surgery....I asked my

doctor the same thing. His response was this... " for a while. But you

will need it eventually. " As I will be 53 soon, I'm thinking that

the 'eventually' will probably be soon!

Take care.....

> Thanks to for posting the link on the Scoli site. It's nice

to

> see the familiar names again. I had my cervical surgery on June

27.

> He did a laminectomy of C2-7 with no fusion.

> I am glad he did not do the fusion as with my flatback leaning -

> don't know if it would have really fused. I am praying I did not

> make a mistake in doing this. It is not healing as quickly as I

> would have liked but I guess I am a lot older than my 81,83 and 88

> surgeries. I go back next Tuesday and I know he will pressure me

> about the revision surgery. If I am not in pain and can do most

> things, can I get away without revision?

> Best,

August 7, 2005

Hi ,

Glad to see you here! One thing we have done is ask everyone to retell

their " story " so as to refresh our adled minds and also so we can put

a link in the datebase and refer to it in the future so we can recall

the particulars of each persons back. I hope you will take a few

minutes to remind us all of where you are " at " when you get a chance.

I am not sure if you are kidding, but if you are really

being " pressured " for revision surgery I would think you might want to

rethink your choice of surgeon. I think I am on firm ground when I say

that revision surgery is rarely an emergency or surgery that you need

to be rushed into. While it might be true that your doctor feels that

you will benefit from the surgery and hopes you will take advantage of

it soon....you need to do it on your own timeline...if at all.

We are not doctors here so of course we can't know what might be

approppriate for you. I do think you should consider asking your

surgeon if you can postpone revision, and if so, what the consequences

are. I believe, generally, if pain is not too much of an issue and

there are not too many other lifestyle compormises being made

many surgeons will advise to wait awhile longer. But I don't think

they mean forever...just until the patient feels " ready " . I couldn't

imagine going another day before my revision, so I know when I hear

people like you say that you feel the surgery is not necessarily

something you think needs to be on the " front burner " ...you probably

are not " there " yet. I do think there is a huge amount of mental

preparedness that you have to have done to undertake this surgery. If

you are feeling like maybe you can get away without the surgery for

awhile...then you probably should listen to your own " inner voice " and

search out an answer to that question you feel comfortable with.

I don't know if you have shared who your surgeon is, but if you go

back about a week in posts ther was a discussion about the topic of

revison surgeons not doing work in the cervical spine...and that each

area of the spine is really it's own specialty. Perhaps while you are

making up your mind about revision it would be worth getting a second

opinion to confirn or delay your surgery until you feel right about

it? It is a pain to travel to get a good opinion...but it is very

worth it to have a confirmation and know that you have gotten good

advice from your doctor. Of course if you get conflicting opinions you

will have to resolve that somehow....but I don't doubt it will still

bring you to a clearer place where you will have a good understanding

of of what your choices really are.

Unfortunately the only person who can do the diligence in our cases,

is us...the patients.

Just my $.02! Cam

August 7, 2005

, I would love to know how things go in the recovery from your

cervial surgery. I am in need of cervical surgery but until my lumbar

area gets under control the surgeon wont even consider it. At this

point I am so worried about loosing the few remaining disks I have

left that are unfused that I don't know if I would consider it

either. I am fused from T3 to S1 and he was going to leave T2 just

sitting there and fuse T1 through C4. It doesn't make a whole lot of

sense to me right now.

> Thanks to for posting the link on the Scoli site. It's nice

to

> see the familiar names again. I had my cervical surgery on June

27.

> He did a laminectomy of C2-7 with no fusion.

> I am glad he did not do the fusion as with my flatback leaning -

> don't know if it would have really fused. I am praying I did not

> make a mistake in doing this. It is not healing as quickly as I

> would have liked but I guess I am a lot older than my 81,83 and 88

> surgeries. I go back next Tuesday and I know he will pressure me

> about the revision surgery. If I am not in pain and can do most

> things, can I get away without revision?

