Guest guest Posted February 25, 2000 Report Share Posted February 25, 2000 Dear , Here is our list of Florida doctors - you'll see there are a couple in Tampa. I know that Dr. Todd has treated some of this group and we hear good things about him. Baca, M.D., (rheumatologist, IV and oral) 950 N. Federal Highway Suite 115 Pompano Beach, FL 33062 305-781-3300 J. Borgmeier, M.D. 1600 36th Street Vero Beach, FL 32960-4851 407-569-5773 Burks, M.D., Center for Integrative Medicine, 420 Nokomis Ave., South, Venice, FL 34285. 941-488-8112. S. Carson, M.D. 3913 Pine Limb Court Tampa, FL 33614 813-882-4906 Chang, M.D., P.A. 923 Del Prado Blvd. - Suite 105 Cape Coral, FL 33990 813-772-2422 Dr. Harold W. Ph.D., Mycoplasma Research Institute, P.O. Box 640040, Beverly Hills, FL 34464. email hwcmri@... Dayton, D.O., Medical Center, Sunny Isles, 18600 Ave., Miami, FL 33160. 305-931-8484. Grimes, (orthopedic physician/surgeon) Flagler Hospital Doctors' Building, US 1 South, St. Augustine (near ville), Florida. Mayer, D.O., (IV and oral) ph Di Stefano, NC, 8085 38th Ave., St. sburg, FL. 727-572-6745 or 727-344-3134 also at 4543 S. Manhattan Ave., Suite 103, Tampa, FL 33611. 813-831-8888 E. Moreland, M.D. 333 W. Miami Ave. Venice, FL 34285 Guillermo Oynick, M.D. 209 Palermo Pl. Venice, FL 34285 Jay G. 5642 W. Atlantic Blvd. Margate, FL 33063 305-974-3535 Harold G. , M.D. (FP) & S. Todd (son), (IV and oral) 4406 S. Florida Ave. Suite 27 Lakeland, FL 33803 941-646-5088 fax 941-646-7534 Shearer, Florida. H. Sikes, M.D. 38135 Market Square Zephrhills, FL 33540-2505 813-782-1234 D. Sladek (oral plus oral clindamycin) 2501 N. Orange Ave. Suite 538 Orlando, FL 32804 407-896-8696 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Hi a, I have also had arthritis since my 20's and i am also 46! I have seen Dr Whitman in N.J. and he is one of the best . He has been using the antibiotics a long time and it would bewell worth your two and a half hour drive. I live in Alabama and I'm thinking about going back to see him.I have been on the AP for 10 years and they have helped me regain my life. I'm still working on building up my immune system and I still haveoccasional flares but nothing compared to the way I was. This group will be a great support and source of info. Glad to have you with us1 susan c. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 In a message dated 08/07/2000 7:28:56 AM Pacific Daylight Time, Sbcona@... writes: << I'm still working on building up my immune system >> Hi I was thinking about this in light of them finding at the Mayo clinic that our T cells are aging prematurely. So how are you building up your immune system? anyone out there who knows the answer to this I am listening :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2000 Report Share Posted August 8, 2000 , I am also a patient of Dr. Whitmans for 3 months now. I have Ra , Lupus and Myositis . I am doing much better now since seeing him. Luckily I am only about 20 min from his Watchung office. He took me off the MTX and put me on Arava. I am off all sleep meds now . I am on Minocin 50mgs MWF for the last 3 months. He hopes to increase to 100mgs MWF in the fall when it cools off a little. He said that sometimes the hot weather can be a problem with an increase in the Minocin. I work outside giving riding lessons so maybe this comes into play for me. I am doing so much better that I really have nothing to complain about except trying to cut down the Prednisone has been the only hard thing. I agree that he is a good and compassionate Doctor. Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 hello and welcome! rheumatic new to the group Hello Everybody! I am new to the group and have been on antibiotic therapy for almost 6 months! Most of which has been one big herx. I am starting to feel much better switching from an every day dose of Minoocycline to intermittent dosing. I applaud anybody that can take Mino every day! I can't wait to start feeling the full effect and I am grateful to have found this treatment. I have had RA sero-negative for 3 1/2 years now. My doc also suspects early Fibromyalgia but has not diagnosed it yet. Hopefully because of the Min, he will never get to! I just wanted to say hello and I am so grateful to have found a group where the people are so friendly and supportive! I've been lurking for a while now. Thought I would start jumping in =0) ~Roseanne~To unsubscribe, email: rheumatic-unsubscribeegroups Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2001 Report Share Posted May 31, 2001 Roseanne, Welcome to the group!! I think we all start out lurking I know I did!! I hope you find what you need here and please feel free to add to the discussions or ask questions people on here are great about digging up information if they don't have the answer, we are a family here. Glad you joined us!!! Peace, Sherry Hello Everybody! I am new to the group and have been on antibiotic therapy for almost 6 months! Most of which has been one big herx. I am starting to feel much better switching from an every day dose of