Hey

[Guest guest]

> Jen,

I'm also young. Also now 30 but was diagnosed at 16. I have a

concern though with your medications...I'd hate for you to get an

ulcer. Not to poke my nose in...but I've always been warned about

mixing NSAIDs. Naproxen is a potent anti-inflammatory and you are on

the maximum dosage. You probably shouldn't be taking Advil on top of

that...they are both NSAIDs...you could be risking a bad stomach

ulcer... Are you on anything to protect your stomach?

Lexi.>

>

I am on Prednisone (7.5 mg) and I think it is Naproxin

> or something, 500 mg twice a day. Plus the

> Methotrexate and I take some Tylenol or Advil on the

> side right now. I just hate taking all these meds,

> but I know the pain would be unbearable without them.

> It worries me for the future, but hopefully it is a

> bad flare and will go away. I have an appt with my

> rheumo today.

>

> I used to be such a busy body..... not anymore.

>

> Thanks for your support!

> Jessy

>

>

>

> Hello, Jessy!

>

> I can relate to what you are saying. I, too, was very

> young when I

> started having symptoms of RA. I think it got really

> bad around 23-

> 24yo. I was Dx'd at age 27 and have just turned 30.

> Started out

> being able to tell when it was going to rain. I now

> have pain that

> runs from my knees to my ankles, so bad that it feels

> liek I am

> standing on broken bone at times. I haven't started

> taking anything

> other than Aleve so far.

>

> I know it's hard to be so young and to have such pain

> in your body.

> What anti-inflammatory are you on?

>

> Jen

>

> __________________________________________________

>

[Guest guest]

> Jen,

I'm also young. Also now 30 but was diagnosed at 16. I have a

concern though with your medications...I'd hate for you to get an

ulcer. Not to poke my nose in...but I've always been warned about

mixing NSAIDs. Naproxen is a potent anti-inflammatory and you are on

the maximum dosage. You probably shouldn't be taking Advil on top of

that...they are both NSAIDs...you could be risking a bad stomach

ulcer... Are you on anything to protect your stomach?

Lexi.>

>

I am on Prednisone (7.5 mg) and I think it is Naproxin

> or something, 500 mg twice a day. Plus the

> Methotrexate and I take some Tylenol or Advil on the

> side right now. I just hate taking all these meds,

> but I know the pain would be unbearable without them.

> It worries me for the future, but hopefully it is a

> bad flare and will go away. I have an appt with my

> rheumo today.

>

> I used to be such a busy body..... not anymore.

>

> Thanks for your support!

> Jessy

>

>

>

> Hello, Jessy!

>

> I can relate to what you are saying. I, too, was very

> young when I

> started having symptoms of RA. I think it got really

> bad around 23-

> 24yo. I was Dx'd at age 27 and have just turned 30.

> Started out

> being able to tell when it was going to rain. I now

> have pain that

> runs from my knees to my ankles, so bad that it feels

> liek I am

> standing on broken bone at times. I haven't started

> taking anything

> other than Aleve so far.

>

> I know it's hard to be so young and to have such pain

> in your body.

> What anti-inflammatory are you on?

>

> Jen

>

> __________________________________________________

>

[Guest guest]

I'll second that, Lexi, especially since MTX is in the mix as well.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Hey

>

>> Jen,

> I'm also young. Also now 30 but was diagnosed at 16. I have a

> concern though with your medications...I'd hate for you to get an

> ulcer. Not to poke my nose in...but I've always been warned about

> mixing NSAIDs. Naproxen is a potent anti-inflammatory and you are on

> the maximum dosage. You probably shouldn't be taking Advil on top of

> that...they are both NSAIDs...you could be risking a bad stomach

> ulcer... Are you on anything to protect your stomach?

> Lexi.>

>>

>

> I am on Prednisone (7.5 mg) and I think it is Naproxin

>> or something, 500 mg twice a day. Plus the

>> Methotrexate and I take some Tylenol or Advil on the

>> side right now. I just hate taking all these meds,

>> but I know the pain would be unbearable without them.

>> It worries me for the future, but hopefully it is a

>> bad flare and will go away. I have an appt with my

>> rheumo today.

>>

>> I used to be such a busy body..... not anymore.

>>

>> Thanks for your support!

