Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hello Maeve, I am so sorry for the loss of your Dad. He sounds like he was a great man that raised wonderful children. Thank you so much for sharing his words of inspiration. It means a lot. Janet Bedford, NH USA From: maeveokeefe <maeveokeefe@...>blepharophimosis Sent: Thu, August 12, 2010 7:02:45 PMSubject: blepharophimosis Loss of a member Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Maeve, We are so sorry for your loss -- but you're father's words are truly beautiful! Might we all be such an inspiration to our children! Heidi, Jeff, & Clearwater, FL From: maeveokeefe <maeveokeefe@...>blepharophimosis Sent: Thu, August 12, 2010 7:02:45 PMSubject: blepharophimosis Loss of a member Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Maeve, So sorry for your loss. May your good memories of your dad carry you through these tough days. Prayers for you and your family, Janel blepharophimosis Loss of a member Hey Guys, Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed. Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were : " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime. Thanks for reading this & #9829; Maeve, 15, Ireland. RIP O'Keefe (Daddy) 20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 what a wonderful person your father was to instill pride in his children and to teach them that just because they had eyes that looked different didn't make them less of a person. I wish my father could have met him as my father also has BPES. My father is 83 yrs old. From: maeveokeefe <maeveokeefe@...>Subject: blepharophimosis Loss of a memberblepharophimosis Date: Thursday, August 12, 2010, 7:02 PM Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Maeve, my heart goes out to you for your loss. What a blessing your father must must have been, your quote from him is beautiful! Emalee Colorado, USA From: maeveokeefe <maeveokeefe@...>Subject: blepharophimosis Loss of a memberblepharophimosis Date: Thursday, August 12, 2010, 7:02 PM Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Maeve and family We here are so very sorry for your loss, we do not know you personally but we still feel close to each and everyone that has been part of this group whether directly or indirectly. I know what moves through you is a silence, a quiet sadness, a longing for one more day, one more word, one more touch, you may not understand why he left this earth so soon but little by little, you will begin to remember that he gave you memories too beautiful to forget. we will keep you in our prayers and May your memories give you strength. Tonikka (Lynden) Edmonton CANADA > > Hey Guys, > > Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed. > Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were : > > " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " > > Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime. > > Thanks for reading this & #9829; > Maeve, 15, Ireland. > > > RIP O'Keefe (Daddy) > 20th February 1953 - 28th July 2010 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi Maeve,  I am very sorry for your loss...  We all should keep in mind his words, as they are very true and very helpful.  Big hug - Kasia  2010/8/13 maeveokeefe <maeveokeefe@...>  Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed. Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were : " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime. Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Hi Maeve, What a lovely man your Daddy was, he was so right with the words that he said to you, I'm sure you will keep them with you allways.June. (Cheshire uk) blepharophimosis From: maeveokeefe@...Date: Thu, 12 Aug 2010 23:02:45 +0000Subject: blepharophimosis Loss of a member Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Dear Maeve & family, How very sad to hear of the loss of your father. Tonikka's words bring together all that I too feel for you. A beautiful man who will never be forgotten. Thank you for sharing your sadness, because we too are family and we support you and pray for you and may peace be with you and your family, dear Maeve. God bless, Terry (WI USA) From: Tonikka <lyndenhunter@...>blepharophimosis Sent: Thu, August 12, 2010 10:44:20 PMSubject: blepharophimosis Re: Loss of a member Maeve and familyWe here are so very sorry for your loss, we do not know you personally but we still feel close to each and everyone that has been part of this group whether directly or indirectly. I know what moves through you is a silence, a quiet sadness, a longing for one more day, one more word, one more touch, you may not understand why he left this earth so soon but little by little, you will begin to remember that he gave you memories too beautiful to forget.we will keep you in our prayers and May your memories give you strength.Tonikka (Lynden)Edmonton CANADA>> Hey Guys,> > Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.> Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :> > " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " > > Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.> > Thanks for reading this & #9829;> Maeve, 15, Ireland.