Guest guest Posted July 3, 2002 Report Share Posted July 3, 2002 Hi Em, and welcome to the group! You'll find lots of warmth and caring in addition to great information on RA. The bilateral joint swelling and ongoing fevers certainly sound like RA symptoms to me. Hopefully your next visit to your rheumy will shed some new light on the situation. Hugs, Carol (in FL) [ ] New member Howdy -- I'm Em, hoping to find some information and learn here. I'm 38 years old. I was dxed with fibromyalgia a year ago, but have subsequently begun to develop new symptoms. I am returning to my rheumatologist next week to hopefully find out what is going on. These symptoms include bilateral joint pain and swelling (fingers, elbows, hips and knees) and ongoing " fevers of unknown etiology. " I had a spontaneous pelvic fracture two years ago, and subsequently found I have osteopenia in both hips, but this has not been treated by a physician and I have never had other osteo problems. In addition I have had kidney problems and a recent collapsed lung, so I honestly don't know what all that adds up to. I can hypothesize, but until I've seen the doctor I feel it may be best to deal with the situation as it comes. My interests are not only in finding out more about dealing with such problems, but also looking out for myself in terms of advocacy, particularly in the workplace. My employer (large hospital corporation) has a very strict absentee policy, and I'm searching for ways to protect my own interests. I'm currently pretty unhappy, mostly due to pain and this creeping exhaustion that make just typing this letter difficult, and sometimes I struggle with feeling too much self-pity, or anger, or fear. I WANT to be positive. But it's difficult. In any case, I hope to contribute whatever I can to this list, and to learn about how others cope with their diseases and life situations. I really want to connect with people. Glad to be here! Best, Em Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Sorry you had to find use for this support group but you will be glad you did. There is a lot of information to behad on here! I wish I had the success you did. Seven years have past for me and I am still looking forward to feeling GREAT one day. I do feel better though so I am very grateful for that. Shandi In a message dated 7/14/2002 9:09:13 AM Eastern Daylight Time, hale956@... writes: > In june I was told I have Rheumatoid arthritis. That was after six > months of lots of pain, lots of tests and hardly any sleep. They put > me on methotrexate and voltare. Since then I have been feeling great. > Not even a flare up. I started searching the web and found you guys. > Have been reading your postings and it's nice to know I'm not alone. > My husband is wonderful, but he cannot relate to what I'm going > through. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi Debby, I'm glad you found this group. My name is also Debbie. I was diagnosed last month too and started Metho 2 weeks ago. I have been feeling progressively better, but still have mild flares. I felt better with the 2nd dose of Metho, no nasty unpleasant side effects at all! Yah!!! Glad your feeling better, and it is nice to meet you! Debbie Mc -- [ ] new member In june I was told I have Rheumatoid arthritis. That was after six months of lots of pain, lots of tests and hardly any sleep. They put me on methotrexate and voltare. Since then I have been feeling great. Not even a flare up. I started searching the web and found you guys. Have been reading your postings and it's nice to know I'm not alone. My husband is wonderful, but he cannot relate to what I'm going through. Anyway, I just wanted to introduce myself and say hi. Debby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 hey debby, i'm kathy 42 widow with almost a 19 yr okd son. have been having problems since 1997. still no solid diagnosis yet but she is leaning towards reactive arthritis and fibro. i've been on social security disability since oct 91 and trying to fight for my disability pymts from my former company. my podiatrist put in his records that i could return to full time duty and my rheumatologist had me off indefinatly. so they are saying i am not disabled and by the way your job was eliminated back in feb. since then i have had them follow me and videotape me. i put an appeal in by myself and they have held it over for another 45 days. (better than a no) i have obtained help from legal aid. we are preparing for them to say no. they are going to send me out for a functional capacity test. i sat here this morning and made 20 copies and had to go and take some codene and heat packs. i could hardly move. now that it's afternoon i am ready to run my daily fever. so much for my childless weekend. he wet with the rest of my family camping. kathy in il Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Welcome Debby! I understand what you are talking about when you say your husband can't relate. Even though my husband sees me in obvious pain and wants to help, he still feels helpless. I have read him research and tried to help him know what FM is and he is willing to do anything he can to help me. I just think that there is a limit to understanding unless you live with it. Sometime I have to remind myself to make clear what kind of help I need instead of just thinking he will know. Have a great day. Iris --- busia956 <hale956@...