re: tear ducts

[Guest guest]

Hi,

Remy was born with one tear duct blocked. Looking back on it, she

definitely had brachy at birth (flat from ear to ear on the back of

her head.) Plagio developed after her birth. It finally cleared up

around the time we began repo. I'll have to check her medical booklet

to make sure of that. I don't know if it was related to plagio or

not, but I thought I would let you know.

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " jadiebears " <jadiebears@y...>

wrote:

> Has anyone had blocked tear ducts due to plagio? Jade was born with

> the right one blocked. She was not diagnosed with plagio/brachy

> until six months. We immediately tried putting her to sleep on her

> stomach. It seems like the right duct opened during this time.

> However, we got the band at 8 months and now it looks like both of

> them are blocked.

>

> Mom to Jade, DocBand 8-4-03 (8months)Miami

[Guest guest]

Thanks for the info. I haven't read that plagio is a cause, but my

baby book doesn't list much info on plagio. I was just thinking that

if part of the head was not formed correctly maybe it could be

pushing on the duct causing blockage. From birth to six months, her

left eye ( accidently said right in my first post) constantly had

gook in it and this is the side of her forhead that is being held by

the band.

Mom to Jade, DocBand 8-4-03 (8months) Miami

> > Has anyone had blocked tear ducts due to plagio? Jade was born

with

> > the right one blocked. She was not diagnosed with plagio/brachy

> > until six months. We immediately tried putting her to sleep on

her

> > stomach. It seems like the right duct opened during this time.

> > However, we got the band at 8 months and now it looks like both

of

> > them are blocked.

> >

> > Mom to Jade, DocBand 8-4-03 (8months)Miami

[Guest guest]

My oldest son had a blocked tear duct (he's not a plagio kid) Did

your ped tell you about little massage exercises that you can do to

keep them open? I guess it's pretty common and most babies it clears

up by 1 yr. (It didn't for my son, so they had to open it for him)

The massaging did help. (MA)

> Has anyone had blocked tear ducts due to plagio? Jade was born with

> the right one blocked. She was not diagnosed with plagio/brachy

> until six months. We immediately tried putting her to sleep on her

> stomach. It seems like the right duct opened during this time.

> However, we got the band at 8 months and now it looks like both of

> them are blocked.

>

> Mom to Jade, DocBand 8-4-03 (8months)Miami

[Guest guest]

Hi Everyone,

Very interesting conversation, however I don't believe that in all

the articles I've read on plagiocephaly that anyone has indicated a

relationship between the two. I'd have to do a little more research

into what generally causes blocked tear ducts and what the normal

occurance of this is. It is possible that it is more common than we

know, or maybe the distortion of the cranium does somehow play a role.

I do know that there is a lot of concern about the role of

plagiocephaly and ear infections because of concern that as you

deform the skull base (i.e. push one ear forward) you compress the

ear canal. To my knowledge nothing has been proven so far. Maybe it

is a similar mechanism with compressing the tear duct?

Sorry I couldn't give you more of a definitive answer.

Tim

--- In Plagiocephaly , " jadiebears " <jadiebears@y...>

wrote:

> Has anyone had blocked tear ducts due to plagio? Jade was born with

> the right one blocked. She was not diagnosed with plagio/brachy

> until six months. We immediately tried putting her to sleep on her

> stomach. It seems like the right duct opened during this time.

> However, we got the band at 8 months and now it looks like both of

> them are blocked.

>

> Mom to Jade, DocBand 8-4-03 (8months)Miami

[Guest guest]

Hi

There is a connection, but I am

not up to speed on the details/science behind it.

I am sure that one of the others

will reply.

Where is BCH? I am sure that you

surgeon will contact a colleague elsewhere to find out more.

Am not sure if this is relevant:

http://www.ncbi.nlm.nih.gov/pubmed/19172509?ordinalpos=1 & itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DefaultReportPanel.Pubmed_RVDocSum

Alacrima (according to emedicine)

means:

Alacrima

refers to a wide spectrum of lacrimal secretory disorders that are mostly

congenital in origin. Symptoms of these disorders can range from a complete

absence of tears to hyposecretion of tears; symptoms of rarer disorders include

a selective absence of tearing in response to emotional stimulation but a

normal secretory response to mechanical stimulation.

Whilst googling – I saw this

site:

http://www.justanswer.com/questions/3coey-i-was-born-with-congenital-ptosis-telecanthus-epicanthus-is

looks like you can ask them a

question. Having said that, please don’t think of this as endorsing

this site or that person. I am sure that the eye doctors are who they say

they are. My thinking is that by asking and getting an answer, it may

help you to communicate more effectively with your surgeon. Think of it as

doing a bit of homework before seeing him/her again. Please don’t think

of this as a substitute J

Best wishes

Shireen

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of

Sent: 20 August 2010 11:28

blepharophimosis

Subject: blepharophimosis tear ducts

Hi everyone,

I took my daughter for a check up this week at BCH (UK) and mentioned to her

surgeon that although she is now 1 years old she still has no tears! He said he

does not know that this is connected with BPES and will have to look into

it...I am slightly confused as I thought it was connected to her BPES. Has

anyone had or heard of this?

