Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Bonnie, Welcome to the group! I just wanted to second everything Carol has already told you. Keep us posted. > > Hi. I am new to the group. My son, Wesley, is 6 months old and he just > got the Starband on 1/3/06. We have had to make several return visits for > adjustments. I feel so stupid. I did not realize there was this support group. > I wish I had found this before he got his Starband. I didn't realize there > were so many different kinds of devises. > > Has anyone been to Valentine & Co. in Richmond, Virginia?. I did not > see them listed on the list. I was told they are the only ones in Richmond > that do this. I am really surprised since this is such a big city. We even > have Medical College of Virginia that is very well known. > > Also, my health insurance (Southern Health) had denied the claim saying that > it is just cosmetic. The tips on the website for filing an appeal were very > helpful. It is going to be $1,500, and I had to pay $750 upfront when they > did the cast. I have my fingers crossed it will be appealed. > > Thanks so much ---- Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Bonnie, Welcome to the group! I just wanted to second everything Carol has already told you. Keep us posted. > > Hi. I am new to the group. My son, Wesley, is 6 months old and he just > got the Starband on 1/3/06. We have had to make several return visits for > adjustments. I feel so stupid. I did not realize there was this support group. > I wish I had found this before he got his Starband. I didn't realize there > were so many different kinds of devises. > > Has anyone been to Valentine & Co. in Richmond, Virginia?. I did not > see them listed on the list. I was told they are the only ones in Richmond > that do this. I am really surprised since this is such a big city. We even > have Medical College of Virginia that is very well known. > > Also, my health insurance (Southern Health) had denied the claim saying that > it is just cosmetic. The tips on the website for filing an appeal were very > helpful. It is going to be $1,500, and I had to pay $750 upfront when they > did the cast. I have my fingers crossed it will be appealed. > > Thanks so much ---- Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Bonnie, Welcome to the group. I used to live in Richmond about 10 years ago Anyway it's not uncommon for there to be only one option in town - even bigger towns. Kiersten, 8 months, DOC Band 1/10/06, Tort na, 2 1/2 yrs, DOC Grad Feb 04, Tort Resolved www.thefilyaws.com > > Hi. I am new to the group. My son, Wesley, is 6 months old and he just > got the Starband on 1/3/06. We have had to make several return visits for > adjustments. I feel so stupid. I did not realize there was this support group. > I wish I had found this before he got his Starband. I didn't realize there > were so many different kinds of devises. > > Has anyone been to Valentine & Co. in Richmond, Virginia?. I did not > see them listed on the list. I was told they are the only ones in Richmond > that do this. I am really surprised since this is such a big city. We even > have Medical College of Virginia that is very well known. > > Also, my health insurance (Southern Health) had denied the claim saying that > it is just cosmetic. The tips on the website for filing an appeal were very > helpful. It is going to be $1,500, and I had to pay $750 upfront when they > did the cast. I have my fingers crossed it will be appealed. > > Thanks so much ---- Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi Bonnie, Welcome to the group. I used to live in Richmond about 10 years ago Anyway it's not uncommon for there to be only one option in town - even bigger towns. Kiersten, 8 months, DOC Band 1/10/06, Tort na, 2 1/2 yrs, DOC Grad Feb 04, Tort Resolved www.thefilyaws.com > > Hi. I am new to the group. My son, Wesley, is 6 months old and he just > got the Starband on 1/3/06. We have had to make several return visits for > adjustments. I feel so stupid. I did not realize there was this support group. > I wish I had found this before he got his Starband. I didn't realize there > were so many different kinds of devises. > > Has anyone been to Valentine & Co. in Richmond, Virginia?. I did not > see them listed on the list. I was told they are the only ones in Richmond > that do this. I am really surprised since this is such a big city. We even > have Medical College of Virginia that is very well known. > > Also, my health insurance (Southern Health) had denied the claim saying that > it is just cosmetic. The tips on the website for filing an appeal were very > helpful. It is going to be $1,500, and I had to pay $750 upfront when they > did the cast. I have my fingers crossed it will be appealed. > > Thanks so much ---- Bonnie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 Welcome to the group! It's great to hear that Enbrel is working so well for you. Are you still taking MTX? