Guest guest Posted April 8, 2006 Report Share Posted April 8, 2006 Hi Cyndi, Welcome to the group! I see you've already received some great answers. I just wanted to say hello and welcome. Keep us posted. -- In Plagiocephaly , " mrsmalo3 " <mrsmalo3@...> wrote: > > Hi everyone- > My son is 8 months old and has had positional plagiocephaly from birth. > He had a severe flat spot on the right side and brachycephaly was soon > to follow. My son has had more tummy time than any other baby I know, > and we rarely put him on his back. We tried to re-position him...never > worked.The doctor kept saying " It will round out " ...I'm sure you've > heard that one, too. She made me feel so stupid when I tried to get a > referral for a spceialist. 8 months later we've changed doctors and he > finally got a Star Band. He's on day 6 of the band. I'm just hoping to > see some results. We had to pay $1500 b/c the insurance said it was > possibly cosmetic. I'm just a little depressed that I waited so long > instead of trusting my instinct that I should have been more assertive > from day one. Do you think I'll see results even though I started at 8 > months? Thanks for any input you may have. Also, my son is sooooo > sweaty in the band. Any suggestions? > Thank you! > Cyndi, mommy to Dylan > Starband for plagio/brach on 4/4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Hi Cyndi, My son started at 8.5 mos and we are pretty happy so far. He may graduate in 2 more weeks after 12 weeks of treatment. He'll be 11.5 mos. at graduation. He had brachy and started with a 95% cephalic ratio. His last scan at 8 weeks revealed he was down to 90%. We're hoping at graduation we'll be in the mid 80's. Visually..I think his improvement is even better. When I take his helmet off to show people..they are amazed. I think you'll be happy. As far as your experience with your ped.. it's not uncommom. No one understood what I saw either. In the end..I trusted my gut just like you. It will be worth the effort. Kudos to you for sticking with this and never giving up. Good luck!! Mommy to Mason - STARBand 1/26 at 8.mos for brachy > > Hi everyone- > My son is 8 months old and has had positional plagiocephaly from birth. > He had a severe flat spot on the right side and brachycephaly was soon > to follow. My son has had more tummy time than any other baby I know, > and we rarely put him on his back. We tried to re-position him...never > worked.The doctor kept saying " It will round out " ...I'm sure you've > heard that one, too. She made me feel so stupid when I tried to get a > referral for a spceialist. 8 months later we've changed doctors and he > finally got a Star Band. He's on day 6 of the band. I'm just hoping to > see some results. We had to pay $1500 b/c the insurance said it was > possibly cosmetic. I'm just a little depressed that I waited so long > instead of trusting my instinct that I should have been more assertive > from day one. Do you think I'll see results even though I started at 8 > months? Thanks for any input you may have. Also, my son is sooooo > sweaty in the band. Any suggestions? > Thank you! > Cyndi, mommy to Dylan > Starband for plagio/brach on 4/4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Forgot to address the sweating. It will get better once the body adjusts. Also..try Loreal Blue Berry Smoothie shampoo. It helps to combat stinky head! > > Hi everyone- > My son is 8 months old and has had positional plagiocephaly from birth. > He had a severe flat spot on the right side and brachycephaly was soon > to follow. My son has had more tummy time than any other baby I know, > and we rarely put him on his back. We tried to re-position him...never > worked.The doctor kept saying " It will round out " ...I'm sure you've > heard that one, too. She made me feel so stupid when I tried to get a > referral for a spceialist. 8 months later we've changed doctors and he > finally got a Star Band. He's on day 6 of the band. I'm just hoping to > see some results. We had to pay $1500 b/c the insurance said it was > possibly cosmetic. I'm just a little depressed that I waited so long > instead of trusting my instinct that I should have been more assertive > from day one. Do you think I'll see results even though I started at 8 > months? Thanks for any input you may have. Also, my son is sooooo > sweaty in the band. Any suggestions? > Thank you! > Cyndi, mommy to Dylan > Starband for plagio/brach on 4/4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Hi Cyndi I just wanted to welcome you to the group. I will keep my fingers crossed for some good growthspurts. ) Sandy Willow's Mom Torticollis resolved Cranio Germany Grad > > Hi everyone- > My son is 8 months old and has had positional plagiocephaly from birth. > He had a severe flat spot on the right side and brachycephaly was soon > to follow. My son has had more tummy time than any other baby I know, > and we rarely put him on his back. We tried to re-position him...never > worked.The doctor kept saying " It will round out " ...I'm sure you've > heard that one, too. She made me feel so stupid when I tried to get a > referral for a spceialist. 