new to the group

July 1, 2005

Sheena,

You are a wonderful sister. Maybe in time, she will change her mine.

But at least you'll get a little understanding of what she is going

through as you read about our day to day lives. Most people with RA

have no clue what it's like. Many times even family members that live

with someone with RA just don't get it. One day we can rake the yard

and the next day we may need help just to brush our teeth.

Feel free to ask any questions. We have many knowledgeable people here

that have been through just about everything associated with these

diseases.

a

On Jun 29, 2005, at 9:08 AM, theoraclelass wrote:

> Hi,

> I joined the group to be able to understand and support my younger

> sister who is RA+ve since the last 10 years. She is on regular

> medication and has a set of excursive to be done regularly, which she

> does not. She also is highly anxious person and has been through

> clinical depression last year.

>

> I did wish she would have joined a support group but since she did not

> I decided to go ahead. Hoping that I too can be of support to her and

> others who endure autoimmune diseases.

>

> Regards,

> Sheena

July 1, 2005

Sheena,

You are a wonderful sister. Maybe in time, she will change her mine.

But at least you'll get a little understanding of what she is going

through as you read about our day to day lives. Most people with RA

have no clue what it's like. Many times even family members that live

with someone with RA just don't get it. One day we can rake the yard

and the next day we may need help just to brush our teeth.

Feel free to ask any questions. We have many knowledgeable people here

that have been through just about everything associated with these

diseases.

a

On Jun 29, 2005, at 9:08 AM, theoraclelass wrote:

> Hi,

> I joined the group to be able to understand and support my younger

> sister who is RA+ve since the last 10 years. She is on regular

> medication and has a set of excursive to be done regularly, which she

> does not. She also is highly anxious person and has been through

> clinical depression last year.

>

> I did wish she would have joined a support group but since she did not

> I decided to go ahead. Hoping that I too can be of support to her and

> others who endure autoimmune diseases.

>

> Regards,

> Sheena

July 18, 2005

8 weeks seems to be a long time with no follow up. I hope that you

see great results with your helmet.

> Hi everyone,

> My 4 mos. old daughter was diagnosed with plagiocephaly & given a

> local helmet 2 wks. ago. I was really confused about treatment

because

> everything I've read reference a DOC band or a Star helmet.

Markayla's

> helmet was fitted without a mold & her follow up appt. was scheduled

> for 8 wks. After speaking with the nurse , I assume she has what's

> referred to as a local helmet. So far she's adjusting well. It came

> pink & we decorated it with stickers. One of our concerns is it

> pulling out her hair on the sides but we take comfort in knowing it

> will grow back. I'll remain in touch.

> Kaye

> Greensboro, NC

July 18, 2005

8 weeks seems to be a long time with no follow up. I hope that you

see great results with your helmet.

> Hi everyone,

> My 4 mos. old daughter was diagnosed with plagiocephaly & given a

> local helmet 2 wks. ago. I was really confused about treatment

because

> everything I've read reference a DOC band or a Star helmet.

Markayla's

> helmet was fitted without a mold & her follow up appt. was scheduled

> for 8 wks. After speaking with the nurse , I assume she has what's

> referred to as a local helmet. So far she's adjusting well. It came

> pink & we decorated it with stickers. One of our concerns is it

> pulling out her hair on the sides but we take comfort in knowing it

> will grow back. I'll remain in touch.

> Kaye

> Greensboro, NC

July 18, 2005

Hi there

It does sound like a passive local helmet which is pre-made so the

baby grows into the shape. The good news is that your daughter is

very young to be in a helmet so a passive helmet may well work in

this situation- it doesn't work so well with older babies. However,

if you have any concerns, I would go back before the eight weeks as

this is quite a long time.

I'm glad she is adjusting well, do let us know how she gets along.

Hannah (mum to Lucia, London, UK)

Cranio grad

> 8 weeks seems to be a long time with no follow up. I hope that

you

> see great results with your helmet.

