Guest guest Posted January 6, 2006 Report Share Posted January 6, 2006 Hi welcome to the group I have had both knees replaced and it all went well.It has made a big difference to my walking. Joyce from the UK Sherrie <scorn720@...> wrote: Hi my name is Sherrie and live in Oklahoma I have had RA for around 14 years I am looking for a group to were i can be a part of to chat and meet other people in the same fix I am on remicade and imuran plaquenil. prednisone and mobic and oxycontin for pain right now i am looding for a knee replacement in 2 weeks has anyone had it done and if so how did it go Sherrie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 In a message dated 1/8/2006 9:31:08 PM Eastern Standard Time, mafiakitn@... writes: Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 in Grand Rapids. We're having a head scan. Hi. I am new too. So I dont know much but been doing alot of research. Here is a site that might help you. CAPPS Plagio Information. It looks like to me your son has Positional Brachycephaly a type of plagio. I hope this helps. There is insurance help on there too. you ever need to talk add all_natural25 to messenger I usually have it on all the time.. A beary special New Year (»o«) ('o"o') **..(_©_)..** dwh./_\(_)/\(_)/_\.dwh ('o"o')/~~\('o"o') (_©_)/2006\(_©_) (_)(_)*=*=*(_)(_) *andra* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 In a message dated 1/8/2006 9:31:08 PM Eastern Standard Time, mafiakitn@... writes: Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 in Grand Rapids. We're having a head scan. Hi. I am new too. So I dont know much but been doing alot of research. Here is a site that might help you. CAPPS Plagio Information. It looks like to me your son has Positional Brachycephaly a type of plagio. I hope this helps. There is insurance help on there too. you ever need to talk add all_natural25 to messenger I usually have it on all the time.. A beary special New Year (»o«) ('o"o') **..(_©_)..** dwh./_\(_)/\(_)/_\.dwh ('o"o')/~~\('o"o') (_©_)/2006\(_©_) (_)(_)*=*=*(_)(_) *andra* Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 In a message dated 1/8/2006 11:03:45 PM Eastern Standard Time, mafiakitn@... writes: http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg He is soo cute! [¤].~©~.[¤].~©~.[¤] Gettin' all their hugs and kisses ..-.-.....-.-.dwh.-.-. /__'__\./__'__\./__'__\ `.___.'.`.___.'.`.___.' ~andra~ [¤].~©~.[¤].~©~.[¤] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 In a message dated 1/8/2006 11:03:45 PM Eastern Standard Time, mafiakitn@... writes: http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg He is soo cute! [¤].~©~.[¤].~©~.[¤] Gettin' all their hugs and kisses ..-.-.....-.-.dwh.-.-. /__'__\./__'__\./__'__\ `.___.'.`.___.'.`.___.' ~andra~ [¤].~©~.[¤].~©~.[¤] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Cris, Welcome to the group! Yes you are within your right to ask for a prescription. Is Charlie getting a CT Scan or are they using the STAR scanner? You said he was getting scanned tomorrow and I wasn't sure what type. We have parents here who use MFB in Grand Rapids and I believe they have a STAR scanner. If you want to be armed with information on banding print up some stuff in the files section. You mentioned getting a prescription for a DOC Band. Cranialtech.com has lots of great information to print up too. If you choose to get a DOC Band you probably will be venturing to Chicago for one. I think Charlie could definitely benefit from a band. You'll be amazed at how well the bands can work. Let us know how it goes tomorrow and post pictures so we can see his cute little face too! Mom to Dane 4 yo and Cece 12 mo (DOC Grads) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Cris, Welcome to the group! Yes you are within your right to ask for a prescription. Is Charlie getting a CT Scan or are they using the STAR scanner? You said he was getting scanned tomorrow and I wasn't sure what type. We have parents here who use MFB in Grand Rapids and I believe they have a STAR scanner. If you want to be armed with information on banding print up some stuff in the files section. You mentioned getting a prescription for a DOC Band. Cranialtech.com has lots of great information to print up too. If you choose to get a DOC Band you probably will be venturing to Chicago for one. I think Charlie could definitely benefit from a band. You'll be amazed at how well the bands can work. Let us know how it goes tomorrow and post pictures so we can see his cute little face too! Mom to Dane 4 yo and Cece 12 mo (DOC Grads) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi ! Thanks for your quick and detailed reply. I think it is a CT Scan, as it is an initial scan - a first appointment with the neurologist. I am not sure what kind of scan, to tell you the truth, so I guess it could be a STAR scan. (laugh) We are going to Freebed Hospital. Is that MFB? I will print up the info and I will also look at the CT site for additional information. I just want to be able to ask directed and intelligent questions in order to facilitate getting Charlie banded. He is already 6.5 months, and I know time is running out. Here's his lil face: http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg I'll let you know how it goes tomorrow! Cris (in Michigan) --- rmanias <manias@...