8 months later we've changed doctors and he > finally got a Star Band. He's on day 6 of the band. I'm just hoping to > see some results. We had to pay $1500 b/c the insurance said it was > possibly cosmetic. I'm just a little depressed that I waited so long > instead of trusting my instinct that I should have been more assertive > from day one. Do you think I'll see results even though I started at 8 > months? Thanks for any input you may have. Also, my son is sooooo > sweaty in the band. Any suggestions? > Thank you! > Cyndi, mommy to Dylan > Starband for plagio/brach on 4/4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2006 Report Share Posted April 9, 2006 Welcome to the group. We too heard " it'll round out " from a few different doctors. I think that Plagio isn't always due to not enough tummy time. We have twins and our daughter spend way more time on her back than her brother did and he is the one with plagio. Go figure. Good luck with your insurance. It can be a major struggle but alot of people have success with appealing their insurance companies. Haylee mom to andre doc band grad > > Hi everyone- > My son is 8 months old and has had positional plagiocephaly from birth. > He had a severe flat spot on the right side and brachycephaly was soon > to follow. My son has had more tummy time than any other baby I know, > and we rarely put him on his back. We tried to re-position him...never > worked.The doctor kept saying " It will round out " ...I'm sure you've > heard that one, too. She made me feel so stupid when I tried to get a > referral for a spceialist. 8 months later we've changed doctors and he > finally got a Star Band. He's on day 6 of the band. I'm just hoping to > see some results. We had to pay $1500 b/c the insurance said it was > possibly cosmetic. I'm just a little depressed that I waited so long > instead of trusting my instinct that I should have been more assertive > from day one. Do you think I'll see results even though I started at 8 > months? Thanks for any input you may have. Also, my son is sooooo > sweaty in the band. Any suggestions? > Thank you! > Cyndi, mommy to Dylan > Starband for plagio/brach on 4/4/06 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Hi Welcome to the group! Repositioining does work, but it must be done 24 hours a day everyday. Keeping him off his flat spot just some of the time isn't going to work. Check out our files section there's a repositioining headquarters folder in there. I'm sure you'll find a lot of helpful info in there. Good luck and please keep us posted. -- In Plagiocephaly , <darwin312003@...> wrote: > > Hello, > > I've just found and joined the group yesterday. My son , 18 weeks old, has developed a flat area on the back, right side of his head. I would say between 1 and 2 on the posterior flattening line of the cranialtech diagrams in the file section. > > We've just had our four month check-up with the pediatrician and he basically said it will correct itself as spends more time upright or on his tummy. He recommended using a rolled up receiving blanket to keep him on the side opposite the flat area at night. He indicated a head band or helmet would be a last resort and we would see what things looked like at the six month check-up. > > I guess I am a little nervous and unsure having never heard of plagiocephaly until now, and worried there is limited time in which to correct things. Just looking for a little encouragement or advice! > > Thanks! > > in New Jersey > > > --------------------------------- > New Messenger with Voice. Call regular phones from your PC and save big. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 Hi Welcome to the group. I have a son too. I have to tell you that my Ped said the same thing about all three of my triplet boys and he was wrong. He said that it would go away if I did repo, but it didn't. is now in a docband since Friday. He just turned a year. I am sorry that I waited as long as I did. This is just my experience. Maybe is different. Thanks, Jess, DocBand 04/14/06<darwin312003@...> wrote: Hello, I've just found and joined the group yesterday. My son , 18 weeks old, has developed a flat area on the back, right side of his head. I would say between 1 and 2 on the posterior flattening line of the cranialtech diagrams in the file section. We've just had our four month check-up with the pediatrician and he basically said it will correct itself as spends more time upright or on his tummy. He recommended using a rolled up receiving blanket to keep him on the side opposite the flat area at night. He indicated a head band or helmet would be a last resort and we would see what things looked like at the six month check-up. I guess I am a little nervous and unsure having never heard of plagiocephaly until now, and worried there is limited time in which to correct things. Just looking for a little encouragement or advice! Thanks! in New Jersey New Messenger with Voice. Call regular phones from your PC and save big. Thank you, JessRemember to visit our webpage at:http://www.geocities.com/boystripletmom/ Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Welcome to the group. Good luck repositioning. I hope it works and you can avoid a band. There is definitly a time limit in treatment. The sooner the better. If you would rather get a band now you could get a second opinion. We didn't get in until 8 months and then had fit issues with the band and before we knew it he was 12 months and then it is too late. Well not too late but within the first year is