Guest guest Posted August 1, 2010 Report Share Posted August 1, 2010 Hi Shireen, I would love that - I would be travelling from Ireland and 28th of November would suit me best, Best Regards, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2010 Report Share Posted August 1, 2010 is england not in europe? ;-)) salut, dolph blepharophimosis UK get-together Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2010 Report Share Posted August 1, 2010 Hi Shireen, I’d be good with any of the proposed dates. Thanks very much for organising :-) Take care, Singer London From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Shireen Mohandes Sent: 01 August 2010 11:12 blepharophimosis Subject: blepharophimosis UK get-together Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England __________ Information from ESET Smart Security, version of virus signature database 5329 (20100731) __________ The message was checked by ESET Smart Security. http://www.eset.com __________ Information from ESET Smart Security, version of virus signature database 5331 (20100801) __________The message was checked by ESET Smart Security.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2010 Report Share Posted August 2, 2010 ooh yes please, The Teale family can make any of those dates. How fabulous Shireen thanks Clare x From: Shireen Mohandes <shireen@...>Subject: blepharophimosis UK get-togetherblepharophimosis Date: Sunday, 1 August, 2010, 11:11 Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireenhartsdale (DOT) co.uk) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2010 Report Share Posted September 14, 2010 Hi Shireen, as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper If there is still some choice, I would prefer 28th of November as mentioned before.Talk to you soon, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 Hi Kasia Yes – you are right – we should set a date … and 28th November is a good day … so let’s go with that date. Please can people let me know if they are able to come / might be coming … no hurry to reply. Thanks Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla Sent: 14 September 2010 21:55 blepharophimosis Subject: Re: blepharophimosis UK get-together Hi Shireen, as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper If there is still some choice, I would prefer 28th of November as mentioned before. Talk to you soon, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 28th nov is good for the TealesclareFrom: Shireen Mohandes <shireen@...>Subject: RE: blepharophimosis UK get-togetherblepharophimosis Date: Wednesday, 15 September, 2010, 0:27 Hi Kasia Yes – you are right – we should set a date … and 28th November is a good day … so let’s go with that date. Please can people let me know if they are able to come / might be coming … no hurry to reply. Thanks Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla Sent: 14 September 2010 21:55 blepharophimosis Subject: Re: blepharophimosis UK get-together Hi Shireen, as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper If there is still some choice, I would prefer 28th of November as mentioned before. Talk to you soon, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 I can't wait Kasia 2010/9/15 Shireen Mohandes <shireen@...> Hi Kasia Yes – you are right – we should set a date … and 28th November is a good day … so let’s go with that date. Please can people let me know if they are able to come / might be coming … no hurry to reply. Thanks Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla Sent: 14 September 2010 21:55blepharophimosis Subject: Re: blepharophimosis UK get-together Hi Shireen, as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper If there is still some choice, I would prefer 28th of November as mentioned before. Talk to you soon, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2010 Report Share Posted September 15, 2010 we should be there too Caroline, Neil & Todd > > Hi Kasia > > Yes - you are right - we should set a date . and 28th November is a good day > . so let's go with that date. > > Please can people let me know if they are able to come / might be coming . > no hurry to reply. > > Thanks > > Shireen > > London, England > > > > From: blepharophimosis > [mailto:blepharophimosis ] On Behalf Of Kasia Bierla > Sent: 14 September 2010 21:55 > blepharophimosis > Subject: Re: blepharophimosis UK get-together > > > > > > Hi Shireen, > > > > as November is getting closer I was wondering, did you decide on the date > already - I'm asking as I would like to book my flights in advance as this > might be cheaper > > > > If there is still some choice, I would prefer 28th of November as mentioned > before. > > > > Talk to you soon, > > > > Kasia > > > > 2010/8/1 Shireen Mohandes <shireen@...