>> Jessy

>>

[Guest guest]

I'll second that, Lexi, especially since MTX is in the mix as well.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Re: Hey

>

>> Jen,

> I'm also young. Also now 30 but was diagnosed at 16. I have a

> concern though with your medications...I'd hate for you to get an

> ulcer. Not to poke my nose in...but I've always been warned about

> mixing NSAIDs. Naproxen is a potent anti-inflammatory and you are on

> the maximum dosage. You probably shouldn't be taking Advil on top of

> that...they are both NSAIDs...you could be risking a bad stomach

> ulcer... Are you on anything to protect your stomach?

> Lexi.>

>>

>

> I am on Prednisone (7.5 mg) and I think it is Naproxin

>> or something, 500 mg twice a day. Plus the

>> Methotrexate and I take some Tylenol or Advil on the

>> side right now. I just hate taking all these meds,

>> but I know the pain would be unbearable without them.

>> It worries me for the future, but hopefully it is a

>> bad flare and will go away. I have an appt with my

>> rheumo today.

>>

>> I used to be such a busy body..... not anymore.

>>

>> Thanks for your support!

>> Jessy

>>

[Guest guest]

Yea!! I am so happy for you!

In a message dated 4/18/2006 12:06:05 P.M. Eastern Standard Time, amanda_santore2000@... writes:

hey i am so happy hannah has been in her band or 2 weeks now and we all see a major improvment and the wonderful news is that hannah no longer needs pt. yay

})o{{~~})o{{She's Turnin' The Fabulous Four!.-.........-.(~4~)..¤..(~4~)'w'../_\..'w'§..('"')..§(_Y_)(_)(_)dwh...--4--...dwh(*_**_*_)||'|'|'||`.____.'})o{{~andra 4-23-02~})o{{Joinin' the party~

[Guest guest]

Yey!!!!! That's wonderful!

> In a message dated 4/18/2006 12:06:05 P.M. Eastern Standard Time,

> amanda_santore2000@... writes:

>

> hey i am so happy hannah has been in her band or 2 weeks now and

we

> all see a major improvment and the wonderful news is that hannah

no

> longer needs pt. yay

>

>

>

>

>

>

> })o{{~~})o{{

> She's Turnin' The Fabulous Four!

> .-.........-.

> (~4~)..¤..(~4~)

> 'w'../_\..'w'

> §..(' " ')..§

> (_Y_)

> (_)(_)

> dwh...--4--...dwh

> (*_**_*_)

> ||'|'|'||

> `.____.'

> })o{{~andra 4-23-02~})o{{

> Joinin' the party

> ~

>

[Guest guest]

That is great news!

Haylee

mom to andre doc band grad

>

> hey i am so happy hannah has been in her band or 2 weeks now and we

> all see a major improvment and the wonderful news is that hannah no

> longer needs pt. yay

>

[Guest guest]

Welcome to the site Josue!

The site is a self - help site. You ask the questions about

information that you are currently studying that you do not understand

AFTER you have asked/discussed them with your teacher and still do not

understand.

Other members who are not in a school program will study the info in

study guide books, tutorials and information on this site and if they

a still do not understand then you ask your questions. You are

welcome to do this also.

There will be a TEXPERT to help you to understand once you post what

you do understand, what you don't undersand and what your question is.

This site has many links, tutorials and documents to help you with

your study, understanding and becoming a better tech. However when you

say you are ready to be helped I want to be sure that you understand

how this site helps and can help you.

Try the study plan or use what ever tutorials are on the same subject

that your instructor is using.

Please pass on the following to Ms Barta:

Dear Ms Barta,

It may help your students if you were to survey the site's available

info and direct them to areas that follow along with your specific

lectures. Of course if you prefer they can use and browse the site at

their leisure. I am not sure if all of the students realize that they

will have to navigate by themselves.

Glad the site is of help to you and your students. IF you need

anything that you can not find, just ask and I will point you in the

right direction or find information on it if I do not have it.

Respectfully,

Jeanetta Mastron CPhT BS

Founder/Owner

>

> Mrs Barta Said this would be a very helpful way to succeed in the

> Pharmacy Tech class, so Im here and ready to be helped

> =-Josue

>

[Guest guest]

How old is your daughter? What treatment did they start her on? My 10

yr old son has his first rheumatology appt on Monday. I have RA so I

know what types of meds are out there, but I don't know if they treat

JRA the same way.

