re

March 2, 2002

Hi Vicky

I wish you would reconsider leaving the group. Just remember that it is here

in case you want to come back. I'll keep you in my prayers.

[ ] re

> Sorry to be bringing out everyones Defenses. The group does not need

> thorns on the beautiful rose so I have decided to leave this group.

> It is nothing personal and I thank everyone for the support that I've

> received. I just don't feel that at this time in my life, that this

> is the group for me. I recall many newcomers that were hardly

> included at all. It seems the laughter and joking among the few was

> always the main priority. Yeah, I agree that we can not always focus

> on the negative or talk about every little ache and pain we suffer

> but I feel that we are fighting a deadly disease that devastates many

> and that disease should be a primary purpose. I mean isn't that what

> a support group is??? Anyone here who is a part of AA or any other

> 12 step program should know what I'm talking about. We are all

> entitled to our feelings and these are mine. Please, don't anyone

> feel that they need to defend themselves. I am happy that those here

> feel that they have the type of support they need however, as I said

> before, at this time its not for me. I wish everyone all the luck

> and health in the world.

>

> Vicky

>

March 4, 2002

Sorry to see you go, Vicky. As in AA, if you don't

like the meeting you're in, find another one. Good

luck. I'm glad to have known you even if just a little

bit. -dz-

--- viclea227 <VicLea227@...> wrote:

> Sorry to be bringing out everyones Defenses. The

> group does not need

> thorns on the beautiful rose so I have decided to

> leave this group.

> It is nothing personal and I thank everyone for the

> support that I've

> received. I just don't feel that at this time in my

> life, that this

> is the group for me. I recall many newcomers that

> were hardly

> included at all. It seems the laughter and joking

> among the few was

> always the main priority. Yeah, I agree that we can

> not always focus

> on the negative or talk about every little ache and

> pain we suffer

> but I feel that we are fighting a deadly disease

> that devastates many

> and that disease should be a primary purpose. I

> mean isn't that what

> a support group is??? Anyone here who is a part of

> AA or any other

> 12 step program should know what I'm talking about.

> We are all

> entitled to our feelings and these are mine.

> Please, don't anyone

> feel that they need to defend themselves. I am

> happy that those here

> feel that they have the type of support they need

> however, as I said

> before, at this time its not for me. I wish

> everyone all the luck

> and health in the world.

>

> Vicky

>

__________________________________________________

July 27, 2004

, no one wants to be accountable anymore. It is a national shame that most

people do not vote!

Big business...indeed...how much are they spending on the democratic and

republican conventions!

The press and other news media are not unbiased and big business commercials pay

them a lot of

money. It is broken! Broken or not, our quality of life is so much better than

so many countries.

We need to work to keep it that way. ACCOUNTABILITY!

You are so right about the physicians responsibility! I actually have a dr that

that warned me

about a surgeon by telling me " Things happen to that dr's patients and you have

probably saved

your life by calling me. " There are sites to check out your dr but they don't

tell you the

particulars. Every dr should have a resume that is available to patients. The

questions you posed

are ones that I have asked on numerous occasions. We must take responsibility

for making informed

decisions about our healthcare and that includes make the docs slow down,

listen, and answer our

questions. Instead of prescribing pain meds, my ex-rheumy wanted me to see a

group of pain

management specialists. I made the appt. and called back the next day to ask

them if they provided

pain management in the form of medications and they told me no. I canceled the

appt. I had already

gone that route...seeing a group that included a physical therapist, a

psychologist, nutritionist,

internist and a pain management specialist. They wanted me to take shots

(already did that on

numerous times and ended up with worse problems), exercise (which I did in my

own pool),

bio-feedback, and anti-inflammatories. If those things were all it took to heal

me, I would

gladly participate.

There is no excuse for letting people live in pain! You have the right idea

about asking the docs

to step up to the plate and get the DEA out of their prescribing business!

--- <Matsumura_Clan@...> wrote:

> Iris, you are bringing out the cynical side of me with your post. I'm

> writing from the land of Lincoln, and I do believe the government SHOULD

> BE of the people, by the people, and for the people. Unfortunately, in

> reality, big business and big money run the country.

>

> The percentage of people eligible to vote who actually do is

> pathetically low. The candidates to choose from are, generally, not

> ideal. The system is broken. A democracy in name only.

>

> I've lived in the Chicago area all my life. Here, corruption and

> politics go hand in hand. A way of life.

>

> Back to the main topic ...

>

> There are many groups to blame in the pain treatment problem. Physicians

> have to stop faulting only the lawyers, insurers, and the DEA, and act.

> Their voices are more powerful than those of the lowly patients.

>

> While they are at it, it would be nice if physicians could work on

> providing consumers across the country with information about

> individual physicians so that choosing a doctor would not be fraught

> with so much trial and error.

>

> Wouldn't it be nice to know up front whether a physician prescribes

> opioids? Or if they have been involved in multiple lawsuits and what the

> outcomes were? How many patients they have? On average, how long do the

> patients stay? What type of insurance is accepted? How old is the

> physician? Where did he/she receive training? Top of the class? In what

> sort of continuing education does he/she participate?