Thanks

[Guest guest]

Hi ,

My daughter Giuliana has had no tears either (she is now 3), I was sure it was related but her doctor said no, although I'm not convinced...she had a scan done and the results were that she has no lacrimal glands. However it has no consequences on the lubrification of her eyes and does not cause any discomfort. Hope this helps!

Micheline

From: <mparker81@...>Subject: blepharophimosis tear ductsblepharophimosis Received: Friday, August 20, 2010, 10:28 AM

Hi everyone,I took my daughter for a check up this week at BCH (UK) and mentioned to her surgeon that although she is now 1 years old she still has no tears! He said he does not know that this is connected with BPES and will have to look into it...I am slightly confused as I thought it was connected to her BPES. Has anyone had or heard of this?Thanks

[Guest guest]

Hi ,

I actually had the opposite problem before my surgeries. My eyes would

constantly tear and run down my face so it looked like I was always crying. One

of my surgeries corrected that. Although I don't know too much about BPES other

than the experiences I remember from childhood and what I've learned here on

... it seems that " tearing " issues, at either extreme, are common amongst

us with BPES. Which seems to make sense since our eyelids are formed

differently.

Klein

Melbourne, FL-USA

>

> Hi everyone,

>

> I took my daughter for a check up this week at BCH (UK) and mentioned to her

surgeon that although she is now 1 years old she still has no tears! He said he

does not know that this is connected with BPES and will have to look into it...I

am slightly confused as I thought it was connected to her BPES. Has anyone had

or heard of this?

>

> Thanks

>

>

>

[Guest guest]

Hello,

My name is Jackie and I would like to interject something. My daughter has bps and is now 36 years old.

She suffered from dry eyes all her life, and my ignorance as a mother of a little one in 1973 on has led to her having scratches on her corneas due to sleeping with her eyes open all her life.

today she is so very knowledgeable about her condition and has to wear goggles in very dry weather and while sleeping. Heavy fan usage that kick dust around is very harmful for someone that cannot blink properly. This is something you should be aware of that lack of proper lubrication for the eye over a long period of time does have complications. Any decent Dr. should tell you this.

thanks for hearing me out.

I realize that not all cases are the same but please do all you can to protect her eyesight now. I have so many regrets that I was not more watchful.

From: <mparker81@...>Subject: blepharophimosis tear ductsblepharophimosis Received: Friday, August 20, 2010, 10:28 AM

Hi everyone,I took my daughter for a check up this week at BCH (UK) and mentioned to her surgeon that although she is now 1 years old she still has no tears! He said he does not know that this is connected with BPES and will have to look into it...I am slightly confused as I thought it was connected to her BPES. Has anyone had or heard of this?Thanks

[Guest guest]

Hi

My daughter Catalina is 3 now and also produces no tears. I asked her surgeon about this and he told me that it IS related to Bleph. He basically told me it pretty much goes one extreme to the other, either they produce no tears, or they over-produce tears. He also told me that there is a surgery that can be performed to help with it, but until she's older it was not something he was going to consider doing. He told me that when the time came to open the inner corners of her eyes, we would address the problem then. Until then, we use Genteal night time ointment and Genteal severe dry GEL (doctor said the gel coats better than the liquid or liquid-gel). She gets eye drops at least 5 times a day, and more if she asks for it or if we notice the whites appearing irritated. Because she doesn't produce her own tears, she HAS to have the additional lubrication. Our doctors also told us that if we notice the whites of her eyes to start

"greying" to take her to the hospital immediately. Unfortunately, her doctors never told us to give her eye drops until well after she was 2, and I still worry about the damage that 2 years of dry-eyes may have caused.

Not sure if any of this infor helps.

Ann

Denver, CO, USA

-------------------------------------------------------------------------

Hi everyone,I took my daughter for a check up this week at BCH (UK) and mentioned to her surgeon that although she is now 1 years old she still has no tears! He said he does not know that this is connected with BPES and will have to look into it...I am slightly confused as I thought it was connected to her BPES. Has anyone had or heard of this?Thanks

[Guest guest]

Hi Jackie

Thanks for your post. My daughter, 8yrs, sleeps with her eyes open. I have

always used either lacrilube or chloramphenicol ointment every night and use an

eye mask for her as well while sleeping on airplanes or in an airconditioned

room. She does have a small dry patch on 1 cornea which the ophthalmologist

noticed. If her eyes are red in the morning I have been advise to put some

lubrication in her eyes in the morning too. Very sensible.

