Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 hi pam amen i here ya i know the feeling it isnt in our head lol my best to ya peace be with you. opps im cindy nice to meet ya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2004 Report Share Posted February 20, 2004 Hi guys, I wanted to introduce myself. I will be lurking and reading. I personally do not have RA but have a best friend that is greatly suffering. When I spoke with her yesterday, she said that the new medicine she was taking (that has helped her so much) - Methotrexate - was making her liver values soar into dangerous levels. I am very concerned about this. Unfortunately, lives " off the grid " here in New Mexico and this is why I am joining this list instead of her. I am hoping for anecdotal advice and alternatives and options for her. I have been reading all your posts since yesterday and am enjoying learning. It is interesting that you guys are saying the same things says to me. I wish she could talk to you. I think it helps very much to discuss these types of things with people that truly understand. I am hoping that she might set up an e-mail account and go to one of the cyber cafes we have here in town and join this list. If there are any websites that you guys have that I could print out for her, I'd really appreciate it. I have already passed on some of the information to her that I learned yesterday. We were just talking about how she doesn't sleep and how that stress contributes to the progression of the disease and, already, I have found answers to this on this list. Thanks so much. Vee VeeAlva Taos Kennels New Mexico Canine Rescue and Safeguard, Inc. 505.758.9228 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2004 Report Share Posted February 21, 2004 Welcome, Vee! It's very kind of you to try to help your friend in this way. I wish she could be here, too. Usually there is no cause for great alarm unless the liver enzymes are more than 2 -3 times the upper limit of normal. Here's a good article on the interpretation of liver function tests: From Postgraduate Medicine, " Abnormal findings on liver function tests: Interpreting results to narrow the diagnosis and establish a prognosis " : http://www.postgradmed.com/issues/2000/02_00/gopal.htm Is your friend taking folic acid along with her methotrexate? If so, how much? I refer you to a's Web site: http://rheumatoid.arthritis.freehosting.net/ a is the list owner and lead moderator and has compiled much useful information there. The site is temporarily unavailable (site maintenance), but I'm assuming it will be back up soon. The Hospital for Special Surgery has an excellent collection of articles on RA: http://www.rheumatology.hss.edu/phys/diseaseIndex/ra.asp HealthTalk.com also has a lot of interesting reading (and listening): http://www.healthtalk.com/rheumatoidarthritis/index.cfm s Hopkins on rheumatoid arthritis: http://www.hopkins-arthritis.som.jhmi.edu/rheumatoid/rheum.html I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Re: New Member > Hi guys, > > I wanted to introduce myself. I will be lurking and reading. > > I personally do not have RA but have a best friend that is greatly > suffering. When I spoke with her yesterday, she said that the new > medicine she was taking (that has helped her so much) - Methotrexate > - was making her liver values soar into dangerous levels. I am very > concerned about this. Unfortunately, lives " off the grid " > here in New Mexico and this is why I am joining this list instead of > her. I am hoping for anecdotal advice and alternatives and > options for her. I have been reading all your posts since yesterday > and am enjoying learning. It is interesting that you guys are saying > the same things says to me. I wish she could talk to you. I > think it helps very much to discuss these types of things with people > that truly understand. I am hoping that she might set up an e-mail > account and go to one of the cyber cafes we have here in town and > join this list. > > If there are any websites that you guys have that I could print out > for her, I'd really appreciate it. I have already passed on some of > the information to her that I learned yesterday. We were just > talking about how she doesn't sleep and how that stress contributes > to the progression of the disease and, already, I have found answers > to this on this list. > > Thanks so much. > > Vee > VeeAlva > Taos Kennels > New Mexico Canine Rescue and Safeguard, Inc. > 505.758.9228 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2004 Report Share Posted February 22, 2004 > Welcome, Vee! Thanks so much for your reply! > Is your friend taking folic acid along with her methotrexate? If so, > how much? It was just suggested by her doctor and, yes, she has begun this. I wish doctors would think more " prevention " and less treating issues after they become a reality. > a is the list owner and lead moderator and has compiled much > useful information there. The site is temporarily unavailable (site > maintenance), but I'm assuming it will be back up soon. > Thanks so much for this info. I'm going to go check it out today and print it out for . You guys are great. This is exactly the kind of stuff I was looking for. I'm enjoying reading your other