Guest guest Posted March 23, 2002 Report Share Posted March 23, 2002 Hi Judy, Terri Here, If I remember correctly (seems that CRS has set in more these days) I knew with in a week. If you haven't heard I would be giving them a call. Good Luck, I will say a prayer.. RE: Hello! I'm getting anxious....It was a week ago today that I had my biopsy and I still haven't heard the results...does anyone know how long it takes?...judy -----Original Message-----From: LadonnaBrave1@... [mailto:LadonnaBrave1@...] Sent: Wednesday, March 20, 2002 3:14 PMHepatitis C Subject: Re: Hello!I know that this group will be here. When I was taking the combo this group was a life saver to me. I really had a hard time with the combo. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2002 Report Share Posted April 4, 2002 Hi Tony, I just wanted to say that I appreciate your e-cards and your caring heart. Ruth rmeeks3230@... wrote: Hello everyone!I'm on my way to church but wanted to sneak in here for a minute and wish everyone aHappy Easter!Our sunday school classed is getting together for lunch after the serviceand the asked my to prepared the meat which I did last night . I prepared a spanish roast and boliche so as far as meat goes we should be able to have a good feast. Take care everyone and God Bless You!TONY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 , Welcome to the list!! You will find so much information here. And if you ever have a question, just ask. Congratulations on your soon to be baby boy!! I'm sure he will bring much love and sunshine into your life. Gavin is three, today, and is actually my Great Nephew. But even though I didn't give birth to him, I birthed him in my heart. He is like my son in every way. I'm very active in his life and he's actually here with me alot of the time. You will have trials and tribulations along the way and sometimes, it's not easy. BUT, what child is easy to raise!! They just have different areas, that you will need to address. Gavin was a wonderful baby in every way, he still is a very good boy. He took long naps, slept through the night, didn't fuse when hungry or when he was wet. He always had a smile and a very loving personality. Now at three, he' a little boy that's quick to hug and comfort people. He's very social and people love him. Keep in mind, as with " typical " children, they all have different personalities as well. But, I still believe our children with DS are the most lovable and charming children. I don't doubt, your child will be the same way. He will most likely bring you closer together as a family. Find a local support group in your area, it's great to connect with others. They bring amazing support and it's easy to form close friendships with them, since you have a strong common bond. Keep reading and trying to find out all you can. I'm sure when your little one arrives, you will be ready!! He will be more alike than different with other children. One of the greatest things I have learned, is unconditional love. That's the most awesome gift Gavin has taught me. I wouldn't trade him for the world and I'm sure you'll be feeling the same way soon!! Good luck! Traci Waltz Great Aunt to Gavin, 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi !! welcome to the group. I'm Shar, 31.. I have 3 kids.. 10, 8 and my last one also with DS, he'll be 6 at the end of this month. I wasn't fortunate enough to find out during my pregnancy, it would have saved me a lot of shock of the whole thing!!! It's great that you are able to study and get info about him beforehand and let it sink in =). I wish I had that. Congrats on your pregnancy!! you'll love having a downsyndrome baby, they are soooooo easy.. or was that just mine? hee.. I'll take him out of all 3 of my newborns anyday! he pretty well slept through the night within a month!! Hugs Shar Hi Everyone! My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 hello! Hi Everyone! My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. Welcome , Walter and kids! When is the baby due? I have , age 8.5 and three older kids. has brought us all closer together. Each older sibling has a unique relationship with their baby brother. When he was younger, they helped with his therapies. Now, sometimes, they help him with homework, but they mostly enjoy the fun stuff with him. I'm glad you found this list. It's very family oriented and supportive. We just love babies here! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi and Walter, welcome here. I think you've come to the right place. A place where you will get support and understanding for al that is happening in your life right now. I can imagine how difficult these times must be right now. All the unknowing things that are to come. The positive thing is that you have time to get used to the idea. And that a VSD or even an AVSD isn't such a problem anymore. Our little girl had her operation at 7 weeks old and now she's 21 months old and only the scar reminds us of the operation. Hope to 'read' from you how everything went. Rob dad of Merel and Summer (ds) http://summerdown.freeservers.com -----Oorspronkelijk bericht----- Van: Walt & [mailto:thebubsga@...] Verzonden: zaterdag 13 april 2002 20:18 Aan: Onderwerp: hello! Hi Everyone! My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. We also know that he has an AV Canal defect that will need surgery, although the cardiologist is hopeful that he might only have a VSD. They can't be sure of much at this point, so we are playing the endless waiting game. We are getting used to the idea of having a baby with DS, but really need some real support from people who actually know what life is like. I feel really fortunate to have been introduced to this group, and look forward to getting to know all of you! and Walter Bub Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi My son is 14 going on 40 LOL. He is in 8th grade and is taking electric guitar lessons. I control the volume LOL. He is even getting to understand reading music. hey I can't even do that!!! He has played some special Olympics and is excited about his medals and ribbons. He knows more girls in the grocery store then my 16 year old. The best advice I can give you is to take your baby home and love him. It works. Meet with other parents and go to a local meeting if you can. We just had a big one in Mass.' Jeannette Special Mom Grant 14DS Jacques 16 ADHD Jerry Dad 13cats and no that's not a typo its 13. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2002 Report Share Posted April 13, 2002 Hi - My son is now 15 mo. was born with the AV canal defect. He had surgery at 3 months. His surgery was at the Cleveland Clinic. Today is actually 1 year ago. He did so well with it. Where are you located? My husband and I have a daughter as well that is going to be 4 in June and were not aware that would have D.S. until the day he was born. It was very hard at first but, has been such a blessing. He is sooo much fun and his big sister loves him more than anything. I tell her and all the time I believe they were baby angels in heaven and played together and when it was time for us to have another baby Jesus sent her playmate... I will be praying for you and your family as you prepare for your newest member!! Amy Mom to Abby 3 and 15mo. d.s. P.S. The best advise I can give you is don't read all the books out there. Allot of them give you the worst case possible. If they gave us books like that on our typical children we would run screaming from the building LOL!! Walt & wrote: > Hi Everyone! > My name is , and this is my first time posting to this (or any > other) group, so please have patience with me as I learn my way > around! > > My husband and I have two boys, ages 5 and 3 1/2. We are expecting > our third in July, and found out at the end of February that he (yes, > another boy!) has Down Syndrome. We also know that he has an AV Canal > defect that will need surgery, although the cardiologist is hopeful > that he might only have a VSD. They can't be sure of much at this > point, so we are playing the endless waiting game. We are getting > used to the idea of having a baby with DS, but really need some real > support from people who actually know what life is like. > > I feel really fortunate to have been introduced to this group, and > look forward to getting to know all of you! > > and Walter Bub > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Hi , I am Joyce. I have 5 kids. The youngest is Nikki 7 1/2 months DS. I never knew she had DS until she was 2 days old. I was just devistated. But after about 2 weeks or so of crying, I got along pretty good. She is just an angel. So, sweet and good. I never knew I could have such of a perfect baby. She is the world to all of us. I am too learning a lot being on here. Everyone is so supportive. There is so many things I never even knew about, but I am learning now. I hope you find great comfort in this group, just as I have. Joyce hello! > Hi Everyone! > My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! > > My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. We also know that he has an AV Canal defect that will need surgery, although the cardiologist is hopeful that he might only have a VSD. They can't be sure of much at this point, so we are playing the endless waiting game. We are getting used to the idea of having a baby with DS, but really need some real support from people who actually know what life is like. > > I feel really fortunate to have been introduced to this group, and look forward to getting to know all of you! > > and Walter Bub > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Our local group does all that it can to educate the medical profession. I don't doubt there are still plenty of them giving out misinformation to new parents. In our local hospitals there are well meaning people touting certain therapies for DS to these new parents that also paint a negative picture of what their child with DS will be like if they don't use a particular therapy. They also describe untrue caricatures of people with DS, so new parents can be bombarded with absolute falsehoods from many sources. But I will tell you something else too. Not all the pictures they paint are as grim as what unshakeable image the parents may already have. Sometimes the messages they receive from professionals about DS become shaded by their own misconceptions. Some of the people that chosen abortion here do so after they have met our parents, seen our kids pictures, listened to our stories. They tell us " we don't want our child to suffer in this world " and there is no convincing them that is not the case. I sometimes think that the decisions they make are based on what they feel their lives will be like caring for a child or the shame and embarrassment they may feel having a child that is MR. I cannot tell you how many times I say my thanks that we did not have a prenatal diagnosis and were not forced to undergo what some of these parents nowadays do. Much easier to face whatever someone says when that sweet baby is in your arms!! Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 In a message dated 4/13/2002 2:10:41 PM Eastern Daylight Time, thebubsga@... writes: << My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. >> Congratulations Walt and ! I have a 4 year old son with DS who is active and mischievious. Probably just what you're already used to. I knew before he was born, too, that he was going to have DS. He had some mild heart problems that were fixed with minor surgery or disappeared in the first few months of life. I worried and worried at the end of the pregnancy, but had a great delivery and a strong little baby. If I had known then about how well he'd do, I could've saved myself a lot of grief. Some babies with DS are very eager to meet their parents so don't be surprised if your little guy makes an early entrance. My son was 3 weeks early, but already 7Lbs. 7oz. so I'm glad he didn't wait. This is a great place to learn and to vent if you need to. We laugh and cry with each other. Many of us have been where you are, so we have a good idea of what you're feeling. So, what's his name? Kathy, Liam's mom(4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 <<Allot of them give you the worst case possible. If they gave us books like that on our typical children we would run screaming from the building LOL!!>> I spoke to a mom of a 17 month old and she said she was told all this horrible stuff also. She was too scared to even hold her baby! I am shocked! This is 2002 and there are so so many success stories of things our children and young adults have accomplished. Why can't we bring this to the attention of these doctors and nurses or whomever these people are that give us so much of a wrong picture about Down syndrome! Gail, mom to Ted (10) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Hi : Welcome to the list. You will find alot of good info. here and alot of humor as well. My daughter with Ds is eleven and our oldest. She is the only girl. We also have three boys, ages 8,6, and 3. Life is usually a circus, has its ups and downs, but for the most part very good. I try to look at it like an adventure or I'd never get through it. I worry more about my " normal " kids than Cristen. She seems to have all her ducks in a row for now. She is beginning to go through puberty and things seem to upset her more than they used to, but she is also happier now than she has ever been because she loves school ,her dance classes and tae kwon do. We are extremely proud of her and constantly tell her how beautiful she is. I always tell her that if I'd gone shopping for a daughter, I'd have picked her. She is the best daughter a mother could have. hello! > Hi Everyone! > My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! > > My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. We also know that he has an AV Canal defect that will need surgery, although the cardiologist is hopeful that he might only have a VSD. They can't be sure of much at this point, so we are playing the endless waiting game. We are getting used to the idea of having a baby with DS, but really need some real support from people who actually know what life is like. > > I feel really fortunate to have been introduced to this group, and look forward to getting to know all of you! > > and Walter Bub > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Hello, and welcome! I have a 15month old little girl with DS and I did know before she was born. (I was 22 when she was born, so it was a shock.) I think it was good to know. Myah didn't have heart surgery, but did have stomach surgery at 1 day old (we knew this ahead of time too.) She came through great and was home by 7 days old. -Babies are tough! Anyway, before she was born, my Dr. referred us to meet with a neonatologist at the hospital where she would be born. It was the absolute best advice I received. He was a very nice man and spent 2 hours explaining everything to us. He even went over her transfer to another hospital and if something else was wrong what they would do. He left no questions. The single BEST thing he said to me and I still use this advice is- Don't read to much to talk to others about the problems that they have with their kids, because you may be worrying about things you don't have to. Myah is very high functioning and close to " normal " development. Had I worried about all the problems-it would have been wasted worry. I will say that the medical stuff can be