Guest guest Posted April 24, 2010 Report Share Posted April 24, 2010 Hello, i can´t answere you your question, because my daughter it´s still to young. She is 19 months and has speech development was it like that, with our son? Many thanks Caterina from hamburg germany--- tpappalau <tpappalau@...> schrieb am Fr, 23.4.2010: Von: tpappalau <tpappalau@...>Betreff: blepharophimosis new memberAn: blepharophimosis Datum: Freitag, 23. April, 2010 19:09 Uhr Hi, I am a new member. I am from Albany, NY. MY son is 11 now, he was born with bleph. we went through lots of opinions and opthalmologists. We finally found a great surgeon that did a wonderful surgery when he was about 7. He is in Philadelphia, PA at the Childrens Hospital, Dr. Katowitz. My son had severe ptosis. I will post some pics soon of before and after. I still do have lots of questions about this rare eye condition. But I was wondering if anyone knows if there are any other related neurological disorders along with the condition. He seems to have poor motor skills, and he is sensitive to loud noises like loud crowded places, he seems to be slowly overcoming this but I still wonder if there is any other information that anyone knows. I am so happy I found this group, there is not a lot of info about this and we do need to group together and find out more. People seem to think its not that big of a deal but being a parent and not ever expecting a child to be born with it is very difficult. I was a young parent when I had him and now I would love to help others out with more info and find out more myself. Quote Link to comment Share on other sites More sharing options...
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