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] New to group > Hello all, > I have just found this group and registered. > I am 62 and was diagnosed with RA, 2 yrs ago. > My doctor put me on Methotrexate and Etodolac. > I was in remission for about 6 months, then the flares came back > in full force. I was having debilitating flares about every 2 wks. > My doctor put me on Enbrel, and I haven't had a flare for about > 2 1/2 months. I still suffer from some fatigue, but I am able to > work and have my life back. I am grateful to find this website > because there do not seem to be any support groups for RA in my city. > It is good to have contact with others who understand. > > Thank you for being there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2006 Report Share Posted January 21, 2006 -Thank you for the welcome. Yes I do take MTX with Enbrel. Doctor has reduced the amount of MTX a bit, and may reduce even more at some point. Dianne -- In , " " <Matsumura_Clan@m...> wrote: > > Welcome to the group! It's great to hear that Enbrel is working so well for > you. Are you still taking MTX? > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] New to group > > > > Hello all, > > I have just found this group and registered. > > I am 62 and was diagnosed with RA, 2 yrs ago. > > My doctor put me on Methotrexate and Etodolac. > > I was in remission for about 6 months, then the flares came back > > in full force. I was having debilitating flares about every 2 wks. > > My doctor put me on Enbrel, and I haven't had a flare for about > > 2 1/2 months. I still suffer from some fatigue, but I am able to > > work and have my life back. I am grateful to find this website > > because there do not seem to be any support groups for RA in my city. > > It is good to have contact with others who understand. > > > > Thank you for being there. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 In a message dated 1/19/2006 1:47:25 PM Eastern Standard Time, vonita4@... writes: Hello All, This is my first post as I'm new to the group. I have 4 boys and my 6 year old has been diagnosed with Aspergers. He's the 3rd to the last child. We've been aware of his situation since he was 3 and everyday is still a learning process for us. My son is and has always been fascinated by movies. He started with Barney which is harmless. At the age of 3 he knew how to operate the dvd player so he's very independent in that area. He loves Disney movies and he memorizes lines in the movies. He can tell you which actors play in different movies. He's such a blessing. Now that he's 6 he still watches disney movies but now he likes action movies and he imitates the fighting/kicking scene. I'm thinking of enrolling him in a karate class. Well now the problem is that he's threatening to punch teachers and other classmates. He's enrolled in public school and he is that only autistic child in his class. So the teachers have notified me that his behavior is disrupting the other classmates. He's not social so he doesn't have friends. He basically plays by himself on the playground. I recently had a meeting with a few of his teachers and I was very disappointed in their lack of interest in his education. My son is in the 1st grade and can read at a 4th grade level. One teacher told me that when he reads he doesn't understand what he's reading. I let her know that he understands when I ask him. I suggested that maybe they can rephrase a question when asking him and they basically told me that it's too time consuming. I'm so disappointed in his school system. Everyday my child comes home with a note about disruptive behavior. When I dropped him off at school last week I noticed there was a partition that separated him from the rest of the class. I was never notified of this and I had no idea how long it was there. During the meeting we had with his teachers, they informed me that they placed it there because his behavior was distracting the other children. On one day his eraser came off his pencil and he had a very bad day. I felt so angry with this staff. They can't understand how upsetting this one thing can be to my son. I really wish I could afford to stay home and homeschool my son but I can't financially. Every morning when I get him dressed to go to school he tells me that he doesn't want to go and it's been happening more frequently. It's a struggle for me as his mother. I want to protect him from the world. I let him stay home yesterday. It's so hard because I want him to stay home rather than go to school. Any advice on how to handle this? We only have 1 elementary school in our district so transferring him to another school isn't an option. Vonita Hi Vonita, They need to get educated. You should go to wrightslaw.com and start learning about the process and your rights. First, when a child's behavior is interfering with his education or the education of others, they need to do a " functional behavior assessment. " My computer is in the hospital so I don't have my links handy, however you can put that in any search engine and find out about how they work. He needs an IEP and people need to get involved with helping him learn how to behave appropriately and more importantly, how to make friends and be a friend. All of these skills are vital to growing up to be independent. Another thing is that you will have to be the one who pushes these folks to learn about AS and about ways of educating them. I would vigorously advocate for them to attend local conferences, find books or video's and loan them to the teachers (Tony Attwood has a great video on AS, for instance). I would find out where your sped services come from - for example here in Ohio we have " serrc's " which are regional centers of information and education about sped needs. They should be helpful in providing information to you and to the school. Also, try to find a therapist or advocate or doctor in your area who can help you advocate and bring in information as well. Being a small school is no excuse for not providing an appropriate education. You will just have to do a lot of pushing to get it to happen. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Thanks Roxanna. I see that I have a huge road ahead of me and I know that my son's education is most important to me and I don't feel as if the teachers feel the same way. Everyday he's coming home with referrals to the principal's office related to his behavior. They are telling me things like his behavior is frightening the other children. He " growled " in class yesterday. A 6 year old boy growling in class is scaring the other students. I get so mad at this school. He's the only autistic child in his classroom and his behavior definitely stands out from the others. They make a point of telling me this almost daily. Right now I'm considering homeschooling him. I'm just so fed up. I have a lot of research to do and I never ever thought that the school didn't have my son's best interest in mind, until now. Vonita Re: ( ) New to group In a message dated 1/19/2006 1:47:25 PM Eastern Standard Time, vonita4@... writes: Hello All, This is my first post as I'm new to the group. I have 4 boys and my 6 year old has been diagnosed with Aspergers. He's the 3rd to the last child. We've been aware of his situation since he was 3 and everyday is still a learning process for us. My son is and has always been fascinated by movies. He started with Barney which is harmless. At the age of 3 he knew how to operate the dvd player so he's very independent in that area. He loves Disney movies and he memorizes lines in the movies. He can tell you which actors play in different movies. He's such a blessing. Now that he's 6 he still watches disney movies but now he likes action movies and he imitates the fighting/kicking scene. I'm thinking of enrolling him in a karate class. Well now the problem is that he's threatening to punch teachers and other classmates. He's enrolled in public school and he is that only autistic child in his class. So the teachers have notified me that his behavior is disrupting the other classmates. He's not social so he doesn't have friends. He basically plays by himself on the playground. I recently had a meeting with a few of his teachers and I was very disappointed in their lack of interest in his education. My son is in the 1st grade and can read at a 4th grade level. One teacher told me that when he reads he doesn't understand what he's reading. I let her know that he understands when I ask him. I suggested that maybe they can rephrase a question when asking him and they basically told me that it's too time consuming. I'm so disappointed in his school system. Everyday my child comes home with a note about disruptive behavior. When I dropped him off at school last week I noticed there was a partition that separated him from the rest of the class. I was never notified of this and I had no idea how long it was there. During the meeting we had with his teachers, they informed me that they placed it there because his behavior was distracting the other children. On one day his eraser came off his pencil and he had a very bad day. I felt so angry with this staff. They can't understand how upsetting this one thing can be to my son. I really wish I could afford to stay home and homeschool my son but I can't financially. Every morning when I get him dressed to go to school he tells me that he doesn't want to go and it's been happening more frequently. It's a struggle for me as his mother. I want to protect him from the world. I let him stay home yesterday. It's so hard because I want him to stay home rather than go to school. Any advice on how to handle this? We only have 1 elementary school in our district so transferring him to another school isn't an option. Vonita Hi Vonita, They need to get educated. You should go to wrightslaw.com and start learning about the process and your rights. First, when a child's behavior is interfering with his education or the education of others, they need to do a " functional behavior assessment. " My computer is in the hospital so I don't have my links handy, however you can put that in any search engine and find out about how they work. He needs an IEP and people need to get involved with helping him learn how to behave appropriately and more importantly, how to make friends and be a friend. All of these skills are vital to growing up to be independent. Another thing is that you will have to be the one who pushes these folks to learn about AS and about ways of educating them. I would vigorously advocate for them to attend local conferences, find books or video's and loan them to the teachers (Tony Attwood has a great video on AS, for instance). I would find out where your sped services come from - for example here in Ohio we have " serrc's " which are regional centers of information and education about sped needs. They should be helpful in providing information to you and to the school. Also, try to find a therapist or advocate or doctor in your area who can help you advocate and bring in information as well. Being a small school is no excuse for not providing an appropriate education. You will just have to do a lot of pushing to get it to happen. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 On Wed, 2006-01-25 at 11:13, vonitabjn wrote: > Thanks Roxanna. I see that I have a huge road ahead of me and I know > that my son's education is most important to me and I don't feel as > if the teachers feel the same way. Everyday he's coming home with > referrals to the principal's office related to his behavior. They are > telling me things like his behavior is frightening the other > children. He " growled " in class yesterday. A 6 year old boy growling > in class is scaring the other students. I get so mad at this school. > He's the only autistic child in his classroom and his behavior > definitely stands out from the others. They make a point of telling > me this almost daily. Right now I'm considering homeschooling him. > I'm just so fed up. I have a lot of research to do and I never ever > thought that the school didn't have my son's best interest in mind, > until now. ** There is a really good Aspie homeschooling list if you are interested in that. I have been homeschooling mine and I've noticed that his behaviors are so much easier to manage. ** ** > > ______________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Thanks I'm interested. Vonita > > Thanks Roxanna. I see that I have a huge road ahead of me and I know > > that my son's education is most important to me and I don't feel as > > if the teachers feel the same way. Everyday he's coming home with > > referrals to the principal's office related to his behavior. They are > > telling me things like his behavior is frightening the other > > children. He " growled " in class yesterday. A 6 year old boy growling > > in class is scaring the other students. I get so mad at this school. > > He's the only autistic child in his classroom and his behavior > > definitely stands out from the others. They make a point of telling > > me this almost daily. Right now I'm considering homeschooling him. > > I'm just so fed up. I have a lot of research to do and I never ever > > thought that the school didn't have my son's best interest in mind, > > until now. > > ** There is a really good Aspie homeschooling list if you are interested > in that. I have been homeschooling mine and I've noticed that his > behaviors are so much easier to manage. > > ** ** > > > > ______________________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 Thanks I'm interested. Vonita > > Thanks Roxanna. I see that I have a huge road ahead of me and I know > > that my son's education is most important to me and I don't feel as > > if the teachers feel the same way. Everyday he's coming home with > > referrals to the principal's office related to his behavior. They are > > telling me things like his behavior is frightening the other > > children. He " growled " in class yesterday. A 6 year old boy growling > > in class is scaring the other students. I get so mad at this school. > > He's the only autistic child in his classroom and his behavior > > definitely stands out from the others. They make a point of telling > > me this almost daily. Right now I'm considering homeschooling him. > > I'm just so fed up. I have a lot of research to do and I never ever > > thought that the school didn't have my son's best interest in mind, > > until now. > > ** There is a really good Aspie homeschooling list if you are interested > in that. I have been homeschooling mine and I've noticed that his > behaviors are so much easier to manage. > > ** ** > > > > ______________________________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2006 Report Share Posted January 26, 2006 On Thu, 2006-01-26 at 14:05, vonitabjn wrote: > Thanks I'm interested. ** The name of the group is asyoulikeit It's a great group with a lot of really cool people! I highly recommend it. My Aspie does so well, I know he'd have been lost in the cracks at public school. Here at home he learns at his own pace AND does things at levels way faster then they could accomidate at public schools. Plus I have the added help of having therapies that I can schedule during the day instead of after school. He's doing wonderfully and I highly recommend homeschooling to parents who feel up to it. It's a challenge but in certain areas homeschooling is just SO much better! Here in Texas its great! ** ** > > ______________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 On Thu, 2006-01-26 at 14:05, vonitabjn wrote: > Thanks I'm interested. > ** Check out the group asyoulikeit It's worth it. ** Li Ferelwing ** > > ______________________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 In a message dated 1/26/2006 1:55:59 PM Eastern Standard Time, vonita4@... writes: Thanks Roxanna. I see that I have a huge road ahead of me and I know that my son's education is most important to me and I don't feel as if the teachers feel the same way. Everyday he's coming home with referrals to the principal's office related to his behavior. They are telling me things like his behavior is frightening the other children. He " growled " in class yesterday. A 6 year old boy growling in class is scaring the other students. I get so mad at this school. He's the only autistic child in his classroom and his behavior definitely