overwhelming. I work in the medical field and it still overwhelms me sometimes, you just have to take it 1 appt at a time. You will find a special bond with your child and so will others. Every one says, there's just something about Myah. She gets all the attention-sometimes to the point I feel bad for my brother's kids! Good luck and keep us all posted! , mom to Myah 15mo hello! > Hi Everyone! > My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! > > My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. We also know that he has an AV Canal defect that will need surgery, although the cardiologist is hopeful that he might only have a VSD. They can't be sure of much at this point, so we are playing the endless waiting game. We are getting used to the idea of having a baby with DS, but really need some real support from people who actually know what life is like. > > I feel really fortunate to have been introduced to this group, and look forward to getting to know all of you! > > and Walter Bub > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 Hi , Congratulations on your upcoming birth! I have two boys Sam (almost 4) and 14 mos. was a surprise pregnancy and then a surprise baby (the DS was a surprise). Upon having him, I worried so much about everything the future might hold for him. . . health-wise, developmentally, socially. I also worried about how our family would adjust, how it would change all our lives. I'm a really good worrier But even as I was worrying, a part of me knew it would be fine, that life unfolds as it should. That I would regret worrying my way through 's baby days and not just enjoying my baby. So, I made a conscious decision to relax and enjoy. is such a delight. As a newborn, he was an especially pretty baby with such tiny features. (You know how most newborns seem to have to grow into their nose and ears, but not so babies with DS). He had the softest skin, and I marvelled at the tinyness of his little bottom each time I changed his diaper. He was not the great sleeper I hear others were fortunate enough to have, but he's a better sleeper than my first. . .hooray! I nursed this baby, which was a bit of a challenge at first, but I understood breastmilk to be brain food and was pretty determined. Had I not been experienced in nursing, I don't know if I would have been successful. It required some pumping at first, and lots of help from the lactation consultant at the hospital. If you plan to nurse, I would definitely get hooked up with some support should you need it. I know three other moms who nursed their babies with down syndrome without a hitch, but I've known more who have had a real struggle. Now, at 14 months, I feel so lucky to have him. I feel like I have a little secret that only other parents with children of DS can know. He is such a sweety! He's got a sunny disposition, gives his mommy and daddy the best hugs, adores his big brother, and has got me wrapped around his little finger. So far, my worries were for not! Please keep us posted as your due date approaches. I will be sending best wishes your way. Paige > Hi Everyone! > My name is , and this is my first time posting to this (or any other) group, so please have patience with me as I learn my way around! > > My husband and I have two boys, ages 5 and 3 1/2. We are expecting our third in July, and found out at the end of February that he (yes, another boy!) has Down Syndrome. We also know that he has an AV Canal defect that will need surgery, although the cardiologist is hopeful that he might only have a VSD. They can't be sure of much at this point, so we are playing the endless waiting game. We are getting used to the idea of having a baby with DS, but really need some real support from people who actually know what life is like. > > I feel really fortunate to have been introduced to this group, and look forward to getting to know all of you! > > and Walter Bub > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 In a message dated 4/14/02 7:58:19 AM Central Daylight Time, wildwards@... writes: > But I will tell you something else too. Not all the pictures they paint are > as grim as what unshakeable image the parents may already have. Sometimes > the > messages they receive from professionals about DS become shaded by their > own > misconceptions. Some of the people that chosen abortion here do so after > they > have met our parents, seen our kids pictures, listened to our stories. > They > tell us " we don't want our child to suffer in this world " and there is no > convincing them that is not the case. I sometimes think that the decisions > > they make are based on what they feel their lives will be like caring for a > > child or the shame and embarrassment they may feel having a child that is > MR. > > I cannot tell you how many times I say my thanks that we did not have a > prenatal diagnosis and were not forced to undergo what some of these > parents > nowadays do. Much easier to face whatever someone says when that sweet > baby > is in your arms!! > > Cheryl in VA > > Amen Cheryl. Some parents are unreachable. Jessie, Mom to , 37 and the light of my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 