Minoocycline to intermittent dosing. I applaud anybody that can take Mino every day! I can't wait to start feeling the full effect and I am grateful to have found this treatment. I have had RA sero-negative for 3 1/2 years now. My doc also suspects early Fibromyalgia but has not diagnosed it yet. Hopefully because of the Min, he will never get to! I just wanted to say hello and I am so grateful to have found a group where the people are so friendly and supportive! I've been lurking for a while now. Thought I would start jumping in =0) ~Roseanne~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2001 Report Share Posted August 20, 2001 Welcome I am sharing my story as it resembles yours in a few ways. I was diagnosed three years ago. I am 36 years old and also have three little kids. my RA hit like a blizzard after a traumatic incident 6 months earlier. I had it brewing for years, but the trauma pushed me over. I had a titer of 646 RA. ANA of 360? or 300 something. Both have dropped to nearly normal! something the doctor said was impossible. I knew instinctively I had a serious infection. I refused all the traditional meds. I starved and ate salad and fish for months and tried many different herbs. Finally 6 months after the diagnosis of RA (which I do have) my environmental md discovered I had lyme disease. Although we had begun the AP Roadback protocal a month before knowing I had lyme and other tick born infections. I could not tolerate even the tiniest dose of minocin without nearly dying (thats what it felt like) We tried most all the macrolides (biaxin, zith, cipro, erythromycin) all were intolerable. Then we tried bicillin (penicillin derrivative) injections that are traditionally used for syphillis which is very similar to Lyme bacteria. After one week I was much better. We did those injections for approx two months and then I was able to step off from the penicillin to the tetracyclines or other macrolides. I bounced back and forth with dose and drugs for a year or year and a half. now I am trying to stay consistant with the Doxy which is a generic form of minocycline. What has helped me in determining to use Doxy (tetracycline family of drugs) and the dose is 1. this group, 2. the Lyme disease groups, many of which use doxy 3. the institute for molecular medicine and Garth Nicholson (gulf war people) 4. the Biomeridian machine which is a machine that two of my doctors use to help determine what drug, herb or other balance my body and what organisms or metal etc are causing my body to be stressed. My kids have the lyme bacteria from me via in utero. my husband has lyme (and a + RA titer) from me sexually. I do not know when I was bitten or if I inheirted the lyme from my mother. BUT when I use the Biomeridian machine and my joints are very active and stressed, the machine can zone into the joint meridian to find out what is the cause of the stress....IT SAYS BORELLIA BORGDORFERI (LYME). It says this for my son who is 9 also and the machine says that doxy and tetracycline balance that joint. (forgive me for rambling this morning). The long and short of my sermon is not that everyone has the same organisms (but there is a lot of lyme out there). But that the tetracyclines are a good choice because they can act on some many idfferent organisms like lyme, mycoplasms (that you will often find with lyme), amebias etc. And when our immune systems are challenged we get worn down to the point that we pick up a variety of pathogens. Many organisms replicate slowly, so a turtle approach may be more effective and easier on the system, ie mon. weds and fri. small dose. lastly, it takes a long time to get better. stay with it. YOu are on the right track. good luck, kathy meyer ps if you get lyme testing, the results are very inaccurate which means a positive is positive, but a negative may actually be a positive. rheumatic New to the group > Hi there to you all... > My name is Kerry and on July 4th, I was told that I have Rheumatoid > Arthritis. I'am 31 years old and I live in Canada. I'am married > with > 3 children and when I heard of the news I was devastated... I have > done some research on Rheumatoid Arthritis and have a general idea of > what is going on, but still am unsure that I in fact have this > disease. The doctor told me that my Rheumatoid Factor was sitting at > 126 and that it was extremely high, and though I do have some joint > stiffness and feel pretty rough on some days, the majority of the > time > I feel not too bad. I'am waiting to hear from the nuclear sciences > department of the local University for a bone scan, but am unsure > about this sort of testing. I'am taking Naproxen for swelling of the > joints...which I take 500mg 3 times a day and 6 extra strength > tylenol > a day....I'am not sure if this is doing any good either...maybe this > is why I'am not as sore as I should be. The Rheumatologist said that > when she first saw me, Clinically, she would never have guessed that > I > had RA, and actually initially diagnosed me with Fibromyalgia...she > then ran more tests