RE: second operation at 20 mths old

[Guest guest]

Hi

My daughter Sam is 4 years old and will be going next week for her to have surgery. This time around they are going to be replacing the slings with the muscle for her leg. I have never heard of a surgeon having to wait due to irratation under the skin from the sling. I was wondering if you had any signs that something was wrong? I too am worried about my little girl being scared of what is going on around her, I think this is normal for us moms to feel that way. Good luck!

Thanks

Barga

> blepharophimosis > From: mparker81@...> Date: Tue, 22 Mar 2011 20:21:23 +0000> Subject: blepharophimosis second operation at 20 mths old> > Hi,> > my little girl Lacey has her second operation this Friday. The surgeon is having to take out her slings and leave them out for three weeks because apparently there is a bit of an irratation under her skin due to the sling on the right eye. he is then putting new slings in once the area has healed. has anyone else ever heard of this happening?> > im feeling a lot better about this surgery than i did last time when she was only 11 weeks old, as i know her eyesight is ok. i am worried though that she will be scared as she is such a clued up little girl.> > > > ------------------------------------> >

[Guest guest]

Hi ,

thanks for replying to me, i accidently pressed send before i got chance to

finish my message. They noticed that something was not quite right with her

right eye as she kept getting 'boil like' lumps and swelling under her forehead.

you could see the silicone rod all inflamed underneath. it comes and goes but

just recently she has been getting these problems almost every few days now,

this is why they have decided to remove the slings and put new ones in. she is

also having the inner corners done at the same time. im so anxious today but i

know it is for her own good as she bumps into things such a lot due to her not

being able to see at the side of her like other kids, she has to turn her head

to see.

my surgeon has suggested sticking to silicone rods for the rest of her life as

he believes it is a good thing and is convinced she wont have any more problems

with it. im not so sure so i think i am considering what your little girl is

having done, the muscle from the leg. i think that will be in a few years time.

Has anyone out there had surgery done by Mr Parulekar at Birmingham Childrens

Hospital in the UK? if so i would love to know how you got on....

Thanks so much

(Laceys Mom)x

>

>

> Hi

>

> My daughter Sam is 4 years old and will be going next week for her to have

surgery. This time around they are going to be replacing the slings with the

muscle for her leg. I have never heard of a surgeon having to wait due to

irratation under the skin from the sling. I was wondering if you had any signs

that something was wrong? I too am worried about my little girl being scared of

what is going on around her, I think this is normal for us moms to feel that

way. Good luck!

>

> Thanks

> Barga

>

> > blepharophimosis

> > From: mparker81@...

> > Date: Tue, 22 Mar 2011 20:21:23 +0000

> > Subject: blepharophimosis second operation at 20 mths old

> >

> > Hi,

> >

> > my little girl Lacey has her second operation this Friday. The surgeon is

having to take out her slings and leave them out for three weeks because

apparently there is a bit of an irratation under her skin due to the sling on

the right eye. he is then putting new slings in once the area has healed. has

anyone else ever heard of this happening?

> >

> > im feeling a lot better about this surgery than i did last time when she was

only 11 weeks old, as i know her eyesight is ok. i am worried though that she

will be scared as she is such a clued up little girl.

> >

> >

> >

> > ------------------------------------

> >

> >