> > > RIP O'Keefe (Daddy)> 20th February 1953 - 28th July 2010> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2010 Report Share Posted August 13, 2010 Maeve, I am so sorry to hear of the loss of your Father. I lost my Mother suddenly 3 years ago. Although neither of my parents had BPES they raised me to embrace my difference as a mark of beauty and like your Father, they taught me that in the face of ridicule to remember that it is not I but they that must have a problem to be able to treat another person in such a way. It takes a really special parent to instill the self confidence in their child that is obvious your Father gave to you. I know you are as proud of him as he is of you. You and your family will be in my thoughts and I'm sending big huge virtual (((HUGS))) to you. I'll leave you with one last thought that has helped me with the loss of my Mother... don't think of it as " time will heal your sorrow " because I personally believe it doesn't go away. However, there are tricks to accept it. For example, every time I have a " bad day " missing Mom I start to fill my head with memories of our best times and sometimes even go do something we used to enjoy together. For me that often helps me feel she is closer. Please feel free to contact me if you ever want to talk, vent, cry, laugh, or share some stories about your Dad Thinking of you! Klein Melbourne, FL - USA > > Hey Guys, > > Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed. > Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were : > > " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " > > Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime. > > Thanks for reading this & #9829; > Maeve, 15, Ireland. > > > RIP O'Keefe (Daddy) > 20th February 1953 - 28th July 2010 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2010 Report Share Posted August 14, 2010 Hallo Maeve, What your daddy said to you was soooo very right. Sounds like a great man. I look foreward seeing your picture. My condolences to you and your family. Dolph Heideman- The Netherlands blepharophimosis Loss of a member Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2010 Report Share Posted August 15, 2010 Hi Maeve, thank you so much for sharing with us, this ensures we all remember a little piece of his inpsiration, support and love. Sending love and healing to you all. and of course he is absolutely right. Love Clare - Hertfordshire UK From: June Fallon <june3005@...>Subject: RE: blepharophimosis Loss of a memberblepharophimosis Date: Friday, 13 August, 2010, 12:30 Hi Maeve, What a lovely man your Daddy was, he was so right with the words that he said to you, I'm sure you will keep them with you allways.June. (Cheshire uk) blepharophimosis From: maeveokeefe@...Date: Thu, 12 Aug 2010 23:02:45 +0000Subject: blepharophimosis Loss of a member Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2010 Report Share Posted August 16, 2010 Hi Maeve, Sorry to hear that your dad has passed on so early in his and your life. I don't know you, but have read some of your posts from before your surgery and all I can say is that the apple doesn't fall far from the tree because your strenght and pride with dealing with BEPS is inspiring to so many on this site. And I'm sure your father was unbelievably proud of how you have followed his steps and advice. I'll say a prayer for all of ye and I know people are saying this all the time to you, but the grief does get easier, it takes a while but you will get through it. Mind yourself. Pam, Cork > > Hey Guys, > > Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed. > Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were : > > " remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " > > Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime. > > Thanks for reading this & #9829; > Maeve, 15, Ireland. > > > RIP O'Keefe (Daddy) > 20th February 1953 - 28th July 2010 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2010 Report Share Posted August 17, 2010 Maeve, Thankyou so much for sharing your special words with us. I have tears in my eyes.... Thankyou x From: maeveokeefe <maeveokeefe@...>Subject: blepharophimosis Loss of a memberblepharophimosis Received: Friday, 13 August, 2010, 9:02 AM Hey Guys,Don't know if my daddy was ever on this (he wasn't great with technology), unfortunately he suddenly died two weeks ago from a fatal heart attack, but he was very proud to have BPES and always told me and my brother to embrace it, as we all should. I don't know if it was because of the BPES connection, but he had lost the sight in one eye and had cataracts (unsure of the spelling) removed.Just thought I'd let you's know about him, I know it doesn't have much relevance, but I think the fact that he was so proud of who he was, was an inspiration, his exact words were :" remember, you are beautiful, never feel like you should have to change for anyone else, let it be their own problem, so be yourself, because i didn't raise a stranger " Thats what he said the night before my operation, so I thought I would let you guys think about those words, because I don't think I could've said it better myself, and I hope to put up pictures of him maybe when I get the chance sometime.Thanks for reading this & #9829;Maeve, 15, Ireland.RIP O'Keefe (Daddy)20th February 1953 - 28th July 2010 Quote Link to comment Share on other sites More sharing options...
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