and found out that her diagnosis was wrong and > that my Rheumatoid Factor was 4 times the normal and suggested the > bone scan... When I read about this group, I thought this would be > great to get involved in...because anything I have read so far over > the internet has scared the daylights out of me....and am not sure > what to expect with this disease....Does the RF at 126 mean that I > actually have RA? Should I get this bone scan done? All these > anti-inflamatory drugs are upsetting me...should I ask about the > antibiotic treatment at this point? I'am scared and unsure what to > do....If anybody can give me some information...or help...I would > greatly appreciate it.... > Thank you > Kerry > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hi Kerry Get on those antibiotics as soon as possible. They are what will make the difference. Personally I would take only the level of NSAIDS that you actually need. Work out the level for yourself, though they do help stop joint damage. I was given huge dosages at the start and thought I was cured until I vomited them all up and resolved not to have any more. Then I rediscovered how much pain was actually there and went on Celebrex. Gail > From: kandy@... > Date: Mon, 20 Aug 2001 13:09:40 -0000 > rheumatic > Subject: rheumatic New to the group > > Hi there to you all... > My name is Kerry and on July 4th, I was told that I have Rheumatoid > Arthritis. I'am 31 years old and I live in Canada. I'am married > with > 3 children and when I heard of the news I was devastated... I have > done some research on Rheumatoid Arthritis and have a general idea of > what is going on, but still am unsure that I in fact have this > disease. The doctor told me that my Rheumatoid Factor was sitting at > 126 and that it was extremely high, and though I do have some joint > stiffness and feel pretty rough on some days, the majority of the > time > I feel not too bad. I'am waiting to hear from the nuclear sciences > department of the local University for a bone scan, but am unsure > about this sort of testing. I'am taking Naproxen for swelling of the > joints...which I take 500mg 3 times a day and 6 extra strength > tylenol > a day....I'am not sure if this is doing any good either...maybe this > is why I'am not as sore as I should be. The Rheumatologist said that > when she first saw me, Clinically, she would never have guessed that > I > had RA, and actually initially diagnosed me with Fibromyalgia...she > then ran more tests and found out that her diagnosis was wrong and > that my Rheumatoid Factor was 4 times the normal and suggested the > bone scan... When I read about this group, I thought this would be > great to get involved in...because anything I have read so far over > the internet has scared the daylights out of me....and am not sure > what to expect with this disease....Does the RF at 126 mean that I > actually have RA? Should I get this bone scan done? All these > anti-inflamatory drugs are upsetting me...should I ask about the > antibiotic treatment at this point? I'am scared and unsure what to > do....If anybody can give me some information...or help...I would > greatly appreciate it.... > Thank you > Kerry > > > To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2001 Report Share Posted August 21, 2001 Hi Kerry! Geoff Crenshaw here. Pleased, but also saddened to make your acquaintance. >> Date: Mon, 20 Aug 2001 13:09:40 -0000 From: kandy@... Subject: New to the group (snip) about this sort of testing. I'am taking Naproxen for swelling of the joints...which I take 500mg 3 times a day and 6 extra strength tylenol a day....I'am not sure if this is doing any good either...maybe this << Long story short: You're in serious trouble and the road your physician(s) have already started you on, and are likely to take you down, will probably make you much worse, not better. Attacking symptoms is not without it's cost. If you can, before they take you any further, try getting off the Naproxen & Tylenol using instead the herbal RheuMax and get started with the Antibiotic Protocol (Minocin or doxycycline) as quickly as you can. Rheumatic.org http://www.rheumatic.org has a list of treating physicians all over the world, and we have many list members in Canada. Regards, ----------------------- Geoff ** Usual Disclaimers ** ----------------------- The Formula of Life: Ge12.2+2Sa7.12.13(1Ch17.12.14)+(Ps2+69.4\72/78.2+107.9)+ Is2.3/7.14\11.1-5/35.4-6(42.1-4+45.21+50.6+52.13)53+59.16+ Je31.15+Mi5:2=HaMoshiach http://www.healingyou.org/ Nonprofit: Herbs, Homeopathics & supp's. http://www.800-800-cruise.com/index-aff.html Make money & travel! http://www.800-800-cruise.com/ Over a MILLION travel deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Welcome, Tricia! To answer your question: YES! LOL. We feel this way. So upset that my son, 5.3, has a LONG road ahead of him. He is not putting two words together yet, and right now we're in our second day of intense potty-training! He's a stubborn one! Good luck to you with Madison. Have you read some of the previous