an update

[Guest guest]

Dear Trisha,

What a great relief to hear she is doing better. I have been praying since

you sent your message. I, like Tami have complete faith in her full

recovery. I just know she can overcome anything. Her spirit is so strong and

she has so many praying for her.

My mother suffered a mild stroke many years ago and had a full recovery, so

I will believe with all my heart that Tami will do the same.

Please give her a big hug from her " second Mother " and tell her that I will

continue to pray until she is fully recovered.

The first step in every prayer is to have faith as if the prayer was already

answered. I will pray that way and know that she will be back with us soon.

We will miss her sharing and caring, but I know we will feel her spirit here

every day, giving encouragement where needed.

Give her my heartfelt best wishes, and my love,

Rashelle

You are welcome to visit us at http://www.angelmagic.com or

http://www.lifelift.com

join our discussion group at LifeLift-subscribeonelist

an update

> Dear Friends of Tami,

> This is an update of Tami's progress and the prognosis as of now. She is

in

> stable condition, having suffered a mild stroke. She has a small amount

of

> paralysis on her right side but has no loss of movement. She is

conscious,

> and in good spirits. Her right eye has a major infection behind the

> implanted lens, which is causing her quite a bit of pain and loss of sight

in

> that eye. Everyone is very hopeful that this will not be permanent, and

that

> her vision will be restored with elimination of the infection and virus.

She

> is claiming a full recovery and vows to be back to normal by the end of

the

> week. This may sound unthinkable to many, but if you know Tami very well,

you

> know that when she decides something, no matter how outrageous or

> unbelievable, she usually finds a way to get it or make it happen. She is

> very strong willed and believes in her goal and dreams.

> She sends her warmest thanks for the prayers being offered on her behalf.

> She sends a special thank you to " Her second mother " as she puts it.

> Tami will come home either later this evening or tomorrow morning, with

full

> time care, until she is able to tend to herself. No visitors are allowed

at

> this time, in that she is highly at risk of infection. This is the reason

we

> have pushed so hard to have her removed from the hospital, it has always

> seemed to be a breading ground for illness.

>

> Thank you for your time, prayers and good wishes. I will continue to

check

> email, telephone messages and regular mail, for those that would care to

send

> her any thoughts.

> Sincerely,

> Trisha

> Tami's youngest sister

>

>

[Guest guest]

Congratulations ! Sounds like you are doing terrific!

[Guest guest]

Hi !

Wonderful update and great progress! Congratulations!

More power to you in your transformation,

> Wow! This week has been great for new ideas & advice. I'm

loving this

> list. All the food advice has helped me out a lot. I think I'm

managing

> quite well, giving in to only a few chocolate cravings.

>

> As I'm relatively new & have been quite quiet, here's a quick

re-cap of

> where I'm at.

>

> Started: Nov. 13 last year (with my husband), took 1.5 weeks off

over

> the holidays

>

> Weight: went from 255 - 236 (19 pounds!!!!) and my waist has

shrunk

> over 3 belt holes. Oh, and I'm starting to get muscles

>

> I started a new job the day I started BFL, and you can already

see

> a change looking at my ID badge!

>

> People have been talking about tracking training. After about 4

weeks

> I noticed I didn't really have a good grip on whether or not I was

> making progress with the weights. I have since put everything

into

> Excel, and then I can easily see how long I've been doing a

particular

> excercise. I also colour code my progress - green when the

weight goes

> up, orange when it goes down. I'm now a lot more focussed

and I think

> I'm increasing more than I would have otherwise.

>

> My next thing is to get a tape measure and perhaps some

calipers

> so that I can get a better picture of what's going on. I *know* the

scale

> doesn't tell the whole story. I'm reminded of that every time I get

dressed!

>

> Oh, and I've also signed up for spinning classes. Since I work

out at home

> by myself, I thought it might be fun & help motivate me if I did at

least

> something with a group of people. I've been to one class so

far, and I

> survived it quite well. I know I couldn't have done that before I

started

> BFL.

>

> My husband & I are just thrilled with how things are going. And

now I'm

> really looking forward to softball season! For the first time in 5

years,

> I'll almost be in shape for it.

>

>

[Guest guest]

Congratulations .

Cheryl C.

