Guest guest Posted November 9, 2004 Report Share Posted November 9, 2004 Hi …don’t be too freaked out about the CT scan. They usually do a CT or xrays to rule out more serious conditions. Some dr’s don’t request them, some do. Let us know how the scan goes and how your appt at Cranial Tech goes too. And welcome to the group! Becky (’s mom) in Pgh, PA new to group Hi there, I am the mom to a little angel, Brady (6.5 months old) At 4 months old, the ped talked to me about tort and we tried some repo tech. at our 6 mo appt, the dr. recommended we see CranialTech - I was so scared but they are the nicest people ever - they agreed that Brady had a mod-severe case of plagio and would consult with my ped. Dr wrote the script and faxed it last Friday - BUT THEN called me Saturday and said that he really would like us to get a CT scan for his brain first this week.....my husband took the call and I think was caught off gaurd and really didn't ask too many questions. The scan is set up for Thursday and he will be under sedation - ugggg! Has anyone had a doctor want a CT scan - am I freaked out about nothing? Thank you in advance - I am really addicted to reading everyones stories. Take Care, - mom to Brady For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hello , welcome to the group. I'm glad that your ped is on the ball. It is great to have an early diagnoses and actually a ped being ok with the band. CTs are pretty common to rule out that the sutures are fusing early. Some docs do Xrays, but the CT is really the best way in making 100% sure that the sutures are still open. Which sedation are they using? The oral, or the IV? If you have questions then please call your ped back, and make sure they answer all your quesions before going for the CT. It is important to be ok with whatever they do. Sandy Willow's mom torticollis resolved Cranio Germany Grad --- In Plagiocephaly , " " <jensworld17@y...> wrote: > > Hi there, > I am the mom to a little angel, Brady (6.5 months old) At 4 months > old, the ped talked to me about tort and we tried some repo tech. > at our 6 mo appt, the dr. recommended we see CranialTech - I was so > scared but they are the nicest people ever - they agreed that Brady > had a mod-severe case of plagio and would consult with my ped. Dr > wrote the script and faxed it last Friday - BUT THEN called me > Saturday and said that he really would like us to get a CT scan for > his brain first this week.....my husband took the call and I think > was caught off gaurd and really didn't ask too many questions. The > scan is set up for Thursday and he will be under sedation - ugggg! > Has anyone had a doctor want a CT scan - am I freaked out about > nothing? Thank you in advance - I am really addicted to reading > everyones stories. > Take Care, > > - mom to Brady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hi , Welcome to the group!! A lot of doctors want to rule out and possibility of Cranio before they proceed with a helmet. My daughters doctor had her head x-rayed prior to getting the helmet. This happens all of the time. Better safe than sorry. , mom to Makenna LLUMC helmet grad '03 -- In Plagiocephaly , " " <jensworld17@y...> wrote: > > Hi there, > I am the mom to a little angel, Brady (6.5 months old) At 4 months > old, the ped talked to me about tort and we tried some repo tech. > at our 6 mo appt, the dr. recommended we see CranialTech - I was so > scared but they are the nicest people ever - they agreed that Brady > had a mod-severe case of plagio and would consult with my ped. Dr > wrote the script and faxed it last Friday - BUT THEN called me > Saturday and said that he really would like us to get a CT scan for > his brain first this week.....my husband took the call and I think > was caught off gaurd and really didn't ask too many questions. The > scan is set up for Thursday and he will be under sedation - ugggg! > Has anyone had a doctor want a CT scan - am I freaked out about > nothing? Thank you in advance - I am really addicted to reading > everyones stories. > Take Care, > > - mom to Brady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hi , welcome to the group. GL with the CT scan. I think it will go better than expected. Why not just regular xrays only? I'm glad to hear that you have a Cranial Tech nearby for the helmet. From what I hear, you will be in good hands. Sue Colin F., 13 mos. STARband grad 9/04 brachy --- In Plagiocephaly , " " <jensworld17@y...> wrote: > > Hi there, > I am the mom to a little angel, Brady (6.5 months old) At 4 months > old, the ped talked to me about tort and we tried some repo tech. > at our 6 mo appt, the dr. recommended we see CranialTech - I was so > scared but they are the nicest people ever - they agreed that Brady > had a mod-severe case of plagio and would consult with my ped. Dr > wrote the script and faxed it last Friday - BUT THEN called me > Saturday and said that he really would like us to get a CT scan for > his brain first this week.....my husband took the call and I think > was caught off gaurd and really didn't ask too many questions. The > scan is set up for Thursday and he will be under sedation - ugggg! > Has anyone had a doctor want a CT scan - am I freaked out about > nothing? Thank you in advance - I am really addicted to reading > everyones stories. > Take Care, > > - mom to Brady Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2004 Report Share Posted November 10, 2004 Hi , A lot of drs want CT scans to rule out craniosyntosis (premature fusing of the sutures). Most kids don't have this and it is precautionary. Try to remain calm until the results come in - I know not easy. A number of the children on this board have had the same test. mom to na <jensworld17@...