best. Haylee mom to andre doc band grad > > Hello, > > I've just found and joined the group yesterday. My son , 18 weeks old, has developed a flat area on the back, right side of his head. I would say between 1 and 2 on the posterior flattening line of the cranialtech diagrams in the file section. > > We've just had our four month check-up with the pediatrician and he basically said it will correct itself as spends more time upright or on his tummy. He recommended using a rolled up receiving blanket to keep him on the side opposite the flat area at night. He indicated a head band or helmet would be a last resort and we would see what things looked like at the six month check-up. > > I guess I am a little nervous and unsure having never heard of plagiocephaly until now, and worried there is limited time in which to correct things. Just looking for a little encouragement or advice! > > Thanks! > > in New Jersey > > > --------------------------------- > New Messenger with Voice. Call regular phones from your PC and save big. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hi a and welcome to the group! I am glad to hear that you and your partner are already seeing improvement. I am a little confused on who " he " is when you say you're a little bit scared of what " he " will say about it. Is the he your son or your ortho?? Anyway good luck on your check up let us know how it goes. Isabelle 8 mos STARband 1/31/06 > > hi everyone, my name is michaela and my sons name is billy. he has > been wearing his cranio helmet for 5 weeks now and we have our 1st > check up on sunday. my partner and i think there is a dramatic change > which is great but i still feel a bit scared of what he will say to us > about it. has anyone else felt like this. > > michaela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hey a, I'm always nervous going to the ortho...but mine was more b/c I DIDN'T see any improvement the first 1.5months! But if y'all see a change, then there probably is something to it...good luck! Bye, (Max DOCbanded 2/7) > > hi everyone, my name is michaela and my sons name is billy. he has > been wearing his cranio helmet for 5 weeks now and we have our 1st > check up on sunday. my partner and i think there is a dramatic change > which is great but i still feel a bit scared of what he will say to us > about it. has anyone else felt like this. > > michaela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2006 Report Share Posted April 23, 2006 Hi and welcome! >>>I am looking for any information that will help me to discuss with the doctor our results and options from the tests. I'm not sure if you are looking for some input at this point or not. If so, what specifically are you dealing with? If not, I hope the tests come out fine. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 If you are talking about what your son will say about it when he is older I totally know what you mean. I worry almost everyday what my son will say about his head. All the doctors say he won't notice but I am pretty sure he will. I have no idea what I am going to say to him about it. Haylee mom to andre doc band grad > > hi everyone, my name is michaela and my sons name is billy. he has > been wearing his cranio helmet for 5 weeks now and we have our 1st > check up on sunday. my partner and i think there is a dramatic change > which is great but i still feel a bit scared of what he will say to us > about it. has anyone else felt like this. > > michaela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Welcome, ! It's terrible that your sister is suffering so. Was she diagnosed by a rheumatologist? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] New to group Hello my name is and my sister who does not have a computer was just diagnosed with fibromyalgia. She has had a awful time this past winter. She had 2 heart attacks and continues to have awful chest pain but all her test shows it's not her heart. She also has alot of body pain, swelling in her legs, feet, stomach and hands. She has real bad headaches migraines, High blood pressure, diabetes, arthritis, stomach issues and a lot of other issues. She is only 31 and is really suffering and has been in and out of the hospital. She has been on a few different pain meds with out much relief and her quality of life is really going down. I am just trying to figure out and get as much info on this condition as I can for her. Can any of you share what has worked for you for pain and swelling? Is there anything we can do to help her more that the doctors don't tell us?? I am looking forward to getting to know all of you. Thank you all and God Bless, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 , one thing I learned is that women don't present the same symptoms of a heart attack as men. My sister and a few others I know have had this problem and might have died if not properly diagnosed. I'm not trying to scare you or her, but it is something to discuss with her doctor. I wish her luck. Dennis [ ] New to group Hello my name is and my sister who does not have a computer was just diagnosed with fibromyalgia. She has had a awful time this past winter. She had 2 heart attacks and continues to have awful chest pain but all her test shows it's not her heart. She also has alot of body pain, swelling in her legs, feet, stomach and hands. She has real bad headaches migraines, High blood pressure, diabetes, arthritis, stomach issues and a lot of other issues. She is only 31 and is really suffering and has been in and out of the hospital. She has been on a few different pain meds with out much relief and her quality of life is really going down. I am just trying to figure out and get as much info on this condition as I can for her. Can any of you share what has worked for you for pain and swelling? Is there anything we can do to help her more that the doctors don't tell us?? I am looking forward to getting to know all of you. Thank you all and God Bless, . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hello and thank you for the welcome. Yes my sister was dx by a rheumatologist I also forgot to mention she also has R.A and is having a time with that. He hands hurt all the time and hips knees and feet ache alot also. She was doing so much better before the heart attacks but she has really went down hill since then and it's really had an affect on her children they are scared to death for her way to much for a 12 and 13 year old to face. God Bless, . > > Welcome, ! It's terrible that your sister is suffering so. > > Was she diagnosed by a rheumatologist? > > > > Not an MD > > I'll tell you where to go! > > Mayo Clinic in Rochester > http://www.mayoclinic.org/rochester > > s Hopkins Medicine > http://www.hopkinsmedicine.org > > > [ ] New to group > > > Hello my name is and my sister who does not have a computer was just > diagnosed with fibromyalgia. She has had a awful time this past winter. > She had 2 heart attacks and continues to have awful chest pain but all her > test shows it's not her heart. She also has alot of body pain, swelling in > her legs, feet, stomach and hands. She has real bad headaches migraines, > High blood pressure, diabetes, arthritis, stomach issues and a lot of other > issues. She is only 31 and is really suffering and has been in and out of > the hospital. She has been on a few different pain meds with out much > relief and her quality of life is really going down. I am just trying to > figure out and get as much info on this condition as I can for her. > Can any of you share what has worked for you for pain and swelling? Is > there anything we can do to help her more that the doctors don't tell us?? > I am looking forward to getting to know all of you. > > Thank you all and God Bless, > > . > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi ! Welcome! I am sorry to hear about your sister. You've come to the right place for info.! Sometimes anti-inflammatory (however u speel it) seems to help reduce swelling and inflamation, however; with her stomach issues - it would be best to check with a qualified physician. They may try prednisone therapy which helps a lot of people with inflamtion and even pain. I am sorry that I can't offer much more help. Please be patient while others have a chance to respond with more info regarding the fibromyalgia! Hang in there and take care. God Bless! Kim --- lisa owen <lisa42994@...> wrote: > Hello my name is and my sister who does not > have a computer was just diagnosed with > fibromyalgia. She has had a awful time this past > winter. She had 2 heart attacks and continues to > have awful chest pain but all her test shows it's > not her heart. She also has alot of body pain, > swelling in her legs, feet, stomach and hands. She > has real bad headaches migraines, High blood > pressure, diabetes, arthritis, stomach issues and a > lot of other issues. She is only 31 and is really > suffering and has been in and out of the hospital. > She has been on a few different pain meds with out > much relief and her quality of life is really going > down. I am just trying to figure out and get as > much info on this condition as I can for her. > Can any of you share what has worked for you for > pain and swelling? Is there anything we can do to > help her more that the doctors don't tell us?? > I am looking forward to getting to know all of > you. > > Thank you all and God Bless, > > . > > > > --------------------------------- > How low will we go? Check out Messenger’s low > PC-to-Phone call rates. > > [Non-text portions of this message have been > removed] > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 26, 2006 Report Share Posted April 26, 2006 Hi a It is great that you are seing changes, that just means he is growing. It is normal to be nervous / excited about adjustment appointments. Let us know how it went. Sandy Willow's Mom Tort resolved Plagio resolved > > hi everyone, my name is michaela and my sons name is billy. he has > been wearing his cranio helmet for 5 weeks now and we have our 1st > check up on sunday. my partner and i think there is a dramatic change > which is great but i still feel a bit scared of what he will say to us > about it. has anyone else felt like this. > > michaela > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2006 Report Share Posted April 27, 2006 Don't know much cause I am new myself, but see a really good Neuro/Devel/Ped. they can tell you what to do. As well let Early Intervention take a shot, not much time since it ends at 3yrs. A great book to read it " THE LATE TALKER " By Dr. Marlyn Agin. Good Luck Annette mandybunn <mandy_bunn@...