[Guest guest]

Can you email me some info on how you got service

related AND the pension too? Did they grade your

disability and how much do you get??<br><br>My email addy is

lvogel@...<br><br>I'm a vet and got my HCV in 1974 in the Army. I'm

trying to prove my service connection as well. I also

help vets both here in CA and on the internet and your

info would really be helpful!<br><br>Thanks

alot!<br><br>LeighAnn<br><a href=http://www.geocities.com/hepvet

target=new>http://www.geocities.com/hepvet</a><br><a

href=http://www.geocities.com/1Leighann

target=new>http://www.geocities.com/1Leighann</a>

[Guest guest]

Chroma601,

It was one of our members here, Brad, that suggested for those of us on 10

G/AG/dy, consider splitting into AM/PM doses of 5 G each. I do that...I

routinely shave inner thighs and abdomen and use bottom of Gerber's baby

food jar as an applicator.

Below is lab work 29 and 96 dys after beginning 10 G/dy/AG

12-5-01 - 29 dy 3-11-02 - 96 dy

Tests Serum 750 704 (241- 827)

%Free & Weak 47.7 37.6 (18.3 - 62.3)

F & W bound 357.7 264.7 (66.6 - 276.3)

Estradiol* 50 16 (0-54)

Estrogen* 124 44 (40 - 115)

T/E2 ratio 15 44

________________________

*Controlled with Arimidex - Rx

I'm still playing around with my Arimidex dose...the estradiol of 16 and

estrogen of 44 at last bleed I think are a little on low side. Now, I'm

taking Arimidex for two days and one day off...will see how this works for

me.

Good luck,

OR eon

[Guest guest]

It is the half life of test in the bloodstream that is rather short.

AG administration doesn't deliver the systemic dose all at once. I

think there is a 24hr chart in the AG information. I seem to

remember a bit of a pulse in the hours right after application but it

wasn't huge. Obviously some may be more sensitive to swings than

others. I can't see how dividing the dose would cause any harm. I

always felt like I was running out of suitable skin surface when

applying AG so with 10g I would divide the dose into two applications

so that the layer of AG would not be so thick. I think there is a

possibility that dividing the application might increase the total

amount absorbed. The 2nd 5g would have relatively fresh, unsaturated

skin available.

I have a chart showing the conversion of cholesterol down through

estriol. There are pathways for the generation of estrone and

estriol that don't depend upon aromatase. I am not surprised that

Arimidex affects estradiol somewhat more than estrone and estriol.

I wouldn't change a dosing scheme that seems to be working. Half a

vial of test per week? That's sounds like alot of test.

Brad

> Chroma601,

>

> It was one of our members here, Brad, that suggested for those of

us on 10

> G/AG/dy, consider splitting into AM/PM doses of 5 G each. I do

that...I

> routinely shave inner thighs and abdomen and use bottom of Gerber's

baby

> food jar as an applicator.

>

> Below is lab work 29 and 96 dys after beginning 10 G/dy/AG

>

>

> 12-5-01 - 29 dy 3-11-02 - 96 dy

>

> Tests Serum 750 704 (241- 827)

> %Free & Weak 47.7 37.6 (18.3 - 62.3)

> F & W bound 357.7 264.7 (66.6 - 276.3)

>

> Estradiol* 50 16 (0-54)

>

> Estrogen* 124 44 (40 - 115)

>

> T/E2 ratio 15 44

> ________________________

>

> *Controlled with Arimidex - Rx

>

> I'm still playing around with my Arimidex dose...the estradiol of

16 and

> estrogen of 44 at last bleed I think are a little on low side.

Now, I'm

> taking Arimidex for two days and one day off...will see how this

works for

> me.

>

> Good luck,

>

> OR eon

[Guest guest]

> Chroma601,

>

> It was one of our members here, Brad, that suggested for those of

us on 10

> G/AG/dy, consider splitting into AM/PM doses of 5 G each.

I'm not doing that, as my results are good splitting the dose

between upper torso and inner thighs (I shave a patch too!).

As we're not supposed to come in skin contact with people for 5 hrs

after applying the gel, this gives me a wider window of opportunity!

[Guest guest]

Chroma601,

I've been aware of that recommendation since I began using AG Jan 2nd '01.

Unlikely that I will have contact with any children/females. I may have

intimate, physical contact with another mature male who might like a little

T spike :-).

OR eon

[Guest guest]

All right, Alys. That's wonderful progress!!

> Well, I'm in week seven, so I thought I'd give you all an update on

> my progress.

>

> So far I've lost about 11#, not as much as I had hoped for (is it

> ever!) but not too bad either. I have lost a total of 7.5 " from

> my " key areas " (Chest, waist, hip and upper thigh) and have

increased

> my lifting in many areas. I have to take " half way " pics this

week.

