Guest guest Posted March 2, 2007 Report Share Posted March 2, 2007 Hi , Welcome. <eupguy16444@...> wrote: My masters is in Secondary Education. I have a daughter with special needs so I look forward to chatting with you all. > Bless you and your professor! Fire away with any questions. > > Tonya > > ( ) New to group > > Hi everyone. I just wanted to say hi. My name is and I am a > graduate student taking a class on behavior disorders. Partial > requirements of the class has us joing groups like this and > participating in dicussions. I like forward to chatting with you all. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2007 Report Share Posted March 4, 2007 Hi Wenwei, I too am in the SF Bay Area. There are no docs here. We've had a PPO, and the coverage for lab tests usually is per the policy; however certain tests (such as the food panel) won't be covered by insurance. Our PPO covered the office visit with us paying the co-pay. However, they won't cover phone consults. HTH, Heidi -------------- Original message -------------- From: " ruiruimommy " <weweng@...> hello, I'm new to this group, have a 4 y.o. son with autism dx. I have been doing diet, chelation for him 1.5 year. I do see some improvement.However, as my son being a never sick kid, obviously his immune system is not working right. So I do hope protocol will help him. I'm thinking to start Valtrex, but I certainly want to have a doctor to closely monitor what is going on, and tune it if possible. I'm in San Francisco bayarea, have a few questions: 1. Is there doctor in SF bayarea? 2. For the required testings listed in http://www.neuroimmunedr.com//Proposed_Work- Up_/proposed_work-up_nids.html, are they covered by the insurance? I do have a very good PPO plan. 3. What is the logistics for the clinic visit to Dr. Goldberg? For the people in list, do you get insurance reimbursement for the clinical visit? Any advice is highly appreciated. Thanks. Wenwei Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Welcome, you came to the right place. I have gotten loads of good advise as well as much comfort that we all go through alot of the same things. Kristy <kchristop@...> wrote: just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here. Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 On Nov 19, 6:39pm, " Kristy " wrote: that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I know what you mean; after my son was diagnosed, my stepmother (who is a psychologist who works with special needs kids) told me she had suspected autism. Well gee, thanks for saying something NOW. Of course, people who aren't qualified to diagnose shouldn't fling terms like autism around, but they could have mentioned early intervention to you. Willa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Welcome Christy, at least she was diagnosed young and you can and will find out what therapies will help her. You've come to the right place. The people on here are incredible and will help you in any way they can. I know it is devastating to hear 'autism'. You will grieve, then you will be motivated to getting the best for her.I understand your hurt, my kids didn't get diagnosed until they were 16, I feel we wasted SO much time and now we can't play catch up...Welcome again, Toni ( ) New To Group > > just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. > I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. > Looking forward to getting to know you, and getting lots of information here. > > Kristy > Time To Stamp http://www.timetostamp.com > blog: http://kristychristopherson.blogspot.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Hi Kristy, it's very nice to meet you and to have you join us. I'm so sorry you've had such a hard week, but it's certainly understandable. My son who has AS was just diagnosed a couple years ago with that and bi-polar (we were already aware of ADHD as well) and I remember how utterly stunned I was. I thought he behavior was just the ADHD. Even now, a little over two years later, I still find myself going through the shock, acceptance, questioning, worrying, etc., phases. It's a never ending process of learning and growing, for both the parent and child. You're not alone as you go through it though, we're all here with you and for you ~*BIG HUGS*~ -Jenn, AEP (ADD, Bi-Polar, Anxiety/Depression) Proud Momma of Cory Albert (14yrs ADHD), h Dawn (12yrs Anxiety/Depression) and Jerry Lee " Trey " (9yrs ADHD, Bi-Polar, Asperger's) -- ( ) New To Group just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 Welcome to the group Kristy! This site has really useful information. It is also comforting to know that others are going through the same thing and have good suggestions for you, Dee > > > just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. > I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool- its much less stimulating-less kids, more adults, and apparently she is doing really well. > Looking forward to getting to know you, and getting lots of information here. > > Kristy > Time