Guest guest Posted May 15, 2003 Report Share Posted May 15, 2003 Hi Jen. So sorry to hear that you are feeling the effects of methotrexate. Unfortunately, I have taken it by mouth and with subcutaneous injections. It made me want to sleep for days and days and days. It also made me very nauseated and I often threw up. It eventually started giving me mouth sores. I can understand how you are losing weight because when I took methotrexate it made me have no appetite at all. I never had a problem giving myself an injection, but make sure that you always rotate the sites each week. Since you are on a very low dose of methotrexate your body may adjust to it and the side effects may go away completely! I know it usually takes 6-8 weeks to get the full benefit of methotrexate. I hope this helps you and I hope you do well with the methotrexate, but if the side effects do not go away, I would tell my MD and see if there isn't anything else you could possibly take. Take Care! Marci. > > I understand you apprehension about taking MTX. It really is a > scary drug > > to take, but it also is the oldest and most reliable. The majority > of > > people taking it have no problems with it providing they take folic > acid > > with it. I was on the oral for awhile, but the GI side effects > were really > > bad. My best friend was the bathroom. I went on the injections > and had no > > side effects. It wasn't effective for me so I stopped. Good luck > with your > > decision. > > a > > > > > > > Ihave just joined and am very interested in reading all your > > > comments. I was diagnosed about two years ago with RA. My dr. > > > started me off on plaquenil and now wants me to start wit > > > methotrexate. I am a little scared to do so, so if any of you > are on > > > that could you please share your experiences with me. I was > supposed > > > to start it last week but I guess I will start this weekend. I > am a > > > secretary and have pain lifting the phone and things like that. > I am > > > still working and have not even discussed not working. I don't > know > > > what I would do. Thanks for listening and I look forward to > hearing > > > from everyone. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2003 Report Share Posted May 19, 2003 Jen, There are several articles on MTX at my website: http://rheumatoid.arthritis.freehosting.net/drugs.html#mtx There are many members that give themselves injections. They say the first time is the worse. I'm lucky that I have a husband that gives me my injections. I remember how mtx affected my stomach, and I'd gladly endure the few seconds of a needle prick rather than the constant upset stomach. a > I'm new to this and was looking to find more info on MTX. I just > started it 4 weeks ago on a very low dose. I've experienced very few > side effects but was wondering if fatigue was normal? Also, is it > hard to give yourself a shot? I'm am quickly losing weight and can't > afford the upset stomach I constantly have. > > Smiles, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Glad your in the group! Man sounds like you have your hands full. Let us know what you find out and if there is anything I can do to help! Rhiannon, TX Bryce 10.5 months >From: " cdmolnar13 " <CdMolnar@...> >Reply-Plagiocephaly >Plagiocephaly >Subject: new member >Date: Thu, 22 May 2003 22:04:51 -0000 > > >Hi everyone, > >I've been lurking for a while. > >My daughter is 8 1/2 months, and I've decided we need to >address her facial asymmetry now, rather than waiting another month, >like our ped first suggested. She first showed a flat spot around >four months old. I started repositioning immediately. (I've read >about positional plagiocephaly before) The flat spot is very minimal >now, but I noticed the facial asymmetry around 6 months and it hasn't >improved. With all the reading I've done, I'm still not sure if it's >positional or cranio. Besides not having much of a flat spot, she >has no forehead bossing, just one side of her face appears larger >than the other. The larger eye is crossing occasionally, and her jaw >doesn't meet on the larger side, which is why I don't want to let >this go any longer. > >I called CHOP (Children's Hospital of Philadelphia) today to make an >appointment with neurosurgery for an evaluation. They are supposed >to call me back, as " we are in the middle of patient care hours " . >Huh? You can't make an appointment? And since it's after hours now, >they will call in the morning when I'm at work. :-( > >This sounds like it's going to be a fun journey. Hearing about the >insurance issues - ugh. I already know that no one at CHOP except >the hospital itself and anesthesiology are in our PPO network. So >I'm looking forward (hah) to the out-of-network co-pays. And then >figuring out if they will pay for a band or helmet. And weekly >adjustments - the hospital is an hour away on a good traffic day. >(which are few and far between) > >My oldest son just got a 4 month furlough from cardiology, (after >four days in the past four weeks) so it's 's turn now, and then >about when she's done, either banding or surgery, it will be my other >daughter's turn with cardiology to see if she needs surgery or not. >At least I have one kid who doesn't appear in CHOP's patient records >(yet! LOL) > >I would love to hear from other moms with experience with >neurosurgery/plastic surgery at CHOP. > > mom to , 10, hypoplastic left heart syndrome, heart >transplant at 6 weeks, , 9, Abigail Rose, 2 1/2, bicuspid aortic >valve and patent foramen ovale, and Alice, 8 1/2 months, either >plagio or cranio. >Central Bucks County, PA > > _________________________________________________________________ Help STOP SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 --- In Plagiocephaly , " cdmolnar13 " <CdMolnar@a...