In a message dated 4/14/02 8:48:05 AM Central Daylight Time, melissa.ames@... writes: > I always tell her that if I'd gone shopping > for a daughter, I'd have picked her. She is the best daughter a mother > could have. > > > I'm so glad to hear that. My son is the best son anyone could have and I would never have traded him for any other. Aren't we lucky?? Jessie, Mom to , 37 and the light of my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 I think that is so sad. Being 22 at the time I was asked what I wanted to do and for some tech etc. it was a surprise that I was opting to keep her!! I really didn't consider any other way. That's why I waited to have the amnio until she would have a " chance " at life in case something happened. The drs didn't know if she had cystic fibrosis, trisomy 18, spina bifida, or maybe even a problem with her ventricles in her brain. I just had to know what I was facing. When I went for an ultrasound one time at the hospital I layed down and told the tech- " now I know she has DS, so don't worry when you see stuff. " She asked if I was keeping the baby and I told her yes. She thought that it was wonderful and then went on to tell me about the abortion she had to assist the week before. She said that she cried for 3 weeks and could never do it again. The details were horrifying! I wish that somehow I could get hooked up where I could talk to people before they make that decision. They need to hear from positive people, not just statistics. , mom to Myah 15mo Re: hello! > In a message dated 4/14/02 7:58:19 AM Central Daylight Time, > wildwards@... writes: > > > > But I will tell you something else too. Not all the pictures they paint are > > as grim as what unshakeable image the parents may already have. Sometimes > > the > > messages they receive from professionals about DS become shaded by their > > own > > misconceptions. Some of the people that chosen abortion here do so after > > they > > have met our parents, seen our kids pictures, listened to our stories. > > They > > tell us " we don't want our child to suffer in this world " and there is no > > convincing them that is not the case. I sometimes think that the decisions > > > > they make are based on what they feel their lives will be like caring for a > > > > child or the shame and embarrassment they may feel having a child that is > > MR. > > > > I cannot tell you how many times I say my thanks that we did not have a > > prenatal diagnosis and were not forced to undergo what some of these > > parents > > nowadays do. Much easier to face whatever someone says when that sweet > > baby > > is in your arms!! > > > > Cheryl in VA > > > > Amen Cheryl. Some parents are unreachable. > > Jessie, Mom to , 37 and the light of my life. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 I have told this story before but some of you probably haven't heard it. When my daughter was expecting her husband insisted she have an amnio. She said, OK but he'd have to go with her. She called me when it was over and said she was fine, the baby was fine, and Ric only needed 15 stitches. It seems when they brought out the big needle he knew he was going to be sick so he started for the door and didn't make it. He passed out and hit the floor hard. Since he's well over 6 feet tall it was a long way down. He said he woke up and saw all these feet in shoes a round him and wondered why they were standing on his bed. The rest of us all felt justice was served. He was a real SOB anyway. they have been divorced now for some years. Jessie, Mom to , 37 and the light of my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 We have already run across some of this type of attitude. One of our doctors told us that we would just try to " manage " things somehow, as if we are burdening society by bringing this baby into the world. In the middle of the shock of finding out that our baby has DS, these were not exactly encouraging words, and I went home and cried even harder for a week. I think this is the hardest part of finding out before birth- we have no baby to start loving, just a lot of unanswered questions and sympathetic looks from other people who have no idea what else to do or say. I am very anxious for our baby to be born so we can finally meet him and get on with things! Mom to , 5, 3 1/2 and baby boy due 7/13/02 Re: hello! > Our local group does all that it can to educate the medical profession. I > don't doubt there are still plenty of them giving out misinformation to new > parents. In our local hospitals there are well meaning people touting certain > therapies for DS to these new parents that also paint a negative picture of > what their child with DS will be like if they don't use a particular therapy. > They also describe untrue caricatures of people with DS, so new parents can > be bombarded with absolute falsehoods from many sources. > > But I will tell you something else too. Not all the pictures they paint are > as grim as what unshakeable image the parents may already have. Sometimes the > messages they receive from professionals about DS become shaded by their own > misconceptions. Some of the people that chosen abortion here