>

> All is not lost, for the pharmaceutical giants who make some of the

> priciest pain meds are on the side of the patient.

>

> I'll tell you where to go!

>

> Mayo Clinic in Rochester

> http://www.mayoclinic.org/rochester

>

> s Hopkins Medicine

> http://www.hopkinsmedicine.org

>

> Re: [ ] RE; pain killers

>

> > Hi ,

> >

> > You know what a hard time I had getting pain meds last year and for

> our new members, I will repeat

> > my story. My rhuemy would not prescribe pain meds and when I asked him

> why, he suggested that I

> > contact by GP to manage my pain. He told me that there were too many

> lawyers in Dallas and that

> > malpractice insurance is too high. I asked him why he was a dr if he

> couldn't meet all of his

> > patients' needs. Thank goodness that I have a long-term relationship

> with my GP and he provides my

> > pain meds. I agree with June that we do not feel ephoria when we take

> our pain meds only some

> > relief in pain.

> >

> > Here is Texas we have to get a triplicate form for controlled

> substances. My doc will prescribe me

> > Fentanyl patches for bad flares but wants to keep me off

> time-released meds such as Oxy. I plan

> > on speaking to him about this. I find that I spend a good deal of time

> in fear of not taking my

> > pain meds and feeling terrible pain for the next several hours. Always

> watching the clock while I

> > am away from home to make sure that my pain is covered is very

> difficult, especially in a social

> > situation. We should not have to live this way!

> >

> > What Dix said about not being able to physically pick up a

> prescription and having it filled at

> > the pharmacy is something I never thought of. I recall my father

> being on morphine as he was

> > dying (at home) from Leukemia and can't imagine the stress my mother

> would have felt when she

> > couldn't honor his request to die at home because she couldn't have

> his prescription filled.

> >

> > We need to do something about this! Can we begin circulating a

> Patient's Rights to Have Pain

> > Control Medications petition and send it to Washington. I have already

> called my Representative

> > from Texas. The last time I checked, this was still a government for

> the people and if we all let

> > our voices be heard, perhaps we can affect a change.

> >

> > I know that terrible tragedies happen to people when medical mistakes

> are made but no amount of

> > money will change what happened. Certainly, lifetime medical bills

> and support should be paid for

> > those that are severely hurt. I do agree with having a cap on the

> amount that is paid for pain and

> > suffering. Even if a jury awards a billion dollar settlement, the

> judge can overturn it and decide

> > which amount should be paid. I do feel that we need to hold drs

> accountable but can you do your

> > own job perfectly? There are a lot of procedural changes that are

> being made in hospitals to cut

> > down on errors. There need to be more systems of checks and balances

> and the state agencies need

> > to weed out the " bad " docs. It is a shame when there are not enough

> docs because they can't afford

> > malpractice insurance. Regardless of what commercials show, insurance

> is not a public service, it

> > is big business. I really hate the commercials for a local lawyer that

> has clients saying how much

> > he got them for their accidents. So...it is a viscous circle...no docs

> due to high cost of

> > insurance because the insurance companies have to pay large

> settlements because the people file

> > lawsuits and then find that their docs have decided to stop their

> practices because he can't

> > afford the insurance. I don't know how we are going to find a

> solution. Certainly it will be found

> > by the people demanding change.

> >

> > I would love to hear everyone's thoughts on these problems. Iris

>

October 20, 2006

Someone correct me if I'm wrong, but isn't the term 'mildew' MEANINGLESS?

Mildew IS Mold.

There is no species called mildew..

Basically, all molds are mold.. There are lots of different kinds of fungi..

but 'mildew' is not a technical term for any of them..

So, 'Mildew' IS mold, but marketing people have determined that the term

'mildew' is less scary to people so they use it to attempt to minimalize the

psychological impact of mold in a situation...

So, its not a dumb question at all.. You are right to get suspicious

whenever they use the term 'mildew' because it shows a certain

'sophistication in dishonesty' that you should be aware perhaps indicates

that whoever is using it is reading books or whatever on how to lie more

effectively about this subject....

On 10/20/06, <toriaquilts@...> wrote:

>

> DUMB QUESTION, I KNOW--BUT DOES MILDEW AFFECT US THE SAME AS MOLDS? AND

> ISN'T IT ALL THE SAME? I'M JUST CURIOUS THIS A.M., LOL!

>

> VICKI

>

October 20, 2006

Me too!!!!

[] RE

DUMB QUESTION, I KNOW--BUT DOES MILDEW AFFECT US THE SAME AS MOLDS? AND ISN'T

IT ALL THE SAME? I'M JUST CURIOUS THIS A.M., LOL!

VICKI

February 25, 2007

HEY GANG, I copied & pasted this website, & they said the page isn't available,

etc.....I'd really love to see this, can somebody help?

www.myspace.com/faceoftoxicmold

February 25, 2007

All, You have to type in: http://myspace.com/faceoftoxicmold

to get this page. Darlene

<toriaquilts@...> wrote: HEY

GANG, I copied & pasted this website, & they said the page isn't available,

etc.....I'd really love to see this, can somebody help?

www.myspace.com/faceoftoxicmold

February 25, 2007

THANKS--

V.