> wrote: Hi there,I am the mom to a little angel, Brady (6.5 months old) At 4 months old, the ped talked to me about tort and we tried some repo tech. at our 6 mo appt, the dr. recommended we see CranialTech - I was so scared but they are the nicest people ever - they agreed that Brady had a mod-severe case of plagio and would consult with my ped. Dr wrote the script and faxed it last Friday - BUT THEN called me Saturday and said that he really would like us to get a CT scan for his brain first this week.....my husband took the call and I think was caught off gaurd and really didn't ask too many questions. The scan is set up for Thursday and he will be under sedation - ugggg! Has anyone had a doctor want a CT scan - am I freaked out about nothing? Thank you in advance - I am really addicted to reading everyones stories. Take Care, - mom to BradyFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Hello Welcome to the group. Glad you found us. I love the name Sydney Lorelei. There is something you don't hear everyday. ) Good to hear that you, and your ped are on the ball. Getting that PT started is the most important step. Work on the tort. Let us know how the fitting goes for the STARband. Sandy Willow's Mom Wishing a Merry Christmas --- In Plagiocephaly , " & Joe " <slmrn98@b...> wrote: > > Hi everyone! I am so glad I have found this group! The files have > already given me a ton of info! Our little Sydney Lorelei is 4 1/2 > months and will be getting her STARband in 2 weeks, and begins her > PT for tort tomorrow. We had her head scaned the other day, and her > cephalic ratio is 100% Probably the only time in her little life > that being 100% is bad! LOL! Her plagio is a direct result of > being 2 months premature and having HORRIBLE reflux (which > thankfully is better on medication!) which prevented her from having > any tummy time. Now that she is holding her head up quite well on > her own, she spends as much time as possible in her Jumparoo or in > her front carrier. > Like many of you, our insurance, Coventry Health Care of Ga., does > not cover cranial orthotics. The really ironic thing to me is that > I work at a rather large metro Atlanta hospital system (Coventry is > the admin of our health care policy) that offers services to treat > plagio & tort! I have already printed out a few of the great > letters in the files to use as a reference while writing my appeals > letter (thank you thank you to all who have shared!). If anyone > has any other advice on how to get them to pay, please email it to > me! > > Thanks! > & Sydney > PS - love all the cuties in the photos! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 and Sydney, Welcome to the group. I'm glad you have found the files useful. Do you know what the specific reason for the denial from insurance was? Maybe someone can offer more help than the files. mom to na DOC Grad 2/04 Tort Resolved South Carolina www.thefilyaws.com & Joe <slmrn98@...> wrote: Hi everyone! I am so glad I have found this group! The files have already given me a ton of info! Our little Sydney Lorelei is 4 1/2 months and will be getting her STARband in 2 weeks, and begins her PT for tort tomorrow. We had her head scaned the other day, and her cephalic ratio is 100% Probably the only time in her little life that being 100% is bad! LOL! Her plagio is a direct result of being 2 months premature and having HORRIBLE reflux (which thankfully is better on medication!) which prevented her from having any tummy time. Now that she is holding her head up quite well on her own, she spends as much time as possible in her Jumparoo or in her front carrier.Like many of you, our insurance, Coventry Health Care of Ga., does not cover cranial orthotics. The really ironic thing to me is that I work at a rather large metro Atlanta hospital system (Coventry is the admin of our health care policy) that offers services to treat plagio & tort! I have already printed out a few of the great letters in the files to use as a reference while writing my appeals letter (thank you thank you to all who have shared!). If anyone has any other advice on how to get them to pay, please email it to me!Thanks! & SydneyPS - love all the cuties in the photos!For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Hi, Welcome to the group! You're baby is at a great age to receive excellent correction from a band. It's really not good for Sydney to be in a Jumparoo since she has torticollis. Check out this link: http://www.plagiocephaly.org/torticolliskids/helpful.htm Please keep us posted on her progress and your insurance. --- In Plagiocephaly , " & Joe " <slmrn98@b...