posts? Look into the ProEFA - you may want to try this with her. ~~ in PA [ ] New to the group > Hi all! Am new to the group and just wanted to get acquainted! > > My daughter, Madison, just turned 2 on Nov.5 and has just been > diagnosed with apraxia. She has been in speech therapy for a little > over a month. Originally the therapist said she had a " severe > articulation disorder " , however after working with her these few > weeks, she said she really believes it is apraxia. Madison tries so > hard to say the words, they just don't come out right. She is very > intelligent in all other areas and is a wonderful child (yes, I am a > very proud Mother!) > > I am just starting to research this disorder and get info. Honestly, > I am scared to death! I thought we would be in therapy a few months, > and she would be talking, but it looks like we are in this for > years. And I have to admit, it breaks my heart that I don't have > a " perfect " child. Don't get me wrong, I love my baby with all my > heart & am so thankful to have her, no matter if she never talks! - > am just so sad of the struggles that she will have to face. Anyone > else feel this way? > > Anyway, am looking forward to getting to know everyone, and hoping to > find good info./advice! > > Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 Hi Tricia! I am fairly new to the group too. My son is about 31 mos and says just a few words. We don't have an official diagnosis yet tho (not sure WHY NOT) I have just caught up on all the posts, and have several people to thank and reply to. You can't hardly miss a day here! Just wanted to say that you have found a great board and group of people! I have been just overwhelmed at the friendliness and offers of help that I have received so far. I'm so very glad I found it! Paige > Hi all! Am new to the group and just wanted to get acquainted! > > My daughter, Madison, just turned 2 on Nov.5 and has just been > diagnosed with apraxia. She has been in speech therapy for a little > over a month. Originally the therapist said she had a " severe > articulation disorder " , however after working with her these few > weeks, she said she really believes it is apraxia. Madison tries so > hard to say the words, they just don't come out right. She is very > intelligent in all other areas and is a wonderful child (yes, I am a > very proud Mother!) > > I am just starting to research this disorder and get info. Honestly, > I am scared to death! I thought we would be in therapy a few months, > and she would be talking, but it looks like we are in this for > years. And I have to admit, it breaks my heart that I don't have > a " perfect " child. Don't get me wrong, I love my baby with all my > heart & am so thankful to have her, no matter if she never talks! - > am just so sad of the struggles that she will have to face. Anyone > else feel this way? > > Anyway, am looking forward to getting to know everyone, and hoping to > find good info./advice! > > Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2001 Report Share Posted November 24, 2001 hi tricia..welcome!!!....i have a 3 year old son who is apraxic and i felt exactly the way you do when i first found out...it is heartbreaking but i also feel blessed to have him...like with any disability, no matter how severe, it is a long, sometimes lifelong, journey but you learn to deal with it and your daughter will benefit from your perseverence...you are doing the right thing by reading and educating yourself about apraxia ...you learn as you go along and the support you will get from this group is amazing!..good luck and hope to talk soon!! joann from nj --- trimadsco@... wrote: > Hi all! Am new to the group and just wanted to get > acquainted! > > My daughter, Madison, just turned 2 on Nov.5 and has > just been > diagnosed with apraxia. She has been in speech > therapy for a little > over a month. Originally the therapist said she had > a " severe > articulation disorder " , however after working with > her these few > weeks, she said she really believes it is apraxia. > Madison tries so > hard to say the words, they just don't come out > right. She is very > intelligent in all other areas and is a wonderful > child (yes, I am a > very proud Mother!) > > I am just starting to research this disorder and get > info. Honestly, > I am scared to death! I thought we would be in > therapy a few months, > and she would be talking, but it looks like we are > in this for > years. And I have to admit, it breaks my heart that > I don't have > a " perfect " child. Don't get me wrong, I love my > baby with all my > heart & am so thankful to have her, no matter if she > never talks! - > am just so sad of the struggles that she will have > to face. Anyone > else feel this way? > > Anyway, am looking forward to getting to know > everyone, and hoping to > find good info./advice! > > Tricia > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 Hello, and first of all I would like to say Welcome and I am fairly new here myself but, I love this site and all of the support from other