> wrote: > Cris, > Welcome to the group! > Yes you are within your right to ask for a > prescription. Is Charlie > getting a CT Scan or are they using the STAR > scanner? You said he was > getting scanned tomorrow and I wasn't sure what > type. We have parents > here who use MFB in Grand Rapids and I believe they > have a STAR > scanner. > If you want to be armed with information on banding > print up some > stuff in the files section. > You mentioned getting a prescription for a DOC Band. > Cranialtech.com > has lots of great information to print up too. If > you choose to get a > DOC Band you probably will be venturing to Chicago > for one. > I think Charlie could definitely benefit from a > band. You'll be > amazed at how well the bands can work. > Let us know how it goes tomorrow and post pictures > so we can see his > cute little face too! > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads) > > > > __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi ! Thanks for your quick and detailed reply. I think it is a CT Scan, as it is an initial scan - a first appointment with the neurologist. I am not sure what kind of scan, to tell you the truth, so I guess it could be a STAR scan. (laugh) We are going to Freebed Hospital. Is that MFB? I will print up the info and I will also look at the CT site for additional information. I just want to be able to ask directed and intelligent questions in order to facilitate getting Charlie banded. He is already 6.5 months, and I know time is running out. Here's his lil face: http://i29.photobucket.com/albums/c262/NewestComer/charliesheadquad-view.jpg I'll let you know how it goes tomorrow! Cris (in Michigan) --- rmanias <manias@...> wrote: > Cris, > Welcome to the group! > Yes you are within your right to ask for a > prescription. Is Charlie > getting a CT Scan or are they using the STAR > scanner? You said he was > getting scanned tomorrow and I wasn't sure what > type. We have parents > here who use MFB in Grand Rapids and I believe they > have a STAR > scanner. > If you want to be armed with information on banding > print up some > stuff in the files section. > You mentioned getting a prescription for a DOC Band. > Cranialtech.com > has lots of great information to print up too. If > you choose to get a > DOC Band you probably will be venturing to Chicago > for one. > I think Charlie could definitely benefit from a > band. You'll be > amazed at how well the bands can work. > Let us know how it goes tomorrow and post pictures > so we can see his > cute little face too! > > Mom to Dane 4 yo and Cece 12 mo (DOC Grads) > > > > __________________________________________ DSL – Something to write home about. Just $16.99/mo. or less. dsl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group. It's good that he doesn't have tort. Charlie is a big boy A lot of peds think it is only cosmetic. However, the FDA does not consider it to be cosmetic. It is an abnormality. There is some evidence that a flat head can cause issues later. We have some research in the files section. The AAP recommends cranial orthosis if flatness persists after 6 months of age. Yes, I think you should come outright and ask the Dr for a RX. Tell him you are very concerned about this flatness. You hve done some research into the AAP guidelines and possible effects. Possible long term issues are migraines, TMJ (jaw issues), eye sight, and chronic ear infection. Chec kthe files - print some out to take with you. It's your right to ask. If he won't write it find one who will. Where in Michigan are you? We have quite a few members from Michigan. Are you going to Free Bed?? na, 2 1/2 yrs, DOC Band Grad Feb 2004 Kiersten, 7 months, DOC 1/10/06, Tort www.thefilyaws.com > > Hi - > > My son, Charlie, is 6.5 months and has a very flat > head. I have an appointment at the neurologist > tomorrow so that they can take a scan of his head. My > pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but > has also said it is only a cosmetic issue, not a > developmental issue. He doesn't have any muscular > problems turning his head (I think you call this > tort?) and his head isn't asymmetrical. He is just > very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > positional. (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't > want him to hvae a flat head as a kid or as an adult. > Am I within my rights to out and out request that the > neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist > what I want? I wanted to bite my pediatrician when > she said " Well, yes, he is going to have a flat head, > but there's nothing wrong with that. " DUH, doc! > > I know that for cosmetic treatment there is no hope > for my insurance to cover the treatment. I don't care > if I have to pay out of pocket for the helmet; I just > want my son to have a beautifully shaped, round head. > > > I have pictures of his head that I would like to post, > but am not sure where or how to do this. SO I posted > them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > a head scan. > > Thanks Everyone! > > Cris in Michigan > > P.S. Sorry if this is a duplicate post. I tried on > the message board and it said something about needing > approval? > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group. It's good that he doesn't have tort. Charlie is a big boy A lot of peds think it is only cosmetic. However, the FDA does not consider it to be cosmetic. It is an abnormality. There is some evidence that a flat head can cause issues later. We have some research in the files section. The AAP recommends cranial orthosis if flatness persists after 6 months of age. Yes, I think you should come outright and ask the Dr for a RX. Tell him you are very concerned about this flatness. You hve done some research into the AAP guidelines and possible effects. Possible long term issues are migraines, TMJ (jaw issues), eye sight, and chronic ear infection. Chec kthe files - print some out to take with you. It's your right to ask. If he won't write it find one who will. Where in Michigan are you? We have quite a few members from Michigan. Are you going to Free Bed?? na, 2 1/2 yrs, DOC Band Grad Feb 2004 Kiersten, 7 months, DOC 1/10/06, Tort www.thefilyaws.com > > Hi - > > My son, Charlie, is 6.5 months and has a very flat > head. I have an appointment at the neurologist > tomorrow so that they can take a scan of his head. My > pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but > has also said it is only a cosmetic issue, not a > developmental issue. He doesn't have any muscular > problems turning his head (I think you call this > tort?) and his head isn't asymmetrical. He is just > very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > positional. (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't > want him to hvae a flat head as a kid or as an adult. > Am I within my rights to out and out request that the > neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist > what I want? I wanted to bite my pediatrician when > she said " Well, yes, he is going to have a flat head, > but there's nothing wrong with that. " DUH, doc! > > I know that for cosmetic treatment there is no hope > for my insurance to cover the treatment. I don't care > if I have to pay out of pocket for the helmet; I just > want my son to have a beautifully shaped, round head. > > > I have pictures of his head that I would like to post, > but am not sure where or how to do this. SO I posted > them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > a head scan. > > Thanks Everyone! > > Cris in Michigan > > P.S. Sorry if this is a duplicate post. I tried on > the message board and it said something about needing > approval? > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group. It's good that he doesn't have tort. Charlie is a big boy A lot of peds think it is only cosmetic. However, the FDA does not consider it to be cosmetic. It is an abnormality. There is some evidence that a flat head can cause issues later. We have some research in the files section. The AAP recommends cranial orthosis if flatness persists after 6 months of age. Yes, I think you should come outright and ask the Dr for a RX. Tell him you are very concerned about this flatness. You hve done some research into the AAP guidelines and possible effects. Possible long term issues are migraines, TMJ (jaw issues), eye sight, and chronic ear infection. Chec kthe files - print some out to take with you. It's your right to ask. If he won't write it find one who will. Where in Michigan are you? We have quite a few members from Michigan. Are you going to Free Bed?? na, 2 1/2 yrs, DOC Band Grad Feb 2004 Kiersten, 7 months, DOC 1/10/06, Tort www.thefilyaws.com > > Hi - > > My son, Charlie, is 6.5 months and has a very flat > head. I have an appointment at the neurologist > tomorrow so that they can take a scan of his head. My > pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but > has also said it is only a cosmetic issue, not a > developmental issue. He doesn't have any muscular > problems turning his head (I think you call this > tort?) and his head isn't asymmetrical. He is just > very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > positional. (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't > want him to hvae a flat head as a kid or as an adult. > Am I within my rights to out and out request that the > neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist > what I want? I wanted to bite my pediatrician when > she said " Well, yes, he is going to have a flat head, > but there's nothing wrong with that. " DUH, doc! > > I know that for cosmetic treatment there is no hope > for my insurance to cover the treatment. I don't care > if I have to pay out of pocket for the helmet; I just > want my son to have a beautifully shaped, round head. > > > I have pictures of his head that I would like to post, > but am not sure where or how to do this. SO I posted > them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > a head scan. > > Thanks Everyone! > > Cris in Michigan > > P.S. Sorry if this is a duplicate post. I tried on > the message board and it said something about