> > > > > Hi > > How about meeting up for a coffee sometime in the autumn? Anyone who would > like to come along is welcome. Perhaps people living in Europe may like join > us? > > If we plan it for November, that should allow us enough time. > > Here are some dates: > > Sunday 7th November > > Sunday 14th November > > Sunday 21st November > > Sunday 28th November. > > Normally we meet for coffee around 11:00 am, somewhere not too far away from > Stations. > > Please can people reply to the board or directly to me > (shireen@...) and I will try and arrange it for the date that > suits most people. > > If you are from the USA and planning to visit London - do let me know and > I'll try to fit in this coffee morning around your trip plans. Normally > November is a very in-expensive time to travel. > > Take care > > Shireen Mohandes > > London, England > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2010 Report Share Posted September 16, 2010 Hi, I’m good for Sunday 28th November as well.  Looking forward to meeting up with everyone again. Many thanks for organising Shireen :-) Kind regards to all, :-) From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Clare Teale Sent: 15 September 2010 08:11 blepharophimosis Subject: RE: blepharophimosis UK get-together 28th nov is good for the Teales clare --- On Wed, 15/9/10, Shireen Mohandes <shireen@...> wrote: From: Shireen Mohandes <shireen@...> Subject: RE: blepharophimosis UK get-together blepharophimosis Date: Wednesday, 15 September, 2010, 0:27 Hi Kasia Yes – you are right – we should set a date … and 28th November is a good day … so let’s go with that date. Please can people let me know if they are able to come / might be coming … no hurry to reply. Thanks Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla Sent: 14 September 2010 21:55 blepharophimosis Subject: Re: blepharophimosis UK get-together Hi Shireen, as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper If there is still some choice, I would prefer 28th of November as mentioned before. Talk to you soon, Kasia 2010/8/1 Shireen Mohandes <shireen@...> Hi How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? If we plan it for November, that should allow us enough time. Here are some dates: Sunday 7th November Sunday 14th November Sunday 21st November Sunday 28th November. Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. If you are from the USA and planning to visit London – do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. Take care Shireen Mohandes London, England Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2010 Report Share Posted September 22, 2010 Our daughter Millie has recently been diagnosed with bpes, she's now 13 weeks. It doesn't run in the family and we had never heard of the condition before so are in the process of learning as much as we can to get the best for her. We are being seen at Kingston eye unit and so far so good but would love to come along on 28th november to find out more from others who have gone through the surgeries etc. belle > > > From: Shireen Mohandes <shireen@...> > Subject: RE: blepharophimosis UK get-together > blepharophimosis > Date: Wednesday, 15 September, 2010, 0:27 > > > > Hi Kasia > > Yes †" you are right †" we should set a date … and 28th November is a good day … so let’s go with that date. > > Please can people let me know if they are able to come / might be coming … no hurry to reply. > > Thanks > > Shireen > > London, England > > > > From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla > Sent: 14 September 2010 21:55 > blepharophimosis > Subject: Re: blepharophimosis UK get-together > > > > > > Hi Shireen, > > > > as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper > > > > If there is still some choice, I would prefer 28th of November as mentioned before. > > > > Talk to you soon, > > > > Kasia > > > > 2010/8/1 Shireen Mohandes <shireen@...> > > > > Hi > > How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? > > If we plan it for November, that should allow us enough time. > > Here are some dates: > > Sunday 7th November > > Sunday 14th November > > Sunday 21st November > > Sunday 28th November. > > Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. > > Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. > > If you are from the USA and planning to visit London †" do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. > > Take care > > Shireen Mohandes > > London, England > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2010 Report Share Posted September 24, 2010 Hi belle Welcome to the group. And thank you for telling us about little Millie. I am sure that Kingston eye unit is a fine place, but it might be good to have her seen at Moorfields where so many people with BPES are seen and treated. There is a lot to learn, and this is a good group. You’ll get plenty of support from us. Look forward to seeing you on 28th November. Take care Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of annabellehoad Sent: 22 September 2010 13:31 blepharophimosis Subject: blepharophimosis Re: UK get-together Our daughter Millie has recently been diagnosed with bpes, she's now 13 weeks. It doesn't run in the family and we had never heard of the condition before so are in the process of learning as much as we can to get the best for her. We are being seen at Kingston eye unit and so far so good but would love to come along on 28th november to find out more from others who have gone through the surgeries etc. belle > > > From: Shireen Mohandes <shireen@...