stands out from the others. They make a point of telling me this almost daily. Right now I'm considering homeschooling him. I'm just so fed up. I have a lot of research to do and I never ever thought that the school didn't have my son's best interest in mind, until now. I remember the moment I realized that the school didn't have my child's best interest at heart. Ack! It is hard not to get jaded by the process but try to remember that there are people in places who can be helpful and who want to help. But there are also people who don't understand or who hate to change the way things have always been done. As for his growling scaring other kids, I doubt it. These are kids who watch tv. lol. They probably all know how to stomp bad guys in video games as well without flinching. But it probably wouldn't hurt to do some kind of information sharing with the class about autism and how this affects behaviors. Y ou could write a mini story about your son to share with his classmates that explains his autism and behaviors to them so that they are not scared by anything. You could also end the story by suggesting ways that they can help. It might clue the teacher in as well. lol. Roxanna ô¿ö Autism Happens Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 > > My question for this group is this, does any one or has any one tried > a no drug treatment for thier child? We are currently on a diet that > has helped signifigantly [although was a huge shock to 's > emotional system] but the Docs keep suggesting medical drug > treatment. Tammy, Why are they suggesting drug treatment? I mean, for what symptoms? Are they symptoms that interfere with his learning ability? Social skills? Aggression? Are they symptoms you (or he) have not been able to manage? I would ask yourself those questions before you put him on any drug treatment. Theresa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 In a message dated 2/21/2006 3:05:50 PM Eastern Standard Time, jessejames_outlaw2000@... writes: Essentially they want to " slow down " his thought process, remedialize him. I do not want him treated as though he is ADHD, which is how they want to treat him, with drugs. He is not agressive, he can be easily agrivated, but only lashes by shutting down, not by actions. My techniques with jesse have been in visual recognition, get him to look at me, rather than through me, and he's very responsive, but he manipultes them into thinking they can't get that from him. It sounds like the school personnel want you to use ritalin, is that it? I personally would not discuss medication with school employees. They can discuss any behaviors with me and I will discuss it with my son's doctor. But they aren't qualified to recommend medication at all. If you prefer not to use medication and would like them to use behavior strategies to get him to interact, then they need to do that. Roxanna ô¿ô Don't take life too seriously; No one gets out alive. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2006 Report Share Posted February 21, 2006 > Tammy, > Why are they suggesting drug treatment? I mean, for what symptoms? Are > they symptoms that interfere with his learning ability? Social skills? > Aggression? Are they symptoms you (or he) have not been able to manage? > I would ask yourself those questions before you put him on any drug > treatment. > > Theresa > Essentially they want to " slow down " his thought process, remedialize him. I do not want him treated as though he is ADHD, which is how they want to treat him, with drugs. He is not agressive, he can be easily agrivated, but only lashes by shutting down, not by actions. My techniques with jesse have been in visual recognition, get him to look at me, rather than through me, and he's very responsive, but he manipultes them into thinking they can't get that from him. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi, Tammy, I am new to the group also. I am a mobile therapist/behavior specialist who wors with AS children. My one client,was on a gluten-free diet, but now his mom concentrates on no red dyes and added sugars. His parents do not want him on meds because he becomes very aggressive. He is doing wonderfully without any kind of meds. He does have his days thougth. Another client of mine who has RAD has just started vision therapy. It sounds wonderful and is very interesting on how the sections of the brain work. Miranda > > Hi, My name is Tammy - I am new to this group and my 7 year old was > reciently diagnosed AS [but not after ADD/ADHD and high functioning > Autism]. He is a wonderful smart child, with a very on the surface > caring nature [on the outside]. He's very clever though, and has > learned the art of manipulation. He is one of 5 children at home, and > would qualify as a middle child so so speak. He is in the 1st grade, > in SP ED, has OT twice a week as well as Speech Therapy. > My question for this group is this, does any one or has any one tried > a no drug treatment for thier child? We are currently on a diet that > has helped signifigantly [although was a huge shock to 's > emotional system] but the Docs keep suggesting medical drug > treatment. Also has any one used or tried vision therapy, I have a > consultation scheduled for next week. > > I am reading through the archives [slowly] and hope to learn a lot > here. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi, Tammy, I am new to the group also. I am a mobile therapist/behavior specialist who wors with AS children. My one client,was on a gluten-free diet, but now his mom concentrates on no red dyes and added sugars. His parents do not want him on meds because he becomes very aggressive. He is doing wonderfully without any kind of meds. He does have his days thougth. Another client of mine who has RAD has just started vision therapy. It sounds wonderful and is very interesting on how the sections of the brain work. Miranda > > Hi, My name is Tammy - I am new to this group and my 7 year old was > reciently diagnosed AS [but not after ADD/ADHD and high functioning > Autism]. He is a wonderful smart child, with a very on the surface > caring nature [on the outside]. He's very clever though, and has > learned the art of manipulation. He is one of 5 children at home, and > would qualify as a middle child so so speak. He is in the 1st grade, > in SP ED, has OT twice a week as well as Speech Therapy. > My question for this group is this, does any one or has any one tried > a no drug treatment for thier child? We are currently on a diet that > has helped signifigantly [although was a huge shock to 's > emotional system] but the Docs keep suggesting medical drug > treatment. Also has any one used or tried vision therapy, I have a > consultation scheduled for next week. > > I am reading through the archives [slowly] and hope to learn a lot > here. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2006 Report Share Posted February 23, 2006 Hi there, I am sorry to hear that your daughter has this disease. I have RA for almost 5 years....I use to be a weight lifter and even at first I kept going but after awhile the pain and fatigue took over me. I did quit all my sport activities...However each and everyone of us are different. Some are more effected than others. I think your daughter needs a good long talk with a rheumatologist. Maybe you can even go with her. My own personal opinion would be to tell her that you respect her choices and that no matter what she decides to do that you will be there for her. Having positive family support is very very important and not everybody has that. ( I am lucky enough to have lots of family support). But at 21 I am sure she thinks she can make all the right choices for herself........This is a very stubborn disease and when it decides that our bodies can't do no then our bodies hurt so bad that we can't. All I suggest is a good rheumatologist and lots of support. You sound like you love your daughter very much and so she is very lucky! If you have any questions pls feel free to ask. Corinne wrote: > Hi everyone: > > My daughter, who just turned 21, has been diagnosed with RA. She is a > college student on an athletic scholarship for softball and has had > pain for over a year but it was treated as sports injuries until just > recently. She is very physically fit, not overweight and usually very > active. > > She is not doing well, she is extremely fatigued, having trouble with > her classes, in a lot of pain, right now she has a lot of pain and > swelling in her hands and wrists. She wakes up very swollen and in a > lot of pain most mornings. > > Of course, she does not want to give up softball, she is on the dean's > list but has gotten two " F's " this semester and is having trouble > keeping up with her activities and classes. She is on several > university task forces and very busy. > > Right now she is on Relafen, she was on something else, began with > an " N " for a few weeks but that affected her vision. > > And, she is away, the rheumatologist is here, hard to get her home, I > am torn between dragging her home or letting her work it out herself, > because, after all, she is 21 and doesn't need me to take care of her > any longer. The only reason I know she is not doing well is her > roommate told me. > > Does anyone have any ideas that I can pass on to her to try to help her > out? I have been reading everything I can find online but I find most > of the information confusing and sometimes even contradictory. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2006 Report Share Posted February 24, 2006 In a message dated 2/23/2006 10:28:25 PM Central Standard Time, Corinne@... writes: I > am torn between dragging her home or letting her work it out herself, > because, after all, she is 21 and doesn't need me to take care of her > any longer. The only reason I know she is not doing well is her > roommate told me. > > Does anyone have any ideas that I can pass on to her to try to help her > out? I have been reading everything I can find online but I find most > of the information confusing and sometimes even contradictory. > Dear , Sorry to hear your daughter was doagnosed with RA so young. My best advice to you is have her sit down with a Rheumatologist To discuss her options and treatment. Maybe even go with her if it will help. Let her know you love her and respect her independance, but are there for her no matter what. Unfortunately, RA is a very stubborn, and sometimes very agressive disease to deal with. The earlier the treatment, the better. Let her know that she dosent have to quit her lifestyle, maybe just make some small adjustments. HUGS hope i could be some help. from