> wrote: I am new to the group. I have a 29 month old daughter that was recently diagnosed with dyspraxia. We have only seen a therapist twice for evaluations and she came up with this diagnosis. Since then we have only had one session scheduled per month as the therapist is extremely busy. Based on some of the reading I have done, it seems that a much more intense therapy schedule is recommended. I am in the San , Texas area, does anyone have any recommendations for providers in this area? My daughter doesn't have any problems with her motor skills or in understanding what she is told, but has a limited one-word vocabulary. She communicates mostly through hand signals. She trys to repeat what is said to her, songs she hears, etc., but when it is more than one word, it sounds different each time she repeats it. I also have a 9 year old son who had no delays in speech or behavioral problems and in fact is at the top of his class. I have just begun researching dyspraxia, apraxia, etc., to try and understand it and what causes, treats it, etc. and have purchased the book the late talker. Are there any recommendations on additional research materials? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Gigi, Hi, I am also getting my implants removed, we share the same symptoms as well, except mine is more on my right side. I hear that Dr. Melmed is a great PS. I am going to Dr. Kolb. If you don't have the extra money maybe you should just get the en-bloc and removal, get the lift later if needed. I can't wait to get mine out. I am like you got sick soon after implants. I got mine in on feb 22, 2005. Thanks Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Patty explained that very well. I totally agree with you Patty. I have been sick since implants, I e-mailed Dr.M and he said Why don't you just go back to your original PS. I was appalled. I am taking my health serious. I know I am sick and I know why.. Dr. Feng I hear is great as well as Dr. Kolb. I want all the bacteria out of me the first surgery, this way we don't end up passing the buck for second surgery, its a no brainer. Thanks Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 My surgery is May 24th, I have to be there on the 22nd. If emergency they will fit you in faster. I have Saline since feb 22 2005. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Hi Gigi, Welcome to our group....of course, I am sad that you have to be here due to illness from implants, but I am hopeful that we will be able to help direct you in order for you to make the best decision you can for your health and recovery. You have asked some very important questions. And this issue of capsule removal can be the one that makes your healing progress in a forward fashion or NOT. It is huge, even though some doctors refuse to acknowledge that. I don't want to speak unkindly of any doctor. Dr. M has been a very kind doctor to women in the breast implant issue. He has good intentions and wants to help us. However, I also believe he has been wrong in this very important area. Of course, he is a doctor, and he has credentials. But we also have other doctors with credentials that have different ideas than his. I guess they all can't be right when there are opposing views. And so I support the one that makes the most sense in accordance with principles of healing. And when it comes to getting those capsules out, that means taking all of it, not leaving any possible source of contamination in the body. There is no evidence that capsules dissolve. At least I haven't seen any. Perhaps you would like to request that Dr. M show you his source of information in support of that. I would love to see it! To the contrary, we have lots of evidence that capsules in fact DO NOT DISSOLVE, but rather morph and grow into masses that contain pathogens that can prevent healing taking place. Doctors claim that removing the implants won't help you get better if you are sick. Of course, since they weren't removing the capsule too, they were right! Women stayed sick. But women who have the implants along with the scar capsule removed do get better, and that is the difference. That scar capsule can be like a foreign object that your body will continue to fight. The body can stay sick with small amounts of offending substances in it, can't it? We see that with allergic reactions to foods. It is not hard to imagine the body staying sick with even small amount of scar tissue remaining. Dr. Feng has written a letter stating the conditions where capsule removal may not be necessary. She goes on to state that very, very few women meet those conditions. Here is her letter: A biological capsule will form around any implant. Any saline implant removal will require a total capsulectomy. Like anything else in life, there are few exceptions. Here are the few exceptions which would have to be fulfilled before I would entertain the possibility of not removing the saline capsule.(1) The capsule has to be tissue paper thin and without contracture.(2) The patient has to be without any local or systemic symptoms.(3) The saline implant has to be smooth shelled.