parents. Second, I felt just like you, and I still do at times, but then I remind myself that everything happens for a reason. There is a reason that our children are this way and someday hopefully we will find out what it is. Maybe they are to do something spectacular with what they are learning do to by having this, I don't know. I am finding that rather than feeling sorry for my daughter, I am learning to admire her in many ways. Living life day to day knowing what you want to say and not being able to verbalize it would be devastating to me, but she handles it so incredibly well. I just look at her and see that she does not pitty herself, she just feels like an ordinary little girl, who is very much a tomboy. She loves to make people laugh and she just enjoys life. I am learning a lot from her. I admire all of these children, they have the patience of saints!!! Third, perhaps you should try the ProEFA read the information about it and decide for yourself, I have started it recently and I am hoping it makes great improvements for my daughter. Welcome once again, Sheila >From: trimadsco@... >Reply- > >Subject: [ ] New to the group >Date: Sat, 24 Nov 2001 10:21:43 -0000 > >Hi all! Am new to the group and just wanted to get acquainted! > >My daughter, Madison, just turned 2 on Nov.5 and has just been >diagnosed with apraxia. She has been in speech therapy for a little >over a month. Originally the therapist said she had a " severe >articulation disorder " , however after working with her these few >weeks, she said she really believes it is apraxia. Madison tries so >hard to say the words, they just don't come out right. She is very >intelligent in all other areas and is a wonderful child (yes, I am a >very proud Mother!) > >I am just starting to research this disorder and get info. Honestly, >I am scared to death! I thought we would be in therapy a few months, >and she would be talking, but it looks like we are in this for >years. And I have to admit, it breaks my heart that I don't have >a " perfect " child. Don't get me wrong, I love my baby with all my >heart & am so thankful to have her, no matter if she never talks! - >am just so sad of the struggles that she will have to face. Anyone >else feel this way? > >Anyway, am looking forward to getting to know everyone, and hoping to >find good info./advice! > >Tricia > > > _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 Hi Tricia and Welcome to the group!! I am Carnell and the Executive Director of Global Support for the CHERAB Foundation. In other words, I am helping people start support groups and get connected with others in their area who are also dealing with this disorder - and I want to network these support groups and individuals to others world wide. Can you imagine the amount of information that can be spread, and the support will be incredible!! Where do you live?? I will send you a list of others in your area you can contact, and any support groups that are in your area!! My son, , is 4 years old and was diagnosed with apraxia (dyspraxia) at the age of 2 1/2. I so understand where you are and how scared you are...I have been there. Although I still get scared at times, as well as angry, sad, depressed, etc. I can now see the light at the end of the tunnel. I know that light has always been there, it was just hidden for a LONG time. You can read my son's story at www.verbalDyspraxia.com and see where he was when he started (non-verbal) and where he is now (talking all the time, but major articulation issues and motor planning issues). It helps to read about other children who are like your own, you won't feel so alone. Once again, welcome, we all look forward to hearing more from you - and we are all here to listen and offer " mom " advice as well as " professional " advice. Looking forward to hearing from you as to where you are!! Carnell North Carolina CHERAB Support www.verbalDyspraxia.com [ ] New to the group Hi all! Am new to the group and just wanted to get acquainted! My daughter, Madison, just turned 2 on Nov.5 and has just been diagnosed with apraxia. She has been in speech therapy for a little over a month. Originally the therapist said she had a " severe articulation disorder " , however after working with her these few weeks, she said she really believes it is apraxia. Madison tries so hard to say the words, they just don't come out right. She is very intelligent in all other areas and is a wonderful child (yes, I am a very proud Mother!) I am just starting to research this disorder and get info. Honestly, I am scared to death! I thought we would be in therapy a few months, and she would be talking, but it looks like we are in this for years. And I have to admit, it breaks my heart that I don't have a " perfect " child. Don't get me wrong, I love my baby with all my heart & am so thankful to have her, no matter if she never talks! - am just so sad of the struggles that she will have to face. Anyone else feel this way? Anyway, am looking forward to getting to know everyone, and hoping to find good