Premature ovarian failure, POF

[Guest guest]

Hi all,

My daughter Kirsten (8yrs) was referred by her geneticist to an endocrine clinic

at Great Ormand Street Hospital in London. We went along to the appointment

although I was very surprised that they had asked to see her at such a young

age. This is all in anticipation of her probably POF.

At the appointment we basically had a chat, they checked her growth and will see

her again in a year. At the next appointment we will decide if/ when she needs

to have an ultrasound to confirm she has all the bits in the right place. I

thought I would share some of the verbal questions and answers I got. (These are

the views of the doctor who was present at the appointment and should not be

taken without consultation with your own doctor.)

1. When does my child need a baseline FSH level taken? A baseline FSH is

unnecessary. In the event of ovarian failure, levels will increase significantly

above normal.

2. When will she need hormone replacement therapy? A small dose of hormones can

be given as soon as her ovaries start failing.

3. Will early hormone replacement therapy delay infertility? No.

4. Menopause is associated with osteoporosis. Do I need to give my child calcium

supplements at some stage? No, as long as she receives the recommended daily

allowance of calcium in her diet.

5. How do I go about telling her about POF? Great Ormand Street has a POF clinic

with a fantastic team including psychologists. An appointment will be made for

the parents, without the child, so they can be prepared for most questions. The

child will have psychological support through out her management and the team

are well equipped to help the child and family.

6. Can her eggs be frozen or do they consider a genetic defect a

contra-indication to freezing eggs? Yes, her eggs can be frozen if she wants

that. But further investigations need to be done first.

Has anyone had any experience with the POF clinic at GOS? It seemed amazing and

I am looking forward to their support in the future.

Kind regards

Colchester (UK)

[Guest guest]

Thank you very much for posting

all that information – very interesting.

Take care

Shireen

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of parsonsfamily108

Sent: 11 September 2010 15:26

blepharophimosis

Subject: blepharophimosis Premature ovarian failure, POF

Hi all,

My daughter Kirsten (8yrs) was referred by her geneticist to an endocrine

clinic at Great Ormand Street Hospital in London. We went along to the

appointment although I was very surprised that they had asked to see her at

such a young age. This is all in anticipation of her probably POF.

At the appointment we basically had a chat, they checked her growth and will

see her again in a year. At the next appointment we will decide if/ when she

needs to have an ultrasound to confirm she has all the bits in the right place.

I thought I would share some of the verbal questions and answers I got. (These

are the views of the doctor who was present at the appointment and should not

be taken without consultation with your own doctor.)

1. When does my child need a baseline FSH level taken? A baseline FSH is

unnecessary. In the event of ovarian failure, levels will increase

significantly above normal.

2. When will she need hormone replacement therapy? A small dose of hormones can

be given as soon as her ovaries start failing.

3. Will early hormone replacement therapy delay infertility? No.

4. Menopause is associated with osteoporosis. Do I need to give my child

calcium supplements at some stage? No, as long as she receives the recommended

daily allowance of calcium in her diet.

5. How do I go about telling her about POF? Great Ormand Street has a POF

clinic with a fantastic team including psychologists. An appointment will be

made for the parents, without the child, so they can be prepared for most

questions. The child will have psychological support through out her management

and the team are well equipped to help the child and family.

6. Can her eggs be frozen or do they consider a genetic defect a

contra-indication to freezing eggs? Yes, her eggs can be frozen if she wants

that. But further investigations need to be done first.

Has anyone had any experience with the POF clinic at GOS? It seemed amazing and

I am looking forward to their support in the future.

Kind regards

Colchester (UK)