>

> --- In Plagiocephaly , " meyak97 " <meyak97@y...>

wrote:

> > Hi everyone,

> > My 4 mos. old daughter was diagnosed with plagiocephaly & given

a

> > local helmet 2 wks. ago. I was really confused about treatment

> because

> > everything I've read reference a DOC band or a Star helmet.

> Markayla's

> > helmet was fitted without a mold & her follow up appt. was

scheduled

> > for 8 wks. After speaking with the nurse , I assume she has

what's

> > referred to as a local helmet. So far she's adjusting well. It

came

> > pink & we decorated it with stickers. One of our concerns is it

> > pulling out her hair on the sides but we take comfort in knowing

it

> > will grow back. I'll remain in touch.

> > Kaye

> > Greensboro, NC

July 18, 2005

Hi there

It does sound like a passive local helmet which is pre-made so the

baby grows into the shape. The good news is that your daughter is

very young to be in a helmet so a passive helmet may well work in

this situation- it doesn't work so well with older babies. However,

if you have any concerns, I would go back before the eight weeks as

this is quite a long time.

I'm glad she is adjusting well, do let us know how she gets along.

Hannah (mum to Lucia, London, UK)

Cranio grad

> 8 weeks seems to be a long time with no follow up. I hope that

you

> see great results with your helmet.

>

> --- In Plagiocephaly , " meyak97 " <meyak97@y...>

wrote:

> > Hi everyone,

> > My 4 mos. old daughter was diagnosed with plagiocephaly & given

a

> > local helmet 2 wks. ago. I was really confused about treatment

> because

> > everything I've read reference a DOC band or a Star helmet.

> Markayla's

> > helmet was fitted without a mold & her follow up appt. was

scheduled

> > for 8 wks. After speaking with the nurse , I assume she has

what's

> > referred to as a local helmet. So far she's adjusting well. It

came

> > pink & we decorated it with stickers. One of our concerns is it

> > pulling out her hair on the sides but we take comfort in knowing

it

> > will grow back. I'll remain in touch.

> > Kaye

> > Greensboro, NC

July 18, 2005

Hi there

It does sound like a passive local helmet which is pre-made so the

baby grows into the shape. The good news is that your daughter is

very young to be in a helmet so a passive helmet may well work in

this situation- it doesn't work so well with older babies. However,

if you have any concerns, I would go back before the eight weeks as

this is quite a long time.

I'm glad she is adjusting well, do let us know how she gets along.

Hannah (mum to Lucia, London, UK)

Cranio grad

> 8 weeks seems to be a long time with no follow up. I hope that

you

> see great results with your helmet.

>

> --- In Plagiocephaly , " meyak97 " <meyak97@y...>

wrote:

> > Hi everyone,

> > My 4 mos. old daughter was diagnosed with plagiocephaly & given

a

> > local helmet 2 wks. ago. I was really confused about treatment

> because

> > everything I've read reference a DOC band or a Star helmet.

> Markayla's

> > helmet was fitted without a mold & her follow up appt. was

scheduled

> > for 8 wks. After speaking with the nurse , I assume she has

what's

> > referred to as a local helmet. So far she's adjusting well. It

came

> > pink & we decorated it with stickers. One of our concerns is it

> > pulling out her hair on the sides but we take comfort in knowing

it

> > will grow back. I'll remain in touch.

> > Kaye

> > Greensboro, NC

July 18, 2005

Hi there

It does sound like a passive local helmet which is pre-made so the

baby grows into the shape. The good news is that your daughter is

very young to be in a helmet so a passive helmet may well work in

this situation- it doesn't work so well with older babies. However,

if you have any concerns, I would go back before the eight weeks as

this is quite a long time.

I'm glad she is adjusting well, do let us know how she gets along.

Hannah (mum to Lucia, London, UK)

Cranio grad

> 8 weeks seems to be a long time with no follow up. I hope that

you

> see great results with your helmet.

>

> --- In Plagiocephaly , " meyak97 " <meyak97@y...>

wrote:

> > Hi everyone,

> > My 4 mos. old daughter was diagnosed with plagiocephaly & given

a

> > local helmet 2 wks. ago. I was really confused about treatment

> because

> > everything I've read reference a DOC band or a Star helmet.