To Stamp http://www.timetostamp.com > blog: http://kristychristopherson.blogspot.com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2007 Report Share Posted March 23, 2007 My heart goes out to you. We were in your shoes 2 years ago. My twin boys were born at 30 weeks. The delay was believed to be due to prematurity. We kept asking, do they have autism? All experts assured us it was prematurity. We decided to have them evaluated anyway, the dx, Atypical Autism NOS. What a blow. They are 7 now, and we plug away with therapies and tutoring. They are such troopers. They have never known life w/o therapy. You will be in my thoughts as you search for solutions. Feel free to pick my brain (what's left of it, that is) anytime. That is what this group is for. Eydie Kasey & , Atypical Autism NOS Eydie ( ) New To Group just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here. Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Welcome to the group Kristy, - C. Mom to Cassie 16 PCOS, Austin 14 ADHD and a 3.5 HFA/AS & SPD/SID ( ) New To Group just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here. Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2007 Report Share Posted March 24, 2007 Dear Kristy, you are so right, someone should have told you. I posted one time on this site that I saw a little girl, age 3 that had lots of tendencies that my as son has/had. I asked if I should say something to the parents. Everybody replied, YES, and suggested different ways to address this to the parents. they said, since early interventions is free and so important to start as early as possible That I should say something. So, I did. When the little girl was lining up her toys, dolls, chairs, books. I said, she does lots of things my son did at her age. (they know his DX). she has no sense of fear. Would jump from high places too high to jump. she would spin, couldn't understand her speech. etc... I asked if she ever heard of early interventions?, and explained she is doing lots of the same things as my son and early interventions is a great place to get help, and free. Well, the parents got so mad. Told me there is nothing wrong with their daughter. Just speech, and she is getting it. She walked away from me and never spoke to me again. Now her daughter was ready for Kindergarten, but her parents kept her out due to her speech. (can't understand her at all). She cries all the time. I've never seen her not crying. she spins so much more now and she will run full speed into a wall and cry that she is hurt. They saw I was watching her and said to me, we just ignore her behavior and she will stop. (she doesn't). " I think they're just exhausted " . We saw them at the movies and she cried through the whole movie, wouldn't sit still at all, and was allowed to run free all over the movie theater. Another person asked if she has autism? the woman got so upset with her, and me, because she thought I was talking about them. I wasn't, I didn't even know that woman. She (the woman) then explained she has a daughter with autism and her daughter does the same things.. This woman got so angry again and said there is nothing wrong with my daughter! Now she avoids most people. Maybe people are just cautious when speaking to others about this and that's why no one spoke to you about this. Autism is a label to help her get the appropriate services she needs. She is still your beautiful daughter. As you get to understand more about autism you will see her as a unique person with a beautiful personality. " high function " ? you will learn lots from her. Subjects in school that she likes, she will excel so much, you wont be able to keep up with her. My son has asked questions that the teacher said she will have to get back to him because she didn't know the answer to his question. LOL. Things do get better, They do learn and do well in school. each child is different, some need a little more help than others. You will also read post on this site from parents with AS children that are now doing well in college. Take one step at a time, find out as much as you can on AS and you will see the progress. best wishes to you. *Smile* " hugs " .... Kristy <kchristop@...> wrote: just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here. Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2007 Report Share Posted April 9, 2007 Yes, I would be angry also. Shame on them for not speaking up and sending you to a evaluation/child find to get evaluated. But now there is not anything to do to fix that. Try to get past it and do what you can for her now and today. Welcome to our group! Roxanna ( ) New To Group just wanted to quickly say hello-I just joined this group yesterday. My daughter has been diagnosed with ASD last week. Needless to say, the week has been a hard one for me. I have been doing alot of reading on it, trying to educate myself more about it. An online friend just told me about this yesterday and I am glad she did. I have been frustrated for over 2 years with my daughter's behavior. She was a