info./advice! Tricia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Welcome to the group. My insurance pays for therapy, but my son has the diagnosis of mild Cerebral Palsy. I have been told that this is the norm; that he can have the Apraxia as secondary. Angi [ ] New to the group My daughter Hannah is 2, 10 mos and has recently been diagnose with apraxia / dyspraxia (I'm not sure of the difference and they aren't sure of the right " label " yet). She's been in EI since July and has made good progress, with a good vocab just its unintelligable, muddled and she has problems responding to questions with the correct response. Cognatively she measures bright though. We are just in transition to the school system and hope to get a place at the speech disorders unit which happen to be at our local school. If any one knows any tips to get insurance to pay for therapy I would love them, mine won't pay out as they say all toddlers have bad speech bring her back at 4. bel Cowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 28, 2001 Report Share Posted November 28, 2001 Hi bel and welcome! Insurance is a tough one. From my experience never use a diagnosis that indicates a " delay " . This is a red flag that goes off! Check out the http://www.apraxia.cc WEB page. There is a section for insurance tips. It also references an old post which lists the codes which are good to use. If you can't find it, please write again and I'll check the archives. Good luck. > My daughter Hannah is 2, 10 mos and has recently been diagnose with apraxia / > dyspraxia (I'm not sure of the difference and they aren't sure of the right > " label " yet). She's been in EI since July and has made good progress, with a > good vocab just its unintelligable, muddled and she has problems responding > to questions with the correct response. Cognatively she measures bright > though. We are just in transition to the school system and hope to get a > place at the speech disorders unit which happen to be at our local school. > If any one knows any tips to get insurance to pay for therapy I would love > them, mine won't pay out as they say all toddlers have bad speech bring her > back at 4. > > bel Cowley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2001 Report Share Posted December 18, 2001 Hi and welcome to the group. How wonderful Owen is doing. Sounds like the pre-school program and therapy really helped him. You didn't mention if he was taking any EFA supplements. They may help with the attention issues. My son sounds like at that age. He started Early Intervention at 2 yrs 3 mo. Like he maybe had 20 intelligible words and lots of pointing and grunting. He was social in comfortable surroundings shy around new people and situations. He was diagnosed with apraxia in June and started the Pre-school program in July. We also increase his therapy to 2X a week privately along with 3X individual at school. He began the EFA supplementation on October 14th. His expressive language took off right away and he definitely seemed more focused with more energy. His coordination has improved somewhat but he also started OT. I give him 1 capsule 1X a day. I mix it in vanilla yogurt or applesauce. When you mix it in juice, sometimes it separates. In terms of the receptive stuff I can totally relate. I too sometimes feel it is a crap shoot when asking him to do something. We are keeping an eye on auditory processing issues. Although with his expressive speech improving, receptive seems to be improving as well. I guess I can say that 6 months ago I was feeling like you not knowing what the future would hold. Now after 6 months of almost daily therapy he can put 3 words together. He now tries to repeat new words and his articulation has improved. His (and my) frustration levels are reduced greatly with him expressing himself. His new thing is Come here Mommy! Music to my ears. You don't mention if is apraxic. There are different therapy approaches if he is. Frequent one-on-one therapy is so important. I posted some books yesterday that may be of some help to you if is apraxic when writing his IEP. Check the HTTP://APRAXIA.CC web site for more info. Have patience and you know from Owen that hard work and appropriate therapies are the road to follow. You did an awesome job with him and I am sure that you will do an awesome job with . Have a great holiday and please keep us posted on 's progress. Mom to 3.6 (oral and verbal apraxia and low tone) and 22 months (bundle of energy and a chit chatterer) > i am a mother of two boys: Owen, who is almost 6yrs, and , who is > almost 3yrs. i feel compelled to tell my story so i hope you will > indulge me. both boys were born premature (Owen @ 34 weeks and > @ 31 weeks). Owen at 3 yrs had a good vocabulary but our doctor was > concerned that she couldn't understand 75% of what he said; so, we > had him evaluated, and found out that had a expressive/receptive > speech delay with some characteristics similar to an autism spectrum > disorder. well with speech theraphy and an interventive preschool > program, owen is now 5yr