> wrote: > In june I was told I have Rheumatoid arthritis. > That was after six > months of lots of pain, lots of tests and hardly any > sleep. They put > me on methotrexate and voltare. Since then I have > been feeling great. > Not even a flare up. I started searching the web > and found you guys. > Have been reading your postings and it's nice to > know I'm not alone. > My husband is wonderful, but he cannot relate to > what I'm going > through. > Anyway, I just wanted to introduce myself and say > hi. > > Debby > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi Debby...I'm sorry you have RA, but I'm glad you're feeling better and that you've found our little corner of the world! So many great, caring people here, and a wealth of information. With Hope... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Hi Debby, Welcome to the group. Glad you found us. I'm happy to hear that the meds are helping you. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Sue. I'm so sorry you've had such a bad year with so many different ailments. I think you'll find the group very warm and most of all helpful. I've had RA for 12 + years now ( I'm 54 now ) and I take Methatrexate and plaquinil. I'm not familiar with Arava...But I know the list moderators can give you some links and the information you need. I only have one large nodule on my left elbow....Have had my right foot re-constructed due to the RA... ( in 1998 )My biggest problem now is my knees....But the knee injections have helped a great deal. My Mom had the shingles about 2 years ago and She said they were horrible....Sue you've really been through a lot sounds like and You're right calling this a terrible disease...But hopefully your DR will soon find what works for you best....You have really found a loving and compassionate group...I haven't been here long myself...But Everyone's so sweet and helpful...We ALL know each others pain because we all live and deal with it everyday. Glad you found us Gail ( in Al ) [ ] New member Hi, I've just joined this group today and am looking forward to hearing other members' experiences with rheumatoid arthritis. I'll be 63 next month, and live in piedmont North Carolina. Within a year I was diagnosed with shingles, rheumatoid arthritis, bleeding ulcer and anemia from Aleve, and breast cancer. It was really a rough year for me. The worst was the RA, worse even than the breast cancer, because it was caught early by my annual mammogram. It was Stage 0 ductal carcinoma in situ. I had a lumpectomy in March 2002, followed by 35 radiation treatments. Now I'm just hoping it doesn't come back. I have Type 2 diabetes, so the rheumatologist at first diagnosed me with two frozen shoulders, which is common in diabetics; and diabetic limited joint mobility syndrome, which affects mostly the hands and is usually painless. He sent me to physical therapy, which did no good and was just torture to have my arms moved into positions they didn't want to go into. I kept having unbearable pain, so I called the rheumatologist and he called in a prescription for Vioxx. That didn't help any more than Celebrex, which I'd already tried. I called him again about the pain, and this time he really got it. He got me in to see him in two days. Bloodwork showed lots of inflammation and a positive rheumatoid factor, so he diagnosed me with rheumatoid arthritis. X-rays of my hands showed no damage. All of this time I was taking a double dose of Aleve. I was put on 7.5 mg of methotrexate a week, along with prednisone to help with the pain until the MTX had time to work. After three months, the dosage was increased, and has been increased periodically until now I'm at 15 mg. My last CBC showed that my white blood cell count was low. I have been off the prednisone for about a month and a half. I'm still having lots of pain, especially in my knees. I have also developed rheumatoid nodules on both elbows. I also have what I think is a nodule on one foot, but the rheumy said he didn't know what it was. Now I think I'm getting them on the tops of both hands and on one index finger. Now I'm supposed to decide if I want to take Arava. I would like to know about others' experiences with this medication. What I've read so far is very scary. I would also like to know if any of you have rheumatoid nodules. Can they be caused by methotrexate? Do they ever just go away? My aunt, the only other person in my family with RA, had huge nodules on her elbows. I'm so glad to have found a support group for this terrible disease. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Dear Sue...welcome to our great group. I am so sorry you have gone through/are going through so much. I've been on most all the RA meds...Arava didn't help me at all, but in the 6 months I was on it I lost some weight without really trying. Now, you need to understand I am VERY heavy, so for me, I thought that was reason enouh to stay on it. But my Rheummy was worried, and not seeing results, & I did get anemic...so on we went to the next med. I've had one nodule on my right elbow that did go away after I started Remicade. Please feel free to share whatever you need to here...this is a compassionate group of " veterans " of RA and similar illnesses. There is much information, and much caring here. With Hope... Tess NW Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Welcome Sue, I am 51 until Monday anyway and have had RA for 15 years, I have tried all the treatments for RA and the only thing that has worked is Methotrexate, I am on 27mg a week injectable. Even the methotrexate is not working real well but that is all that is left right now. I have no nodules and very little damage. I tried Arava and it seemed to help some on my hands but nowhere else. I also have Type II diabetes and control it by diet and exercise. (anyway no meds) It sounds like you got hit all at once, doesn't seem fair does it? There is a lot of good information here besides people that can understand the pain of RA they are all great. Hope you enjoy the group. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Sue, and welcome to the group. My name is Carol, I'm 36, and I live in Orlando. I was diagnosed with RA in Feb. of this year, and we're still working to get my RA under control. It sounds like you had a very tough year! I'm so sorry to hear you had to go through so many health-related struggles in such a short period of time, although what a blessing that you caught your breast cancer in an early stage. Like you, I'm taking Methotrexate, and like you I was just told my WBC is low. I'm on 10 mg, and we were just going to increase to 12.5. He wants to keep increasing up to 20 mg or until I get better results, but now that's on hold until my blood count is higher. I don't know much about Arava, but I'm sure or a (our moderators) will be able to tell you more. They can also tell you more about rheumatoid nodules. I think they are part of the RA, not a side effect of the MTX. You'll find a lot of warm and caring friends in this group, as well as great RA info. Hugs, Carol [ ] New member Hi, I've just joined this group today and am looking forward to hearing other members' experiences with rheumatoid arthritis. I'll be 63 next month, and live in piedmont North Carolina. Within a year I was diagnosed with shingles, rheumatoid arthritis, bleeding ulcer and anemia from Aleve, and breast cancer. It was really a rough year for me. The worst was the RA, worse even than the breast cancer, because it was caught early by my annual mammogram. It was Stage 0 ductal carcinoma in situ. I had a lumpectomy in March 2002, followed by 35 radiation treatments. Now I'm just hoping it doesn't come back. I have Type 2 diabetes, so the rheumatologist at first diagnosed me with two frozen shoulders, which is common in diabetics; and diabetic limited joint mobility syndrome, which affects mostly the hands and is usually painless. He sent me to physical therapy, which did no good and was just torture to have my arms moved into positions they didn't want to go into. I kept having unbearable pain, so I called the rheumatologist and he called in a prescription for Vioxx. That didn't help any more than Celebrex, which I'd already tried. I called him again about the pain, and this time he really got it. He got me in to see him in two days. Bloodwork showed lots of inflammation and a positive rheumatoid factor, so he diagnosed me with rheumatoid arthritis. X-rays of my hands showed no damage. All of this time I was taking a double dose of Aleve. I was put on 7.5 mg of methotrexate a week, along with prednisone to help with the pain until the MTX had time to work. After three months, the dosage was increased, and has been increased periodically until now I'm at 15 mg. My last CBC showed that my white blood cell count was low. I have been off the prednisone for about a month and a half. I'm still having lots of pain, especially in my knees. I have also developed rheumatoid nodules on both elbows. I also have what I think is a nodule on one foot, but the rheumy said he didn't know what it was. Now I think I'm getting them on the tops of both hands and on one index finger. Now I'm supposed to decide if I want to take Arava. I would like to know about others' experiences with this medication. What I've read so far is very scary. I would also like to know if any of you have rheumatoid nodules. Can they be caused by methotrexate? Do they ever just go away? My aunt, the only other person in my family with RA, had huge nodules on her elbows. I'm so glad to have found a support group for this terrible disease. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Sue: Welcome to the group - this is a great place to meet and share with people who have been in the same place you are - great information from the moderators too. I am 48 years old and was diagnosed with RA three years ago. I began treating with Plaquenil and Motrin, then was switched to Plaquenil and Methotrexate and Motrin, and now I am on Methotrexate, Bextra, and Arava. The Metho and the Plaquenil were just not holding the symptoms from progressing and so far it looks like the Arava and Metho are doing the trick - I still have flares, still have stiffness and pain in my hands, wrists, and elbows most of the time, and still have the danged fatigue, but it is better than it was. I too was afraid to begin taking the Arava - had read about the liver side effects and all and since I was already taking Metho I figured that it would be a double whammy on my liver - but I get regular blood work and am doing fine. My doctor put me on this until we are able to get Embrel - hopefully sometime by the end of the year but who knows? Sounds like you have had a he** of a year! Hope that things begin improving for you - you can't be too scared of the medications we need to take, be cautious but everything has side effects and it seems like most of them involve the liver because that is what filters out the toxins - metho and arava are toxic. But if it makes you feel better and you are able to cope again in your life, it is worth it I think. I am sure that the moderators can pull up some sites for you to check on the Arava and other meds. Good luck and let us know how you are doing. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 Hi Sue, Welcome to our group. Actually we're more like a family. Sorry that you had to find us under bad circumstances, but there are a lot of caring people here. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2002 Report Share Posted July 21, 2002 Hi and Welcome Sue, We are glad to have you here. While the disease that brought you here is quite unfair, we are a warm and caring bunch with the best moderators anywhere on the web. and a are very hard working, knowledgeable ladies who are also REALLY great people. I hope that you feel at home here and enjoy getting to know us as we get to know you also. You sure are a strong lady with all those health problems. Pick any one of those problems that you listed and that would be a plateful, but all of them seems as though you have been given more than your share. Please know that you will never feel alone again as far as the rheumatoid arthritis is concerned and if we can lend an ear to your other problems, we are always here. Just remember that all of us are only an e-mail away. Again, welcome Sue and feel free to ask questions and learn from this list. a has just started working on a new Support Site that is full of interesting articles and they are all just a click away. We will be talking with you soon! Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Welcome Sue. What a terrible year you¹ve had. I don¹t blame you for being nervous about taking arava. I was supposed to take it, but decided against it and took methotrexate instead. The arava has been getting a lot of bad press lately and there are consumer groups that are trying to get it banned. The FDA has 6 times more reports of liver damage among Arava users than methotrexate users even though thousands more people use methotrexate. Citing similar reactions abroad, the European Union last year warned patients and doctors about Arava's toxicity. MTX is also hard on the liver, but taking folic acid helps reduce the toxicity. MTX has been used for a very long time for RA and the side effects are well know. Careful monitoring will normally catch any problems early and are reversed when stopping the med. In rare cases liver and lung complications are possible. Here¹s a good site about arava: http://www.aventispharma-us.com/PIs/arava_TXT.html Rheumatoid nodules are caused by the disease, not methotrexate. I¹ve had many and continue to develop them. I have a new one brewing in the arch of my foot. As if walking isn¹t painful enough, I have to get one there!!!!! I had many removed from my ankles, but most of the time they don¹t have to be removed. Mine made walking to painful to tolerate