Guest guest Posted August 26, 2010 Report Share Posted August 26, 2010 Hi I was informed by somebody in Canada that I’d forgotten to sent out the Canada list. So here it is. Just to remind you –this is a voluntary database, you can put in as little or as much information as you like. Right now there are about 180 records in the database, but around 900 + members of the group. So if you look down the list, the real number of people in your area who are part of this group is more like three times as much. Please do be encouraged to update your information. This sort of listing is hugely beneficial to new mums and dads, as well as older members. Regards Shireen Mohandes London, England Name Email / ID for Messenger Address & City State Country People in my family with BPES Year of birth / Gender Surgery information Would like to meet others in area Name of surgeon and geneticist Trish (Caylie) tganam@... Canada daughter 2001/(F) Yes Dr Royce Braydon MacKinnon (mom Jen) jennifer.mackinnon@... ID is samajema Halifax NS Canada Braydon's the first 2006/male none yet yes Evergreen Lee evergreen_lee@... Oakville Ontario Canada son, Keaton 1998 - Male 8 weeks - ptossis repair w. fascia, 18 months - epicanthus surgery using 'jumping man' procedure, 7 years old - ptossis repair and add'l epicanthus surgery Yes - will travel to New York area too acinom_1983@... ID is acinom_1983 Calgary Alberta Canada 7 including myself 1983 female None Yes Lorrissa jlbroeren@... Whitehorse Yukon Canada lorrissa 2001 / Female katigraw@... ID is katigraw .. Ontario Canada 2. Me, and my son Tyler. 1964 / Female Yes. Tonikka (Lynden) lyndenhunter@... ID is lyndenhunter Edmonton Alberta Canada 1 son, age 11 1997 male 8 surgeries @age 5weeks, 2yrs, 3yrs 4yrs,8 yrs, 9 yrs,10 yrs (3 Brow lifts ) (epicanthus, inner corners done a few times) a repair for a fallen lid etc...done with silicone rods (slings) yep of course Dr Royce in Edmonton Alberta, who specializes in BPES surgeries, he does hundreds a year and makes BPES patients a priority Tyler katigraw@... ID is katigraw Ontario Canada 2. Me, and my mother 1989 / Male yes a ( ) dubie_41@... ID is dubie_41 Flin Flon Manitoba Canada 1 1998 / Male Frontal suspension at 4 months rejected and redone at 5 and 6 months, resuspended at 3 yrs due to drooping and bottom lid tightening at same time, epicanthal surgery at age 5. All performed by Dr. Royce , Edmonton Alberta there is no one in my area...but would meet anyone Dr Royce Halle MacKinnon newhavenmama@... New Haven PEI Canada Just Halle 2004 - Female Consultation appt with Dr. Pashby in Toronto - Sept 25/06 YES! Jodie lowefilewych@... Calgary Alberta Canada 1 2002/male nothing to date yes Quote Link to comment Share on other sites More sharing options...
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