and in mainstream kindergarten with > itinerate preschool services (ot and speech). he does not test with > an expressive delay anymore but still has a receptive delay, fine > motor struggles, and some attention issues by afternoon. the > psychologist says that if he has PDD he is so high functioning that > it is really a difficult call to make. > well this brings me to my two year old. he seems more social to > his family than owen had been but he is just not talking to us. he > has some " real " words but mainly has a language of his own. he > pushes/pulls/points but on his evaluation he was shown to have a > significant delay in his receptive/expressive skills and also > appeared to the team @ OSU to have Autism like issues. The team gave > him " a tenative diagnosis of autism to be re-evaluated in two years " . > I just don't see Autism in but I'll be the first one to admit > that he is not where he should be developmentally. I have a friend > who got started on the ProEFA. we put one capsule in his morning > juice (either orange or lemonade) and he doesn't even seem to know it > is there. I'm really concerned about where 's communication > skills are at (at 3yrs they're suppose to have 500 words and answering > where, who, etc type questions), we are lucky to have 20 words and > it's a hit or miss as to whether he will " go get the ball/book, etc " . > He seems intellegent to us but there's this big communication gap! > > Am i giving him the correct amount of ProEFA (he's been on one > capsule for the last 5 days). How long before we will see the results > (he has speech and OT once a week since september). > > Does anyone have any similar histories that might give us some > encouragement. i just need some hope that eric will talk to us and > have conversations at some point (hopefully by the time he'd go to > kindergarten) > > Long-winded and concerned > lisaspiper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2002 Report Share Posted February 14, 2002 It took me eight months to decide to chelate my son and I have not looked back. He is doing wonderfully with chelation. It is hard, rough and at times scary but nothing like what has happened to our kids from vaccines. Vicky --- rcaj_2000a <rcaj_2000@...> wrote: > Hello. I have a 5.5 yr old son, Adam. He has been > recently > diagnosed with Asperger's syndrome. We have looked > into the > chelation therapy on and off for the last few > months. A friend told > us that the risks are far greater than the benefits > -- have any of > you found that to be true? What are the risks? How > much does this > type of thing cost? And can you do it on your own > or do you have to > work with a doctor? Also, does it help with high > funtioning autism or > aspergers just as well as with classic autism? Any > information would > be helpful. Thanks. Christie > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2002 Report Share Posted February 15, 2002 Hello Mellisa, You mentioned yeast treatment in your post. What treatment did you use? There are soo many things out there for yeast. A person can get pretty confused at times. Thanks, . At 10:03 15/02/2002 -0800, you wrote: >Hi, I'm new to the group. Been reading the posts for >a few weeks now. I have a five year old, PDD-NOS, and >a two year old, that we suspected may be on the >spectrum(plus two NT kids). I've had my two boys gfcf >for six months. I gradually added various >supplements, then treated for yeast with nystastin.We >saw some very nice results in both boys. My two year >old began to talk within days of the diet, then as >supplements and yeast treatment began, his eye contact >returned,he stopped stimming, and toe walking, and he >began to speak in small sentences.His social skills >are age appropriate. I consider the two year old very >much a typical child now. > >My five year old, also improved significantly, >especially after the yeast treatment. His attention >span increased dramatically, his conversational skills >improved, the repetitive language ceased, stimmimg is >reduced(he likes to walk and run around the room), He >learned to read, write and spell, more or less on his >own. All his teachers and therapists noticed a change >as well. I had not mentioned anything that we were >doing, at the time. I have been experimenting with >enzymes and electrolytes. We have the Houston >enzymes, and have been using them for about a week >now. I haven't really noticed much of anything, >except more normal BM's. My son has pretty much had >diahrrea his whole life. It improved with the diet, >but it is pretty much normal with enzymes. The >electrolytes, are helping too, I think. My son always >seemed to be dehydrated. If anyone is interested, I >use the e-lyte concentrate for electrolytes. He still >has a long way to go, but we are optimistic he's on >his way back. > >Great group, lots of great info.! > > >__________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2002 Report Share Posted March 19, 2002 Hi, Valtrex is an antiviral medication. Dr. Goldbergs testimony and another paper I'll link should give you a basic idea about what we are doing and why. Cheryl http://www.house.gov/reform/hearings/healthcare/00.06.04/goldberg.htm Goldberg, M. Frontal and Temporal Lobe Dysfunction in autism and Other Related Disorders: ADHD and OCD. Alasbimn Journal1(4): July 1999. http://www.alasbimnjournal.cl/revistas/4/goldberg.htm >From: " bella " <bellastip@...