Regards

Colchester (UK)

>

>

> From: <mparker81@...>

> Subject: blepharophimosis tear ducts

> blepharophimosis

> Received: Friday, August 20, 2010, 10:28 AM

>

>

>  

>

> Hi everyone,

>

> I took my daughter for a check up this week at BCH (UK) and mentioned to her

surgeon that although she is now 1 years old she still has no tears! He said he

does not know that this is connected with BPES and will have to look into it...I

am slightly confused as I thought it was connected to her BPES. Has anyone had

or heard of this?

>

> Thanks

>

>

>

[Guest guest]

I agree with the use of lacrilube or another similar medicine. If your daughter sleeps with her eyes partially open, it may not always cause discomfort or redness but as she gets older, she will very likely notice more redness and discomfort as well as corneal scratches. Protecting the eyes is not always comfortable-the ointments sometimes blur the vision but to protect the corneas is very important.

From: parsonsfamily108 <parsonsfamily108@...>Subject: blepharophimosis Re: tear ductsblepharophimosis Date: Saturday, September 11, 2010, 8:13 AM

Hi JackieThanks for your post. My daughter, 8yrs, sleeps with her eyes open. I have always used either lacrilube or chloramphenicol ointment every night and use an eye mask for her as well while sleeping on airplanes or in an airconditioned room. She does have a small dry patch on 1 cornea which the ophthalmologist noticed. If her eyes are red in the morning I have been advise to put some lubrication in her eyes in the morning too. Very sensible.RegardsColchester (UK)> >

> From: <mparker81@...>> Subject: blepharophimosis tear ducts> blepharophimosis > Received: Friday, August 20, 2010, 10:28 AM> > > Â > > Hi everyone,> > I took my daughter for a check up this week at BCH (UK) and mentioned to her surgeon that although she is now 1 years old she still has no tears! He said he does not know that this is connected with BPES and will have to look into it...I am slightly confused as I thought it was connected to her BPES. Has anyone had or heard of this?> > Thanks> > >

[Guest guest]

Thanks for all of the posts on this....small precautionary steps to prevent future cornea dryness are certainly appreciated. As a result of this advice, I purchased a sleeping mask for my 3 1/2 year-old. He loves it. The first night he wore it up on his forehead as I wanted him to realize that he could just pull it up to see and not be startled when he woke up with on. This seemed to work. Now when we head books at night he puts it on his forehead and when we are done with books we put some ointment in and he pulls his mask down. When purchasing the mask, I did not look that hard so maybe children's size sleeping masks are not that hard to find but someone had referred me to a website called dryeyezone.com. I have no

affiliation with the site, just wanted to pass along what appears to be a good site for some dry eye products. Thanks again for bringing this to my attention. We talk all the time to our dr about the current status of any cornea dryness ( has a couple of small spots on his cornea) but never about steps that might help prevent future dryness (aside from the ointment). Thanks for the insight.--Anne Weber--mom of , 3 1/2Chicago, IL USAFrom: lisa mennes <l_mennes@...>To:

blepharophimosis Sent: Mon, October 4, 2010 11:05:03 PMSubject: Re: blepharophimosis Re: tear ducts

I agree with the use of lacrilube or another similar medicine. If your daughter sleeps with her eyes partially open, it may not always cause discomfort or redness but as she gets older, she will very likely notice more redness and discomfort as well as corneal scratches. Protecting the eyes is not always comfortable-the ointments sometimes blur the vision but to protect the corneas is very important.

From: parsonsfamily108 <parsonsfamily108@...>Subject: blepharophimosis Re: tear ductsblepharophimosis Date: Saturday, September 11, 2010, 8:13 AM

Hi JackieThanks for your post. My daughter, 8yrs, sleeps with her eyes open. I have always used either lacrilube or chloramphenicol ointment every night and use an eye mask for her as well while sleeping on airplanes or in an airconditioned room. She does have a small dry patch on 1 cornea which the ophthalmologist noticed. If her eyes are red in the morning I have been advise to put some lubrication in her eyes in the morning too. Very sensible.RegardsColchester (UK)> >

> From: <mparker81@...>> Subject: blepharophimosis tear ducts> blepharophimosis > Received: Friday, August 20, 2010, 10:28 AM> > > Â > > Hi everyone,> > I took my daughter for a check up this week at BCH (UK) and mentioned to her surgeon that although she is now 1 years old she still has no tears! He said he does not know that this is connected with BPES and will have to look into it...I am slightly confused as I thought it was connected to her BPES. Has anyone had or heard of this?> > Thanks> > >