> wrote: > > Hi everyone! I am so glad I have found this group! The files have > already given me a ton of info! Our little Sydney Lorelei is 4 1/2 > months and will be getting her STARband in 2 weeks, and begins her > PT for tort tomorrow. We had her head scaned the other day, and her > cephalic ratio is 100% Probably the only time in her little life > that being 100% is bad! LOL! Her plagio is a direct result of > being 2 months premature and having HORRIBLE reflux (which > thankfully is better on medication!) which prevented her from having > any tummy time. Now that she is holding her head up quite well on > her own, she spends as much time as possible in her Jumparoo or in > her front carrier. > Like many of you, our insurance, Coventry Health Care of Ga., does > not cover cranial orthotics. The really ironic thing to me is that > I work at a rather large metro Atlanta hospital system (Coventry is > the admin of our health care policy) that offers services to treat > plagio & tort! I have already printed out a few of the great > letters in the files to use as a reference while writing my appeals > letter (thank you thank you to all who have shared!). If anyone > has any other advice on how to get them to pay, please email it to > me! > > Thanks! > & Sydney > PS - love all the cuties in the photos! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2004 Report Share Posted December 28, 2004 Welcome to the group! Good luck with ins. I had to appeal and won. All of the info. is either here are can be found in links. I look forward to hearing your updates and positive ins. outcome. Sue Colin F., 15 mos. STARband grad --- In Plagiocephaly , " & Joe " <slmrn98@b...> wrote: > > Hi everyone! I am so glad I have found this group! The files have > already given me a ton of info! Our little Sydney Lorelei is 4 1/2 > months and will be getting her STARband in 2 weeks, and begins her > PT for tort tomorrow. We had her head scaned the other day, and her > cephalic ratio is 100% Probably the only time in her little life > that being 100% is bad! LOL! Her plagio is a direct result of > being 2 months premature and having HORRIBLE reflux (which > thankfully is better on medication!) which prevented her from having > any tummy time. Now that she is holding her head up quite well on > her own, she spends as much time as possible in her Jumparoo or in > her front carrier. > Like many of you, our insurance, Coventry Health Care of Ga., does > not cover cranial orthotics. The really ironic thing to me is that > I work at a rather large metro Atlanta hospital system (Coventry is > the admin of our health care policy) that offers services to treat > plagio & tort! I have already printed out a few of the great > letters in the files to use as a reference while writing my appeals > letter (thank you thank you to all who have shared!). If anyone > has any other advice on how to get them to pay, please email it to > me! > > Thanks! > & Sydney > PS - love all the cuties in the photos! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Hello , Here is the email of . Her son was banded around that age time frame. I think maybe 18months. She doesn't check the board on a reg basis, so I added her email. Good luck, oh and leave out the space of the email. sugrilljuno (DOT) com Sandy Willow's Mom Cranio Germany Grad www.geocities.com/samipa74/Willow_Lanette.html > Has anyone had there child banded after the child turned 17 months. My story is long and frustrating, but if anyone has info. for the possibility of the band helping at this late stage, I would appreciate it. > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Hi , Welcome to the group! We have had a few members band their child at a later age. Would you care to share your story? Natasha > Has anyone had there child banded after the child turned 17 months. My story is long and frustrating, but if anyone has info. for the possibility of the band helping at this late stage, I would appreciate it. > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2005 Report Share Posted January 4, 2005 Hi , My daugher had severe plagio and wore 2 DOCbands from 4-11 mos, but then regressed and wore another from 15.5-19.5 mos. Her progress in that last band was remarkable. If you look in our photos/before and after/DOCband/Hannah B section you can see hers, plus another baby who was banded at 19.5 mos. Also look at and s pics for other " older " baby correction. The only band you have the option of at this age is the DOCband (www.cranialtech.com). If you don't live close to one of those locations you can look into Angel Flight for free air transportation. Good luck. You can read about my daughter's experience as an " older " baby wearing a helmet here: http://hannahsnoggin.typepad.com/ , mom to Hannah (24 mos), DOCgrad Cape Cod, Ma > Has anyone had there child banded after the child turned 17 months. My story is long and frustrating, but if anyone has info. for the possibility of the band helping at this late stage, I would appreciate it. > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2005 Report Share Posted January 5, 2005 Hi . Welcome to te group. As you have already been told we have a number of members who used a DOC band for their child at your child's age and had success with it. YOu have already been givein some great information so I will just say again, welcome. Becky, mom to , repo grad in Pgh, PA > Has anyone had there child banded after the child turned 17 months. My story is long and frustrating, but if anyone has info. for the possibility of the band helping at this late stage, I would appreciate it. > Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 Your experience is not unusual, and I am absolutely sure that your body is rejecting the foreign objects placed in it. I have heard from many, many women with similar complaints. Lynda