> If I can find a way to scan, I might get brave and post

> my " before/halfway " s. They are not pretty, I'll have to warn you!

>

> I have not given my program 100%. I have had a lot going on, blah,

> blah, blah...you all know the excuses. I'm going to knuckle down

for

> the next 7 weeks (the plan I'm doing is 99 days, just about 14

weeks)

> and hopefully I can see 189 by the end of it.

>

> Alys

[Guest guest]

Alys!!!

11 pounds!!! in 7 weeks!!!!!!!!!

Are you NUTS?? That's GREAT!!!!

You GO girl!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Hugs

[Guest guest]

Awesome job Alys!! that averages out to 1 1/2 lbs per week! and even

if you keep up with your current pace you will loose a total of 22

lbs which will be wonderful...you are making progress and that is

deffinately better than not making any at all :0)

Continued success!

Joann

[Guest guest]

Stacey,

Please don't go just yet. It sounds like you were not fully informed before you

met the birth mother. Had you been informed, you could have shared with us and

we could tell you what to expect.

I recently placed an infant with medical needs. I gave the parent all the

information - I certainly didn't sugar coat the needs the baby had. He went

home on an apnea monitor (he was drug exposed and is showing signs of delays),

which is is now off of. She told another coworker that if my intent was to

scare her, I did. My intent was to make sure she was fully informed. She did

take him home and he's flourished under her care.

I will add that you never know what medical needs may arise. My son was born

pretty healthy (over 9 lbs which is an awful lot for a baby with DS). He

developed chronic fluid in his ears and had many respiratory illnesses before he

turned 3. He was diagnosed with apraxia. At age 7, he developed seizures.

He's had about 10 now, the last one occuring on Christmas Eve and he fell down

the steps during the seizure. He also has alot of behaviors and was recently

diagnosed with ADHD. He doesn't officially have the dx of OCD, but it's there.

Had I known what wouuld happen in the future, I'd been a basketcase. But time

teaches you to take one day at a day and to count your blessings. I know many

parents whose child had to have heart surgery at a very young age - and many of

those children have grown up without the medical problems my son has.

When balancing a new baby and your children, you will figure a way to do that.

I spend quality time with each of my children. I purposely didn't get involved

on a local level because my time needed to be spent as chauffer, football mom,

cheerleader mom, etc. Whether had DS or not, he would have been a tag

along little brother. The older kid's friends are great with him.

Anyway, dont' beat yourself up over this. Do process this with your social

worker - and processing this will take time - probably several contacts over

several months. This baby will have a home soon - I know a few parents on this

list that would take another child (and they have home studies done).

Take Care,

an update

This is probably one of the hardest letters I have ever had to write

because I love being a part of this group, but right now, I'm not

feeling too worthy. Although I have never met any of you (in

person), you have all sent me kind words, I have been educated by

your posts, and I feel like I know you.

We are not going to move forward with this adoption. We still, with

all of our hearts, want to adopt a baby with down syndrome, but we

just felt we weren't able to handle the medical needs of this baby.

The story is so long and so involved, but we feel that the process

that we went through failed us. We did meet with doctors 3 weeks

ago about the baby's medical concerns, born with down syndrome & he

was 2.9 pounds at birth, and we felt comfortable to move forward.

We waited, and waited, and waited to see if we were " chosen " , and we

wanted desperately to see the baby. Yesterday, we met the birthmom

and her mom, who were very nice. The hospital said that maybe the

baby would be released that day (we thought on Friday). Right after

we met the birthmom, we all went rushing to the hospital. My

husband and I held this beautiful baby for about 10-15 minutes, when

a nurse came in, sat down, and starting telling us all the care the

baby would need. Everything she was telling us, was nothing that we

had been aware of, and she spoke so quickly and with not much

concern for my husband and me. She also was telling us this

information in front of the birth mom, and we were so uncomfortable.

(the hospital then was going to train us extensively over the next

couple of days to take care of the baby). It is hard to explain in

writing, because as I write it, it doesn't even sound remotely like

the experience we had. I wish she would have given us time with the

baby...we had just met the birthmom, we had just held the baby, and

she could have asked us to step away privately. Right after she

told us his care, the case manager came, told us a bunch of

information, wanted us to pick, on the spot, a visiting

nurse,...When we left the hospital, I was hysterical. We did meet

with the case manager for a few minutes, and explained how

overwhelmed we were by the way the information was presented to us.