> Best,

August 7, 2005

Thanks for the many responses. I had Harrington Rods put in in 1981 at Hopkins with Vernon Tolo. I was only 5'1 but yet had a 14 inch rodwhich I was told was one of the longest ones to be used. In 1982 I was sitting on my make-up counter when the rod snapped. It was all I could do to get off the counter and to the phone. I called Hopkins and they said I could not possibly have broken it. 13 months later when the rod poppedthrough the skin and they finally x-rayed from the side - they found it. So They took that rod out and put in a small Harrington compression rod andrefused L4/5. After that surgery the pain was horrendous. In 1988, Dr. Tozzi took out the small rod and fused to the sacrum. Unfortunately, I started to go into heart failure with that surgery. I was out of that awful pain and then over the years started the flatback tilt. I then had my aortic valve replaced in 1990. I teach orchestra and on Halloween of this past year - I conducted for 90 minutes. I can't stand that long, much less conduct. It appeared I had a TIA at school that day but I think it was the beginning of the cervical problems. The spinal cord was being compressed, most of the discs were bulging and there were many bone spurs. I saw 4 well known MD's in the DC/Northern VA area including Dr. Lauerman who does do scoliosis and revisionsurgery. He said the neck had to be addressed before any revision surgery because the cord was being compressed. Dr. Tozzi did the cervical surgery andon the 2nd day in the hospital brought up the revision. I guess at this point I am not ready and the previous heart surgery could make me a bad candidate. As muchas I love Dr. Tozzi - I would probably go to either Rand, Boachie or the one in Amarillo. This last surgery was enough of a drain for right now. Lauerman told me to wait until I retire from teaching in 2 years. I really have led an active life. The stares can drive me nuts but I'm over that for the most part. On Aug 6, 2005, at 9:56 PM, cammaltby wrote: Hi , Glad to see you here! One thing we have done is ask everyone to retell their "story" so as to refresh our adled minds and also so we can put a link in the datebase and refer to it in the future so we can recall the particulars of each persons back. I hope you will take a few minutes to remind us all of where you are "at" when you get a chance. I am not sure if you are kidding, but if you are really being "pressured" for revision surgery I would think you might want to rethink your choice of surgeon. I think I am on firm ground when I say that revision surgery is rarely an emergency or surgery that you need to be rushed into. While it might be true that your doctor feels that you will benefit from the surgery and hopes you will take advantage of it soon....you need to do it on your own timeline...if at all. We are not doctors here so of course we can't know what might be approppriate for you. I do think you should consider asking your surgeon if you can postpone revision, and if so, what the consequences are. I believe, generally, if pain is not too much of an issue and there are not too many other lifestyle compormises being made many surgeons will advise to wait awhile longer. But I don't think they mean forever...just until the patient feels "ready". I couldn't imagine going another day before my revision, so I know when I hear people like you say that you feel the surgery is not necessarily something you think needs to be on the "front burner"...you probably are not "there" yet. I do think there is a huge amount of mental preparedness that you have to have done to undertake this surgery. If you are feeling like maybe you can get away without the surgery for awhile...then you probably should listen to your own "inner voice" and search out an answer to that question you feel comfortable with. I don't know if you have shared who your surgeon is, but if you go back about a week in posts ther was a discussion about the topic of revison surgeons not doing work in the cervical spine...and that each area of the spine is really it's own specialty. Perhaps while you are making up your mind about revision it would be worth getting a second opinion to confirn or delay your surgery until you feel right about it? It is a pain to travel to get a good opinion...but it is very worth it to have a confirmation and know that you have gotten good advice from your doctor. Of course if you get conflicting opinions you will have to resolve that somehow....but I don't doubt it will still bring you to a clearer place where you will have a good understanding of of what your choices really are. Unfortunately the only person who can do the diligence in our cases, is us...the patients. Just my $.02! Cam scoliosis veterans * flatback sufferers * revision candidates

August 7, 2005

Dear ,

I just was retelling your story to my family and my son said" I hope she sued that doctor, I can't believe he didn't at least take an X-ray!" I'm amazed everyday at how women are not listened to by doctors, and how random sometimes the treatment for scoliosis was all those years ago. God bless you for all you have been through, and everytime I think of a Harrington Rod I'll think of your story!