> wrote: > Hi Chris--I live in Chester County and went last week w/my son (Ryder,5mo) to chop--we brought his side flat spot up to his pediatrician and he referred us--Anyway--we met w/ dr sutton and his nurse--they were very laid back and felt repositioning was a priority- -although they talked a bit about helmets etc...they were not eager for us to do it---all of this was ok w/ me b/c i personally believe it's ok not to have the perfect head shape!! even though it angers me that there isn't more education from pediatricians on repositioning early on---actually, it turns out my son's flat spot is not from being too much on his back--ready for this??---he was too much in the front pack!!! he faced me the whole time (I was working) sleeping for hours--always more to one side than the other!--julia > Hi everyone, > > I've been lurking for a while. > > My daughter is 8 1/2 months, and I've decided we need to > address her facial asymmetry now, rather than waiting another month, > like our ped first suggested. She first showed a flat spot around > four months old. I started repositioning immediately. (I've read > about positional plagiocephaly before) The flat spot is very minimal > now, but I noticed the facial asymmetry around 6 months and it hasn't > improved. With all the reading I've done, I'm still not sure if it's > positional or cranio. Besides not having much of a flat spot, she > has no forehead bossing, just one side of her face appears larger > than the other. The larger eye is crossing occasionally, and her jaw > doesn't meet on the larger side, which is why I don't want to let > this go any longer. > > I called CHOP (Children's Hospital of Philadelphia) today to make an > appointment with neurosurgery for an evaluation. They are supposed > to call me back, as " we are in the middle of patient care hours " . > Huh? You can't make an appointment? And since it's after hours now, > they will call in the morning when I'm at work. :-( > > This sounds like it's going to be a fun journey. Hearing about the > insurance issues - ugh. I already know that no one at CHOP except > the hospital itself and anesthesiology are in our PPO network. So > I'm looking forward (hah) to the out-of-network co-pays. And then > figuring out if they will pay for a band or helmet. And weekly > adjustments - the hospital is an hour away on a good traffic day. > (which are few and far between) > > My oldest son just got a 4 month furlough from cardiology, (after > four days in the past four weeks) so it's 's turn now, and then > about when she's done, either banding or surgery, it will be my other > daughter's turn with cardiology to see if she needs surgery or not. > At least I have one kid who doesn't appear in CHOP's patient records > (yet! LOL) > > I would love to hear from other moms with experience with > neurosurgery/plastic surgery at CHOP. > > mom to , 10, hypoplastic left heart syndrome, heart > transplant at 6 weeks, , 9, Abigail Rose, 2 1/2, bicuspid aortic > valve and patent foramen ovale, and Alice, 8 1/2 months, either > plagio or cranio. > Central Bucks County, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi, Welcome to the group! I know we have members that use/are using CHOPS and I'm sure they'll reply to you as soon as they see your post. I just wantted to say welcome! --- In Plagiocephaly , " cdmolnar13 " <CdMolnar@a...> wrote: > > Hi everyone, > > I've been lurking for a while. > > My daughter is 8 1/2 months, and I've decided we need to > address her facial asymmetry now, rather than waiting another month, > like our ped first suggested. She first showed a flat spot around > four months old. I started repositioning immediately. (I've read > about positional plagiocephaly before) The flat spot is very minimal > now, but I noticed the facial asymmetry around 6 months and it hasn't > improved. With all the reading I've done, I'm still not sure if it's > positional or cranio. Besides not having much of a flat spot, she > has no forehead bossing, just one side of her face appears larger > than the other. The larger eye is crossing occasionally, and her jaw > doesn't meet on the larger side, which is why I don't want to let > this go any longer. > > I called CHOP (Children's Hospital of Philadelphia) today to make an > appointment with neurosurgery for an evaluation. They are supposed > to call me back, as " we are in the middle of patient