> >Reply- > " " < > >Subject: New to the group >Date: Mon, 18 Mar 2002 09:30:10 -0600 > >Hi everybody! >I am new to the group. For the past week I have been reading group's >e-mail but still can not figure out some of the details. Can somebody >explain to me what is protocol and what is it Dr.Goldberg recommends >to do? I have a six years old autistic girl and we've tried just about >everything (ABA, VBA, diet, vitamins...). I have read a discussion about >Valtrex. What is it and how does it help? I posted a message in the >section " Ask Doctor Goldberg " about a week ago but still did not receive an >answer. I feel that the time is running out on us (she is going to the >first grade in the Fall) and would like to get some answers as soon as >possible so maybe we can start planning our trip to see Dr.Goldberg. > >Can somebody help with answers? > > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2002 Report Share Posted March 21, 2002 Cheryl, Thanks so much for the info and the link!!! New to the group >Date: Mon, 18 Mar 2002 09:30:10 -0600 > >Hi everybody! >I am new to the group. For the past week I have been reading group's >e-mail but still can not figure out some of the details. Can somebody >explain to me what is protocol and what is it Dr.Goldberg recommends >to do? I have a six years old autistic girl and we've tried just about >everything (ABA, VBA, diet, vitamins...). I have read a discussion about >Valtrex. What is it and how does it help? I posted a message in the >section " Ask Doctor Goldberg " about a week ago but still did not receive an >answer. I feel that the time is running out on us (she is going to the >first grade in the Fall) and would like to get some answers as soon as >possible so maybe we can start planning our trip to see Dr.Goldberg. > >Can somebody help with answers? > > _________________________________________________________________ Chat with friends online, try MSN Messenger: http://messenger.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Sassy: Welcome to the group! Glad to hear that your symptoms are under control - don't know if we are ever truly painfree, seems with me even on a good day there is some pain. This is a great group of people - we know what you are going through and we help each other a lot. Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Welcome, Sassy. My youngest daughter just got back from Iowa where her fiance was born & raised! I'm so glad you're doing well. I'm looking forward to getting to know you. With Hope... Tess in NW Oregon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi Sassy, and welcome to the group. I'm 36 and live in Orlando, FL. I work from home and am finishing my degree in computer programming. I was diagnosed with RA last Feb. You'll find a lot of caring friends here, and great information on RA. Our moderators, and a, do a great job sharing the latest RA research. I'm glad your medication " cocktail " is working for you. As for other autoimmune problems, I'm hypothyroid, but haven't been diagnosed with autoimmune hypothyroidism. I think others in the group might have more than one autoimmune diagnosis, though. Hugs, Carol [ ] New to the group Hi all I am new to your group, I go by Sassy. I found out about a year ago now that I have RA. I think I really knew it about a year before that, but I had to find the right Dr.!! I am taking Methotrexate, vioxx and Enbrel. I guess I have had alot of luck with them, not sure what to expect. Things are so much better then they were so I am happy with that just wish better ment NO PAIN at all!! I also have someother wonderful autoimmune disorders, and wonder if others have multi immune system problems? Now a little about me... I am 40 years old, live just outside a small town in Iowa, love being in the country!! I have been married for geeeezzzzzz 22 years in Oct.! My husband and I have 3 children Josh 17, 15, and Haylie 9. Well thats about it for now! Hope to get to know some of you soon. Sassy --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2002 Report Share Posted July 17, 2002 Hi and Welcome Sassy, I hope you will enjoy it here as much as we will enjoy getting to know you. Although, the reason that you had to join us saddens me. It really doesn't seem right that we have to " settle " for some pain and can't achieve or expect NO PAIN. Glad to see that at least you are getting some relief. This disease is no fun at all. Take care of YOU. Remember, you are never alone now with this disease and we are all just an e-mail away. Gentle, tender, getting to know you angel hugs, Debs in FL Quote Link to comment Share on other sites More sharing options...
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