new to the group

[Guest guest]

YingYing - I'd start by getting a referral to a crani-facial team. They can make the diagnosis and write a script for a helmet. Also, look into Cranial Tech - they can do an evaluation to see if it is needed. Also, start documenting her head with pictures so that the progression is shown for drs or ins. to see.

Start doing aggressive repositioning so that she is not on her head alot. And do Tummy Time alot too!

There are several moms from the No. Cali area - hopefully they will chime in and help!

HTH!

Jen

Mommy to 4...and 1 more!!!!

VOTE FOR LULI- www.evenflo.com

Baby Youre a Star

PHOTO #4842

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

Hi Yingying -

You should take your daughter to see a specialist as soon as you can. The

earlier a child gets treated the better. Center for Independent

Rehabilitative Services (CIRS) in Oakland is a provider of the STARband.

They can probably do an evaluation for you but you probably need a

prescription from your doctor for the actual band. I would suggest getting

a referral from your paediatrician to see a plastic surgeon/cranial facial

specialist/neurosurgeon who can do a complete medical evaluation of your

child to determine if your child does indeed have plagiocephaly as opposed

to some other condition. Who is your insurance provider? If you have

Kaiser, you would probably be referred to Dr. Hop Le at the Richmond Kaiser.

Our ped in Novato referred us to him and we also went to Dr. Menard

at Santa Clara Kaiser for a second opinion. There are a couple of other

members in this group from Danville and Hayward that also go to CIRS so

perhaps they can provide more information regarding the specialists that

they saw.

Molly

Novato, California

Nicolas, 9 months, tort & plagio, STARband 4/25/06

, 3

, 6.5

new to the group

Dear all:

I just found this group. My DD will be four months on Thursday. She has

flat head since her birth. The back of her head is flat with the right

side worse. My ped always says it will go away. After I looked at the

photos of some of your babies, I think she has the same problem. Any

suggestions on when I should take her to see a specialist and/or make

her wear a helmet? Recommendation on dr. (I live in walnut creek, CA)?

Thanks a lot.

Yingying

For more plagio info

[Guest guest]

Hi Yingying,Welcome to the group. First, begin aggressive repositioning now. There are some tips here ...

Repositioning Headquarters Detailed repo strategies and information, photos of repo ideas from our group members, how to determine if your baby is a good candidate for repo, and more. Check out the Repositioning and Tummy Time folder in the Links section of the group for a lot more information on and products for repositioning.

Document your progress and concerns. Take pictures from multiple angles - face, back, sides, top down. Does she have a head tilt? Does she prefer to look one direction all the time? If so she may have some neck involvement making repo difficult. This is called troticollis and needs at home physical therapy or professional PT.

Have you checked out the cranial tech severity charts? http://www.cranialtech.com/medicalinfo/identifyplagio.html

Possibly some education for the dr would help ...

Plagio Studies and Research Some studies, research, guidelines, etc. on plagiocephaly. Owing to space constraints in this Files section, many more studies can be found linked in the Links section, Plagiocephaly Studies and Research folder.

AAP Releases American Academy of Pediatrics reports regarding plagiocephaly

You are not very close to a Cranil Tech location. San Diego does offer a free evaluation and has some local specialists who understand plagio and it's treatments.

Cranial Technologies, Inc.8010 Frost Street, #500San Diego, CA 92123Phone: 858-571-1217Toll Free: 866-571-1217Fax: 858-571-6107Clinician: Angella Kaiser, PT

Los Angeles has a licensed DOC Band clinic. They do charge a consult fee but it can be put towards a band.