>

> Hey everyone I am looking for a support group for parents of children

> of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> do not know to much about this. I am sceared and have no idae what is

> in store.

>

[Guest guest]

Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis.org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman@...>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE HAS

SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER JOINTS

INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP A LITTLE BIT.

SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING. SHE IS NOW ON MOTRIN

2 TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO HER STOMACH. WE GO BACK TO

CHAPEL HILL IN A MONTH AND THEN SHE WILL START ON MTX. IT IS A 3 HOUR DRIVE TO

GET TO THE CLOSEST DOC. SO NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE

WE FOUND OUT.

Issadora <FlyfreeIzzie@...> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis.org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman@...>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

Thanks for the welcome. saw the pediatric rheumatologist on Monday for the

first time. She ran the normal blood tests and did an x-ray to check his bone

age (he is very small for his age). He started taking Naproxen 2x daily and

will re-check in a month. She was hesitant to make a diagnosis because he

doesn't have swelling in his joints, but that is also how my RA is. His dr.

wanted to look at my blood tests to see if his would be similar. I don't really

care at this point what they call it as long as he is treated.

Mistique

Re: Re: Hey

Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis. org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

has complained of a stomach ache after taking his Naproxen also. He has

only taken a few dosages so we will see how it goes. We've been expecting the

rollor coaster ride because that is what I still go through with my RA meds and

I've been diagnosed for 4 years. I guess I'm lucky that we have a pediactric

rheumatologist in the neighboring city only 15 minutes away. Do you know how

common it is to outgrow the JRA?

Mistique

Re: Re: Hey

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE HAS

SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER JOINTS

INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP A LITTLE BIT.

SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING. SHE IS NOW ON MOTRIN 2

TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO HER STOMACH. WE GO BACK TO

CHAPEL HILL IN A MONTH AND THEN SHE WILL START ON MTX. IT IS A 3 HOUR DRIVE TO

GET TO THE CLOSEST DOC. SO NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE WE

FOUND OUT.

Issadora <FlyfreeIzzie@ gmail.com> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis. org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

I HAVE NO IDEA HOW COMMON IT IS FOR KIDS TO OUTGROW RA. I HAVE ASKED THE DR AND

HE SAID THERE IS NO GUARENTEE THAT SHE WILL OUTGROW IT. I KNOW WHAT YOU MEAN

ABOUT BEING ON A ROLLER COASTER RIDE. ABI WOKE UP THIS AM AND HER KNEES WERE

HURTING SO BAD THAT SHE CRIED IN MY ARMS AND BEGGED FOR HER MOTRIN. I DO NOT

KNOW WHAT TO DO FOR HER. iT HAS NEVER BEEN IN HER KNEES BEFORE. I GUESS ONLY

TIME WILL TELL.

Mistique Hickman <mistiquehickman@...> wrote: has complained

of a stomach ache after taking his Naproxen also. He has only taken a few

dosages so we will see how it goes. We've been expecting the rollor coaster ride

because that is what I still go through with my RA meds and I've been diagnosed

for 4 years. I guess I'm lucky that we have a pediactric rheumatologist in the

neighboring city only 15 minutes away. Do you know how common it is to outgrow

the JRA?

Mistique

Re: Re: Hey

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE HAS

SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER JOINTS

INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP A LITTLE BIT.

SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING. SHE IS NOW ON MOTRIN 2

TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO HER STOMACH. WE GO BACK TO

CHAPEL HILL IN A MONTH AND THEN SHE WILL START ON MTX. IT IS A 3 HOUR DRIVE TO

GET TO THE CLOSEST DOC. SO NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE WE

FOUND OUT.

Issadora <FlyfreeIzzie@ gmail.com> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis. org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

I would like to say, that Dr. Gewanter says he does not like to use the word

remission. I would like to say Aubrey has been under medical control for 3

years/ January we went and took Aubrey off all JRA meds we are currently without

flare Dr did of course. We go back to eye doc and joint doc in a few weeks. I am

stressed but doing ok. I am going to ask after a few years if we make it that

long. If this is Juvenile Arthritis and we have not a flare in years what is the

way to get her cleared so she will be able to get insurance without that

attached. I tried to get secondary insurance and they would not touch her. Just

a thought. I hope all the kids on this board have remission. I personally will

say they are some tough kids who go through alot for their small ages....Terri

and Aubrey

Re: Re: Hey

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE HAS

SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER JOINTS

INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP A LITTLE BIT.

SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING. SHE IS NOW ON MOTRIN 2

TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO HER STOMACH. WE GO BACK TO

CHAPEL HILL IN A MONTH AND THEN SHE WILL START ON MTX. IT IS A 3 HOUR DRIVE TO

GET TO THE CLOSEST DOC. SO NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE WE

FOUND OUT.

Issadora <FlyfreeIzzie@ gmail.com> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis. org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

Just a quick suggestion as to Abi waking up in such pain, have you tried

giving her warm baths in the morning when she gets up? Placing her in

the warm water and then just letting her play and gently move her joints

in the warm water may help. used to need to do this when he was

first diagnosed for his ankles. We would soak them in a small tub of

warm water and he would gently rotate the ankles to help his motion.

What other meds is she on beyond just Motrin? She sounds like she could

use a DMARD to help get the disease under control, rather than just an

anti-inflammatory to control the swelling/pain. What does the rheumy

suggest? Good luck, Michele ( 20, spondy)

________________________________

From: [mailto: ] On

Behalf Of gina zimmerman

Sent: Wednesday, April 02, 2008 8:17 AM

Subject: Re: Re: Hey

I HAVE NO IDEA HOW COMMON IT IS FOR KIDS TO OUTGROW RA. I HAVE ASKED THE

DR AND HE SAID THERE IS NO GUARENTEE THAT SHE WILL OUTGROW IT. I KNOW

WHAT YOU MEAN ABOUT BEING ON A ROLLER COASTER RIDE. ABI WOKE UP THIS AM

AND HER KNEES WERE HURTING SO BAD THAT SHE CRIED IN MY ARMS AND BEGGED

FOR HER MOTRIN. I DO NOT KNOW WHAT TO DO FOR HER. iT HAS NEVER BEEN IN

HER KNEES BEFORE. I GUESS ONLY TIME WILL TELL.

Mistique Hickman <mistiquehickman@...

<mailto:mistiquehickman%40> > wrote: has complained of a

stomach ache after taking his Naproxen also. He has only taken a few

dosages so we will see how it goes. We've been expecting the rollor

coaster ride because that is what I still go through with my RA meds and

I've been diagnosed for 4 years. I guess I'm lucky that we have a

pediactric rheumatologist in the neighboring city only 15 minutes away.

Do you know how common it is to outgrow the JRA?

Mistique

Re: Re: Hey

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE

HAS SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER

JOINTS INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP

A LITTLE BIT. SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING.

SHE IS NOW ON MOTRIN 2 TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO

HER STOMACH. WE GO BACK TO CHAPEL HILL IN A MONTH AND THEN SHE WILL

START ON MTX. IT IS A 3 HOUR DRIVE TO GET TO THE CLOSEST DOC. SO

NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE WE FOUND OUT.

Issadora <FlyfreeIzzie@ gmail.com> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this

is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase

there

are different types and depending on what joints are involved and

labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA

is

the arthritis foundation at www.arthritis. org Often kids are started

out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA

but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman@

>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of

children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA.

I

> > do not know to much about this. I am sceared and have no idae what

is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... "

(AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings

is

within me awaiting to find a space to find it's flow...

[Guest guest]

My son Will (9) takes a tablet of Pepcid with any dose of Naproxen. You might

want to check with your doc about adding an antacid. Naproxen can be hard on

the lining of the stomach.

Re: Re: Hey

ABI IS 3 AND WAS FIRST DIAG WITH POLY JRA AND THEN THEY SAID THAT SHE HAS

SYSTEMIC JRA. NOT SURE THE BIG DIFFERNCE WITH THE 2. SHE HAS HAD HER JOINTS

INJECTED WITH STEROIDS A COUPLE WEEKS AGO. IT HAS SEEMED TO HELP A LITTLE BIT.

SHE AT LEAST CAN WALK IN THE MORNING INSTEAD OF CRAWLING. SHE IS NOW ON MOTRIN 2

TIMES A DAY. THE NAPROSYN MADE HER VERY SICK TO HER STOMACH. WE GO BACK TO

CHAPEL HILL IN A MONTH AND THEN SHE WILL START ON MTX. IT IS A 3 HOUR DRIVE TO

GET TO THE CLOSEST DOC. SO NEEDLESS TO SAY IT HAS BEEN A ROLLER COASTER SINCE WE

FOUND OUT.