> Markayla's

> > helmet was fitted without a mold & her follow up appt. was

scheduled

> > for 8 wks. After speaking with the nurse , I assume she has

what's

> > referred to as a local helmet. So far she's adjusting well. It

came

> > pink & we decorated it with stickers. One of our concerns is it

> > pulling out her hair on the sides but we take comfort in knowing

it

> > will grow back. I'll remain in touch.

> > Kaye

> > Greensboro, NC

July 18, 2005

Hi Kaye,

Welcome to the group. I think maybe you are in a Danmar helmet. It's a passive design where the infants head grows to take the shape of the inside. I believe they come right off hte shelf in XS, S, etc. We've had a few other use them.

yes, the hair should grow back. Is it bothering her - like pulling it out or just rubbing it?

mom to na (2 yr) DOC Grad and Kiersten (7 weeks) Preventative Repo

www.thefilyaws.com

meyak97 <meyak97@...> wrote:

Hi everyone,My 4 mos. old daughter was diagnosed with plagiocephaly & given a local helmet 2 wks. ago. I was really confused about treatment because everything I've read reference a DOC band or a Star helmet. Markayla's helmet was fitted without a mold & her follow up appt. was scheduled for 8 wks. After speaking with the nurse , I assume she has what's referred to as a local helmet. So far she's adjusting well. It came pink & we decorated it with stickers. One of our concerns is it pulling out her hair on the sides but we take comfort in knowing it will grow back. I'll remain in touch.KayeGreensboro, NC

Start your day with - make it your home page

July 18, 2005

Hi Kaye,

Welcome to the group. I think maybe you are in a Danmar helmet. It's a passive design where the infants head grows to take the shape of the inside. I believe they come right off hte shelf in XS, S, etc. We've had a few other use them.

yes, the hair should grow back. Is it bothering her - like pulling it out or just rubbing it?

mom to na (2 yr) DOC Grad and Kiersten (7 weeks) Preventative Repo

www.thefilyaws.com

meyak97 <meyak97@...> wrote:

Hi everyone,My 4 mos. old daughter was diagnosed with plagiocephaly & given a local helmet 2 wks. ago. I was really confused about treatment because everything I've read reference a DOC band or a Star helmet. Markayla's helmet was fitted without a mold & her follow up appt. was scheduled for 8 wks. After speaking with the nurse , I assume she has what's referred to as a local helmet. So far she's adjusting well. It came pink & we decorated it with stickers. One of our concerns is it pulling out her hair on the sides but we take comfort in knowing it will grow back. I'll remain in touch.KayeGreensboro, NC

Start your day with - make it your home page

July 19, 2005

Hi Kaye,

I just wanted to echo everythign has already told you and

welcome you to the group! I'm glad she's adjusting well.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Hi everyone,

> My 4 mos. old daughter was diagnosed with plagiocephaly & given a

> local helmet 2 wks. ago. I was really confused about treatment

because

> everything I've read reference a DOC band or a Star helmet.

Markayla's

> helmet was fitted without a mold & her follow up appt. was

scheduled

> for 8 wks. After speaking with the nurse , I assume she has what's

> referred to as a local helmet. So far she's adjusting well. It

came

> pink & we decorated it with stickers. One of our concerns is it

> pulling out her hair on the sides but we take comfort in knowing

it

> will grow back. I'll remain in touch.

> Kaye

> Greensboro, NC

>

> For more plagio info

July 19, 2005

Hi Kaye,

I just wanted to echo everythign has already told you and

welcome you to the group! I'm glad she's adjusting well.

, mom to Hannah, DOCgrad

Cape Cod, Ma

http://hannahsnoggin.typepad.com

> Hi everyone,

> My 4 mos. old daughter was diagnosed with plagiocephaly & given a

> local helmet 2 wks. ago. I was really confused about treatment

because

> everything I've read reference a DOC band or a Star helmet.