Cranial Therapies, Inc. — Map4444 Lankershim Blvd. Suite 108Toluca Lake, CA 91602Phone: 818-845-2082Toll Free: 888-500-5588Fax: 818-845-1634www.cranialtherapies.com Pomatto, CEOKarin Sung, MPT Bitting, BOC, CO

There are some other options in CA but I do not know them. You do not need a RX to have a consult. You could make one trip to San Diego and get the eval. They will tell you if she is a candidate or if she needs repo or is too mild. Then you could take the info back to your dr and ask for a referral or a RX. On the other hand you could call your dr armed with all of this info. Tell him/her that you have been obsessing way too much and did a ton of research and would like to discuss your findings. Hopefully he is open to new ideas.

na, DOC Grad X2, Feb 04Kiersten, DOC Grad, April 06www.thefilyaws.com/plagio/plagio.html>> Dear all:> > I just found this group. My DD will be four months on Thursday. She has > flat head since her birth. The back of her head is flat with the right > side worse. My ped always says it will go away. After I looked at the > photos of some of your babies, I think she has the same problem. Any > suggestions on when I should take her to see a specialist and/or make > her wear a helmet? Recommendation on dr. (I live in walnut creek, CA)? > Thanks a lot.> > Yingying>

[Guest guest]

hi there ying ying! i am also new to the group, and just had my

casting/consult at AR children's hospital on monday.

my pede has shown concern for my son's, nate (now 7 months old),

growing plagio since 3 months, and we decided to take it a step

further after 4 months of repositioing weren't as effective as it

needed to be. my advice? go with your gut...mine told me all along

that this was what he needed, but it took a while for my concerns

with " what will people think? " and " i can't stand to see him like

that! " to sucumb to the fact that this is what he needs.

it is hard to sometimes go against the " experts " , but they are not

always right on target. so get a 2nd opinion...getting another

opinion to consider is better than 5 months down the road wishing

you had been more aggressive.

good luck!!

leigh

> >

> > Dear all:

> >

> > I just found this group. My DD will be four months on Thursday.

> She has

> > flat head since her birth. The back of her head is flat with the

> right

> > side worse. My ped always says it will go away. After I looked

at

> the

> > photos of some of your babies, I think she has the same problem.

> Any

> > suggestions on when I should take her to see a specialist and/or

> make

> > her wear a helmet? Recommendation on dr. (I live in walnut

creek,

> CA)?

> > Thanks a lot.

> >

> > Yingying

> >

>

[Guest guest]

Hello YingYing

At your daughter's age repo can still do wonders for you. I would

still go ahead and set up an evaluation for as soon as you can get

her in to assess the severity of the plagio. Take weekly pictures

if you decide to repo and that way you have a way of tracking your

success with the repo and see if her head is actually rounding out.

Let us know what you do.

Sandy Willow's mom

Torticollis resolved 02/04

Cranio Germany Grad 02/04

> >

> > Dear all:

> >

> > I just found this group. My DD will be four months on Thursday.

> She has

> > flat head since her birth. The back of her head is flat with the

> right

> > side worse. My ped always says it will go away. After I looked

at

> the

> > photos of some of your babies, I think she has the same problem.

> Any

> > suggestions on when I should take her to see a specialist and/or

> make

> > her wear a helmet? Recommendation on dr. (I live in walnut

creek,

> CA)?

> > Thanks a lot.

> >

> > Yingying

> >

>

[Guest guest]

Welcome to the group, !

Sorry to hear that you will be needing a new kidney soon. You sound like a

strong character though. Good luck and glad to have you here.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] New to the Group

> Hi,

>

> I have been reading many of your messages and can relate to so much

> of all of them. I have had Lupus for 28 years diagnosed when I was

> 17. It was no picnic. So many ups and Downs with higher and higher

> doses of prednisone to keep it under control. I know medicine has

> come far and there are so many new drugs out there but unfortunately

> for me the years of prednisone has already done its damage.With my

> lupus came Kidney complications as well. Whenever I would have a

> flare my kidneys got worse. In Aug of 1994 I had a Kidney transplant

> that was a great success. My youngest brother donate his kidney. All

> had gone well up until last year when I found out I am going into

> chronic rejection and will be needing a new kidney once again. Its

> strange ever since I had my transplant it seems like my Lupus kinda

> burned itself out. Granted the med's I take for anti -rejection are

> very similar to what I would take for lupus. I sometimes feel like I

> do not belong in a Lupus support group because the acutual lupus

> part of my disease has done its damage and I am now dealing more

> with Kidney issues. Which ever way it stinks!! I amnot looking

> forward to another transplant. I guess i know too much of what to

> expect since having one already.