At 05:47 PM 1/14/2005, you wrote: >Hi, > >I just found the group today and I'm so glad I did. > >I had my breast augmentation surgery almost three years ago and for the >most part I >didn't have many problems. Last year though, I started having really bad >pain in my bones >and joints and I've had blood tests done but the doctor's havent been able >to find >anything. I'm tired and achy all the time now. I'm only 26 but I feel like >an old lady and its >only getting worse. I never thought it could be cause by the implants but >now I'm not so >sure. I really don't want to have to get them removed but if it means >being healty again, >that's what I'll do. > >I would really appreciate any help or suggestions. Thanks! > >-Zoe > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2005 Report Share Posted January 15, 2005 Zoe, The only way you'll know for sure if it's your implants is to have them removed! . . . Not a good option, but it's better than gradually getting sicker and sicker! One thought though . . . check out the detox treatments /files/ It's possible that you may respond to some of them. The one that comes to mind is to change your diet to a very healthy, no sugar, no refined grains diet . . . Organic as possible. Drink plenty of pure water . . . 1/2 ounce for every pound of body weight. In the meantime, check out the recommended surgeons and see if you can start making arrangements. If you should be able to detox before you're scheduled, you may be able to keep your implants a while longer. You do know that you will have to replace them periodically, don't you? The surgeons we recommend know that it's very important to remove the implants en bloc and use drains. That means removing the capsule that forms around the implant with the implant still inside. If you'll read back a week or so, you'll find a very good article about why capsules must be removed. Too many surgeons don't take this seriously! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2005 Report Share Posted January 17, 2005 Hi there, Congratulations for taking responsibility for finding out what's going on with you! . . . It seems as though that's what one has to do to get well! Thank God for the Internet! Dr. Kolb is a very good about detox programs that can help after having implants removed. Did she tell you about any detox programs? Do you know anything about detox programs? If you'll click on the first link below this message, you will find detox programs we recommend for those who have had breast implants. What condition were your implants in when they were removed? . . . Did they look like new, or were they deteriorating? . . . Someone told me that their chin implant had actually crumbled! If the implants looked like new, it's unlikely you're experiencing a reaction to the silicone. But, there could have been bacteria introduced with your implants were put in, or when they were removed. Do you know what a mycoplasma bacterial infection is? It might be worth doing an Internet search for mycoplasma bacterial infections and see if that fits your symptoms. A number of women with breast implants have been found to have myco infections. The treatment is fairly simple . . . Antibiotic protocol that consists of small amounts of antibiotics several times as week for as long as two years. The difficult part of the treatment is that you must stay on a diet that will control Candida since antibiotics kill the beneficial organisms that control Candida. Shingles affect only one side of the body and the pain is severe. There are blisters associated with shingles. They can reoccur from time to time. Have you done any Internet search for information about shingles? Being under stress can cause shingles to occur. I hope this helps. Keep digging! . . . I'm sure you'll find the answer! Hugs and prayers, Rogene --- lurkula84 <lurkula84@...> wrote: > > hi everyone. I had cheek implants made of hard > silicone for 9 years > which Dr Kolb took out last March. Last winter I > literally woke up > one day with severe pain on the right side of my > face and within a > few days I was severely weak and tired, had numbness > in my > extremities, muscle spasms, heat throughout the > upper part of my > body though no visible body temperature, and a host > of other > symptoms. Even though I attributed all of this to > the implants, not > one doctor I saw did. I went back to my p.s. who > pawned me off to > his wife/dermatologist who proceeded to tell me it > was shingles. I > found Dr. Kolb on the Internet and she said she > thought I either had > an infection around the cheek implants which were > causing an immune > reaction or was just developing an autoimmune > disease from having > these things inside me for a period of time. At any > rate, she > thought it imperative that they come out for my > health to improve. > Long story short, it has been nine months since > removal, and while > some symptoms like fatigue, shortness of breath, > heat throughout my > body, severe pain around the implants are gone, > other symptoms > emerged following explant that have remained > constant since. I'm > curious to know if any of you have pain > swallowing/choking > sensation, pain under ribs on both sides, spasms in > tongue and > extremities. Also, did anyone develop new symptoms > after explant > and is it likely that these will dissipate over > time? thanx > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2005 Report Share Posted January 18, 2005 - Hi and welcome to our group! I just wrote you a long reply and then my computer just lost it somehow! That is so frustrating. I have had every symptom you have mentioned. And everyone of them can be a symptom of fibromyalgia ( one of the conditions most often linked to implants. Also silicone implant syndrome. I am so glad you had the cheek implants out. It does sound like you have seen improvements and that is very encouraging. New symptoms cropping up is not all that unusual. Also, I know that Dr.Kolb is big on detoxification. Have you been doing any of that? I know she has developed protocols. Have you been back in contact with her? If you are detoxing, are you aware that the detoxing itself can cause increased or new symptoms while the body is trying to eliminate the toxins? When this happens, it is wise to cut back and slow down on the detoxification process. If you are not detoxing it would probably be a big benefit to do so. We have alot of info on this site on different ways to detox and to get better. Having a good diet and drinking plenty of water is important. Eliminating sugar, cutting down on grains and starches and making sure to get alot of raw food-organic--helps your immune system. So does killing off candida and other pathogens. Doing liver, colon, and other cleanses, using a far infrared sauna, and trying various supplements often helps. Have you had any tests run for thyroid, adrenal function, hormones? There are still many things you can do to improve your health and time itself will still help. Some women on here didn't reach alot better health for 2 or more years. Every one is different. Some women felt better immediately. Many women have symptoms that disappear and reappear at intervals. Usually, each time they come back they are less severe and stay a shorter length of time. So I think that your new symptoms may very well leave also at some point. I also think that some of your symptoms that are better, may worsen again and then leave again. Don't get discouraged. As long as you are getting overall better and better, the steps backwards aren't significant. Feel free to ask any other questions and we will try to be of help. Hugs, kathy -- In , " lurkula84 " <lurkula84@y...> wrote: > > hi everyone. I had cheek implants made of hard silicone for 9 years > which Dr Kolb took out last March. Last winter I literally woke up > one day with severe pain on the right side of my face and within a > few days I was severely weak and tired, had numbness in my > extremities, muscle spasms, heat throughout the upper part of my > body though no visible body temperature, and a host of other > symptoms. Even though I attributed all of this to the implants, not > one doctor I saw did. I went back to my p.s. who pawned me off to > his wife/dermatologist who proceeded to tell me it was shingles. I > found Dr. Kolb on the internet and she said she thought I either had > an infection around the cheek implants which were causing an immune > reaction or was just developing an autoimmune disease from having > these things inside me for a period of time. At any rate, she > thought it imperative that they come out for my health to improve. > Long story short, it has been nine months since removal, and while > some symptoms like fatigue, shortness of breath, heat throughout my > body, severe pain around the implants are gone, other symptoms > emerged following explant that have remained constant since. I'm > curious to know if any of you have pain swallowing/choking > sensation, pain under ribs on both sides, spasms in tongue and > extremities. Also, did anyone develop new symptoms after explant > and is it likely that these will dissipate over time? thanx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 Hi , Welcome to the group. Based on your description I might agree with you that his flat spot is inuterine constraint issue due to being breech. That will be very difficult to correct with repo. na had inuterine constraint flatness and I was told it was more difficult to correct with repo. Of course she also had tort - so double whammy. Are you near a CT? I would ask your ped for a referral to get a free evaluation - no harm done. If you aren't near a CT I would call a local ortho and ask if they would do a free consult. You've been doing repo. He is past the AAP recommended repo age (5 months). I think it makes sense to get a second opinion since you are still concerned. na was not diagnosed until my dr saw the evaluation info from CT. He agreed she had a somewhat abnormal headshape but he wasn't going to call it plagio. With the data from CT he was able to call it plagio and write the RX. CT doesn't do diagnosis. They are not drs. They do an evaluation and make a recommendation. It's up to the dr to write the rx and give the diagnosis. Keep us posted. mom to na DOC Grad 2/04 Tort Resolved South Carolina www.thefilyaws.comevandenheuvel <evandenheuvel@...