Colorado Springs

Re: [ ] Re: Greetings

Thanks for the many responses. I had Harrington Rods put in in 1981 at Hopkins with Vernon Tolo. I was only 5'1 but yet had a 14 inch rod

which I was told was one of the longest ones to be used. In 1982 I was sitting on my make-up counter when the rod snapped. It was all I could

do to get off the counter and to the phone. I called Hopkins and they said I could not possibly have broken it. 13 months later when the rod popped

through the skin and they finally x-rayed from the side - they found it. So They took that rod out and put in a small Harrington compression rod and

refused L4/5. After that surgery the pain was horrendous. In 1988, Dr. Tozzi took out the small rod and fused to the sacrum. Unfortunately, I

started to go into heart failure with that surgery. I was out of that awful pain and then over the years started the flatback tilt. I then had my aortic valve replaced in 1990.

I teach orchestra and on Halloween of this past year - I conducted for 90 minutes. I can't stand that long, much less conduct. It appeared I had a

TIA at school that day but I think it was the beginning of the cervical problems. The spinal cord was being compressed, most of the discs were

bulging and there were many bone spurs. I saw 4 well known MD's in the DC/Northern VA area including Dr. Lauerman who does do scoliosis and revision

surgery. He said the neck had to be addressed before any revision surgery because the cord was being compressed. Dr. Tozzi did the cervical surgery and

on the 2nd day in the hospital brought up the revision. I guess at this point I am not ready and the previous heart surgery could make me a bad candidate. As much

as I love Dr. Tozzi - I would probably go to either Rand, Boachie or the one in Amarillo. This last surgery was enough of a drain for right now. Lauerman told me to

wait until I retire from teaching in 2 years. I really have led an active life. The stares can drive me nuts but I'm over that for the most part.

On Aug 6, 2005, at 9:56 PM, cammaltby wrote:

Hi ,Glad to see you here! One thing we have done is ask everyone to retell their "story" so as to refresh our adled minds and also so we can put a link in the datebase and refer to it in the future so we can recall the particulars of each persons back. I hope you will take a few minutes to remind us all of where you are "at" when you get a chance.I am not sure if you are kidding, but if you are really being "pressured" for revision surgery I would think you might want to rethink your choice of surgeon. I think I am on firm ground when I say that revision surgery is rarely an emergency or surgery that you need to be rushed into. While it might be true that your doctor feels that you will benefit from the surgery and hopes you will take advantage of it soon....you need to do it on your own timeline...if at all.We are not doctors here so of course we can't know what might be approppriate for you. I do think you should consider asking your surgeon if you can postpone revision, and if so, what the consequences are. I believe, generally, if pain is not too much of an issue and there are not too many other lifestyle compormises being mademany surgeons will advise to wait awhile longer. But I don't think they mean forever...just until the patient feels "ready". I couldn't imagine going another day before my revision, so I know when I hear people like you say that you feel the surgery is not necessarily something you think needs to be on the "front burner"...you probably are not "there" yet. I do think there is a huge amount of mental preparedness that you have to have done to undertake this surgery. If you are feeling like maybe you can get away without the surgery for awhile...then you probably should listen to your own "inner voice" and search out an answer to that question you feel comfortable with.I don't know if you have shared who your surgeon is, but if you go back about a week in posts ther was a discussion about the topic of revison surgeons not doing work in the cervical spine...and that each area of the spine is really it's own specialty. Perhaps while you are making up your mind about revision it would be worth getting a second opinion to confirn or delay your surgery until you feel right about it? It is a pain to travel to get a good opinion...but it is very worth it to have a confirmation and know that you have gotten good advice from your doctor. Of course if you get conflicting opinions you will have to resolve that somehow....but I don't doubt it will still bring you to a clearer place where you will have a good understanding of of what your choices really are.Unfortunately the only person who can do the diligence in our cases, is us...the patients.Just my $.02! Camscoliosis veterans * flatback sufferers * revision candidates

August 8, 2005

, you certainly are trooper, to conduct a 90-min. concert! I used to be a music teaher too. I didn't like public school work so I taught piano privately and did church organ & choir on the side. 20 years ago I developed pain problems in both hands, and now that I know more about what's going on in my back and neck I have a better idea why. I feel like my arms weigh a ton, and playing any instrument is just so hard.

My husband talked me into taking "a year" off from teaching 13 years ago, and I'm still sidelined. It was like watching a huge part of myself die, and I'm still not finished grieving.

Thanks so much for sharing your story.