> But I have still managed to push on and make something of my life.

> I finished college with many stops and starts do to Lupus. I married

> and have two beautiful adopted children. Its just nice to be able to

> moan and groan aboutthis to others that truely know and feel its OK

> to say sometimes life just doesn't seem fair!!

>

> Thanks for listening.

>

>

[Guest guest]

,

Hey! What ever happens, no matter how bad it gets hold your head up to the

heavens and keep praying because God works Miracles. And through this group

here you can bet you could not ask for more caring people, and all of whom

understand, so your not alone. I will keep you in my prayers.

Rhonda

[ ] New to the Group

> Hi,

>

> I have been reading many of your messages and can relate to so much

> of all of them. I have had Lupus for 28 years diagnosed when I was

> 17. It was no picnic. So many ups and Downs with higher and higher

> doses of prednisone to keep it under control. I know medicine has

> come far and there are so many new drugs out there but unfortunately

> for me the years of prednisone has already done its damage.With my

> lupus came Kidney complications as well. Whenever I would have a

> flare my kidneys got worse. In Aug of 1994 I had a Kidney transplant

> that was a great success. My youngest brother donate his kidney. All

> had gone well up until last year when I found out I am going into

> chronic rejection and will be needing a new kidney once again. Its

> strange ever since I had my transplant it seems like my Lupus kinda

> burned itself out. Granted the med's I take for anti -rejection are

> very similar to what I would take for lupus. I sometimes feel like I

> do not belong in a Lupus support group because the acutual lupus

> part of my disease has done its damage and I am now dealing more

> with Kidney issues. Which ever way it stinks!! I amnot looking

> forward to another transplant. I guess i know too much of what to

> expect since having one already.

> But I have still managed to push on and make something of my life.

> I finished college with many stops and starts do to Lupus. I married

> and have two beautiful adopted children. Its just nice to be able to

> moan and groan aboutthis to others that truely know and feel its OK

> to say sometimes life just doesn't seem fair!!

>

> Thanks for listening.

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi :

Welcome to the group! We really do understand what

you are going through, and it is perfectly fine with

us that you come here to whine, vent, and gripe - that

is what we are here for, and, believe me, we all take

our turns with this.

Even if your lupus is under control, I think that you

still can be considered to have lupus because that was

what you started with, and what lead to the kidney

transplant. I think your input could be invaluable on

lupus boards because of your experiences.

I have RA, OA, Fibro, and Raynaud's, and take quite a

few medications - for those and for high blood

pressure and asthma too. Quite a lot more than I

would ever have believed I would be taking, and

injecting myself - never liked needles, have learned

to love them because the Enbrel works well on my RA.

It sounds like you are determined not to let the

disease get to, and you are to be admired for that.

Even if you do need another kidney transplant, I am

sure that you will go into it with your eyes wide

open, and will get through it just as well as you did

on the last go around. Not much fun, I know, but it

will give you more time to be able to enjoy your hubby

and your children, and fight your disease.

Take care -

Kathe in CA

--- lintransplant <lintransplant@...> wrote:

> Hi,

>

> I have been reading many of your messages and can

> relate to so much

> of all of them. I have had Lupus for 28 years

> diagnosed when I was

> 17. It was no picnic. So many ups and Downs with

> higher and higher

> doses of prednisone to keep it under control. I know

> medicine has

> come far and there are so many new drugs out there

> but unfortunately

> for me the years of prednisone has already done its

> damage.With my

> lupus came Kidney complications as well. Whenever I

> would have a

> flare my kidneys got worse. In Aug of 1994 I had a

> Kidney transplant

> that was a great success. My youngest brother donate

> his kidney. All

> had gone well up until last year when I found out I

> am going into

> chronic rejection and will be needing a new kidney

> once again. Its

> strange ever since I had my transplant it seems like

> my Lupus kinda

> burned itself out. Granted the med's I take for anti

> -rejection are

> very similar to what I would take for lupus. I

> sometimes feel like I

> do not belong in a Lupus support group because the

> acutual lupus

> part of my disease has done its damage and I am now

> dealing more

> with Kidney issues. Which ever way it stinks!! I

> amnot looking

> forward to another transplant. I guess i know too

> much of what to

> expect since having one already.