Issadora <FlyfreeIzzie@ gmail.com> wrote: Welcome to the group...

Is your son seeing a pediatric rheumatologist? If one is availiable this is

the best option as JRA is often treated very similarly to RA however the

doses and disease presentation is much more different in kids. Becuase there

are different types and depending on what joints are involved and labwork,

the treatment can vary.

Your knowledge of RA will probably help since you can understand more of

what he is going through but one good place for basic information on JRA is

the arthritis foundation at www.arthritis. org Often kids are started out on

NSAIDS like Naporosyn and other ones like in most cases with adult RA but of

course it depends on how much involvement there is of the body.

Good fortune

Issadora

On Fri, Mar 28, 2008 at 6:15 PM, mistiquehickman <mistiquehickman>

wrote:

>

> How old is your daughter? What treatment did they start her on? My 10

> yr old son has his first rheumatology appt on Monday. I have RA so I

> know what types of meds are out there, but I don't know if they treat

> JRA the same way.

>

>

> >

> > Hey everyone I am looking for a support group for parents of children

> > of JRA. My daughter has just bben diagnosed with polyarticular JRA. I

> > do not know to much about this. I am sceared and have no idae what is

> > in store.

> >

>

>

>

--

" Life- Like the flutter of wings... feel your hollow wings rushing... " (AFI-

Silver and Cold).

my Flight in life is a metamorphosis of growth and this flutter of wings is

within me awaiting to find a space to find it's flow...

[Guest guest]

Hey :

Glad you're still doing well.. me too.. really well -amazing that

it is -

Barb

>

> My name is and I'm new to the group! I'm

actually new to a

> group like this period! It's nice to know that I'm not

alone, as I

> wasn't even aware that health problems like this

existed until a few

> months ago. I had chronic problems for about 10 yrs,

but it's

> obviously progressed and now my life is different

altogether because

> of it. Any suggestions of how to manage the pain or any

type of

> treatments that have actually worked would be greatly

appreciated.

> I've used steroid creams and am now on Elidel, but

they're not

> working. So I'm now soaking in bath water with dead sea

salt and

> epsom salt and it seems to provide some relief. I've

also been

> prescribed an estrogen cream called Premarin and it

helps a little

> bit. Thanks!

>

>

>

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

>

> No virus found in this incoming message.

> Checked by AVG.

> Version: 8.0.100 / Virus Database: 270.3.0/1503 - Release Date:

14/06/2008 18:02

>

[Guest guest]

Hi Barb good to hear from you , it was rude of me not to say hello to everyone in my last post , I was in a hurry so that's my excuse...Yes cure is a big word with both yeast and Lyme , don't like to mention it too often just in case .know what I mean ....But life is so sweet now , not enough hours in the day. After so long being dependent on bacterial antibiotics it seems quite strange that I don't need to consider them now .

I am still involved in getting my new concept probiotic to market ..I've given up on the academics , I did hope I could get a university to take it on as a project but you wouldn't believe the politics ..Anyway I have managed to get an audience with some top government scientists with an interest in the bio-tech industry who were impressed and are actively trying to broker a deal with companies with an interest in bio -tech, next meeting is in a couple of weeks with experts both sides ready for my presentation.. wish me luck ..Bit disappointed with progress with the parents of autistic children , I did hope I could galvanise them into action , but the truth is they just don't get the issues involved , sad ..anyway glad to hear your still well . i'll keep you and all posted on events ...cheers ..

[infections] Re: Hey

Hey :Glad you're still doing well.. me too.. really well -amazing that it is - Barb > > My name is and I'm new to the group! I'm actually new to a > group like this period! It's nice to know that I'm not alone, as I > wasn't even aware that health problems like this existed until a few > months ago. I had chronic problems for about 10 yrs, but it's > obviously progressed and now my life is different altogether because > of it. Any suggestions of how to manage the pain or any type of > treatments that have actually worked would be greatly appreciated. > I've used steroid creams and am now on Elidel, but they're not > working. So I'm now soaking in bath water with dead sea salt and > epsom salt and it seems to provide some relief. I've also been > prescribed an estrogen cream called Premarin and it helps a little > bit. Thanks! > > > > > > > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG. > Version: 8.0.100 / Virus Database: 270.3.0/1503 - Release Date: 14/06/2008 18:02>

No virus found in this incoming message.Checked by AVG. Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 16/06/2008 07:20

[Guest guest]

Hi and Barb -

As a CFSr I'm wondering how you got better. Any advice?