posts, as well. I wish I could be more helpful for everybody but please know that this is helping somebody that really needs it. Like you guys have talked about (and I *certainly* can relate to this) the winter is so hard. It's been brutal here. Our weather has finally begun warming up and spring is around the corner and with it, hope springs eternal...haha. Vee VeeAlva Taos Kennels New Mexico Canine Rescue and Safeguard, Inc. 505.758.9228 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Welcome, Tammy! Sorry about your RA diagnosis. Please do call your rheumatologist if you are having a lot of trouble while tapering. Hope you like it here. I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] New Member > Hi everyone, > I've just joined the group and haven't had a chance to read through > the old posts yet. > > I'm 41 yrs. old and just diagnosed with RA. I'm really not sure > what to make of it all yet. It seems to have come on quite strongly > 2months ago. I was put on 30 mg prednisone a few weeks ago which > helped significantly. I'm in the process of tapering down to 7.5mg > and not enjoying the relapse of flares. I've also begun taking > Hydroxycholoquine twice a day. Today is the worst day I've had > since I began the prednisone! Wrist and ankle today. I don't see > my rheum. dr. for another 4 weeks! I'll be calling him a lot sooner > if this keeps up. > > I have 2 daughtes ages 3 and 5 and a 15 yr old stepson (and a hubby > too) and they all keep me busy. > > I'm looking forward to reading through the old posts and gaining any > insight I can. > > Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi Tammy, Just want to welcome you to the group, hugs Tawny --- In , " Tammy " <tammyfredricks@h...> wrote: > Hi everyone, > I've just joined the group and haven't had a chance to read through > the old posts yet. > > I'm 41 yrs. old and just diagnosed with RA. I'm really not sure > what to make of it all yet. It seems to have come on quite strongly > 2months ago. I was put on 30 mg prednisone a few weeks ago which > helped significantly. I'm in the process of tapering down to 7.5mg > and not enjoying the relapse of flares. I've also begun taking > Hydroxycholoquine twice a day. Today is the worst day I've had > since I began the prednisone! Wrist and ankle today. I don't see > my rheum. dr. for another 4 weeks! I'll be calling him a lot sooner > if this keeps up. > > I have 2 daughtes ages 3 and 5 and a 15 yr old stepson (and a hubby > too) and they all keep me busy. > > I'm looking forward to reading through the old posts and gaining any > insight I can. > > Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Welcome Tammy! You will find wonderful people here! They all have given me so much information, it's just amazing. I am 47 and have 4 children ages 15-21. I am now taking Humira injections (they really hurt) that seem to be helping. I still have flareups and fatigue at the moment is my worst problem. I take Provigil to help with that, I also am on a CPAP machine for sleep apnea. If I could lose weight I probably would not need the CPAP but at 180 lbs. and 5'4 " I have a ways to go. Glad you found us! Becky [ ] New Member Hi everyone, I've just joined the group and haven't had a chance to read through the old posts yet. I'm 41 yrs. old and just diagnosed with RA. I'm really not sure what to make of it all yet. It seems to have come on quite strongly 2months ago. I was put on 30 mg prednisone a few weeks ago which helped significantly. I'm in the process of tapering down to 7.5mg and not enjoying the relapse of flares. I've also begun taking Hydroxycholoquine twice a day. Today is the worst day I've had since I began the prednisone! Wrist and ankle today. I don't see my rheum. dr. for another 4 weeks! I'll be calling him a lot sooner if this keeps up. I have 2 daughtes ages 3 and 5 and a 15 yr old stepson (and a hubby too) and they all keep me busy. I'm looking forward to reading through the old posts and gaining any insight I can. Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi Becky, I am on Humira also, have you tried taking the meds out of the refridgerator about 20 min. before doing the injection? I also go slow and it seems to be ok, every once in awhile I will get a little sting, stop for a sec and then go slow again. Humira was really helping me along with Methotrexate but had a lung problem and had to go off Mxt. back on Humira now with Arava and I think it is working fairly well. I still hate giving myself injections but like the exercising and eating right, I have no choice. Hope you are having a pain free day. in Central Oregon >> ------------------------------------------------------------------- ----------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Yes, I tried that and everything else. I am just going to have to accept that it will hurt and know it will only last a short time. Becky [ ] Re: New Member Hi Becky, I am on Humira also, have you tried taking the meds out of the refridgerator about 20 min. before doing the injection? I also go slow and it seems to be ok, every once in awhile I will get a little sting, stop for a sec and then go slow again. Humira was really helping me along with Methotrexate but had a lung problem and had to go off Mxt. back on Humira now with Arava and I think it is working fairly well. I still hate giving myself injections but like the exercising and eating right, I have no choice. Hope you are having a pain free day. in Central Oregon >> ------------------------------------------------------------------- ----------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Hi Tammy, Welcome to the group! Doesn't sound like much fun, taking care of 2 little kids, a teen, and a husband when you've got RA! I'm a 58-year old grandmother with a husband who has Parkinson's, a grown daughter with year-old triplets and a 4-year old, and I have Dercum's Disease, but they let me into this group anyway LOL. The key word in this group is Support, and there's plenty to go around, so help yourself! Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Support is it for sure! I look so forward to reading the e-mails on this group. I don't always write but I faithfully read everything. Does anyone live in the Orlando area? If so, we are going to be there at the end of June for a lightning survivors conference (my son was struck by lightning when he was 13, he is now 21) and will be staying at Port Orleans in Disney. I would love to get together with anyone if possible. I will be renting wheelchair or scooter while there as I do not have the energy to walk the area. I probably could walk it more than an hour anyway. Becky [ ] Re: New Member Hi Tammy, Welcome to the group! Doesn't sound like much fun, taking care of 2 little kids, a teen, and a husband when you've got RA! I'm a 58-year old grandmother with a husband who has Parkinson's, a grown daughter with year-old triplets and a 4-year old, and I have Dercum's Disease, but they let me into this group anyway LOL. The key word in this group is Support, and there's plenty to go around, so help yourself! Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2004 Report Share Posted March 20, 2004 Hey Tammy, Welcome! As I said before to , it's a wonderful feeling to be here. I, for one, don't feel so awfully alone anymore. That alone is worths whole lot. Cheers! Jutta Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Welcome . Sorry about your diagnosis. You¹ve come to the right place to learn about this disease. We have many members that have had experiences with mtx. I understand your apprehension to take mtx, but it is the most widely prescribed drug for RA and is also one of the oldest drug prescribed for RA. It has been widely tested and with careful monitoring, any potential problems can be avoided. It is suggested to get a baseline Chest x-ray before starting mtx. Regular blood tests will be taken to check for liver toxicity. Hopefully your doctor also prescribed folic acid to help with the side effects. I have info on a website that may help: http://rheumatoid.arthritis.freehosting.net/drugs.html#mtx Are you taking it in pill form or injections? a > Hello everyone! I am 35 and live in Tulsa, OK. I had been having > problems for the last few months with my feet. > > I just got back from the Rheumatologist and have been diagnosed with > fast acting Rheumatoid Arthritis. He put me on Bextra and > Methotrexate. Any input on Methotrexate that anyone has would be > greatly appreciated. I am a little concerned with what I have read > so far. > > Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi. I'm Kelley from OKC!! I have Lupus and RA & Fibro. I've been taking Methatrexate injections for over a year now. I was taking the pills, but had to be moved up. For me, Methatrexate has been wonderful. My hands were turning into twisted roots. So for me, it had helped with the degeneration. I still hurt and swell, and my fingers and joints are kind of shaped funny, but they are better. I'm 30 Kelley [ ] New member Hello everyone! I am 35 and live in Tulsa, OK. I had been having problems for the last few months with my feet. I just got back from the Rheumatologist and have been diagnosed with fast acting Rheumatoid Arthritis. He put me on Bextra and Methotrexate. Any input on Methotrexate that anyone has would be greatly appreciated. I am a little concerned with what I have read so far. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2004 Report Share Posted April 27, 2004 Hi , I would like to welcome you to the group, sorry about your new dx. I have never taken Bextra, but have taken MTX. It didn't help me at all, and my liver enzymes were high so I had to go off of it. I have heard some people have had great results from it. I have heard the MTX injections are better then the pills, less side effects. I am on Humira injections weekly, 5 mg of Prednisone daily, and Darvocet, Tramadol for pain. I'm also on 40mg of Prozac to deal with my depression. I live in OKC, and this is a wonderful group, glad your here, hugs Tawny > Hello everyone! I am 35 and live in Tulsa, OK. I had been having > problems for the last few months with my feet. > > I just got back from the Rheumatologist and have been diagnosed with > fast acting Rheumatoid Arthritis. He put me on Bextra and > Methotrexate. Any input on Methotrexate that anyone has would be > greatly appreciated. I am a little concerned with what I have read > so far. > > Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 a, Thanks for