since they were close to the Achilles tendon. You can find more info about nodules on our RA webpage: http://rheumatoid.arthritis.freehosting.net/Rheumatoid Arthritis.html Feel free to ask any questions. a > Hi, > > I've just joined this group today and am looking forward to hearing other > members' experiences with rheumatoid arthritis. I'll be 63 next month, and > live in piedmont North Carolina. > > Within a year I was diagnosed with shingles, rheumatoid arthritis, bleeding > ulcer and anemia from Aleve, and breast cancer. It was really a rough year > for me. The worst was the RA, worse even than the breast cancer, because it > was caught early by my annual mammogram. It was Stage 0 ductal carcinoma in > situ. I had a lumpectomy in March 2002, followed by 35 radiation treatments. > Now I'm just hoping it doesn't come back. > > I have Type 2 diabetes, so the rheumatologist at first diagnosed me with two > frozen shoulders, which is common in diabetics; and diabetic limited joint > mobility syndrome, which affects mostly the hands and is usually painless. > He sent me to physical therapy, which did no good and was just torture to > have my arms moved into positions they didn't want to go into. I kept having > unbearable pain, so I called the rheumatologist and he called in a > prescription for Vioxx. That didn't help any more than Celebrex, which I'd > already tried. I called him again about the pain, and this time he really > got it. He got me in to see him in two days. Bloodwork showed lots of > inflammation and a positive rheumatoid factor, so he diagnosed me with > rheumatoid arthritis. X-rays of my hands showed no damage. > > All of this time I was taking a double dose of Aleve. > > I was put on 7.5 mg of methotrexate a week, along with prednisone to help > with the pain until the MTX had time to work. After three months, the dosage > was increased, and has been increased periodically until now I'm at 15 mg. > My last CBC showed that my white blood cell count was low. I have been off > the prednisone for about a month and a half. I'm still having lots of pain, > especially in my knees. > > I have also developed rheumatoid nodules on both elbows. I also have what I > think is a nodule on one foot, but the rheumy said he didn't know what it > was. Now I think I'm getting them on the tops of both hands and on one index > finger. > > Now I'm supposed to decide if I want to take Arava. I would like to know > about others' experiences with this medication. What I've read so far is > very scary. > > I would also like to know if any of you have rheumatoid nodules. Can they be > caused by methotrexate? Do they ever just go away? My aunt, the only other > person in my family with RA, had huge nodules on her elbows. > > I'm so glad to have found a support group for this terrible disease. > > Sue > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 a, I am currently taking methotrexate. I've been taking it for about 11 months now, with the dosage being increased gradually until it's up to 15 mg. The last labwork showed that my WBC is low, so I guess it's not wise to increase it again. I am so much better than I was a year ago before I started taking the MTX. I'm not having nearly as much pain, but I am still having pain and stiffness, especially in my knees. And it's pretty much constant. I'd probably be fine if I still took a low dosage of prednisone. But I already have cataracts and also Fuchs' corneal dystrophy, and I don't want to jeopardize my eyesight further. I was also worried about thinning bones. This is a big decision. I have read about the side effects of Arava. But the side effects of MTX are bad, too. When I read the brochure on that, my thought was that if it didn't kill me, it might help me. Has anyone on the list taken Arava and lived to tell about it? I'd like to hear from you. Sue on 7/21/02 10:31 PM, a at paula54@... wrote: > Welcome Sue. What a terrible year you¹ve had. I don¹t blame you for being > nervous about taking arava. I was supposed to take it, but decided against > it and took methotrexate instead. The arava has been getting a lot of bad > press lately and there are consumer groups that are trying to get it banned. > The FDA has 6 times more reports of liver damage among Arava users than > methotrexate users even though thousands more people use methotrexate. > Citing similar reactions abroad, the European Union last year warned > patients and doctors about Arava's toxicity. MTX is also hard on the liver, > but taking folic acid helps reduce the toxicity. MTX has been used for a > very long time for RA and the side effects are well know. Careful > monitoring will normally catch any problems early and are reversed when > stopping the med. In rare cases liver and lung complications are possible. > Here¹s a good site about