> But I have still managed to push on and make

> something of my life.

> I finished college with many stops and starts do to

> Lupus. I married

> and have two beautiful adopted children. Its just

> nice to be able to

> moan and groan aboutthis to others that truely know

> and feel its OK

> to say sometimes life just doesn't seem fair!!

>

> Thanks for listening.

>

>

>

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Carolyn,

The Artritis Foundation @ arthritis.org has several books amd pamphlets

that can be purchased. You might want to check there. I got several

from our local library recently on Fibro and chronic pain. They all

have good information and I'm stiff sifting through all of it. So far

the one that has helped me the most is: The Fibromyalgia Relief Book

by Miryam Ehrlich on. It has chapters on: Take the pain our

of household activities, Maximize moments of pleasure. Going places

with fibromyalgia, The sleep perchance to dream, Committed

relationships, Mind and body, Excersie to combat depression & pain,

and Standing up for yourself.

I also like some of the information in the book Taking Charge of

Fibromyalgia by and line Devonshire. It has a list of

resources and websites, and discusses flare-ups, coping, stress

managementm medications, etc.

Hope this informations helps you.

> Hello Everyone

> Thanks for welcoming me to the Group. I've been diagnosed

> with OA, Lupus, Raynauds and Fibromyalgia. Does anyone

> have suggestions on good books I could buy on these illnesses?

> Have a good day.

> Thanks,

> Carolyn

>

[Guest guest]

Your symptoms are very typical of your body

rejecting your implants! Where are you?

Lynda

At 11:14 AM 8/27/2006, you wrote:

>I receieved my saline implants in Jan. 03 adn approx. 5 monthe after

>that i started losing tons of scalp hair. I now have lost about 85%

>of scalp hair and all they keep telling me is that it's AGA and

>depression. My other symptoms include fatique, IBS, dizziness, dry

>eye and skin, I have itchiness all over my body, ringing in my ears,

>vision loss even after getting lasik's,numbness in extemeties, and

>weeakness in legs and tremors. I am thinking of explanting but am

>really scared and advice out there.

>

>

[Guest guest]

Hi Shel, Welcome to ! . .. from what you describe, you're in the right place! . . Right now, the most important thing is to figure out how to get your implants PROPERLY removed . . . Then to figure out how to get rid of the toxic effects of breast implants . . . You can quit being scared and start making plans. . .Virtually all the women who get their implants removed right get their lives back! I expect you will too. Hugs and prayers, Rogene

[Guest guest]

I'd like to welcome you to the group and say that you definitely will

be in good hands here. I have been supported and loved through my

explant and before, when I was feeling hopeless. I'm on the road to

recovery now, and am happy that you found this site.

Hang in there...know that you have many prayers being said for you.

Love,

Sunny

>

> I receieved my saline implants in Jan. 03 adn approx. 5 monthe after

> that i started losing tons of scalp hair. I now have lost about 85%

> of scalp hair and all they keep telling me is that it's AGA and

> depression. My other symptoms include fatique, IBS, dizziness, dry

> eye and skin, I have itchiness all over my body, ringing in my ears,

> vision loss even after getting lasik's,numbness in extemeties, and

> weeakness in legs and tremors. I am thinking of explanting but am

> really scared and advice out there.

>

[Guest guest]

HI and Welcome Traci!!!

I am sure you will find such great support and help w/ any questions you may have!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

In a message dated 8/28/06 10:42:38 PM, mafoley@... writes:

How did Luli's appointment go today?!

 

Molly

Thanks for asking!!! I just posted about it!

JEN

Mommy to 4...and 1 more!!!!

Luli - Tort/Plagio - Hanger Band - CA

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

How did Luli's appointment go today?!

Molly

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of JenandLuli@...Sent: 28 August 2006 10:18 PMPlagiocephaly Subject: Re: New to the groupHI and Welcome Traci!!!I am sure you will find such great support and help w/ any questions you may have!