I think that the adoption agency should have looked at this adoption

a little differently than their typical adoptions. Had we been able

to go to the hospital days ago, and learn the care this baby would

need, we could have had time to process it, learn more about it,

gain a comfort level, and then if we decided we weren't able to meet

the baby's needs, then we could have let them know before we met the

birth mother, and broke her heart. No one would let us see the

baby, and learn the extent of his care until yesterday.

My husband and I just feel like since we have 3 small children, and

I am a stay at home working mom, that we couldn't meet the needs of

this baby, and the children we have. I feel so badly for the way

this happened, but mostly my heart is breaking for the baby. I did

call someone who I know that can work with the agency, and hopefully

find him a home. I said I'm not sure if I am worthy to be a part of

this group because I know so many of you have faced medical needs,

and I feel shame to say that we can't.

I'm sorry this is so long, but I did want to let everyone know. And

thank you for your emails, your prayers, and your thoughts. Stacey

[Guest guest]

,

Thank goodness you tell the proposed adoptive parents everything. I

have always felt that if you just know what you could be going into and are

given the necessary information, you can then gather information to empower

yourself and in that same process become either really good, well informed

parents to this child or decline. Either way the baby is better off.

Sending a child without full disclosure into a family who is not prepared is

a disaster waiting to happen. You do your job well , keep up the good

work!! Loree

an update

>

>

> This is probably one of the hardest letters I have ever had to write

> because I love being a part of this group, but right now, I'm not

> feeling too worthy. Although I have never met any of you (in

> person), you have all sent me kind words, I have been educated by

> your posts, and I feel like I know you.

>

> We are not going to move forward with this adoption. We still, with

> all of our hearts, want to adopt a baby with down syndrome, but we

> just felt we weren't able to handle the medical needs of this baby.

> The story is so long and so involved, but we feel that the process

> that we went through failed us. We did meet with doctors 3 weeks

> ago about the baby's medical concerns, born with down syndrome & he

> was 2.9 pounds at birth, and we felt comfortable to move forward.

> We waited, and waited, and waited to see if we were " chosen " , and we

> wanted desperately to see the baby. Yesterday, we met the birthmom

> and her mom, who were very nice. The hospital said that maybe the

> baby would be released that day (we thought on Friday). Right after

> we met the birthmom, we all went rushing to the hospital. My

> husband and I held this beautiful baby for about 10-15 minutes, when

> a nurse came in, sat down, and starting telling us all the care the

> baby would need. Everything she was telling us, was nothing that we

> had been aware of, and she spoke so quickly and with not much

> concern for my husband and me. She also was telling us this

> information in front of the birth mom, and we were so uncomfortable.

> (the hospital then was going to train us extensively over the next

> couple of days to take care of the baby). It is hard to explain in

> writing, because as I write it, it doesn't even sound remotely like

> the experience we had. I wish she would have given us time with the

> baby...we had just met the birthmom, we had just held the baby, and

> she could have asked us to step away privately. Right after she

> told us his care, the case manager came, told us a bunch of

> information, wanted us to pick, on the spot, a visiting

> nurse,...When we left the hospital, I was hysterical. We did meet

> with the case manager for a few minutes, and explained how

> overwhelmed we were by the way the information was presented to us.

>

> I think that the adoption agency should have looked at this adoption

> a little differently than their typical adoptions. Had we been able

> to go to the hospital days ago, and learn the care this baby would

> need, we could have had time to process it, learn more about it,

> gain a comfort level, and then if we decided we weren't able to meet

> the baby's needs, then we could have let them know before we met the

> birth mother, and broke her heart. No one would let us see the

> baby, and learn the extent of his care until yesterday.

>

> My husband and I just feel like since we have 3 small children, and

> I am a stay at home working mom, that we couldn't meet the needs of

> this baby, and the children we have. I feel so badly for the way

> this happened, but mostly my heart is breaking for the baby. I did

> call someone who I know that can work with the agency, and hopefully

> find him a home. I said I'm not sure if I am worthy to be a part of

> this group because I know so many of you have faced medical needs,

> and I feel shame to say that we can't.

>

> I'm sorry this is so long, but I did want to let everyone know. And

> thank you for your emails, your prayers, and your thoughts. Stacey

>

>

>

[Guest guest]

HI

Im reading through tons of mail playing catch up and I just read your email

and wanted to answer

Please let me send you some cyber ((((((((hugs))))))))))) you have been faced

with a difficult situation and I totally respect your honesty. Pleased don't

come down so hard on yourself, we all have some sort of limits so don't

punish yourself on yours.