> wrote: Hello,its so wonderful to have support like this!Serious ? about my son's flat spot.Some history... Elijah was breeched - he was always in the same spotin utero- and was succesfully moved before his birth. He wasdiagnosed at 4 months with tort and is getting good PT. Elijah is 6months now and is progressing well. His PED is wonderful and hasbeen very supportive of any referrals that i have needed.BUT I have a question about his flat spot. He has never beenofficially diagnosed with plagio, but there is an obvious ( obviousat least to mom) flat spot opposite his tilt. I also can see somefacial assymetry and "clues" typical of plagio ( part of his lower lip sticks out, one ear is higher than the other, a cheek seems fuller than the other, one eye seems more open than the other) . THe strange thing is that this flat spot is NOT where his "bald" spot is. THe bald spot on Elijah is located right on the back of his head, where it has a nice round shape.THe flat spot is to the left of this bald spot. He does well withrepositioning so i am thinking that this flat spot wont get betterwith any repo.Is this flat spot from him being breeched, and staying in ths same spot in utero? Will it correct itself with repositioning? DO i need to look into a DOC or STAR band? Is this something that i should get diagnosed at Cranial Tech, or who should i get a diagnosis about the plagio?Thank you for your help!emilyFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2005 Report Share Posted February 1, 2005 You do not need a referral just to get the eval from CT, but you will need prescription if you decide to go ahead and band. Your ped can write it if agreeable, or if not CT can give you names of band friendly docs to see. Dara > > > Hello, > > its so wonderful to have support like this! > Serious ? about my son's flat spot. > Some history... Elijah was breeched - he was always in the same spot > in utero- and was succesfully moved before his birth. He was > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > months now and is progressing well. His PED is wonderful and has > been very supportive of any referrals that i have needed. > BUT I have a question about his flat spot. He has never been > officially diagnosed with plagio, but there is an obvious ( obvious > at least to mom) flat spot opposite his tilt. I also can see some > facial assymetry and " clues " typical of plagio ( part of his lower > lip sticks out, one ear is higher than the other, a cheek seems > fuller than the other, one eye seems more open than the other) . THe > strange thing is that this flat spot is NOT where his " bald " spot is. > THe bald spot on Elijah is located right on the back of his head, > where it has a nice round shape. > THe flat spot is to the left of this bald spot. He does well with > repositioning so i am thinking that this flat spot wont get better > with any repo. > Is this flat spot from him being breeched, and staying in ths same > spot in utero? Will it correct itself with repositioning? DO i need > to look into a DOC or STAR band? Is this something that i should get > diagnosed at Cranial Tech, or who should i get a diagnosis about the > plagio? > > Thank you for your help! > emily > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Welcome. I would love to type a better response, but it is NUTS at my house today. I would take your son to Cranial Tech for a free evaluation. That would give you better information to then be able to make an informed decision. Good luck and please let us know how it goes. Christy - mom to Kennedy Brachy/plagio/tort DOC band 11/23/04 - due to graduate 2/11/05 Tulsa, OKevandenheuvel <evandenheuvel@...> wrote: Hello,its so wonderful to have support like this!Serious ? about my son's flat spot.Some history... Elijah was breeched - he was always in the same spotin utero- and was succesfully moved before his birth. He wasdiagnosed at 4 months with tort and is getting good PT. Elijah is 6months now and is progressing well. His PED is wonderful and hasbeen very supportive of any referrals that i have needed.BUT I have a question about his flat spot. He has never beenofficially diagnosed with plagio, but there is an obvious ( obviousat least to mom) flat spot opposite his tilt. I also can see somefacial assymetry and "clues" typical of plagio ( part of his lower lip sticks out, one ear is higher than the other, a cheek seems fuller than the other, one eye seems more open than the other) . THe strange thing is that this flat spot is NOT where his "bald" spot is. THe bald spot on Elijah is located right on the back of his head, where it has a nice round shape.THe flat spot is to the left of this bald spot. He does well withrepositioning so i am thinking that this flat spot wont get betterwith any repo.Is this flat spot from him being breeched, and staying in ths same spot in utero? Will it correct itself with repositioning? DO i need to look into a DOC or STAR band? Is this something that i should get diagnosed at Cranial Tech, or who should i get a diagnosis about the plagio?Thank you for your help!emilyFor more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Hi there I would also like to encourage you to get an opinion either at CT or another plagio specialist. It may be that you look into this and discover that a helmet is not the way you want to go or it is not recommended for your son. However, from what you have said about the facial asymmetry (protruding cheek etc) it is definitely worth getting an opinion. They are experienced at CT and can also tell you about the likely success. This would be good starting at six months, but interuterine restraint is harder to treat than plain old positional plagio, so you should start as soon as possible if you have even the slightest inkling that this is the way to go. I've read quite