needing > approval? > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group. It's good that he doesn't have tort. Charlie is a big boy A lot of peds think it is only cosmetic. However, the FDA does not consider it to be cosmetic. It is an abnormality. There is some evidence that a flat head can cause issues later. We have some research in the files section. The AAP recommends cranial orthosis if flatness persists after 6 months of age. Yes, I think you should come outright and ask the Dr for a RX. Tell him you are very concerned about this flatness. You hve done some research into the AAP guidelines and possible effects. Possible long term issues are migraines, TMJ (jaw issues), eye sight, and chronic ear infection. Chec kthe files - print some out to take with you. It's your right to ask. If he won't write it find one who will. Where in Michigan are you? We have quite a few members from Michigan. Are you going to Free Bed?? na, 2 1/2 yrs, DOC Band Grad Feb 2004 Kiersten, 7 months, DOC 1/10/06, Tort www.thefilyaws.com > > Hi - > > My son, Charlie, is 6.5 months and has a very flat > head. I have an appointment at the neurologist > tomorrow so that they can take a scan of his head. My > pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but > has also said it is only a cosmetic issue, not a > developmental issue. He doesn't have any muscular > problems turning his head (I think you call this > tort?) and his head isn't asymmetrical. He is just > very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > positional. (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't > want him to hvae a flat head as a kid or as an adult. > Am I within my rights to out and out request that the > neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist > what I want? I wanted to bite my pediatrician when > she said " Well, yes, he is going to have a flat head, > but there's nothing wrong with that. " DUH, doc! > > I know that for cosmetic treatment there is no hope > for my insurance to cover the treatment. I don't care > if I have to pay out of pocket for the helmet; I just > want my son to have a beautifully shaped, round head. > > > I have pictures of his head that I would like to post, > but am not sure where or how to do this. SO I posted > them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > a head scan. > > Thanks Everyone! > > Cris in Michigan > > P.S. Sorry if this is a duplicate post. I tried on > the message board and it said something about needing > approval? > > > > __________________________________________ > DSL – Something to write home about. > Just $16.99/mo. or less. > dsl. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group! I just want to second everything and have already told you. It's totally your decision wether or not your band your son. If he were my son, I'd band him. Good luck at your apptointment, let us know how it goes. Don't be surprised if the neuro has the same attitude as your pediatrician. > > Hi - > > My son, Charlie, is 6.5 months and has a very flat head. I have an > appointment at the neurologist tomorrow so that they can take a scan > of his head. My pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but has also said it > is only a cosmetic issue, not a developmental issue. He doesn't have > any muscular problems turning his head (I think you call this tort?) > and his head isn't asymmetrical. He is just very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional. > (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't want him to hvae > a flat head as a kid or as an adult. Am I within my rights to out and > out request that the neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist what I want? > I wanted to bite my pediatrician when she said " Well, yes, he is > going to have a flat head, but there's nothing wrong with that. " DUH, > doc! > > I know that for cosmetic treatment there is no hope for my insurance > to cover the treatment. I don't care if I have to pay out of pocket > for the helmet; I just want my son to have a beautifully shaped, round > head. > > I have pictures of his head that I would like to post, but am not sure > where or how to do this. SO I posted them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 > in Grand Rapids. We're having a head scan. > > Thanks Everyone! > > Cris in Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2006 Report Share Posted January 8, 2006 Hi Cris, Welcome to the group! I just want to second everything and have already told you. It's totally your decision wether or not your band your son. If he were my son, I'd band him. Good luck at your apptointment, let us know how it goes. Don't be surprised if the neuro has the same attitude as your pediatrician. > > Hi - > > My son, Charlie, is 6.5 months and has a very flat head. I have an > appointment at the neurologist tomorrow so that they can take a scan > of his head. My pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but has also said it > is only a cosmetic issue, not a developmental issue. He doesn't have > any muscular problems turning his head (I think you call this tort?) > and his head isn't asymmetrical. He