care hours " . > Huh? You can't make an appointment? And since it's after hours now, > they will call in the morning when I'm at work. :-( > > This sounds like it's going to be a fun journey. Hearing about the > insurance issues - ugh. I already know that no one at CHOP except > the hospital itself and anesthesiology are in our PPO network. So > I'm looking forward (hah) to the out-of-network co-pays. And then > figuring out if they will pay for a band or helmet. And weekly > adjustments - the hospital is an hour away on a good traffic day. > (which are few and far between) > > My oldest son just got a 4 month furlough from cardiology, (after > four days in the past four weeks) so it's 's turn now, and then > about when she's done, either banding or surgery, it will be my other > daughter's turn with cardiology to see if she needs surgery or not. > At least I have one kid who doesn't appear in CHOP's patient records > (yet! LOL) > > I would love to hear from other moms with experience with > neurosurgery/plastic surgery at CHOP. > > mom to , 10, hypoplastic left heart syndrome, heart > transplant at 6 weeks, , 9, Abigail Rose, 2 1/2, bicuspid aortic > valve and patent foramen ovale, and Alice, 8 1/2 months, either > plagio or cranio. > Central Bucks County, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Glad you decided to post your introduction. We're glad you have joined us. We have numerous members from PA so hopefully you will get some good feedback. Sounds like an eval with the specialist will be in order to rule out cranio, however, if you have seen some improvement with repositioning you may be okay. Still a good idea to get a diagnosis from a specialist. Let us know when you have an appointment all set up. Marci (Mom to ) Oklahoma --- In Plagiocephaly , " cdmolnar13 " <CdMolnar@a...> wrote: > > Hi everyone, > > I've been lurking for a while. > > My daughter is 8 1/2 months, and I've decided we need to > address her facial asymmetry now, rather than waiting another month, > like our ped first suggested. She first showed a flat spot around > four months old. I started repositioning immediately. (I've read > about positional plagiocephaly before) The flat spot is very minimal > now, but I noticed the facial asymmetry around 6 months and it hasn't > improved. With all the reading I've done, I'm still not sure if it's > positional or cranio. Besides not having much of a flat spot, she > has no forehead bossing, just one side of her face appears larger > than the other. The larger eye is crossing occasionally, and her jaw > doesn't meet on the larger side, which is why I don't want to let > this go any longer. > > I called CHOP (Children's Hospital of Philadelphia) today to make an > appointment with neurosurgery for an evaluation. They are supposed > to call me back, as " we are in the middle of patient care hours " . > Huh? You can't make an appointment? And since it's after hours now, > they will call in the morning when I'm at work. :-( > > This sounds like it's going to be a fun journey. Hearing about the > insurance issues - ugh. I already know that no one at CHOP except > the hospital itself and anesthesiology are in our PPO network. So > I'm looking forward (hah) to the out-of-network co-pays. And then > figuring out if they will pay for a band or helmet. And weekly > adjustments - the hospital is an hour away on a good traffic day. > (which are few and far between) > > My oldest son just got a 4 month furlough from cardiology, (after > four days in the past four weeks) so it's 's turn now, and then > about when she's done, either banding or surgery, it will be my other > daughter's turn with cardiology to see if she needs surgery or not. > At least I have one kid who doesn't appear in CHOP's patient records > (yet! LOL) > > I would love to hear from other moms with experience with > neurosurgery/plastic surgery at CHOP. > > mom to , 10, hypoplastic left heart syndrome, heart > transplant at 6 weeks, , 9, Abigail Rose, 2 1/2, bicuspid aortic > valve and patent foramen ovale, and Alice, 8 1/2 months, either > plagio or cranio. > Central Bucks County, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2003 Report Share Posted May 22, 2003 Hi Its good to see you coming out of lurkdom and joining in on this fun! ;o) I live in Philadelphia, but we didn't go to CHOP. We took the twins down to Saint 's Hospital for Children, and they were really awesome about making an appointment for us. We had to wait like just a week and half and we got a Saturday appt. It might be worthwhile to check to see if any providers there are in-network. What insurance do you have? I'm hoping with all my might that this is indeed just plagio and that you won't have to deal with cranio. Please be sure to keep us up to date! Niki Kaylie & Danny (STAR grads) Phila., PA --- In Plagiocephaly , " cdmolnar13 " <CdMolnar@a...