PA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2006 Report Share Posted February 25, 2006 > > > > > In a message dated 2/23/2006 10:28:25 PM Central Standard Time, > Corinne@... writes: > > I > > am torn between dragging her home or letting her work it out herself, > > because, after all, she is 21 and doesn't need me to take care of her > > any longer. The only reason I know she is not doing well is her > > roommate told me. > > > > Does anyone have any ideas that I can pass on to her to try to help her > > out? I have been reading everything I can find online but I find most > > of the information confusing and sometimes even contradictory. > > > > >Dear Perhaps your daughter should have a rheumatologist near her campus that would work with the one at home. She can't be " dragged home " with every flare but school health services might not be the best Dr. for her, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Sounds like your daughter has an incredible will power: mind over matter. Although I am much older than she, she reminds me of myself in that respect, I never complain and keep going until I crash. Truth is, your daughter will know when it is time to stop. Don't make that decision for her, deep down, she might hold a bit of a grudge, I know, I would because I have to live life on my terms. Hang in there. sasupbin <sasupbin@...> wrote: > > > > > In a message dated 2/23/2006 10:28:25 PM Central Standard Time, > Corinne@... writes: > > I > > am torn between dragging her home or letting her work it out herself, > > because, after all, she is 21 and doesn't need me to take care of her > > any longer. The only reason I know she is not doing well is her > > roommate told me. > > > > Does anyone have any ideas that I can pass on to her to try to help her > > out? I have been reading everything I can find online but I find most > > of the information confusing and sometimes even contradictory. > > > > >Dear Perhaps your daughter should have a rheumatologist near her campus that would work with the one at home. She can't be " dragged home " with every flare but school health services might not be the best Dr. for her, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 > > Hi > I just joined today and I need some support. After 25 years on my job > and a supervisor for 18 of them I am being demoted and moved to > another dept. mostly because my illness has caused me to be out of > work a lot. I kept struggling to keep up but just couldn't always > pull it off. I have RA and just started treatment with an RA doc who > has me on MTX. Two years ago it was iritis that led to cataracts that > led to a vitrectomy. My boss, needless to say, thinks I just use my > illness as an excuse for not doing my job. I feel so depressed and > alone. I live alone and must support myself. Last month I fell and > cut my leg so bad I almost removed a 6 inch chunk of the leg. It was > repaired and I was on crutches and out of work for 2 and i/2 weeks. I > guess that was the last straw for the boss. He told me this week that > I'm out. > That's all for now. I'm just at a loss. > MA > MA....Most people start to get better relief after the first year, although it is far from normal, it should get better. Tell your Dr about your problem at work. You might want to check out the Americans with Disabilities Act. Search it online. You may be protected by law against demotion, or any other action by your employer because of your illness. Check out the forum for RA at arthritis.org (Arthritis Foundation). Dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2006 Report Share Posted March 11, 2006 The first thing to do is familarize yourself with the Americams With Disabilities Act! It has many provisions to protect you and your job. I learned the hard way, I got laid off when I was 46 and working as a manager. I got demoted, demeaned, and deserted (laid off) after 20 years. When I had been laid off, the ADA specified that the employer, under certain conditions, absolutely had to spend a maximum of $25,000 to 'accomodate' for each disabled employee, if they wanted to. Now there are more avenues for you, so start doing your homework, recognise your depression (if you donn't have it now, you'll have it soon), and look for an ADA-familiar lawyer. I wish you luck, I know how hard it can be. Dennis [ ] new to group > Hi > I just joined today and I need some support. After 25 years on my job > and a supervisor for 18 of them I am being demoted and moved to > another dept. mostly because my illness has caused me to be out of > work a lot. I kept struggling to keep up but just couldn't always > pull it off. I have RA and just started treatment with an RA doc who > has me on MTX. Two years ago it was iritis that led to cataracts that > led to a vitrectomy. My boss, needless to say, thinks I just use my > illness as an excuse for not doing my job. I feel so depressed and > alone. I live alone and must support myself. Last month I fell and > cut my leg so bad I almost removed a 6 inch chunk of the leg. It was > repaired and I was on crutches and out of work for 2 and i/2 weeks. I > guess that was the last straw for the boss. He told me this week that > I'm out. > That's all for now. I'm just at a loss. > MA Quote Link to comment Share on other sites More sharing options...
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