Thanks so much.

infections From: paj8@...Date: Tue, 17 Jun 2008 16:39:01 +0100Subject: Re: [infections] Re: Hey

Hi Barb good to hear from you , it was rude of me not to say hello to everyone in my last post , I was in a hurry so that's my excuse...Yes cure is a big word with both yeast and Lyme , don't like to mention it too often just in case .know what I mean ....But life is so sweet now , not enough hours in the day. After so long being dependent on bacterial antibiotics it seems quite strange that I don't need to consider them now .

I am still involved in getting my new concept probiotic to market ..I've given up on the academics , I did hope I could get a university to take it on as a project but you wouldn't believe the politics ..Anyway I have managed to get an audience with some top government scientists with an interest in the bio-tech industry who were impressed and are actively trying to broker a deal with companies with an interest in bio -tech, next meeting is in a couple of weeks with experts both sides ready for my presentation.. wish me luck ..Bit disappointed with progress with the parents of autistic children , I did hope I could galvanise them into action , but the truth is they just don't get the issues involved , sad ..anyway glad to hear your still well . i'll keep you and all posted on events ...cheers ..

[infections] Re: Hey

Hey :Glad you're still doing well.. me too.. really well -amazing that it is - Barb > > My name is and I'm new to the group! I'm actually new to a > group like this period! It's nice to know that I'm not alone, as I > wasn't even aware that health problems like this existed until a few > months ago. I had chronic problems for about 10 yrs, but it's > obviously progressed and now my life is different altogether because > of it. Any suggestions of how to manage the pain or any type of > treatments that have actually worked would be greatly appreciated. > I've used steroid creams and am now on Elidel, but they're not > working. So I'm now soaking in bath water with dead sea salt and > epsom salt and it seems to provide some relief. I've also been > prescribed an estrogen cream called Premarin and it helps a little > bit. Thanks! > > > > > > > > > > --------------------------------------------------------------------> > > > No virus found in this incoming message.> Checked by AVG. > Version: 8.0.100 / Virus Database: 270.3.0/1503 - Release Date: 14/06/2008 18:02>

No virus found in this incoming message.Checked by AVG. Version: 8.0.100 / Virus Database: 270.3.0/1505 - Release Date: 16/06/2008 07:20

[Guest guest]

,

I've seen a lot of opinions about this job you are considering. It sounds great

listening to you talk about the experience you will get from it, a once in a

lifetime job offer kinda deal eh?

Anyways my one and only question is, Will you have enough spoons left at the end

of the day for your family?

 

Bama,

 

The dog has seldom been successful in pulling man up to its level of sagacity,

but man has frequently dragged the dog down to his. Thurber

 

  " It's simple really, animals love you in a way that people can't. " From: When

Night is Falling

________________________________

From: everywhere_horses <bbhorsetack@...>

spinal problems

Sent: Monday, May 18, 2009 8:35:58 PM

Subject: hey

Your new job sounds super! Go for it if that is what you want. But remember, us

" gimps " can regress at any time. And if you are making " ends meet " right

now???... do you really 'want' to work that many hours??? How far is the

commute???

Remember, we are only here on this Earth for a very short time... Enjoy life and

your kids as much as you can. If this job can " fit in to your life " , than do it!

BUT, if this job takes ALL your energy, and leaves you with " not enough left " to

have some fun, than **** it.

I would say try it if you want... but, don't do it if it saps all your energy

and you can't enjoy life. Work is great. And for some people, that is all they

need.

I for one have a retail business, a " brick and mortar " store and a web site, and

an eBay store. I spend wayyyyy too much time on the computer working. When I am

not putting things online to sell, I am studying how to make my web site better.

Hours and hours. If I had kids, they would not be very happy with me... hehehe,

except I work out of my home. BUT I do not do the things I need to do like

gardening, hiking, and riding my horse... I spend too much time WORKING and it

is " time " I will never get back.