> wrote: > > Hi everyone, > > I've been lurking for a while. > > My daughter is 8 1/2 months, and I've decided we need to > address her facial asymmetry now, rather than waiting another month, > like our ped first suggested. She first showed a flat spot around > four months old. I started repositioning immediately. (I've read > about positional plagiocephaly before) The flat spot is very minimal > now, but I noticed the facial asymmetry around 6 months and it hasn't > improved. With all the reading I've done, I'm still not sure if it's > positional or cranio. Besides not having much of a flat spot, she > has no forehead bossing, just one side of her face appears larger > than the other. The larger eye is crossing occasionally, and her jaw > doesn't meet on the larger side, which is why I don't want to let > this go any longer. > > I called CHOP (Children's Hospital of Philadelphia) today to make an > appointment with neurosurgery for an evaluation. They are supposed > to call me back, as " we are in the middle of patient care hours " . > Huh? You can't make an appointment? And since it's after hours now, > they will call in the morning when I'm at work. :-( > > This sounds like it's going to be a fun journey. Hearing about the > insurance issues - ugh. I already know that no one at CHOP except > the hospital itself and anesthesiology are in our PPO network. So > I'm looking forward (hah) to the out-of-network co-pays. And then > figuring out if they will pay for a band or helmet. And weekly > adjustments - the hospital is an hour away on a good traffic day. > (which are few and far between) > > My oldest son just got a 4 month furlough from cardiology, (after > four days in the past four weeks) so it's 's turn now, and then > about when she's done, either banding or surgery, it will be my other > daughter's turn with cardiology to see if she needs surgery or not. > At least I have one kid who doesn't appear in CHOP's patient records > (yet! LOL) > > I would love to hear from other moms with experience with > neurosurgery/plastic surgery at CHOP. > > mom to , 10, hypoplastic left heart syndrome, heart > transplant at 6 weeks, , 9, Abigail Rose, 2 1/2, bicuspid aortic > valve and patent foramen ovale, and Alice, 8 1/2 months, either > plagio or cranio. > Central Bucks County, PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2003 Report Share Posted May 23, 2003 Welcome to the group that all of us think of as our 2nd " family. " Sorry that it was the RA and other things that brought you here. You may rave, rant, vent, share, learn, and all the other things that go with having a disease such as this. We're here for you! You will love and a, our moderator and owner. They keep us up to date on everything and if you have a question about anything, besides everyone giving their info, these lovely ladies search for an answer. Where are you located? I'm in CA and there are people at all points across the US and Canada plus our star - momma to be - in Mauritoris off the coast of S. Africa. They will be introducing themselves to you shortly and you will get to know and love all of them. Take care and hope to see you post often. Jan in CA +/:=) <sjbaker@...> wrote: Hi- I'm new to rheumatiod arthritis, but I have had Crohn's Disease for about 6 years. I just recently had my first bad flare. I have started remicade and am awaiting my 3rd dose. I am so glad to have found this group. When are your chats? I would love some coping tips. I'm 29, and have an 8yr. old daughter. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi . Welcome to our group. We don¹t have scheduled chats, but anyone is free to use the chat room. We use this forum as our chat room. Sorry you're flaring. I hope the remicade helps you. Enteropathic arthritis- This term is given to the arthritis which may accompany ulcerative colitis or Crohn's disease. About 10-20% of Crohn¹s disease and ulcerative colitis patients can develop peripheral joint arthritis. http://www.emedicine.com/med/topic3098.htm Rheumatic Manifestations of Gastrointestinal Diseases The term ³enteropathic arthritis² describes joint manifestations that occur in conjunction with gastrointestinal disease. The clinical picture of this entity is still evolving and has gained importance from advances in knowledge regarding gut pathophysiology and cell trafficking. It is very important to keep enteropathic arthritis in the differential diagnosis of patients with unexplained arthritis and to obtain detailed history, complete physical examination, and appropriate testing. These arthritic syndromes can be treated symptomatically, but long-term therapy should be directed at the underlying cause. http://www.arthritis.org/research/bulletin/vol51no2/51_2_summary.asp a > Hi- I'm new to rheumatiod arthritis, but I have had Crohn's Disease > for about 6 years. I just recently had my first bad flare. I have > started remicade and am awaiting my 3rd dose. I am so glad to have > found this group. When are your chats? I would love some coping > tips. I'm 29, and have an 8yr. old daughter. Thanks, > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Welcome, ! Sorry about your diagnoses. My former SIL has Crohn's disease. It is a big challenge for her to manage it. Part of the problem for her is that it took WAY too many years to get her diagnosis. I hope the Remicade works for you. If you ever want to chat at a specific time, you can always post a message to the group and see if anyone will join you. [ ] New Member > Hi- I'm new to rheumatiod arthritis, but I have had Crohn's Disease > for about 6 years. I just recently had my first bad flare. I have > started remicade and am awaiting my 3rd dose. I am so glad to have > found this group. When are your chats? I would love some coping > tips. I'm 29, and have an 8yr. old daughter. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi GG, welcome to this great group I dont post often but it is so comforting to come here when you need to vent. Sorry to hear you were disgnoes with RA...boo I have had it since 1996. I am 39 and holding and have 3 kids to raise, so I know what you are going thru. Try not to be so hard on yourself. SOmtimes I get sooooo mad when I cant even open a jar or turn the ignition in my truck. I have always rebelled against this disease...maybe that keeps me fighting! anyways best wishes to you Judy in CA --- In , " ragyrl2002 " <godsgyrl2000@j...> wrote: > Hi, > > I'm 30 years old and was diagnosed with RA in Oct. 2002. I have also > been diagnosed with Fibromyalgia and suffer from chronic back pain. > Would love to talk to people with same condition and hear about their > experiences and insight. > > I am a Christian and believe in prayer so I will pray for you and be > there for you emotionally and spiritually when you need me. > > I have two boys ages 2 & 3 whom are both very demanding at this age > who wear me out beyond belief on top of the RA & FMS. > > Hope to talk to lots of people soon. > > Bye, > > GG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi Judy, Sorry to hear you've suffer with RA for son long, and thanks for the sympathy and understanding. It's so nice to hear from someone who " gets it " , you konow what I mean? Your comment about opening up a jar is so true, just this morning after cleaning up the kitchen I felt as if I had just run a marathon, my body was weak,my hands were shakey, and I was breathing fast. It's probably more of my Fibromyalgia than the RA, but they are so closesly related it's either one or the other for me these days. I justwoke up from a two hour nap and still feel weak and shakey. Frustrated doesn't begin to explain how this makes me feel. I mean I'm only 30 for goodness sake. But, I know this is a part of God's great plan so I'm standing firm on that. Hope to hear from you again soon. Tell me more about yourself, marriage, career, kids, etc. I live in , NV in case I didn't post that, my parents along with my 16 yr old sister and 28 yr old brother live in Rowland Heights, familiar with that area? What part of Cali. are you in? Take care, G.G. On Sat, 24 May 2003 16:42:07 -0000 " ladydback " <ladydback@...> writes: Hi GG, welcome to this great group I dont post often but it is so comforting to come here when you need to vent. Sorry to hear you were disgnoes with RA...boo I have had it since 1996. I am 39 and holding and have 3 kids to raise, so I know what you are going thru. Try not to be so hard on yourself. SOmtimes I get sooooo mad when I cant even open a jar or turn the ignition in my truck. I have always rebelled against this disease...maybe that keeps me fighting! anyways best wishes to you Judy in CA --- In , " ragyrl2002 " <godsgyrl2000@j...> wrote: > Hi, > > I'm 30 years old and was diagnosed with RA in Oct. 2002. I have also > been diagnosed with Fibromyalgia and suffer from chronic back pain. > Would love to talk to people with same condition and hear about their > experiences and insight. > > I am a Christian and believe in prayer so I will pray for you and be > there for you emotionally and spiritually when you need me. > > I have two boys ages 2 & 3 whom are both very demanding at this age > who wear me out beyond belief on top of the RA & FMS. > > Hope to talk to lots of people soon. > > Bye, > > GG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2003 Report Share Posted May 24, 2003 Hi Judy, I too was dia. w/ RA in '96. I'm 43 and have two kids, 17 & 20. The jar and ignition difficulties...I didn't think I'd ever find someone who understood... This group is a Godsend.. Warm thoughts and prayers to all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Hi , Sounds like you and I are about at the same point in our Dx. Hopefully we can learn together. Noreen, the other newbie [ ] New Member Hello, I am 50 yoa and was very recently diagnosed with RA. I have not had a chance to discuss it much with my Rheumatologist yet but have been doing some reading on the internet. The report from x-rays of my knees say early signs of RA. I have had other problems before that may be related. I started having problems about 5 years ago with my hands. The dx at that time was Carpal Tunnel Syndrome for which I had surgery on one hand (didn't seem to help much). I did not have a repetative motion job so I think that might be related to RA. Next I had trouble with my feet, then my neck and now in my knees. My RA factor was negative 2 years ago