is just very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional. > (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't want him to hvae > a flat head as a kid or as an adult. Am I within my rights to out and > out request that the neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist what I want? > I wanted to bite my pediatrician when she said " Well, yes, he is > going to have a flat head, but there's nothing wrong with that. " DUH, > doc! > > I know that for cosmetic treatment there is no hope for my insurance > to cover the treatment. I don't care if I have to pay out of pocket > for the helmet; I just want my son to have a beautifully shaped, round > head. > > I have pictures of his head that I would like to post, but am not sure > where or how to do this. SO I posted them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 > in Grand Rapids. We're having a head scan. > > Thanks Everyone! > > Cris in Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 , Could you point me toward the AAP guidelines recommending orthosis after 6 mos. ? It would be useful in the Insurance battles to come . . . Thanks, andy > > > > Hi - > > > > My son, Charlie, is 6.5 months and has a very flat > > head. I have an appointment at the neurologist > > tomorrow so that they can take a scan of his head. My > > pediatrician has said she is not concerned with his > > head, she has admitted that he has a flat head, but > > has also said it is only a cosmetic issue, not a > > developmental issue. He doesn't have any muscular > > problems turning his head (I think you call this > > tort?) and his head isn't asymmetrical. He is just > > very flat in the back. > > > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > > positional. (He was a caesarean baby) > > > > I am concerned even though my doctor isn't. I don't > > want him to hvae a flat head as a kid or as an adult. > > Am I within my rights to out and out request that the > > neurologist write a prescription for a DOC band? > > What wording should I use when telling my neurologist > > what I want? I wanted to bite my pediatrician when > > she said " Well, yes, he is going to have a flat head, > > but there's nothing wrong with that. " DUH, doc! > > > > I know that for cosmetic treatment there is no hope > > for my insurance to cover the treatment. I don't care > > if I have to pay out of pocket for the helmet; I just > > want my son to have a beautifully shaped, round head. > > > > > > I have pictures of his head that I would like to post, > > but am not sure where or how to do this. SO I posted > > them in my own website. > > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > > > Thanks for your suggestion. Our appointment is > > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > > a head scan. > > > > Thanks Everyone! > > > > Cris in Michigan > > > > P.S. Sorry if this is a duplicate post. I tried on > > the message board and it said something about needing > > approval? > > > > > > > > __________________________________________ > > DSL – Something to write home about. > > Just $16.99/mo. or less. > > dsl. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 , Could you point me toward the AAP guidelines recommending orthosis after 6 mos. ? It would be useful in the Insurance battles to come . . . Thanks, andy > > > > Hi - > > > > My son, Charlie, is 6.5 months and has a very flat > > head. I have an appointment at the neurologist > > tomorrow so that they can take a scan of his head. My > > pediatrician has said she is not concerned with his > > head, she has admitted that he has a flat head, but > > has also said it is only a cosmetic issue, not a > > developmental issue. He doesn't have any muscular > > problems turning his head (I think you call this > > tort?) and his head isn't asymmetrical. He is just > > very flat in the back. > > > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is > > positional. (He was a caesarean baby) > > > > I am concerned even though my doctor isn't. I don't > > want him to hvae a flat head as a kid or as an adult. > > Am I within my rights to out and out request that the > > neurologist write a prescription for a DOC band? > > What wording should I use when telling my neurologist > > what I want? I wanted to bite my pediatrician when > > she said " Well, yes, he is going to have a flat head, > > but there's nothing wrong with that. " DUH, doc! > > > > I know that for cosmetic treatment there is no hope > > for my insurance to cover the treatment. I don't care > > if I have to pay out of pocket for the helmet; I just > > want my son to have a beautifully shaped, round head. > > > > > > I have pictures of his head that I would like to post, > > but am not sure where or how to do this. SO I posted > > them in my own website. > > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > > > Thanks for your suggestion. Our appointment is > > tomorrow (3/9) at 3:00 in Grand Rapids. We're having > > a head scan. > > > > Thanks Everyone! > > > > Cris in Michigan > > > > P.S. Sorry if this is a duplicate post. I tried on > > the message board and it said something about needing > > approval? > > > > > > > > __________________________________________ > > DSL – Something to write home about. > > Just $16.99/mo. or less. > > dsl. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Cris, Welcome,I also second what told you and then some. I hope things went well today. Charlie looks like he has brachy to me and could benefit from band treatment. The thing I want you to understand is that this is just not cosmetic. There are associated risks that go along with plagio such as developemental delays, ear infections, TMJ, vision problems, feeding issues, as well as self esteem issues later in life.I am sorry your ped. is uninformed but that is not uncommon unfortunately.I hope that the scan today will help get you on your way to getting Charlie the help he needs and you want. Let me know how it went. CAROLG --- In Plagiocephaly , " mafiakitn " <mafiakitn@y...> wrote: > > Hi - > > My son, Charlie, is 6.5 months and has a very flat head. I have an > appointment at the neurologist tomorrow so that they can take a scan > of his head. My pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but has also said it > is only a cosmetic issue, not a developmental issue. He doesn't have > any muscular problems turning his head (I think you call this tort?) > and his head isn't asymmetrical. He is just very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional. > (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't want him to hvae > a flat head as a kid or as an adult. Am I within my rights to out and > out request that the neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist what I want? > I wanted to bite my pediatrician when she said " Well, yes, he is > going to have a flat head, but there's nothing wrong with that. " DUH, > doc! > > I know that for cosmetic treatment there is no hope for my insurance > to cover the treatment. I don't care if I have to pay out of pocket > for the helmet; I just want my son to have a beautifully shaped, round > head. > > I have pictures of his head that I would like to post, but am not sure > where or how to do this. SO I posted them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 > in Grand Rapids. We're having a head scan. > > Thanks Everyone! > > Cris in Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Cris, Welcome,I also second what told you and then some. I hope things went well today. Charlie looks like he has brachy to me and could benefit from band treatment. The thing I want you to understand is that this is just not cosmetic. There are associated risks that go along with plagio such as developemental delays, ear infections, TMJ, vision problems, feeding issues, as well as self esteem issues later in life.I am sorry your ped. is uninformed but that is not uncommon unfortunately.I hope that the scan today will help get you on your way to getting Charlie the help he needs and you want. Let me know how it went. CAROLG --- In Plagiocephaly , " mafiakitn " <mafiakitn@y...> wrote: > > Hi - > > My son, Charlie, is 6.5 months and has a very flat head. I have an > appointment at the neurologist tomorrow so that they can take a scan > of his head. My pediatrician has said she is not concerned with his > head, she has admitted that he has a flat head, but has also said it > is only a cosmetic issue, not a developmental issue. He doesn't have > any muscular problems turning his head (I think you call this tort?) > and his head isn't asymmetrical. He is just very flat in the back. > > He's a big boy - 29.5 " and 21lbs 7oz. The flatness is positional. > (He was a caesarean baby) > > I am concerned even though my doctor isn't. I don't want him to hvae > a flat head as a kid or as an adult. Am I within my rights to out and > out request that the neurologist write a prescription for a DOC band? > What wording should I use when telling my neurologist what I want? > I wanted to bite my pediatrician when she said " Well, yes, he is > going to have a flat head, but there's nothing wrong with that. " DUH, > doc! > > I know that for cosmetic treatment there is no hope for my insurance > to cover the treatment. I don't care if I have to pay out of pocket > for the helmet; I just want my son to have a beautifully shaped, round > head. > > I have pictures of his head that I would like to post, but am not sure > where or how to do this. SO I posted them in my own website. > http://i29.photobucket.com/albums/c262/NewestComer/charlieshead.jpg > > Thanks for your suggestion. Our appointment is tomorrow (3/9) at 3:00 > in Grand Rapids. We're having a head scan. > > Thanks Everyone! > > Cris in Michigan > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Welcome! You'll find some company here with the Toronto helmet. There are a few parents here whose children are wearing them! I was always amazed at how well my kids adjusted to their bands too. Mom to Dane 4 yo and Cece 12 mo (DOC Grads) --- In Plagiocephaly , " davemarkcourt " <snmccomb@s...