micro-preemie (23 weeks) and I thought alot of her problems were due to her prematurity and sensory issues. I was devastated to hear the word " Autism " at her Neuro appt. last wednesday. Though I realized lots of her symptoms overlapped with autism, the pain was intense to hear. They told me she is high functioning, and that she will be okay, but still hard nonetheless. I have been going through a range of emotions. I am angry also, as yesterday I was told by her old preschool teacher that they saw her having autistic tendancies when I enrolled her at the preschool (back in Aug 2005) yet no one came and told me. I am angry that nothing was done back then. I know there is nothing I can do about it now, but it hurt . I have my Gillian in a special ed preschool-its much less stimulating-less kids, more adults, and apparently she is doing really well. Looking forward to getting to know you, and getting lots of information here. Kristy Time To Stamp http://www.timetostamp.com blog: http://kristychristopherson.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Hi! Welcome to the list. There is a ton of data on this message board. The links and Files section are good, and so is the search of the archived messages. In a nut shell, the protocol is based on the treatment of immune system problems. An unhealthy immune system cannot keep fungus, virus and bacterias under control. Most of our kids take antivirals and antifungals to help their immune systems. My son also take antibiotics. Also, most kids take a SSRI (Prozac, Celexa, Paxil, Zoloft) to assist in brain blood flow regulation. There are some other meds Dr. Goldberg uses to address brain blood flow problems (my son also takes Tenex and wellbutrin.) Hope this helps! > > We have two boys w/ autism 9 and 6. What exactly is the protocol? I > looked over the web sight but did not get any clear ideas except for > the diet. Our boys have been on a glutten/caesien free diet for 2 years > now. we saw a lot of behavioral changes in our youngest son, but now > his behavior is nearing uncontrolable. Our ped. thinks that it is more > adhd related and has put him on ritalin and now he is aggressive and > never was before. Our older son who is more low functioning has been > improving greatly w/ risperdal. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Hi, Welcome to the group. Have you read the intro to on the website? http://www.neuroimmunedr.com//intro.PDF Basically what you need to know is that in *most* cases, the doctors and experts that see you children will treat their symptoms. Low B12? Give 'em B12 shots. Uncontrollable behavior? Give them behavior modification drugs. Dr. Goldberg's approach is to look at WHY they have low B12, WHY they have poor behavior and to treat the root of the problem. Years of labwork on these children has strongly indicated a need for a medical approach to treat poor immune system function. My son is on an antiviral, antifungal, and a few other medications (strattera being one of them) to improve blood flow in his brain. The need for every drug he is on has been validated by a medical test. In other words, though he is on a couple of drugs that would effect/calm his behavior, I was not prescribed these for him because of his behavior but because of his medical need. This gives me comfort because I can be certain that he in not on these medications needlessly or because he's " a little high strung " . His brain chemistry requires it. It's just good for me to know. Again, welcome to the group. Dig around some more on the neuroimmunedr website. It is a wealth of information as are the wonderful folks on this list. If you are wondering if the protocol would help your boys, you could try to get a local pediatrician to order the tests he has listed on the website. It might be really insightful. April new to group We have two boys w/ autism 9 and 6. What exactly is the protocol? I looked over the web sight but did not get any clear ideas except for the diet. Our boys have been on a glutten/caesien free diet for 2 years now. we saw a lot of behavioral changes in our youngest son, but now his behavior is nearing uncontrolable. Our ped. thinks that it is more adhd related and has put him on ritalin and now he is aggressive and never was before. Our older son who is more low functioning has been improving greatly w/ risperdal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Hi . I have a ten year old also, who is diagnosed PDD-NOS and is being reevaluated in June. I also have a 16 year old with AS. My 10 year old really wants friends lately and we are progressing cautiously. He has been playing with one boy at recess who happens to live across the street (convenient). He had him over yesterday for about an hour and they seemed to play well together. My son needs lots of redirection and assurance and wants me to be close by. He is very excited to have a friend. My older son always made friends easily. He also did things at times that made him lose friends and he seemed to learn and adapt over time. He