do so after they > have met our parents, seen our kids pictures, listened to our stories. They > tell us " we don't want our child to suffer in this world " and there is no > convincing them that is not the case. I sometimes think that the decisions > they make are based on what they feel their lives will be like caring for a > child or the shame and embarrassment they may feel having a child that is MR. > > I cannot tell you how many times I say my thanks that we did not have a > prenatal diagnosis and were not forced to undergo what some of these parents > nowadays do. Much easier to face whatever someone says when that sweet baby > is in your arms!! > > Cheryl in VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2002 Report Share Posted April 14, 2002 People can be incredibly insensitive and intrusive, can't they? I would look for another doctor if possible--that's not the kind of attitude that's helpful under the circumstances. You do have a baby to start loving and you clearly already have--you just can't see him or hold him yet. He'll be here in his own time! ; ) 's birthday is July 10 (she will be 13)--sounds like there's a chance they will be celebrating on or about the same day next year! Judi Re: hello! We have already run across some of this type of attitude. One of our doctors told us that we would just try to " manage " things somehow, as if we are burdening society by bringing this baby into the world. In the middle of the shock of finding out that our baby has DS, these were not exactly encouraging words, and I went home and cried even harder for a week. I think this is the hardest part of finding out before birth- we have no baby to start loving, just a lot of unanswered questions and sympathetic looks from other people who have no idea what else to do or say. I am very anxious for our baby to be born so we can finally meet him and get on with things! Mom to , 5, 3 1/2 and baby boy due 7/13/02 Re: hello! > Our local group does all that it can to educate the medical profession. I > don't doubt there are still plenty of them giving out misinformation to new > parents. In our local hospitals there are well meaning people touting certain > therapies for DS to these new parents that also paint a negative picture of > what their child with DS will be like if they don't use a particular therapy. > They also describe untrue caricatures of people with DS, so new parents can > be bombarded with absolute falsehoods from many sources. > > But I will tell you something else too. Not all the pictures they paint are > as grim as what unshakeable image the parents may already have. Sometimes the > messages they receive from professionals about DS become shaded by their own > misconceptions. Some of the people that chosen abortion here do so after they > have met our parents, seen our kids pictures, listened to our stories. They > tell us " we don't want our child to suffer in this world " and there is no > convincing them that is not the case. I sometimes think that the decisions > they make are based on what they feel their lives will be like caring for a > child or the shame and embarrassment they may feel having a child that is MR. > > I cannot tell you how many times I say my thanks that we did not have a > prenatal diagnosis and were not forced to undergo what some of these parents > nowadays do. Much easier to face whatever someone says when that sweet baby > is in your arms!! > > Cheryl in VA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 In a message dated 4/14/2002 6:18:01 PM Eastern Daylight Time, kspilious@... writes: << I wish that somehow I could get hooked up where I could talk to people before they make that decision. They need to hear from positive people, not just statistics. >> , I agree with you wholeheartedly, but be careful what you say here. I got some very nasty emails from someone offline when I said I'm so glad I had my son. Kathy, Liam's mom(4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 In a message dated 4/15/2002 12:20:57 AM Central Standard Time, JB66111@... writes: > The rest of us all felt justice was served. > He was a real SOB anyway. they have been divorced now for some years. HI I love this story and never get tired of hearing it heehee Kathy mom to Sara 10 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 << I am very anxious for our baby to be born so we can finally meet him and get on with things! Mom to , 5, 3 1/2 and baby boy due 7/13/02>> Oh me too, ! I know he will bring such joy into your lives...just as all children do! Gail, mom to Ted (10) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2002 Report Share Posted April 15, 2002 Since he's well over 6 feet tall it was a long way down. He said he woke up and saw all these feet in shoes a round him and wondered why they were standing on his bed. The rest of us all felt justice was served. He was a real SOB anyway. they have been divorced now for some years. Jessie, Mom to , 37 and the light of my life. ~~~~~~~~~~~~~~~~~~~~~~~ This is an amusing story, Jessie! hehe... Gail Quote Link to comment Share on other sites More sharing options...
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