a few posts from parents recently who have waited or it is too late to get a helmet and this makes me really sad. I don't think helmets are the only way to go at all, but from what you have said, I don't think repo is probably going to be able to solve this one. Far better to look into it now and see a specialist (or two) and get the information you need on plagio, and at least have the option of a helmet which could provide good correction at your child's age. By the way- there is a helpful severity assessment tool in Links- Severity Assessment of Plagio. If you look at this it will help you see how you think your little one compares- the further to the right the more severe. Tort can also cause facial asymmetry (the last series of pictures at the bottom of the handout shows tort related plagio), and it sounds like you are managing that really well, so the question is whether there would be further benefit from a helmet, and that is something the experts will be able to help with. Good luck and do let us know how you get along Hannah (mum to Lucia, London, UK) Cranio grad > > Hello, > > its so wonderful to have support like this! > Serious ? about my son's flat spot. > Some history... Elijah was breeched - he was always in the same spot > in utero- and was succesfully moved before his birth. He was > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > months now and is progressing well. His PED is wonderful and has > been very supportive of any referrals that i have needed. > BUT I have a question about his flat spot. He has never been > officially diagnosed with plagio, but there is an obvious ( obvious > at least to mom) flat spot opposite his tilt. I also can see some > facial assymetry and " clues " typical of plagio ( part of his lower > lip sticks out, one ear is higher than the other, a cheek seems > fuller than the other, one eye seems more open than the other) . THe > strange thing is that this flat spot is NOT where his " bald " spot is. > THe bald spot on Elijah is located right on the back of his head, > where it has a nice round shape. > THe flat spot is to the left of this bald spot. He does well with > repositioning so i am thinking that this flat spot wont get better > with any repo. > Is this flat spot from him being breeched, and staying in ths same > spot in utero? Will it correct itself with repositioning? DO i need > to look into a DOC or STAR band? Is this something that i should get > diagnosed at Cranial Tech, or who should i get a diagnosis about the > plagio? > > Thank you for your help! > emily > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 , You have already received great replies that answered your questions and concerns, so I am just posting you to welcome you to the group! Please keep us posted on how Elijah is doing, and let us know if you decide to go for a consult for a helmet/band. Take care, Christie (Mom to Repo'd Remy) > > Hello, > > its so wonderful to have support like this! > Serious ? about my son's flat spot. > Some history... Elijah was breeched - he was always in the same spot > in utero- and was succesfully moved before his birth. He was > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > months now and is progressing well. His PED is wonderful and has > been very supportive of any referrals that i have needed. > BUT I have a question about his flat spot. He has never been > officially diagnosed with plagio, but there is an obvious ( obvious > at least to mom) flat spot opposite his tilt. I also can see some > facial assymetry and " clues " typical of plagio ( part of his lower > lip sticks out, one ear is higher than the other, a cheek seems > fuller than the other, one eye seems more open than the other) . THe > strange thing is that this flat spot is NOT where his " bald " spot is. > THe bald spot on Elijah is located right on the back of his head, > where it has a nice round shape. > THe flat spot is to the left of this bald spot. He does well with > repositioning so i am thinking that this flat spot wont get better > with any repo. > Is this flat spot from him being breeched, and staying in ths same > spot in utero? Will it correct itself with repositioning? DO i need > to look into a DOC or STAR band? Is this something that i should get > diagnosed at Cranial Tech, or who should i get a diagnosis about the > plagio? > > Thank you for your help! > emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2005 Report Share Posted February 2, 2005 Hi , My daughter was not officially diagnosed with Plagio until she was 6 months old, though we first noticed her flat spot at around 2 months. We started repo at about four months but were unsuccussful, even though it seems like her flat spot never touched any surface. She too developed a bald spot (on her round side), but it was actually more in the middle of her head, to the left of the area that was most often resting on a flat surface - I don't know how to explain that! You should definitely try with the repo, but consider the possibility that it might not provide the results that you're looking for. It certainly doesn't hurt to go for a free consult at CT. They will tell you whether your son would benefit from a band. Good luck!!! Lee > > > > Hello, > > > > its so wonderful to have support like this! > > Serious ? about my son's flat spot. > > Some history... Elijah was breeched - he was always in the same > spot > > in