Anyway, what I trying to say. DO IT, try it, If " the job " takes all your time,

maybe you will be happy with that. Maybe NOT. BUT remember, there is more to

life than eating, sleeping, paying the bills, AND driving to work. JMO.

in NH

http://www.bottlesa ndbridles. com

[Guest guest]

I don't know ...I don't know...

 

---

From: Lambert <glambert28@...>

Subject: Re: hey

spinal problems

Date: Monday, May 18, 2009, 11:52 PM

,

I've seen a lot of opinions about this job you are considering. It sounds great

listening to you talk about the experience you will get from it, a once in a

lifetime job offer kinda deal eh?

Anyways my one and only question is, Will you have enough spoons left at the end

of the day for your family?

 

Bama,

 

The dog has seldom been successful in pulling man up to its level of sagacity,

but man has frequently dragged the dog down to his. Thurber

 

  " It's simple really, animals love you in a way that people can't. " From: When

Night is Falling

____________ _________ _________ __

From: everywhere_horses <bbhorsetack@ roadrunner. com>

spinedisorderssuppo rtgroup@gro ups.com

Sent: Monday, May 18, 2009 8:35:58 PM

Subject: hey

Your new job sounds super! Go for it if that is what you want. But remember, us

" gimps " can regress at any time. And if you are making " ends meet " right

now???... do you really 'want' to work that many hours??? How far is the

commute???

Remember, we are only here on this Earth for a very short time... Enjoy life and

your kids as much as you can. If this job can " fit in to your life " , than do it!

BUT, if this job takes ALL your energy, and leaves you with " not enough left " to

have some fun, than **** it.

I would say try it if you want... but, don't do it if it saps all your energy

and you can't enjoy life. Work is great. And for some people, that is all they

need.

I for one have a retail business, a " brick and mortar " store and a web site, and

an eBay store. I spend wayyyyy too much time on the computer working. When I am

not putting things online to sell, I am studying how to make my web site better.

Hours and hours. If I had kids, they would not be very happy with me... hehehe,

except I work out of my home. BUT I do not do the things I need to do like

gardening, hiking, and riding my horse... I spend too much time WORKING and it

is " time " I will never get back.

Anyway, what I trying to say. DO IT, try it, If " the job " takes all your time,

maybe you will be happy with that. Maybe NOT. BUT remember, there is more to

life than eating, sleeping, paying the bills, AND driving to work. JMO.

in NH

http://www.bottlesa ndbridles. com

[Guest guest]

Hi Rita

Thanks for joining us.

Most of us are still detectable, and/or doing some sort of TX, but Im sure someone will fit your needs.

Can you tell us what your genotype was/is, and some of your experiances?

How long ago was your TX, and what have you been doing since to keep your Hep C at bay?

Any info you care to share will be welcome.

Thank you

love

don in ks

From: upton.marita <maritaupton@...>Subject: [ ] hey Date: Saturday, August 22, 2009, 7:51 PM

somebody on here is as adamant as I am for rights for the hepc people of the world and that is great.Someone please contact me with hepc antibodies and non-detectable viral load. It has been 7 years since I had a relate. thanks rita------------------------------------

[Guest guest]

Hey , I also have this condition. I am 19 , and from Canada . It is great to have someone that you can relate too and talk to about certain things .. that most dont seem to understand . Heres my email . Feliciaa.x@...

Hope to hear from you !

blepharophimosis From: takethat1289@...Date: Mon, 28 Jun 2010 23:25:42 +0000Subject: blepharophimosis hey

Hey i am a person with this condition, and just want some people that i can talk to about the condition, being as i havent come across anyone with it! im 21 from the uk, but would be great to chat to people that i can relate to thanks x

Turn down-time into play-time with Messenger games Play Now!

[Guest guest]

Hello,

I'm French to 40 old a go.

I have the bpes too. I never see another peoples with, except my sisters. the

group is great to meet some peoples.

To chat you have three groups on facebook include mine.

some days i built it. hope it'll do some help how this group

my group (you'll can see my picture.

no surgeries, maybe in a few month the surgeon hesitate to do.

http://www.facebook.com/home.php?#!/group.php?gid=128093103895554 & ref=mf

Best regards,

Hervé

--- In blepharophimosis , " takethat1289 " <takethat1289@...>

wrote:

>

> Hey i am a person with this condition, and just want some people that i can

talk to about the condition, being as i havent come across anyone with it! im 21

from the uk, but would be great to chat to people that i can relate to thanks

x

>