Please I need help on BPES

[Guest guest]

Hello,

Am a new member and I live in Nigeria, I just had my first baby about 2months

ago. he's been diagonised for BPES.

The Ophtamologist said he can see after some minor test, she said my baby has

BPES but she cannot operate until he is at least one year old but wants me to

come in in 2 months time for further test. My fear is will this syndrome not

become more complex if I have to wait for one year or more? My baby is already

tilting is head backward and have wrinkles on his fore head to get better view,

my questions are will this not affect his neck as time goes on? where do you

think I can get a better surgery apart from Nigeria (Is it America or UK). Is

there a tempoary solution before he is one year old?

I will also appreciate if you can let me know all the questions I should ask to

understand more about the sydrome and get a better treatment.