utero- and was succesfully moved before his birth. He was > > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > > months now and is progressing well. His PED is wonderful and has > > been very supportive of any referrals that i have needed. > > BUT I have a question about his flat spot. He has never been > > officially diagnosed with plagio, but there is an obvious ( obvious > > at least to mom) flat spot opposite his tilt. I also can see some > > facial assymetry and " clues " typical of plagio ( part of his lower > > lip sticks out, one ear is higher than the other, a cheek seems > > fuller than the other, one eye seems more open than the other) . > THe > > strange thing is that this flat spot is NOT where his " bald " spot > is. > > THe bald spot on Elijah is located right on the back of his head, > > where it has a nice round shape. > > THe flat spot is to the left of this bald spot. He does well with > > repositioning so i am thinking that this flat spot wont get better > > with any repo. > > Is this flat spot from him being breeched, and staying in ths same > > spot in utero? Will it correct itself with repositioning? DO i > need > > to look into a DOC or STAR band? Is this something that i should > get > > diagnosed at Cranial Tech, or who should i get a diagnosis about > the > > plagio? > > > > Thank you for your help! > > emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2005 Report Share Posted February 4, 2005 First welcome to the group,my name is Carol and I have Dominick 4MO. plagio/tort. Dominick has the same bald spot you talk about, not sure why it goes bald there, but he does.I am sure you have had excellent advice already, so I just wanted to say welcome. > > Hello, > > its so wonderful to have support like this! > Serious ? about my son's flat spot. > Some history... Elijah was breeched - he was always in the same spot > in utero- and was succesfully moved before his birth. He was > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > months now and is progressing well. His PED is wonderful and has > been very supportive of any referrals that i have needed. > BUT I have a question about his flat spot. He has never been > officially diagnosed with plagio, but there is an obvious ( obvious > at least to mom) flat spot opposite his tilt. I also can see some > facial assymetry and " clues " typical of plagio ( part of his lower > lip sticks out, one ear is higher than the other, a cheek seems > fuller than the other, one eye seems more open than the other) . THe > strange thing is that this flat spot is NOT where his " bald " spot is. > THe bald spot on Elijah is located right on the back of his head, > where it has a nice round shape. > THe flat spot is to the left of this bald spot. He does well with > repositioning so i am thinking that this flat spot wont get better > with any repo. > Is this flat spot from him being breeched, and staying in ths same > spot in utero? Will it correct itself with repositioning? DO i need > to look into a DOC or STAR band? Is this something that i should get > diagnosed at Cranial Tech, or who should i get a diagnosis about the > plagio? > > Thank you for your help! > emily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi It def sounds as if your son has his plagio from in utero. If I were you, I would continue to repo, but also get him evaluated for the plagio. The sooner you band (if this is what you are considering) the better the results. Ears are also to correct last, and the heigth difference will more than likely not go away. My daughter had that too, and even though her ears lined up really well, one is still slightly highter, and the doc said that this would stay. Sandy Willow's Mom Torticollis resolved Cranio Germany Grad http://www.geocities.com/samipa74/Willow_Lanette.html > > Hello, > > its so wonderful to have support like this! > Serious ? about my son's flat spot. > Some history... Elijah was breeched - he was always in the same spot > in utero- and was succesfully moved before his birth. He was > diagnosed at 4 months with tort and is getting good PT. Elijah is 6 > months now and is progressing well. His PED is wonderful and has > been very supportive of any referrals that i have needed. > BUT I have a question about his flat spot. He has never been > officially diagnosed with plagio, but there is an obvious ( obvious > at least to mom) flat spot opposite his tilt. I also can see some > facial assymetry and " clues " typical of plagio ( part of his lower > lip sticks out, one ear is higher than the other, a cheek seems > fuller than the other, one eye seems more open than the other) . THe > strange thing is that this flat spot is NOT where his " bald " spot is. > THe bald spot on Elijah is located right on the back of his head, > where it has a nice round shape. > THe flat spot is to the left of this bald spot. He does well with > repositioning so i am thinking that this flat spot wont get better > with any repo. > Is this flat spot from him being breeched, and staying in ths same > spot in utero? Will it correct itself with repositioning? DO i need > to look into a DOC or STAR band? Is this something that i should get > diagnosed at Cranial Tech, or who should i get a diagnosis about the > plagio? > > Thank you for your help! > emily Quote Link to comment Share on other sites More sharing options...
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