Let me share something with you ....... , here on the list, in my eyes

walks on water (sorry heehee) she has more energy and patience than I

could have on a good day. She takes in all sorts of kids and some stay for

good heehee I tell her often I don't know how she does it. Then there is me,

my energy level is low, my patience runs thin and this is just with my own

daughter heehee OK point is we all do what we can do and we should all be

happy with that

Smile

Kathy mom to Sara 11

[Guest guest]

In a message dated 1/2/2003 7:46:08 PM US Mountain Standard Time,

b4alltoday@... writes:

> , here on the list, in my eyes

> walks on water (sorry heehee)

OH GAG ME LOL...funny..that is the 2nd time I have been told that tonight

but NEITHER time was by my teens!!!!

[Guest guest]

Sue,

's " paper presentation " was also VERY scary. We hadn't been allowed

to see him yet, so we got all the information first. The adoption agency

told us he was severely retarded (functioning at a 3 month level at 2

years of age), that he possibly had CP issues, possibly autistic, that he

had failed his hearing test, had severe reflux, might never walk, sleep

apnea, feeding issues, would need heart surgery at 2 years old, yada,

yada, yada. It was VERY scary (so I know how Stacey must feel!), but we

felt like he was our child and that we would take it just the same as if

our birth child had all the same problems. It was definitely a leap of

faith. Once he had a family to love him and stimulate him, it was

evident that he wasn't autistic, within a short time he could sit on his

own, was creeping, then crawling, signing, trying to talk (up until that

point he wasn't even trying to babble). So within a year of bringing him

home, we found that he wasn't deaf, didn't have CP, wasn't autistic,

would probably walk, was starting to eat and even that his ASD had closed

on it's own and he wouldn't need surgery!!! YEA =) Then, by the time he

was 4, he was potty trained, saying his ABCs, trying to count, signing

MANY words, saying MANY words, walking (even running, and if it looks a

little awkward, it's still the cutest thing you've ever seen!!!) My

point is...yes, I have one...that the only thing that ended up being TRUE

for long is that he had severe reflux and once he started walking that

has almost completely disappeared. We went from him throwing up almost

everything he ate, to maybe only once every few weeks spitting up just a

little. So...we were glad his medical issues looked so scary because we

were prepared for ANYTHING and we have been very lucky!

Take care,

Kym...mom to 4 including (5 years old with DS)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

<<<There is a down side to knowing everything upfront. For us it was a

positive thing becoz the info on tim was so awful on paper that his first

adoption fell thro and we were able to then to adopt him in full

knowledge

that altho the paper info was correct it wasn't accurate if that makes

sense. It gave a picture of a severely retarded and medically very

fragile

child. Anyone who knows tim knows that isn't the case and altho it was

true

to an extent when he was a baby knowing him meant that the information

wasn't intimidating, well, not as bad anyway! Had I only seen his

written

info I may well have thought twice.

sue wong>>>

________________________________________________________________

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[Guest guest]

Prayers are being said for you and your Family Carol... May God's Blessings be with you all...

Love

Helen

In two hours my brother in law will be going into extensive cancer

surgery at 10:30 this morning. They say the operatioin wil last 6 hnours

or more. My mother in law is being admitted to the same hosp today for

cancer surgery later in the week. This is a huge family and i am being

flooded with them right now so cannot be on the commputer much. Please

pray for Elvie McNeely and his mother pearl Larson. carol

"There is always hope"