(4) There has to be no previous history of gel filled implant insertion.All these conditions have to be fulfilled before I would consider not taking the saline capsule out. As you can see, few patients would fulfill these criteria. Invariably, I take out the entire capsule around saline implants.Drfeng@... For more information regarding the risks associated with retained scar tissue, please read the links and files we have in our archives regarding them. Some women are in a position that they have no alternative choices than to go to only one doctor. If Dr. M is the only doctor you can feasibly see, then don't feel that this is a bad choice. He is a good doctor. But I would be very firm, VERY FIRM in stating that you absolutely want all scar capsule removed, and then take him the information we have posted on our group. Tell him that you will consider using a different doctor if he can't guarantee that he will remove all of the scar tissue. Your health is at stake here, and it is wrong for him to take that for granted and make assumptions that you will get better even leaving part of the capsule in. Tell him that. If you cannot feel certain that he is going to do it right, then I would find another doctor. We have had women who have had to go back in for a second surgery to get that remaining scar tissue removed before they could get their health back. So we do know that it is that important. I hope this helps you. You can do many things to start detoxing now....detox baths, changing your eating habits if you currently indulge in sugar laden foods, white flour foods, processed foods (eliminate them) and colon cleansing, as well as liver support, and supplements to address deficiencies or toxic overload. Garden of Life products are really good. Please continue to ask questions. You are in control..it is your body, and when you are armed with knowledge, you will be able to make choices that are the best for you. Pattygigi_h73 <gigi_h73@...> wrote: Hello,I have been coming to this site almost daily for about a month now but have never posted until today. It's comforting to know that I am not crazy. I have been sick for some time now but never thought that it may be my implants. I have had my implants for over 5 years now. My symptoms began about 8 months after the initial implant surgery andhave progressed slowly. A year and a half ago, my blood pressure increased and now I am on meds. I'm always tired and have achy joints/muscles, some numbness/weakness, difficulty concentrating, dizziness. migraines (to name a few). I am very tired of feeling this way. I want my life back.I'm seeing an internist. My initial tests have all come back negative. I had more tests done and will review the results with him next week. I have some vaginal discomfort but he said that he said that it didnt look like a yeast infection and told me to use cortisone on the outside for the irritation. I've had this off and on for months. I'm a SAHM and have three children and feel so bad that I am not able to be with them as much as I use to. I am always very tired. I'm in my early 30's and have always been active and healthy.I have scheduled my explantation surgery with Dr. M in July. I have also spoken with Dr. Kolb ( she thinks it may be mold). Most of my symptoms are on the left side of my body. Even the vaginal irritation...wierd huh??? However, my insurance will not cover the explant and we can not afford the extra 4-5K Dr. Kolb will cost. I have read on this site that Dr. M has left some part of the capsule in so this concerns me as well. He told me in an email that any left over thin capsules would dissipate and are gone in a year. Has anyone had this experience? My implants are very soft and do not feel hard at all. Will I find relief even if some of the capsule is left in? Does it depend on what is found...chemicals or mold? Really dont know how to go about this....Also, what can I do now to help me start to detox prior to the surgery? Is it too soon to start and how long will I have to detox? I am trying to be positive and looking forward to feeling better than I am now. Thank you for your thoughts and help. And if possible, a little prayer to give me the strength to be strong and fight this. I will not go down without a fight, I'm willing to fight for my health.Sorry for the information overload...Thanks again,Gigi Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Sorry Donna... Just read this post. What made you decide to go with Dr. Kolb? When is your surgery ? Does she have a long wait? I would like to have the surgery this summer so our kids can come with us. We would drive there... I've had mine for a little over 5 years now and am ready to take them out. Gigi > > Gigi, > > Hi, I am also getting my implants removed, we share the same symptoms as > well, except mine is more on my right side. I hear that Dr. Melmed is a great PS. > I am going to Dr. Kolb. If you don't have the extra money maybe you should > just get the en-bloc and removal, get the lift later if needed. I can't wait > to get mine out. I am like you got sick soon after implants. I got mine in > on feb 22, 2005. > > Thanks > Donna > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 You could also call Dr. Kolb. www.plastikos.com Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2006 Report Share Posted May 3, 2006 Gigi . . . Welcome to ! Dr. Kolb is one of our most recommended doctors . . . She does have a waiting line. I'd suggest contacting her to see when she could get you in. . . Her website: www.plastikos.com Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
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