JENMommy to 4...and 1 more!!!!Luli - Tort/Plagio - Hanger Band - CA"Luli"www.babiesonline.com/babies/j/jens5th/

[Guest guest]

Thank you, Clare

Tami -Dossey

[Guest guest]

Welcome Annie!

This is a wonderful group to belong to. Much information is provided

here. Not sure what you mean when you said you were recently

diagnosed. If you have RA I would think you would be on more meds. I

only have fibro and OA so I take Ultram, Lodine, soma and

amitriptyline. When you are feeling better tell us a little more

about yourself. It will help us help you.

warm hugs,

Debbie L

>

> Hello everyone, I hope that you are all having a pleasent

evening. My

> name is Annie and I am 31 years old and a SAH wife and mother of

2. I

> was diagnosed a year ago and I am glad that I found this group

because

> it is always nice to talk to others that have the same problems as

you

> for support and encouragement. I am going to have to keep this

short

> today as I am in alot of pain today and it hurts to type alot.

Right

> now the doctor has me on Gabapentin and Ultracet and for the most

part

> it does help control the pain I am also on another medicine but I

cant

> remember the name. I look forward to getting to know you all, I

hope

> that you have a pleasent evening.

>

> Annie

>

[Guest guest]

Hi Annie,

Welcome to the group I am new also dx 3 months ago and I love this group it

really really helps to have someone to talk to that understands what you are

going through.

Marsha

blessed_toys <beingagodlywife@...> wrote:

Hello everyone, I hope that you are all having a pleasent evening. My

name is Annie and I am 31 years old and a SAH wife and mother of 2. I

was diagnosed a year ago and I am glad that I found this group because

it is always nice to talk to others that have the same problems as you

for support and encouragement. I am going to have to keep this short

today as I am in alot of pain today and it hurts to type alot. Right

now the doctor has me on Gabapentin and Ultracet and for the most part

it does help control the pain I am also on another medicine but I cant

remember the name. I look forward to getting to know you all, I hope

that you have a pleasent evening.

Annie

[Guest guest]

Angel,

Mother's usually know best....I thought at Olivia's age that my son was not

talking because something was wrong. In my case, the dr. wanted me to wait

another year because he was a boy and boy's are usually more physical than

verbal. Well, after the year passed, I had him assessed and he was

definitely a year behind in speech development. There is no harm in early

assessment. The worst that can happen is that they recommend speech therapy

and nothing bad can come of it. Olivia is still very young so, you may want

to wait until she is 2 years old since you're not convinced there is

anything wrong. Try reading the book titled the " Late Talker " by our own

[Guest guest]

Hey Angel:

I knew there was something going on with my son when he was 15 months

old. His Ped. referred him to Early Intervention at his 18 month check-

up. He only had 3 words at the time and a " mmm " sound for everything

else. It took a month to have him evaluated, and then 6 months for us

to get a Speech Language Pathologist to work with him through Early

Intervention. So he was two years old by the time we got an SLP to

work with him. It is good that you have a doctor that wants to start

early. It is my understanding that most doctors want to take the wait

and see aproach until the child is 2 years old. I found this site

below that talks about the different stages of speech development.

http://www.nidcd.nih.gov/health/voice/speechandlanguage.asp#mychild

Where are you stationed?

Good luck to you,

Tina

>

> hi all im angel and im 24. Im married to a marine adn have 2

beautiful

> babies....Olivia who is 14 months and who is 2 months. Olivias

> doctors are telling us she is behind in talking since she usually

says

> da da da da da da and doesnt point to body parts or to what she

wants.