{0} {0} {0} {0} {0} {0} {0} {0} {0}

^\|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/^

**** **** **** **** **** **** **** **** ****

~~~THINK SPRING ~~~

angelbear1129@...

)

YOUR CROSS

  Whatever your cross

  Whatever your pain

  There will always be sunshine

  After the rain

  Perhaps you may stumble

  Perhaps even fall

  But God's always there

  To help you through it all

[Guest guest]

thannks Helen-just got home form the hospital and after 7 hours of surgery and a lot of cancer removed they had to stop operating. he will have another surgery in 2 weeks or so. Thanks for thinking of me and the family today. carol

On Mon, 3 Feb 2003 21:33:21 EST angelbear1129@... writes:

Prayers are being said for you and your Family Carol... May God's Blessings be with you all...LoveHelen

In two hours my brother in law will be going into extensive cancersurgery at 10:30 this morning. They say the operatioin wil last 6 hnoursor more. My mother in law is being admitted to the same hosp today forcancer surgery later in the week. This is a huge family and i am beingflooded with them right now so cannot be on the commputer much. Pleasepray for Elvie McNeely and his mother pearl Larson. carol"There is always hope"

{0} {0} {0} {0} {0} {0} {0} {0} {0} ^\|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/ ^ \|/^ **** **** **** **** **** **** **** **** ****~~~THINK SPRING ~~~angelbear1129@...) YOUR CROSS Whatever your cross Whatever your pain There will always be sunshine After the rain Perhaps you may stumble Perhaps even fall But God's always there To help you through it all~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityMessage Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at /chatBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator email: -owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into groups at your convenience and receive no email.To modify your subscription settings please visit:- /joinTo subscribe or unsubscribe please email:--subscribe -unsubscribe This group is not intended to diagnose or treat illnesses. No one on this group is qualified to diagnose medical conditions. If you feel you need medical attention, seek the advice of a qualified physician.~~~~ *** ~~~ *** ~~~ *** ~~~~When nothing is sure, everything is possible.--- Margaret Drabble~~~~ *** ~~~ *** ~~~ *** ~~~~

[Guest guest]

Dear Carol,

My thoughts & prayers are with you and your family.

Hang in there. Love,

> In two hours my brother in law will be going into extensive cancer

> surgery at 10:30 this morning. They say the operatioin wil last 6

hnours

> or more. My mother in law is being admitted to the same hosp today

for

> cancer surgery later in the week. This is a huge family and i am

being

> flooded with them right now so cannot be on the commputer much.

Please

> pray for Elvie McNeely and his mother pearl Larson. carol

>

> " There is always hope "

> ICQ number: 201586630

>

> ________________________________________________________________

> Sign Up for Juno Platinum Internet Access Today

> Only $9.95 per month!

> Visit www.juno.com

[Guest guest]

thanks susan-elvie contiunes to rest most of the itme and the family

seems more settled too this evening. carol

On Tue, 04 Feb 2003 23:22:59 -0000 " paulsons5 <paulsons5@...> "

<paulsons5@...> writes:

> Dear Carol,

> My thoughts & prayers are with you and your family.

> Hang in there. Love,

>

>

> > In two hours my brother in law will be going into extensive

> cancer

> > surgery at 10:30 this morning. They say the operatioin wil last 6

>

> hnours

> > or more. My mother in law is being admitted to the same hosp

> today

> for

> > cancer surgery later in the week. This is a huge family and i am

>

> being

> > flooded with them right now so cannot be on the commputer much.

> Please

> > pray for Elvie McNeely and his mother pearl Larson. carol

> >

> > " There is always hope "

> > ICQ number: 201586630

> >

> > ________________________________________________________________

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[Guest guest]

In a message dated 11/24/03 7:45:40 PM Pacific Standard Time,

pmork@... writes:

> I can't believe it! I'm starting to think that this IVIG thing really will

> work for her. It's been such a long road!!

Pam,

I'm so happy for you guys!!! Thanks for sharing your good news!!

Sandi--Mom to , age 10. Immune Deficiency, Tetrology of Fallot,

Pulmonary Valve transplant, Mitral Valve stenosis, chronic sinusitis, chronic

ear

infections, asthma, severe allergies, GERD, Tethered Cord Syndrome.

[Guest guest]

forgot to mention Rods tests came back negative, however the Lyme Test, both of

them, came back with just under the positive results needed. Asked Dr if he had

no Lyme then why is his body producing antibodies to it? DOH! *-)

[Guest guest]

In a message dated 4/15/2005 3:29:47 P.M. Eastern Daylight Time,

t1d1r1d1@... writes:

I just thought that I would let everyone know that (surprise, surprise)

the Cobra insurance got on the stick and I am able to get my meds with

no problems

I am amazed that it will be ok. This will be the last time that I have

to order, so I will not have to fight with them again (woohoo).

Thanks for all of the advice in my " panic " time. You are a great bunch

of people.

Congratulations, Tammie. That is wonderful news! Hippa has it's problems,

but it is certainly preferable to what we had (which was nothing) before.

Anne

[Guest guest]

In a message dated 4/15/2005 3:29:47 P.M. Eastern Daylight Time,

t1d1r1d1@... writes:

I just thought that I would let everyone know that (surprise, surprise)

the Cobra insurance got on the stick and I am able to get my meds with

no problems

I am amazed that it will be ok. This will be the last time that I have

to order, so I will not have to fight with them again (woohoo).

Thanks for all of the advice in my " panic " time. You are a great bunch

of people.

Congratulations, Tammie. That is wonderful news! Hippa has it's problems,

but it is certainly preferable to what we had (which was nothing) before.

Anne