Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Hi Basl. That is fabulous news. My daughter, Robyn, is extremely fatigued as a result of Gleevec, and being a working mom with a 2 year old toddler. She is in complete remission, but is afraid to discontinue the Gleevec. Her oncologist hasn't suggested it so she will remain on Gleevec with all of her side effects. Again, Great News! Sandi > > Hi all fellow " club members " > > I have not posted for ages so I will just keep it brief. > My health is still fine with my last result in January: " undetected " > Wow was I relieved at that! > After being PCRU since April 2005, I experienced some severe side effects. After consultation with my Haematologist, I stopped taking Gleevec and discontinued the treatment. > That was at the end of April 2009. > My PCRU status has not changed since then, and I am greatful for that. > Although I realize I am not cured of CML,should my test show an upward trend, I will need to revert to medication. > The " holiday " has been great! > BTW: my last result was: > BCR-ABL 0.00013% > BCR-ABL/ABL Ratio 0.00000 > My next test will be at the end of March 2010. > Holding thumbs!!! > > Just thought I would share the good news with you all. > Best wishes all > Basil > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Thanks Sandi, If it's only fatigue your daughter suffers fro as a side effect, then there is no reason to discontinue Gleevec. Good luck to her in any case for being PCRU. Kind regards Basil > > > > Hi all fellow " club members " > > > > I have not posted for ages so I will just keep it brief. > > My health is still fine with my last result in January: " undetected " > > Wow was I relieved at that! > > After being PCRU since April 2005, I experienced some severe side effects. After consultation with my Haematologist, I stopped taking Gleevec and discontinued the treatment. > > That was at the end of April 2009. > > My PCRU status has not changed since then, and I am greatful for that. > > Although I realize I am not cured of CML,should my test show an upward trend, I will need to revert to medication. > > The " holiday " has been great! > > BTW: my last result was: > > BCR-ABL 0.00013% > > BCR-ABL/ABL Ratio 0.00000 > > My next test will be at the end of March 2010. > > Holding thumbs!!! > > > > Just thought I would share the good news with you all. > > Best wishes all > > Basil > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Thanks Tessa Kind regards Basil > > Congratulations Basil great news keep it up.I tried gleevec break for 6 month and I know the feeling enjoy your break > T > Sent from my Verizon Wireless BlackBerry > > [ ] Greetings > > Hi all fellow " club members " > > I have not posted for ages so I will just keep it brief. > My health is still fine with my last result in January: " undetected " > Wow was I relieved at that! > After being PCRU since April 2005, I experienced some severe side effects. After consultation with my Haematologist, I stopped taking Gleevec and discontinued the treatment. > That was at the end of April 2009. > My PCRU status has not changed since then, and I am greatful for that. > Although I realize I am not cured of CML,should my test show an upward trend, I will need to revert to medication. > The " holiday " has been great! > BTW: my last result was: > BCR-ABL 0.00013% > BCR-ABL/ABL Ratio 0.00000 > My next test will be at the end of March 2010. > Holding thumbs!!! > > Just thought I would share the good news with you all. > Best wishes all > Basil > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2011 Report Share Posted February 7, 2011 Hi, to all of you who are in this interesting group.I am mildred from Kenya with blepharophimosis.I seriously do not know what to do because am the only one in our family who has it and I don't know the reason behind it. Quote Link to comment Share on other sites More sharing options...
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