when it was last checked, sed rate is normal but C-reactive protein is elevated. My white count has been above normal since December. I am very interested in reading some of the past messages as I would like to have as much info as possible. I look forward to learning much from the Group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 Welcome, Rene! Sorry about your recent RA diagnosis and that you aren't feeling well, but I'm glad you found us. Has your rheumatologist started you on any medications yet? [ ] New Member > Hello, I am 50 yoa and was very recently diagnosed with RA. I have > not had a chance to discuss it much with my Rheumatologist yet but > have been doing some reading on the internet. The report from x-rays > of my knees say early signs of RA. I have had other problems before > that may be related. I started having problems about 5 years ago > with my hands. The dx at that time was Carpal Tunnel Syndrome for > which I had surgery on one hand (didn't seem to help much). I did > not have a repetative motion job so I think that might be related to > RA. Next I had trouble with my feet, then my neck and now in my > knees. My RA factor was negative 2 years ago when it was last > checked, sed rate is normal but C-reactive protein is elevated. My > white count has been above normal since December. I am very > interested in reading some of the past messages as I would like to > have as much info as possible. I look forward to learning much from > the Group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2003 Report Share Posted June 14, 2003 -Yes, she (my Rheumatologist) immediately started me on Prednisone and said we would discuss treatment options when I came back in 3 wks. -- In , " " <Matsumura_Clan@m...> wrote: > Welcome, Rene! > > Sorry about your recent RA diagnosis and that you aren't feeling well, > but I'm glad you found us. > > Has your rheumatologist started you on any medications yet? > > > > > > [ ] New Member > > > > Hello, I am 50 yoa and was very recently diagnosed with RA. I have > > not had a chance to discuss it much with my Rheumatologist yet but > > have been doing some reading on the internet. The report from x- rays > > of my knees say early signs of RA. I have had other problems before > > that may be related. I started having problems about 5 years ago > > with my hands. The dx at that time was Carpal Tunnel Syndrome for > > which I had surgery on one hand (didn't seem to help much). I did > > not have a repetative motion job so I think that might be related to > > RA. Next I had trouble with my feet, then my neck and now in my > > knees. My RA factor was negative 2 years ago when it was last > > checked, sed rate is normal but C-reactive protein is elevated. My > > white count has been above normal since December. I am very > > interested in reading some of the past messages as I would like to > > have as much info as possible. I look forward to learning much from > > the Group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2003 Report Share Posted June 16, 2003 Welcome Rene. You'll learn a lot about RA from our group. We've have many knowledgeable members and we've got a lot of experience with all the treatments available. Please feel free to ask any questions. a > Hello, I am 50 yoa and was very recently diagnosed with RA. I have > not had a chance to discuss it much with my Rheumatologist yet but > have been doing some reading on the internet. The report from x-rays > of my knees say early signs of RA. I have had other problems before > that may be related. I started having problems about 5 years ago > with my hands. The dx at that time was Carpal Tunnel Syndrome for > which I had surgery on one hand (didn't seem to help much). I did > not have a repetative motion job so I think that might be related to > RA. Next I had trouble with my feet, then my neck and now in my > knees. My RA factor was negative 2 years ago when it was last > checked, sed rate is normal but C-reactive protein is elevated. My > white count has been above normal since December. I am very > interested in reading some of the past messages as I would like to > have as much info as possible. I look forward to learning much from > the Group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Welcome, Elaine! Sorry to hear that both you and your husband have RA, but at least you shouldn't have the my-spouse-doesn't-understand problem, LOL. It's wonderful that you support each other so well and try to reduce the amount of stress in your lives. Glad you found us and hope you enjoy being part of the group! [ ] New Member > Hi everyone, I've just joined the group today and having read > through some of the messages, I feel like I have found the right > group to be in. > My husband & I both have RA. Him since 1990 and me since Dec 2000. > Well, like the wedding vows say, in sickness & in health!! He's 47 > & I'm 45. Married 18 yrs, no children. He was on " gold shots " for > 13 years, but changed end of last year to methotrexate & folic acid. > I was on plaquinel & celebrex for the first year, then changed to > sulfasalazine & celebrex. We've both been battling depression since > late in the Fall. We feel like walking drug stores!! Other family > stresses have taken a toll on us, but we are trying to take things a > bit easier at the present time. We are both unable to work > currently. He's waiting for disability pension to begin & I'm off > on stress leave from the company I work for. We're trying to relax > and enjoy the good weather. We're very supportive of each other and > we seem to know where each other is having pain at any given time of > the day. He doesn't take much interest in learning more about the > disease, leaving that up to me! So I happened upon this group and > thought, where better to learn about the disease than from those who > have it!! Thanks for having me in the group. If anyone ever needs > someone to listen, I'm here for you! God Bless! > Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Welcome to the group, Elaine! Sorry you and your husband are both suffering. It gives a whole new meaning to " togetherness. " But at least you understand each other and can support each other through the tough times. This group is a great support group too, a bunch of sometimes wacky people, but hearts of pure gold. Lots of angels in the bunch too, I think. Nice to have you with us, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2003 Report Share Posted August 11, 2003 Hi, , Why bother with the labels at all? Fibro can be difficult enough without adding other health problems. It is an immune disorder and it is hard to find effective ways to deal with the pain and the fatigue. The problem with having osteoarthritis is that it is " degenerative " and erodes the joints. If it gets bad enough, then joint replacements are done. Replacing arthritic joints does not help the Fibro, but can reduce the pain from the osteo. I have to tell you that I know of people who have had joint replacement who didn't get the relief they wanted. There is no way to know beforehand... There is no way to know why your husband feels as he does about your health problems, but comparing and doing the " My pain's worse than yours " trip is senseless. Dianne At 06:21 PM 8/10/03 -0700, you wrote: >Hi, I'm . I don't have rhuematoid arthritis, but my hubby does. I >just get to have fibromyalgia and osteoathritis. I've read that some of >yall have fibro also and compared to the RA, is the pain and exhaustion >anything like RA. I am curious cause my hubby thinks that I don't have a >right to take it easy. I have a handicapp tag and he doesn't. Maybe I am >being a baby, but I'd like to get some feed back. > >Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Hi , I am new too... I was thinking after being dismissed by many doctors that it was just something that I had to live with. My 's Disease made me feel horrible and this came about at the same time. Ergo.. I thought that it was just something I had to live with until a Nephrologist (kidney specialist) ran a Rheumatoid Factor which came back possitive / elevated. I then really mentally paying attention to my aches and pains. Oh boy there are a lot of them. Anyway, I got in to see a Rheumatologist and she put me on Bextra,Elivil (just at night to help me sleep) and Nexium. I called earlier this week since I couldn't even stand to stand on my feet on a tile floor and she started me on the Predisone dose pack. so far the only difference I have noticed is that the swelling is down. The pain is still there. Is this normal? Maybe we can help each other out here. I know that she stated on my visit for October 8th she will be starting me on some harder hitting modifying drugs. I don't know what they are but, if they are going to make me feel better I am game for it. I haven't been able to work since March and I don't see the light at the end of the tunnel right now. Hang in there and maybe we can find some answers. Take care, --- In , pauline Gwynne <marypaul40@y...> wrote: > Hello group, > > I have just been diagnosed after more than two years repeatedly going to the doctor and because of where I live waiting to see a Rheumatologist for l5 months. I couldnt bear it anymore and decided to have a private consultation where I learned I had this disease. I have been give a cortisone injection which has reduced the inflammation. I have also been given Methotrexate a cancer treatment, this frightened me. Im probably being silly but the side affects seem quite serious. The NHS in this country is abysmal at the moment. If you are referred in London for example you will be seen within 12 weeks as I understand early diagnosis is so important. I would appreciate any help in trying to understand how to manage this. At the moment it is in the upper half of my body including my neck which gives me the most discomfort I cant get out of bed some day and walking puts such a strain on it. Hope to hear something soon > > > > > > --------------------------------- > Want to chat instantly with your online friends? Get the FREE Messenger > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Welcome, ! Sorry that you've