arava: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Judy, Welcome to our little RA family. We are glad you are here, but sorry that you had to find us. We have very knowledgeable and compassionate moderators who are really great people. a, one our moderators has just put together a new Support Site. Check it out. There is a lot of information to be obtained from this group. All you have to do is ask. We serve Whine and Cheese here everyday, with no limit on the Whine! Remember, that you will never be alone again with this disease. This is a safe place to come with your questions, comments, jokes, recipes and just to vent. We are all just an e-mail away. Hope you enjoy us as much as we will enjoy getting to know you. Gentle, tender, angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hello Judy and welcome to the group. You will find some realy nice people in this group, they have been through a lot when it comes to this disease. I have learned more since I found this group than I did in the whole 15 years with RA. If you have a question there is some one here to answer it or a or can find a link for you, they have found some really good articles. I have a son 30 and a daughter 29 each with three children, which is what I live for. My daughter has been with me when I have had a really bad flare, helped me out of bed, dried me off after a shower. Her biggest worry is that I over due and have another. My son is another matter, he hasn't seen any of that and I am not sure he would handle it very well. All n'all I am proud to be there mom (of course they think it is all for the grandkids). Hope you can get a diagnoses soon and get the help you need. in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi , Thanks for the " welcome. " I've seen messages on this list that lets me know people are here for each other. This morning isn't too good. It would be easier to say where I don't hurt. We've been having a lot of rain and super high humidity this past week and I think it's causing me more pain. I'll sure to be glad to see it go. Judy - in FL > Hello Judy and welcome to the group. You will find some really nice > people in this group, they have been through a lot when it comes to > > this disease. I have learned more since I found this group than I > did in the whole 15 years with RA. If you have a question there is > > some one here to answer it or a or can find a link for you, > > they have found some really good articles. > > I have a son 30 and a daughter 29 each with three children, which is > > what I live for. My daughter has been with me when I have had a > really bad flare, helped me out of bed, dried me off after a shower. > > Her biggest worry is that I over due and have another. My son is > another matter, he hasn't seen any of that and I am not sure he > would > handle it very well. All n'all I am proud to be there mom (of > course > they think it is all for the grandkids). > > Hope you can get a diagnoses soon and get the help you need. > > in WA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Thanks Debs. This groups sure knows how to make someone feel welcomed. Judy - in FL > Hi Judy, > > Welcome to our little RA family. We are glad you are here, but > sorry that > you had to find us. We have very knowledgeable and compassionate > moderators > who are really great people. a, one our moderators has just put > together > a new Support Site. Check it out. There is a lot of information to > be > obtained from this group. All you have to do is ask. > > We serve Whine and Cheese here everyday, with no limit on the > Whine! > > Remember, that you will never be alone again with this disease. > This is a > safe place to come with your questions, comments, jokes, recipes and > just to > vent. We are all just an e-mail away. > > Hope you enjoy us as much as we will enjoy getting to know you. > > Gentle, tender, angel hugs, > > Debs in FL > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 <<. This morning isn't too good. It would be easier to say where I don't hurt. We've been having a lot of rain and super high humidity this past week and I think it's causing me more pain. >> Hi Judy, and welcome!!! I'm sorry to hear you're having a bad morning. I live in Orlando, and the humidity we've had the past 6 weeks had kept me in an almost continuous flare. My Dr. and I were talking about whether I should move to a drier climate. He said if it would give me relief, it would be worth considering. We have our own business, though, and moving just isn't that easy. I hope you feel better soon. Hugs, Carol [ ] Re: New member Hi , Thanks for the " welcome. " I've seen messages on this list that lets me know people are here for each other. This morning isn't too good. It would be easier to say where I don't hurt. We've been having a lot of rain and super high