> they want to access her and see if she is a late bloomer or if

> something is wrong....I on the other hand feel she is just waiting

> until she is good and ready to talk regardless of these docs....They

> are civilian docs who are telling me this and I have had some crummy

> experiences with civilian docs on military bases....what is you alls

> in put on this? I feel so torn. I feel like the docs are forceing me

> to have her accessed when I dont feel we need it right at this point

> in time.....please help thanks

>

[Guest guest]

Angel,

Mother's usually know best....I thought at Olivia's age that my son was not

talking because something was wrong. In my case, the dr. wanted me to wait

another year because he was a boy and boy's are usually more physical than

verbal. Well, after the year passed, I had him assessed and he was

definitely a year behind in speech development. There is no harm in early

assessment. The worst that can happen is that they recommend speech therapy

and nothing bad can come of it. Olivia is still very young so, you may want

to wait until she is 2 years old since you're not convinced there is

anything wrong. Try reading the book titled the " Late Talker " by our own

[Guest guest]

Hey Angel:

I knew there was something going on with my son when he was 15 months

old. His Ped. referred him to Early Intervention at his 18 month check-

up. He only had 3 words at the time and a " mmm " sound for everything

else. It took a month to have him evaluated, and then 6 months for us

to get a Speech Language Pathologist to work with him through Early

Intervention. So he was two years old by the time we got an SLP to

work with him. It is good that you have a doctor that wants to start

early. It is my understanding that most doctors want to take the wait

and see aproach until the child is 2 years old. I found this site

below that talks about the different stages of speech development.

http://www.nidcd.nih.gov/health/voice/speechandlanguage.asp#mychild

Where are you stationed?

Good luck to you,

Tina

>

> hi all im angel and im 24. Im married to a marine adn have 2

beautiful

> babies....Olivia who is 14 months and who is 2 months. Olivias

> doctors are telling us she is behind in talking since she usually

says

> da da da da da da and doesnt point to body parts or to what she

wants.

> they want to access her and see if she is a late bloomer or if

> something is wrong....I on the other hand feel she is just waiting

> until she is good and ready to talk regardless of these docs....They

> are civilian docs who are telling me this and I have had some crummy

> experiences with civilian docs on military bases....what is you alls

> in put on this? I feel so torn. I feel like the docs are forceing me

> to have her accessed when I dont feel we need it right at this point

> in time.....please help thanks

>

[Guest guest]

Hi,

I'm new to the group too. I want to encourage you to get the

assessment. I hesitated for months when my daughter was that age.

And I kick myself for cheating her out of several months of good

treatment. Get the assessment done, especially if there is a 0 to 3

development program in your state.

Children are supposed to be about to say 10 words by 18 months; 50

by 24 months; and 1,000 by 36 months. At 18 months, my daughter had

said 10 words, by 22 months, she had said 12 words. And she had no

comprehension of what simple commands. I had the assessments

performed under the First Steps program here in the state of

Kentucky.

Background:

I am a first time mother. My child was born after my husband and

I had been married 20 years. I was 42 when Nathalie was born in

2003. She was born preterm, but not premature. She sat up late,

walked late and didn't talk until late. She's had 3 sets of ear

tubes to get the fluid out of her ears: the first set (15 months)

got her walking (with one tube blocked); the second set (18 months)

got her saying the words; the third set (37 months) with tonsils

and adnoids removed helped her say a few more things clearly.

She aged out of the First Steps program when she turned 3 in

June 2006. When we started near her 2nd birthday, she tested as

having the communication skills of a 6-month-old infant. At age 3,

she tested at age 2. So she made up 18 months of learning in a

year.

First Steps (http://chfs.ky.gov/dph/firststeps.htm) made a real

difference in her life and I would highly recommend it to anyone.

Nathalie started " Jump Start " classes in September. Monday to

Thursday she wears her school uniform and attends afternoon classes

She rides the bus to and from day care with her classmates, the

other ECE students in her class. She likes riding the bus now, but

it terrified me at first. But it has really helped to have her in a

structure enviroment.

We also started private OT again at the end of October and her

positional insecurity issues are improving too. Occupational therapy

is amazing stuff. She seems to talk more after each visit.

>

> hi all im angel and im 24. Im married to a marine adn have 2

beautiful

> babies....Olivia who is 14 months and who is 2 months.

Olivias

> doctors are telling us she is behind in talking since she usually

says

> da da da da da da and doesnt point to body parts or to what she

wants.