does still struggle with understanding others and why they do what they do. Pam :)See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Welcome . I am a sahm to 18 yo boys with aspergers. Ian sounds like my boys. They are into computers and video games and tv too.. It's good to have you with us! Toni ( ) new to group Hi, I'm new to the group and thought I would introduce myself. I homeschool my ds Ian, who is 10. He has AS and ADHD. We pulled him outof public school to HS for 2nd grade. He is doing much better in alot of ways. Recently he has begun to mature and change, which hasforced me to re-evaluate how I work with him. I went on automaticpilot there for a while, I think. That is why I joined the group. Itseems there are quite a few 10 yr. old boys. And to my amazementquite a few in or around Cherokee, Ga.!! Ian has never played withany other AS kids. I've kinda avoided it. But now I'm wondering ifhe wouldn't feel like, "hey, these guys are a lot like me! I'm notthe only one who....". I also have a dd who is 15 and in PS. I'm astay at home mom who just celebrated our 17th wedding anniv. Ian isinto Pokemon, Nintendo DS and TV!! I'm all about art and learning,reading and nature. Thanks for being here for us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Hi : We are near Gainesville, so we dealt with local physicians, but we see Steve Bremer at POA in Orlando for our son 's STARband. Steve is great - he's got great experience, which is the main reason I chose to make the 2 hour trip for our band and adjustments rather than going with local providers. He's been doing this for a long time and really knows his stuff. Once I asked him how many kids he had worked with in his career and he estimated somewhere around 1000-1200. That really meant a lot to me - just knowing that he's seen just about every scenario. He is also really nice and is great to deal with on a personal level. just loves him. While I am anxiously looking forward to 's graduation from his STARband, I will honestly miss seeing Steve and some of the other nice folks in their office. I would not hesitate to recommend Steve - you can definitely feel confident that your child's head would be in great hands. Let me know if I can be of any further help or if you have any other questions about Steve or POA. Good luck to you and your daughter! Kelli Mom to , 11.5 months tort/plagio STARband, 11/06 > > Our daughter was recently diagnosed with plagio and needs a helmet. > Does anyone have any recent experiences working with Dr. Gegg > (pediatric neurosurgeon) or Bremer (Orthotist) in Orlando, FL? > Any help would be appreciated. > > Thanks! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Thank you for your reply. I am glad you and your son enjoy working with Steve. It will help me relax a little more knowing that someone had good experiences with him. Aubrey will be casted in a couple of weeks. We are not looking forward to her getting a helmet just before summer. But, I'm sure we will adjust to it. > > > > Our daughter was recently diagnosed with plagio and needs a helmet. > > Does anyone have any recent experiences working with Dr. Gegg > > (pediatric neurosurgeon) or Bremer (Orthotist) in Orlando, > FL? > > Any help would be appreciated. > > > > Thanks! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 wow, that is a lot, how many years has he been doing this. this hit me like a lot but then again not a ton of it has been a long time so i am curious how this compares to the average CT, anyone know how many the average CT has in bands at any 1 given time? On 5/8/07, Kelli <kgranade@...> wrote: Hi : We are near Gainesville, so we dealt with local physicians, but we see Steve Bremer at POA in Orlando for our son 's STARband. Steve is great - he's got great experience, which is the main reason I chose to make the 2 hour trip for our band and adjustments rather than going with local providers. He's been doing this for a long time and really knows his stuff. Once I asked him how many kids he had worked with in his career and he estimated somewhere around 1000-1200. That really meant a lot to me - just knowing that he's seen just about every scenario. He is also really nice and is great to deal with on a personal level. just loves him. While I am anxiously looking forward to 's graduation from his STARband, I will honestly miss seeing Steve and some of the other nice folks in their office. I would not hesitate to recommend Steve - you can definitely feel confident that your child's head would be in great hands.Let me know if I can be of any further help or if you have any other questions about Steve or POA. Good luck to you and your daughter!KelliMom to , 11.5 monthstort/plagio STARband, 11/06>> Our daughter was recently diagnosed with plagio and needs a helmet. > Does anyone have any recent experiences working with Dr. Gegg > (pediatric neurosurgeon) or Bremer (Orthotist) in Orlando, FL? > Any help would be appreciated.> > Thanks!