the info. My doctor did start me on folic acid. He also did a bunch of baseline blood tests, but no chest xray. Thank you again. It is nice to know that I am not alone. ya know? Everything I have read says that depression goes along with this. My doctor suggested I come here to try and help with it. Thank you again! > Welcome . Sorry about your diagnosis. You¹ve come to the right > place to learn about this disease. > We have many members that have had experiences with mtx. I understand your > apprehension to take mtx, > but it is the most widely prescribed drug for RA and is also one of the > oldest drug prescribed for RA. It has been > widely tested and with careful monitoring, any potential problems can be > avoided. It is suggested to get a baseline > Chest x-ray before starting mtx. Regular blood tests will be taken to check > for liver toxicity. Hopefully your doctor > also prescribed folic acid to help with the side effects. I have info on a > website that may help: > > http://rheumatoid.arthritis.freehosting.net/drugs.html#mtx > > Are you taking it in pill form or injections? > > a > > > > > > > Hello everyone! I am 35 and live in Tulsa, OK. I had been having > > problems for the last few months with my feet. > > > > I just got back from the Rheumatologist and have been diagnosed with > > fast acting Rheumatoid Arthritis. He put me on Bextra and > > Methotrexate. Any input on Methotrexate that anyone has would be > > greatly appreciated. I am a little concerned with what I have read > > so far. > > > > Thanks! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2004 Report Share Posted April 28, 2004 Tawny, Thank you! I am hoping it helps for me. I am just glad to finally have a diagnosis and be getting help. > Hi , > > I would like to welcome you to the group, sorry about your new dx. I > have never taken Bextra, but have taken MTX. It didn't help me at > all, and my liver enzymes were high so I had to go off of it. I have > heard some people have had great results from it. I have heard the > MTX injections are better then the pills, less side effects. > I am on Humira injections weekly, 5 mg of Prednisone daily, and > Darvocet, Tramadol for pain. I'm also on 40mg of Prozac to deal with > my depression. I live in OKC, and this is a wonderful group, glad > your here, hugs Tawny > > > > > > > > --- In , " mskettler " <mskettler@y...> wrote: > > Hello everyone! I am 35 and live in Tulsa, OK. I had been having > > problems for the last few months with my feet. > > > > I just got back from the Rheumatologist and have been diagnosed > with > > fast acting Rheumatoid Arthritis. He put me on Bextra and > > Methotrexate. Any input on Methotrexate that anyone has would be > > greatly appreciated. I am a little concerned with what I have read > > so far. > > > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2004 Report Share Posted July 6, 2004 Caroline...Have you given any thought to getting a pet and receiving the most unconditional love of your life? It would be someone for you to talk to and cuddle with. A pet will not let you feel so alone. Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Welcome . I am 33 and live in PA. I was diagnosed with RA a little over a year ago. One thing about RA is there is no blood test that can say you have it or you don't have it. RA is diagnosed when many different factors point to one having RA, typical RA drugs improve the symtoms, and over a period of time a rheumatologist feels you have it. There are some very well informed people on this board that might know what the reference to the antibody means, I am not sure. One thing that can show up in your blood work is an elevated rheumatoid factor. This can be one indication that RA is present, but some people have an elevated RA factor and don't get RA and some with RA do not have an elevated RA factor. What are your symptoms? Do you have stiffness in the mornings and swollen, painful joints? Did he prescribe any medication for you? I would call back and ask some more questions such as the name of the " antibody " and the name of the type of arthritis he thinks you might have. There are many forms of arthritis. My other suggestion is to get a second opinion. Your doctor does not seem to be explaining what he thinks you have very clearly, and another doctor might interpret the results differently. Jennie > Hello My name is . I am 30 years old and live in NJ. I > thought I had fibre for 4 yrs and my new doc did some blood work and > it showed the arthritis antibody what ever that means. He said its > very unlikely this can turn into rumitoid. He doubts that the fibro > is my prob and its the arthritis antibody what does this mean? He > says this is something that can be controlled symptomatically. Does > anyone have any ideas on what this means? I have looked online and I > am not getting anywhere. > > > www.landonfamily.