Markayla's

> helmet was fitted without a mold & her follow up appt. was

scheduled

> for 8 wks. After speaking with the nurse , I assume she has what's

> referred to as a local helmet. So far she's adjusting well. It

came

> pink & we decorated it with stickers. One of our concerns is it

> pulling out her hair on the sides but we take comfort in knowing

it

> will grow back. I'll remain in touch.

> Kaye

> Greensboro, NC

>

> For more plagio info

August 23, 2005

Hello ,

My name is . I'm 34 years old and married. I have 2 boys (11 years and

8 years old). My 11 year old is in a mainstream class, but my 8 year old was

diagnosis with mild Oral Apraxia about 3 years ago. I found out the school

district my older son goes to works with the surrounded school districts. They

have a special education class call " Communication Handicapp Program " . You

might want to do more research about the school districts in your neighborhood.

They had to accept the evaluation from his doctor from the Childrens Hospital.

My eight year old is coming along fine. He is only 1 year behind academically.

He, too, is in the third grade. Good luck.

If you want to discuss more about the experience I have been through, you can

email me directly through my email address: lil_blue_lady8@...

I also work at a school district. That helps me.

<lesliedawn71@...> wrote:

I am new to this group. I have an 8 yr old son who has global

apraxia. He and I struggle day to day with the lack of speech and my

inability to understand him sometimes. Somedays his sisters and I

play charades to figure out what hes trying to say. My problem is this,

He is 8 yrs old in 3 rd grade in a reg class room in a reg school. He

is falling behind in his schooling especially in math and reading. I

am wondering whit a child that is sevear global apraxic is a reg class

the best for him or should we consider special ed? Thank,

October 20, 2005

Hi and welcome to the group! Man, you are on top of

things, way to go Mom!!

I was able to get my daughter's DOCBand paid for with full in-

network benefits because there wasn't another provider within a

certain mileage. I also spoke with a staff Dr. for my insurance and

bombarded them with TONS of information about the DOCBand, my

daughters deformity and other banding options that were here.

I wish you the best of luck in getting this paid for. Please keep

us posted on how things are panning out.

Dustie, mom to , DOCGrad'03

--- In Plagiocephaly , " jennifer " <garjentissue@s...>

wrote:

>

> Hi. I am new to the group. My adorable almost 10 month old son

has

> been in the DOC band for 8 weeks now. He was diagnosed with

moderate

> to severe plagiocephaly at 6 months old, though we noticed a flat

spot

> since 2 months. The Doc band is working great and he should be

out of

> it in 4 to 6 weeks! He also has torticollis and we go to PT

sessions

> and do exercises at home, which he hates! Does anyone have

suggestions

> for appealing insurance on this? Our insurance only covers out of

> network, I am grateful they cover at all, but we still had to pay

the

> majority out of pocket. I have heard that alot of people have

problems

> with insurance covering. The diagnosing specialist did write a

letter

> on his behalf to send to the insurance appeals, and I am sending a

> letter. Any more info would be appreciated. Thanks.

>

October 20, 2005

Hi and welcome to the group! Man, you are on top of

things, way to go Mom!!

I was able to get my daughter's DOCBand paid for with full in-

network benefits because there wasn't another provider within a

certain mileage. I also spoke with a staff Dr. for my insurance and

bombarded them with TONS of information about the DOCBand, my

daughters deformity and other banding options that were here.

I wish you the best of luck in getting this paid for. Please keep

us posted on how things are panning out.

Dustie, mom to , DOCGrad'03

--- In Plagiocephaly , " jennifer " <garjentissue@s...>

wrote:

>

> Hi. I am new to the group. My adorable almost 10 month old son

has

> been in the DOC band for 8 weeks now. He was diagnosed with

moderate

> to severe plagiocephaly at 6 months old, though we noticed a flat

spot

> since 2 months. The Doc band is working great and he should be

out of

> it in 4 to 6 weeks! He also has torticollis and we go to PT

sessions

> and do exercises at home, which he hates! Does anyone have

suggestions

> for appealing insurance on this? Our insurance only covers out of

> network, I am grateful they cover at all, but we still had to pay

the

> majority out of pocket. I have heard that alot of people have

problems

> with insurance covering. The diagnosing specialist did write a

letter

> on his behalf to send to the insurance appeals, and I am sending a

> letter. Any more info would be appreciated. Thanks.