Re: [] Fw: re

All, You have to type in: http://myspace.com/faceoftoxicmold

to get this page. Darlene

<toriaquilts@...> wrote: HEY GANG, I copied & pasted this

website, & they said the page isn't available, etc.....I'd really love to see

this, can somebody help?

www.myspace.com/faceoftoxicmold

February 25, 2007

I JUST TRIED IT AGAIN, & IT SAYS " DOESN'T MATCH ANY DOCUMENTS. " GRRRRRRRRRRRRRR

ME

Re: [] Fw: re

All, You have to type in: http://myspace.com/faceoftoxicmold

to get this page. Darlene

<toriaquilts@...> wrote: HEY GANG, I copied & pasted this

website, & they said the page isn't available, etc.....I'd really love to see

this, can somebody help?

www.myspace.com/faceoftoxicmold

February 25, 2007

Vicki, type it in your google search bar. Darlene

<toriaquilts@...> wrote: I JUST

TRIED IT AGAIN, & IT SAYS " DOESN'T MATCH ANY DOCUMENTS. " GRRRRRRRRRRRRRR

ME

Re: [] Fw: re

All, You have to type in: http://myspace.com/faceoftoxicmold

to get this page. Darlene

<toriaquilts@...> wrote: HEY GANG, I copied & pasted this

website, & they said the page isn't available, etc.....I'd really love to see

this, can somebody help?

www.myspace.com/faceoftoxicmold

February 25, 2007

I FINALLY GOT IT TO OPEN, THANKS KIDDO!

ME

Re: [] Fw: re

All, You have to type in: http://myspace.com/faceoftoxicmold

to get this page. Darlene

<toriaquilts@...> wrote: HEY GANG, I copied & pasted this

website, & they said the page isn't available, etc.....I'd really love to see

this, can somebody help?

www.myspace.com/faceoftoxicmold

September 28, 2007

O-o-o-o.......So glad you asked!!!! I need to know myself. About 3 years ago,

I got a bulging disk while living in a toxic apartment. Was told by my GP that

if I didn't have immediate surgery, I would be paraplegic. He sent me to the

world's worst neurosurgeon who dragged his heels until I was in a wheelchair

then did the by-then fruitless surgery. I didn't know this could happen. I

have been totally wheelchair dependent for about 2 years now. Me? In a

wheelchair? That only happens to other people.

Now I'm sitting here on wheels trying to figure out how the heck this

happened. It started as sciatica and now my right leg is fully contractured and

I can't walk anymore. Is that even possible? Yes, I wonder if toxic mold could

have caused this. BTW.......my husband died in that apartment.

Betsy

<toriaquilts@...> wrote:

Does anybody remember reading someplace where inhaled toxic molds will

travel to, and/or cause inflammation in the area of the body which is already in

some way injured? Specifically, like a herniated and/or bulging disc, etc?

Thanks,

V.

September 28, 2007

you might find something under a " spinal fungal infection " search

I have DDD half way up my back and a few buldged disks and theres no

dought in my mind what caused it.was told by one doctor that saw me

that I had ostioarthritis going up my back. I did some research a

long time ago and I believe the fungal infections cause sponal cord

adhesion and DDD witch set us up for buldging disks and also fell

that this in some way may play a role in palsy type symptoms in the

lower extremes with some re-exposures to mycotoxins, just my

thoughts. if you find something please post it.

--- In , Sinkey <westoo@...>

wrote:

>

> O-o-o-o.......So glad you asked!!!! I need to know myself. About

3 years ago, I got a bulging disk while living in a toxic apartment.

Was told by my GP that if I didn't have immediate surgery, I would be

paraplegic. He sent me to the world's worst neurosurgeon who dragged

his heels until I was in a wheelchair then did the by-then fruitless

surgery. I didn't know this could happen. I have been totally

wheelchair dependent for about 2 years now. Me? In a wheelchair?

That only happens to other people.

> Now I'm sitting here on wheels trying to figure out how the heck

this happened. It started as sciatica and now my right leg is fully

contractured and I can't walk anymore. Is that even possible? Yes,

I wonder if toxic mold could have caused this. BTW.......my husband

died in that apartment.

> Betsy

>

September 28, 2007

HI BETSY! AND I'M SOOOOOO GLAD YOU WROTE~~!! I had acute (now chronic)

transverse myelitis, caused (yes!) by toxic mold inhalation. It caused an acute

inflammation/demyelination of my spinal cord..... & I was also in a w/c for

months--relearning to walk, with EVERY ounce of energy & determination I had! I

now walk with a cane.....

Transverse myelitis is supposed to have a 1-5 case per million population

incidence......however, in this town of 20,000 people, there are at least 8

cases....ALL connected to a public " health care facility " with toxic molds.

Take care-- & write me back channel, if you want more info. Where are YOU?

September 28, 2007

thanks!

v.

[] Re: re