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Welcome . The antibody your doctor was referring to is probably the Anti-CCP. It is a newer test that helps with the diagnosis of RA. Is your doctor a rheumatologist? If not, I would highly recommend seeing a rheumatologist. Here is some info on the test: http://www.medicinenet.com/citrulline_antibody/article.htm http://www.healthtalk.com/rheumatoidarthritis/askthedoctor/040504.cfm I have a lot of information on a website regarding fibro and RA: http://rheumatoid.arthritis.freehosting.net/ What part of NJ are you from? I just moved from there after living there all my life. I was in Atlantic County. a > Hello My name is . I am 30 years old and live in NJ. I > thought I had fibre for 4 yrs and my new doc did some blood work and > it showed the arthritis antibody what ever that means. He said its > very unlikely this can turn into rumitoid. He doubts that the fibro > is my prob and its the arthritis antibody what does this mean? He > says this is something that can be controlled symptomatically. Does > anyone have any ideas on what this means? I have looked online and I > am not getting anywhere. > > > www.landonfamily.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 I am very sore not sure if its joints. I get alot of muscle spasms. He said that is antibody may not turn into the RA so not sure what that means. I talked to him on the phone yesterday and found this out so I may need to go in sometime and talk to him more in depth about what he means. He doesn t think I have fibro but wanted to test me for arthritis and found this antibody and says that is what causes my pain. I also have a few hurniated disks. -- [ ] Re: new member Welcome . I am 33 and live in PA. I was diagnosed with RA a little over a year ago. One thing about RA is there is no blood test that can say you have it or you don't have it. RA is diagnosed when many different factors point to one having RA, typical RA drugs improve the symtoms, and over a period of time a rheumatologist feels you have it. There are some very well informed people on this board that might know what the reference to the antibody means, I am not sure. One thing that can show up in your blood work is an elevated rheumatoid factor. This can be one indication that RA is present, but some people have an elevated RA factor and don't get RA and some with RA do not have an elevated RA factor. What are your symptoms? Do you have stiffness in the mornings and swollen, painful joints? Did he prescribe any medication for you? I would call back and ask some more questions such as the name of the " antibody " and the name of the type of arthritis he thinks you might have. There are many forms of arthritis. My other suggestion is to get a second opinion. Your doctor does not seem to be explaining what he thinks you have very clearly, and another doctor might interpret the results differently. Jennie > Hello My name is . I am 30 years old and live in NJ. I > thought I had fibre for 4 yrs and my new doc did some blood work and > it showed the arthritis antibody what ever that means. He said its > very unlikely this can turn into rumitoid. He doubts that the fibro > is my prob and its the arthritis antibody what does this mean? He > says this is something that can be controlled symptomatically. Does > anyone have any ideas on what this means? I have looked online and I > am not getting anywhere. > > > www.landonfamily.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 , I get muscle spasms too - they are a sign of fibromyalgia. I think it would be a good idea to see a Dr. who is well versed in fibro. There are physical tests you can do for fibro, as well as lists of symptoms you can check to see if you have it. It can be treated, and the treatment is different than for RA. There are many forms of arthritis. You may not have RA, but you may have Inflammatory Arthritis, Degenerative Joint Disease, or something else. There are also tests that just test that amount of inflammation in the body. Dix [ ] Re: new member Welcome . I am 33 and live in PA. I was diagnosed with RA a little over a year ago. One thing about RA is there is no blood test that can say you have it or you don't have it. RA is diagnosed when many different factors point to one having RA, typical RA drugs improve the symtoms, and over a period of time a rheumatologist feels you have it. There are some very well informed people on this board that might know what the reference to the antibody means, I am not sure. One thing that can show up in your blood work is an elevated rheumatoid factor. This can be one indication that RA is present, but some people have an elevated RA factor and don't get RA and some with RA do not have an elevated RA factor. What are your symptoms? Do you have stiffness in the mornings and swollen, painful joints? Did he prescribe any medication for you? I would call back and ask some more questions such as the name of the " antibody " and the name of the type of arthritis he thinks you might have. There are many forms of arthritis. My other suggestion is to get a second opinion. Your doctor does not seem to be explaining what he thinks you have very clearly, and another doctor might interpret the results differently. Jennie > Hello My name is . I am 30 years old and live in NJ. I > thought I had fibre for 4 yrs and my new doc did some blood work and > it showed the arthritis antibody what ever that means. He said its > very unlikely this can turn into rumitoid. He doubts that the fibro > is my prob and its the arthritis antibody what does this mean? He > says this is something that can be controlled symptomatically. Does > anyone have any ideas on what this means? I have looked online and I > am not getting anywhere. > > > www.landonfamily.