> they want to access her and see if she is a late bloomer or if

> something is wrong....I on the other hand feel she is just waiting

> until she is good and ready to talk regardless of these

docs....They

> are civilian docs who are telling me this and I have had some

crummy

> experiences with civilian docs on military bases....what is you

alls

> in put on this? I feel so torn. I feel like the docs are forceing

me

> to have her accessed when I dont feel we need it right at this

point

> in time.....please help thanks

>

[Guest guest]

Angel-

What would it hurt to have her evaluated? It is painless and fun (i.e.,

playbased) for kids and does not take much time. It is imperative for

your daughter to get help early if there is a problem. And if there

isn't, then your mind will be at ease. Really, there is nothing to lose

by getting an evaluation. Having been through it myself, I know that it

is hard. I hope that helps!

_____________________

Warmly,

Oakes-Hauf

Mom to , 3.7 (verbal apraxia)

and 1.5 (and talking away!)

Mike and Angel wrote:

>

> hi all im angel and im 24. Im married to a marine adn have 2 beautiful

> babies....Olivia who is 14 months and who is 2 months. Olivias

> doctors are telling us she is behind in talking since she usually says

> da da da da da da and doesnt point to body parts or to what she wants.

> they want to access her and see if she is a late bloomer or if

> something is wrong....I on the other hand feel she is just waiting

> until she is good and ready to talk regardless of these docs....They

> are civilian docs who are telling me this and I have had some crummy

> experiences with civilian docs on military bases....what is you alls

> in put on this? I feel so torn. I feel like the docs are forceing me

> to have her accessed when I dont feel we need it right at this point

> in time.....please help thanks

>

>

[Guest guest]

Hi,

I'm new to the group too. I want to encourage you to get the

assessment. I hesitated for months when my daughter was that age.

And I kick myself for cheating her out of several months of good

treatment. Get the assessment done, especially if there is a 0 to 3

development program in your state.

Children are supposed to be about to say 10 words by 18 months; 50

by 24 months; and 1,000 by 36 months. At 18 months, my daughter had

said 10 words, by 22 months, she had said 12 words. And she had no

comprehension of what simple commands. I had the assessments

performed under the First Steps program here in the state of

Kentucky.

Background:

I am a first time mother. My child was born after my husband and

I had been married 20 years. I was 42 when Nathalie was born in

2003. She was born preterm, but not premature. She sat up late,

walked late and didn't talk until late. She's had 3 sets of ear

tubes to get the fluid out of her ears: the first set (15 months)

got her walking (with one tube blocked); the second set (18 months)

got her saying the words; the third set (37 months) with tonsils

and adnoids removed helped her say a few more things clearly.

She aged out of the First Steps program when she turned 3 in

June 2006. When we started near her 2nd birthday, she tested as

having the communication skills of a 6-month-old infant. At age 3,

she tested at age 2. So she made up 18 months of learning in a

year.

First Steps (http://chfs.ky.gov/dph/firststeps.htm) made a real

difference in her life and I would highly recommend it to anyone.

Nathalie started " Jump Start " classes in September. Monday to

Thursday she wears her school uniform and attends afternoon classes

She rides the bus to and from day care with her classmates, the

other ECE students in her class. She likes riding the bus now, but

it terrified me at first. But it has really helped to have her in a

structure enviroment.

We also started private OT again at the end of October and her

positional insecurity issues are improving too. Occupational therapy

is amazing stuff. She seems to talk more after each visit.

>

> hi all im angel and im 24. Im married to a marine adn have 2

beautiful

> babies....Olivia who is 14 months and who is 2 months.

Olivias

> doctors are telling us she is behind in talking since she usually

says

> da da da da da da and doesnt point to body parts or to what she

wants.

> they want to access her and see if she is a late bloomer or if

> something is wrong....I on the other hand feel she is just waiting

> until she is good and ready to talk regardless of these

docs....They

> are civilian docs who are telling me this and I have had some

crummy

> experiences with civilian docs on military bases....what is you

alls

> in put on this? I feel so torn. I feel like the docs are forceing

me

> to have her accessed when I dont feel we need it right at this

point

> in time.....please help thanks

>