humidity this past week and I think it's causing me more pain. I'll sure to be glad to see it go. Judy - in FL > Hello Judy and welcome to the group. You will find some really nice > people in this group, they have been through a lot when it comes to > > this disease. I have learned more since I found this group than I > did in the whole 15 years with RA. If you have a question there is > > some one here to answer it or a or can find a link for you, > > they have found some really good articles. > > I have a son 30 and a daughter 29 each with three children, which is > > what I live for. My daughter has been with me when I have had a > really bad flare, helped me out of bed, dried me off after a shower. > > Her biggest worry is that I over due and have another. My son is > another matter, he hasn't seen any of that and I am not sure he > would > handle it very well. All n'all I am proud to be there mom (of > course > they think it is all for the grandkids). > > Hope you can get a diagnoses soon and get the help you need. > > in WA > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Carol, I live near Tallahassee and the thunder is rumbling right now, so more rain and higher humidity. Moving is not an option for us. Jim is well planted in his job and the kids and grandkids are here. I'll just have to try to do the best I can where I am. I know my new found friends on RA-Support will be a big help to me. Judy - in FL > Hi Judy, and welcome!!! I'm sorry to hear you're having a bad > morning. I > live in Orlando, and the humidity we've had the past 6 weeks had > kept me in > an almost continuous flare. My Dr. and I were talking about whether > I > should move to a drier climate. He said if it would give me relief, > it > would be worth considering. We have our own business, though, and > moving > just isn't that easy. > > I hope you feel better soon. > > Hugs, > Carol > [ ] Re: New member > > Hi , > > Thanks for the " welcome. " I've seen messages on this list that lets > me > know people are here for each other. This morning isn't too good. > It > would be easier to say where I don't hurt. We've been having a lot > of > rain and super high humidity this past week and I think it's causing > me > more pain. I'll sure to be glad to see it go. > > Judy - in FL > > > Hello Judy and welcome to the group. You will find some really > nice > > people in this group, they have been through a lot when it comes > to > > > > this disease. I have learned more since I found this group than > I > > did in the whole 15 years with RA. If you have a question there > is > > > > some one here to answer it or a or can find a link for > you, > > > > they have found some really good articles. > > > > I have a son 30 and a daughter 29 each with three children, which > is > > > > what I live for. My daughter has been with me when I have had a > > really bad flare, helped me out of bed, dried me off after a > shower. > > > > Her biggest worry is that I over due and have another. My son is > > another matter, he hasn't seen any of that and I am not sure he > > would > > handle it very well. All n'all I am proud to be there mom (of > > course > > they think it is all for the grandkids). > > > > Hope you can get a diagnoses soon and get the help you need. > > > > in WA > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Hi Judy: Welcome to our group - the people here are very kind and understanding, truly know where you are coming from with your pain, and can be a great source of strength and knowledge for you. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 Hi Judy, Welcome to the group. I am looking forward to the pleasure of getting to know you better. I am 35, have RA (diagnosed 2 and a half years ago), I am a single mom of a 6-year old son. I found great comfort here with this group of fine, caring, compassionate people and hope you find the same. Love and Hugs Stacey in PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2002 Report Share Posted July 31, 2002 Welcome Lena! I'm fairly new here too. The people here are great and you'll find that they are very knowledgable and experience. I myself, was diagnoised with RA last March. I've got the pain and stiffness under control now and feel fine. I don't know how long it will last, but I'm enjoying it while I can. Susie in MN > Hi Everyone, > I just joined the group. I was diagnosed with SLE when I was 21. In > its early years it shut my kidneys down twice caused problems with my > lungs once. After several years it quietly went into remission, Where > it has remained ever sense. I'm now 48 and take no meds for it. I was > diagnosed with Raynoids last fall. The worst thing I have is the > continual fatigue. > Lena Quote Link to comment Share on other sites More sharing options...
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