received an rheumatoid arthritis diagnosis, but I'm glad you are finally getting help. The side effects of methotrexate (MTX) do sound scary, but it is a drug with a long, successful history in treating RA. With any luck, in a few weeks the MTX will help you feel better. [ ] New member Hello group, I have just been diagnosed after more than two years repeatedly going to the doctor and because of where I live waiting to see a Rheumatologist for l5 months. I couldnt bear it anymore and decided to have a private consultation where I learned I had this disease. I have been give a cortisone injection which has reduced the inflammation. I have also been given Methotrexate a cancer treatment, this frightened me. Im probably being silly but the side affects seem quite serious. The NHS in this country is abysmal at the moment. If you are referred in London for example you will be seen within 12 weeks as I understand early diagnosis is so important. I would appreciate any help in trying to understand how to manage this. At the moment it is in the upper half of my body including my neck which gives me the most discomfort I cant get out of bed some day and walking puts such a strain on it. Hope to hear something soon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 , When I was on MTX I was scared too, but it is one of the oldest used medications to treat RA. The dose they prescribe for RA is very tiny compared to what they prescribe for cancer. Careful monitoring can catch any potential problems early and the side effects usually resolve after discontinuing. I have many links on MTX: http://rheumatoid.arthritis.freehosting.net/drugs.html#mtx a > Hello group, > > I have just been diagnosed after more than two years repeatedly going to the > doctor and because of where I live waiting to see a Rheumatologist for l5 > months. I couldnt bear it anymore and decided to have a private consultation > where I learned I had this disease. I have been give a cortisone injection > which has reduced the inflammation. I have also been given Methotrexate a > cancer treatment, this frightened me. Im probably being silly but the side > affects seem quite serious. The NHS in this country is abysmal at the moment. > If you are referred in London for example you will be seen within 12 weeks as > I understand early diagnosis is so important. I would appreciate any help in > trying to understand how to manage this. At the moment it is in the upper > half of my body including my neck which gives me the most discomfort I cant > get out of bed some day and walking puts such a strain on it. Hope to hear > something soon > > > > > > --------------------------------- > Want to chat instantly with your online friends? Get the FREE Messenger > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2003 Report Share Posted October 14, 2003 Welcome to the group! I don't have RA, but OA, fibro, and Dercum's Disease. That's the fun one--people have never heard of it, and tend to laugh and joke about the name. That must be hard, with your husband gone so much. I don't know what we'd do without each other--we support each other; Ron has Parkinson's. We have a grown daughter who has a 3-year old and 7- month old triplets. I wouldn't call myself an artist, but I do enjoy crafts, making cards, sewing, quilting, embroidery. I have to do them on the days that I have aquatherapy, because then I can use my hands. I'm a demon on Tues. and Friday nights! While it's true that these diseases rob us of some things, they also open up whole new avenues to meet people and do things we never thought of doing before. I am reading more, and learning things about history and the world I never took the time to do before. My mother was an artist, and she taught me to look at the tiniest details in the world to see beauty. Peace to you, Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Pam wrote: >>and if this is mild I'm not looking forward to the rest of the ride... >>Whaddya know? It's NOT all in my head! Hi Pam, I can understand what you are feeling...My rheum has refused me *other* antiinflammatory pain meds while I taper my Prednisone dose, and while I understand his reasoning, I would also like one pain free day. Synovial pain has a deep burning quality that is not easy to ignore or tolerate. I mean...jeeze, even labor pains had 3-5 minutes pain free in between!!! I think many of us can also relate to the concept that because the pain can't be easily seen that it *might * not be there at all-or at least not to the degree that we claim. Until I got to the Rheumatologist I had to argue with my family about HOWI felt! I constantly heard that if I would get OFF the sofa with the heating pad and (cook, do dishes, mop the floors, scrub the oven, clean the 3 full baths..etc) I would FEEL better. They didn't understand how I had to regulate my activity according to the pain. I was working full time then...I am on vacation right now. Back to work in about a week. :-( Bummer! Quote Link to comment Share on other sites More sharing options...
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