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Deanna: I'm new to the list as well. I'm sorry about your RA and the trouble you've had. What has happened with your husband being laid off? What kind of business was he in? Do you still have health insurance? I ask partly out of interest in politics. I'm not just being nosy. I write a political blog and I am always interested in stories about the economy and people being laid off and the problems with health insurance. Thanks, [ ] new member Hi ya'll. My name is Deanna. I live in Knoxville, Tennessee. I have a wonderful husband and three children ages 15, 9, and 6. I work part-time as a Teacher's Asst. in Kindergarten. I joined this group about a month ago. I am learning so much and receiving encouragment from the emails. I hope to encourage someone else. Anyway, this past June 2 is when my RA started. I woke up with a sore middle finger but it went away. Then a couple days later i got up to leave the movie theater and could hardly walk(pain on the top of my right foot). Then during the night the finger pain came back so bad it couldn't bend it along with knee pain and foot pain. All were swollen. I went to the doctor that day and they did blood work and x-rays. From that day I was literally paralized. I crawled to the bathroom, my husband had to bathe me, feed me dress me(only if I absolutely had to get dressed!) I couldn't hold anything or even open a door. Anyway, the lab and xrays ( I don't know medical terms)showed RA. They immediately started me on Prednisone and Celebrex plus several others for the side affects. The md tested me for Lyme Disease, and anything else that it could be they all came back neg. It only showed arth. What's strange to me is the pain slowly went away and I am fully functional now.(I am not complaining!) i had to come off the Pred. because it made me feel like I was losing my mind. The only signs of RA is minor aches in my joints oll over my body. I get tired easier and have to rest it the afternoons. I haven't been to see a Rheumy becase the very day I found out about the RA, my husband was layed off. Does this experience sound strange to anyone else? Also, I have had heel pain for about 2 years(was on Bextra) and when the RA came the heel pain left. I don't know. Also, the md put me on a 1800 calorie diabetic diet(sugar-free) because my suger was slightly high. I am just a mess. Deanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2004 Report Share Posted August 5, 2004 Deanna, I have RA and type 2 diabetes. I much prefer the diabetes, because there are measures that you can take to control it. You can exercise and eat healthful foods. I am also on oral medications. Just remember to limit not only sugar but also starches, mostly the white foods such as potatoes, rice, pasta, and bread. They turn into sugar once you eat them. By limiting carbs, I was also able to lose weight, which also helped my diabetes. Some of us just get multiple diseases, don't we? Just hang in there, and if you have any questions about diabetes, feel free to email me privately. Sue On Thursday, August 5, 2004, at 08:54 AM, mdmjnm wrote: > Also, the md put me on a 1800 calorie > diabetic diet(sugar-free) because my suger was slightly high. I am > just a mess. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2004 Report Share Posted October 6, 2004 Darlene, I would ask to be referred to a rheumatologist, or if your insurance does not require a referral, just go see one. With an elevated RA factor and joint pain, you need to be evaluated further by a specialist. It is difficult to diagnose RA, because there is no one test to say you have it or to rule it out. RA is diagnosed by monitoring your blood work, your symptoms and if you are suspected to have RA, trying some RA drugs and seeing how you respond. You are best served by having this evaluation done by a rheumatolgist, as this can be a difficult disease to treat. Jennie > > Hi everyone and thanks for letting me join the group! I'm Darlene, 49 yrs > old and I am confused. I was diagnosed with Fibro about 12 yrs ago and in > the past year have started having joint pain and stiffness in multiple > joints. I went to my PCP and he did some labs, including an arthritis panel. > He told me at the visit that I have arthritis. > > When the labs came back, the RA factor was elevated and the nurse called to > tell me but just said there was some inflammation going on and to keep > taking my celebrex. I tried to question her but couldn't get any answer > other than -- it could be RA and might be something else. No follow up or > anything. > > I couldn't sleep last night because i kept thinking about it. I feel like I > need more info than my doctor is giving me. Do you think I should go to > another doctor or should I just sit back and see what develops? I've heard > that early treatment improves outcome but maybe it's too early to make the > diagnosis. I don't know what to do or think. > > Thanks, > > Darlene > > > Quote Link to comment Share on other sites More sharing options...
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