> > Subject: RE: blepharophimosis UK get-together > blepharophimosis > Date: Wednesday, 15 September, 2010, 0:27 > > > > Hi Kasia > > Yes †" you are right †" we should set a date … and 28th November is a good day … so let’s go with that date. > > Please can people let me know if they are able to come / might be coming … no hurry to reply. > > Thanks > > Shireen > > London, England > > > > From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla > Sent: 14 September 2010 21:55 > blepharophimosis > Subject: Re: blepharophimosis UK get-together > > > > > > Hi Shireen, > > > > as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper > > > > If there is still some choice, I would prefer 28th of November as mentioned before. > > > > Talk to you soon, > > > > Kasia > > > > 2010/8/1 Shireen Mohandes <shireen@...> > > > > Hi > > How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us? > > If we plan it for November, that should allow us enough time. > > Here are some dates: > > Sunday 7th November > > Sunday 14th November > > Sunday 21st November > > Sunday 28th November. > > Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations. > > Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people. > > If you are from the USA and planning to visit London †" do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel. > > Take care > > Shireen Mohandes > > London, England > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2010 Report Share Posted September 26, 2010 Hi belle, welcome and looking forward to meeting you at the get together. Me and my daughter (now 15) Emy have BPES, and have both had operations at Moorfields. Clare Hertfordshire UK From: Shireen Mohandes <shireen@...>Subject: RE: blepharophimosis Re: UK get-togetherblepharophimosis Date: Friday, 24 September, 2010, 9:00 Hi belle Welcome to the group. And thank you for telling us about little Millie. I am sure that Kingston eye unit is a fine place, but it might be good to have her seen at Moorfields where so many people with BPES are seen and treated. There is a lot to learn, and this is a good group. You’ll get plenty of support from us. Look forward to seeing you on 28th November. Take care Shireen London, England From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of annabellehoadSent: 22 September 2010 13:31blepharophimosis Subject: blepharophimosis Re: UK get-together Our daughter Millie has recently been diagnosed with bpes, she's now 13 weeks. It doesn't run in the family and we had never heard of the condition before so are in the process of learning as much as we can to get the best for her. We are being seen at Kingston eye unit and so far so good but would love to come along on 28th november to find out more from others who have gone through the surgeries etc.belle> > > From: Shireen Mohandes <shireen@...>> Subject: RE: blepharophimosis UK get-together> blepharophimosis > Date: Wednesday, 15 September, 2010, 0:27> > > > Hi Kasia> > Yes â€" you are right â€" we should set a date … and 28th November is a good day … so let’s go with that date.> > Please can people let me know if they are able to come / might be coming … no hurry to reply.> > Thanks> > Shireen > > London, England> > > > From: blepharophimosis [mailto:blepharophimosis ] On Behalf Of Kasia Bierla> Sent: 14 September 2010 21:55> blepharophimosis > Subject: Re: blepharophimosis UK get-together> > > > > > Hi Shireen, > > > > as November is getting closer I was wondering, did you decide on the date already - I'm asking as I would like to book my flights in advance as this might be cheaper > > > > If there is still some choice, I would prefer 28th of November as mentioned before.> > > > Talk to you soon, > > > > Kasia > > > > 2010/8/1 Shireen Mohandes <shireen@...>> > > > Hi> > How about meeting up for a coffee sometime in the autumn? Anyone who would like to come along is welcome. Perhaps people living in Europe may like join us?> > If we plan it for November, that should allow us enough time.> > Here are some dates:> > Sunday 7th November> > Sunday 14th November> > Sunday 21st November> > Sunday 28th November.> > Normally we meet for coffee around 11:00 am, somewhere not too far away from Stations.> > Please can people reply to the board or directly to me (shireen@...) and I will try and arrange it for the date that suits most people.> > If you are from the USA and planning to visit London â€" do let me know and I’ll try to fit in this coffee morning around your trip plans. Normally November is a very in-expensive time to travel.> > Take care> > Shireen Mohandes> > London, England> Quote Link to comment Share on other sites More sharing options...
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