>

October 20, 2005

Hi ,

Welcome to the group! I always advise starting out by calling your

state insurance commissioner's office for advice.

Natasha

Atlanta

--- In Plagiocephaly , " jennifer " <garjentissue@s...>

wrote:

>

> Hi. I am new to the group. My adorable almost 10 month old son

has

> been in the DOC band for 8 weeks now. He was diagnosed with

moderate

> to severe plagiocephaly at 6 months old, though we noticed a flat

spot

> since 2 months. The Doc band is working great and he should be

out of

> it in 4 to 6 weeks! He also has torticollis and we go to PT

sessions

> and do exercises at home, which he hates! Does anyone have

suggestions

> for appealing insurance on this? Our insurance only covers out of

> network, I am grateful they cover at all, but we still had to pay

the

> majority out of pocket. I have heard that alot of people have

problems

> with insurance covering. The diagnosing specialist did write a

letter

> on his behalf to send to the insurance appeals, and I am sending a

> letter. Any more info would be appreciated. Thanks.

>

October 20, 2005

Hi ,

Welcome to the group! I always advise starting out by calling your

state insurance commissioner's office for advice.

Natasha

Atlanta

--- In Plagiocephaly , " jennifer " <garjentissue@s...>

wrote:

>

> Hi. I am new to the group. My adorable almost 10 month old son

has

> been in the DOC band for 8 weeks now. He was diagnosed with

moderate

> to severe plagiocephaly at 6 months old, though we noticed a flat

spot

> since 2 months. The Doc band is working great and he should be

out of

> it in 4 to 6 weeks! He also has torticollis and we go to PT

sessions

> and do exercises at home, which he hates! Does anyone have

suggestions

> for appealing insurance on this? Our insurance only covers out of

> network, I am grateful they cover at all, but we still had to pay

the

> majority out of pocket. I have heard that alot of people have

problems

> with insurance covering. The diagnosing specialist did write a

letter

> on his behalf to send to the insurance appeals, and I am sending a

> letter. Any more info would be appreciated. Thanks.

>

October 20, 2005

Hi ,

Welcome to the group. I'm so happy to hear your son is doing well

in his DOC band. PT for tort sucks expecially the older and more

independent they get. Bummer. We have a file under Torticollis

Tips that has some ideas for at home stretching and pt sessions.

So why are they only covering out of network? Was there an in-

network provider? Some insurance companies have a clause that if

there is no in-netowrk provider within 50-70 miles then an out of

network provider would be covered at in-network levels. If there

was in-netowrk but you didn't feel they were qualified or they

actually didn't offer banding then you shoudl outline that in your

appeal. We have a insurece help file in the files section too -

insurance folder.

Kiersten, 4 months, repo & tort

na, 2 yrs, DOC Grad 2/2004 and tort resolved

www.thefilyaws.com/plagio/plagio.html

>

> Hi. I am new to the group. My adorable almost 10 month old son

has

> been in the DOC band for 8 weeks now. He was diagnosed with

moderate

> to severe plagiocephaly at 6 months old, though we noticed a flat

spot

> since 2 months. The Doc band is working great and he should be

out of

> it in 4 to 6 weeks! He also has torticollis and we go to PT

sessions

> and do exercises at home, which he hates! Does anyone have

suggestions

> for appealing insurance on this? Our insurance only covers out of

> network, I am grateful they cover at all, but we still had to pay

the

> majority out of pocket. I have heard that alot of people have

problems

> with insurance covering. The diagnosing specialist did write a

letter

> on his behalf to send to the insurance appeals, and I am sending a

> letter. Any more info would be appreciated. Thanks.

>

October 20, 2005