insurance problems-grandma aggie

[Guest guest]

We do not have any insurance problems because all medical procedures etc are

covered by provincial healthcare here in Canada, however we have some BPES

friends in the USA, they too had insurance closing the door, their surgeon wrote

a letter to the insurance company, they had surgery a week later.

here is a partial edited copy of it

I currently see xyz child and this child has been seen in my practice since

2005, this said child has a genetic defect called Blepharophimosis Ptosis

Epicanthus Inversus, this is not a cosmetic defect but a genetic mutation within

the childs DNA,This genetic disorder can be pretty severe if left untreated with

surgery. This said child has 87% of their vision obstructed by their upper

eyelids and no eyelid muscle to lift the lids out of their vision. If this said

child does NOT receive surgery within the next 6 months their vision will be

altered, the altered vision is not repairable but it is preventable. This said

child will then be dealing with a lifetime of legal blindness and complete

vision problems. This to me will take up more insurance funds then a simple brow

suspension surgery that will prevent many problems sooner than later in life.

etc... etc....

Tonikka (Lynden)

Edmonton CANADA

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> My grandson is supposed to have surgery in Houston, Texas later this month.

We were not aware of any doctors in San . How old is your daughter? It

is usually the sling surgery first, but circumstances are different with each

case.

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> The problem we are having is my son's insurance company is trying to refuse

the surgery and saying it is only cosmetic. We are prepared to go to the state

insurance board, if necessary. Has your insurance given you any trouble about

covering the procedure??

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> Has anyone else had troubles with insurance?? Shireen has anyone else had to

deal with this lack of knowledge and understanding of this condition??

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> Grandma Aggie (Janel)

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> Trying to join group...

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> I am trying to join the group Blepharophimosis and have been waiting a

few days now for a response. Both of my daughters and my husband have BPES and

we are currently at the point were our daughter has to undergo surgery and I

would be really grateful to be accepted into the group. Is there any way to

expedite the process of being added to the group?

> Hayley

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