> wrote: > > What a great site. It is a relief to know there are other children > out there with the same condition as our son. We are from Toronto, ON > and were fitted with a helmet at the Hospital for Sick Children. Our > son has been in the helmet for a few days now and it doesn't seem to > bother him. He is now 7 months old (was 5 weeks premature). We had > been asking our doctor about his flat head since he was six weeks old > and she advised that it would go away. It never did. > > Look forward to sharing stories, progress, etc. with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Welcome! You'll find some company here with the Toronto helmet. There are a few parents here whose children are wearing them! I was always amazed at how well my kids adjusted to their bands too. Mom to Dane 4 yo and Cece 12 mo (DOC Grads) --- In Plagiocephaly , " davemarkcourt " <snmccomb@s...> wrote: > > What a great site. It is a relief to know there are other children > out there with the same condition as our son. We are from Toronto, ON > and were fitted with a helmet at the Hospital for Sick Children. Our > son has been in the helmet for a few days now and it doesn't seem to > bother him. He is now 7 months old (was 5 weeks premature). We had > been asking our doctor about his flat head since he was six weeks old > and she advised that it would go away. It never did. > > Look forward to sharing stories, progress, etc. with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hello!! You are not alone in Toronto. We are from Toronto too and my son Jaymin got his helmet from sick kids over a month ago and is doing very well. His progress actually shocked our orthotist. He's 8 months now. I will be posting before and after pictures soon. Maybe we should have a toronto Plagio kids get-together Sharon --- In Plagiocephaly , " davemarkcourt " <snmccomb@s...> wrote: > > What a great site. It is a relief to know there are other children > out there with the same condition as our son. We are from Toronto, ON > and were fitted with a helmet at the Hospital for Sick Children. Our > son has been in the helmet for a few days now and it doesn't seem to > bother him. He is now 7 months old (was 5 weeks premature). We had > been asking our doctor about his flat head since he was six weeks old > and she advised that it would go away. It never did. > > Look forward to sharing stories, progress, etc. with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hello!! You are not alone in Toronto. We are from Toronto too and my son Jaymin got his helmet from sick kids over a month ago and is doing very well. His progress actually shocked our orthotist. He's 8 months now. I will be posting before and after pictures soon. Maybe we should have a toronto Plagio kids get-together Sharon --- In Plagiocephaly , " davemarkcourt " <snmccomb@s...> wrote: > > What a great site. It is a relief to know there are other children > out there with the same condition as our son. We are from Toronto, ON > and were fitted with a helmet at the Hospital for Sick Children. Our > son has been in the helmet for a few days now and it doesn't seem to > bother him. He is now 7 months old (was 5 weeks premature). We had > been asking our doctor about his flat head since he was six weeks old > and she advised that it would go away. It never did. > > Look forward to sharing stories, progress, etc. with you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi, We are from Mississauga and our son's pictures are posted under Mark P. As yours, our Dr. kept telling us that Mark's plagio would go away since our boy was 2 months old. I must admit that his head got better on its own, but just a little bit. Who are you seeing at Sick Kids? davemarkcourt <snmccomb@...> wrote: What a great site. It is a relief to know there are other children out there with the same condition as our son. We are from Toronto, ON and were fitted with a helmet at the Hospital for Sick Children. Our son has been in the helmet for a few days now and it doesn't seem to bother him. He is now 7 months old (was 5 weeks premature). We had been asking our doctor about his flat head since he was six weeks old and she advised that it would go away. It never did.Look forward to sharing stories, progress, etc. with you all. Find your next car at Canada Autos Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Hi, We are from Mississauga and our son's pictures are posted under Mark P. As yours, our Dr. kept telling us that Mark's plagio would go away since our boy was 2 months old. I must admit that his head got better on its own, but just a little bit. Who are you seeing at Sick Kids? davemarkcourt <snmccomb@...> wrote: What a great site. It is a relief to know there are other children out there with the same condition as our son. We are from Toronto, ON and were fitted with a helmet at the Hospital for Sick Children. Our son has been in the helmet for a few days now and it doesn't seem to bother him. He is now 7 months old (was 5 weeks premature). We had been asking our doctor about his flat head since he was six weeks old and she advised that it would go away. It never did.Look forward to sharing stories, progress, etc. with you all. Find your next car at Canada Autos Quote Link to comment Share on other sites More sharing options...
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