> > -- -mommy and leader to; -5th grade G & T, Jr GS, soccer, cello-1st grade, Brownie; psych appt 5/17-cosleeping, loving to learn always with 2 yr old flair; repeat bloodwork 5/8ph-11/06, cosleeping, babywearing, breastfeeding, all over the place already; measure/checkup 5/8, NS 5/30, CT casting 6/1 " As the family goes, so goes the nation and so goes the whole world in which we live. " PJPII Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2007 Report Share Posted May 8, 2007 Welcome to the group and good luck with your daughter's treatment. My son got his band 2 weeks ago, so we are new as well. I have no help with drs. because we are in Austin, TX, but I'm sure someone in the group will have some info.a, Mom of Cade, 10 monthsAustin, TXebtchlr <ebtchlr@...> wrote: Our daughter was recently diagnosed with plagio and needs a helmet. Does anyone have any recent experiences working with Dr. Gegg (pediatric neurosurgeon) or Bremer (Orthotist) in Orlando, FL? Any help would be appreciated. Thanks! Sucker-punch spam with award-winning protection. Try the free Beta. Ahhh...imagining that irresistible "new car" smell? Check out new cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 Hi Heidi, what is IC? I am just curious. But, welcome to the group...you sound like you are going to be fun! :-) Sonya [ ] New to group Hi Ya'll, This is just to introduce myself to the group. I am 50 years young and live in Dumont NJ.and I am a nurse in a homecare. I have IC, Fibro, Osteoarthritis, Type 2 diabetes, High blood presure, had a stroke in 03 and was diagnosed about 4 months ago with RA. I am a walking poster child on how NOT to live your youth LOL.. Treatments, geeze I'm on so many pills I think they are going to have to make me a board member of CVS. I started Metotrexate 2 months ago and it makes me really sick for about two days. I am or was taking Foilc Acid to try to avoid the days of cramps and Diarrhea but to no avail.My Rheumy is going to try Folitinic acid ( think thats what he said) once a week after 24 hours post methotrexate. If not I will go to the injectable form. I will also start Embrel once he can get the insurance to pay for it. I was wondering what lovely side effects I can look forward to with the embrel if anyone here is taking it. I alreay lost my hair from the Elmiron (IC Drug)and gained 30 lbs from the Fibro drugs.. Life just gets more fun.Any advice would be appreciated. Thanks Heidi ________________________________________________________________________ AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 Welcome Heidi have no if on the drug just wanted to say Hi. Marsha [ ] New to group Hi Ya'll, This is just to introduce myself to the group. I am 50 years young and live in Dumont NJ.and I am a nurse in a homecare. I have IC, Fibro, Osteoarthritis, Type 2 diabetes, High blood presure, had a stroke in 03 and was diagnosed about 4 months ago with RA. I am a walking poster child on how NOT to live your youth LOL.. Treatments, geeze I'm on so many pills I think they are going to have to make me a board member of CVS. I started Metotrexate 2 months ago and it makes me really sick for about two days. I am or was taking Foilc Acid to try to avoid the days of cramps and Diarrhea but to no avail.My Rheumy is going to try Folitinic acid ( think thats what he said) once a week after 24 hours post methotrexate. If not I will go to the injectable form. I will also start Embrel once he can get the insurance to pay for it. I was wondering what lovely side effects I can look forward to with the embrel if anyone here is taking it. I alreay lost my hair from the Elmiron (IC Drug)and gained 30 lbs from the Fibro drugs.. Life just gets more fun.Any advice would be appreciated. Thanks Heidi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2007 Report Share Posted May 9, 2007 Hi and Welcome Heidi! My name is Carol, and 53 is breathing down my neck here in sunny Southern California. I took great care of myself, a total health and fitness fanatic, but that didn't save me from my less than premium genetics. Nooope, I am definitely not genetically blessed! LOL! What is IC? Interstitial Cystitis? I'm on Imuran, and so far, so good. Carol In a message dated 5/9/2007 1:39:54 P.M. Pacific Daylight Time, hmendelsohn@... writes: Hi Ya'll, This is just to introduce myself to the group. I am 50 years young and live in Dumont NJ.and I am a nurse in a homecare. I have IC, Fibro, Osteoarthritis, Type 2 diabetes, High blood presure, had a stroke in 03 and was diagnosed about 4 months ago with RA. I am a walking poster child on how NOT to live your youth LOL.. Treatments, geeze I'm on so many pills I think they are going to have to make me a board member of CVS. I started Metotrexate 2 months ago and it makes me really sick for about two days. I am or was taking Foilc Acid to try to avoid the days of cramps and Diarrhea but to no avail.My Rheumy is going to try Folitinic acid ( think thats what he said) once a week after 24 hours post methotrexate. If not I will go to the injectable form. I will also start Embrel once he can get the insurance to pay for it. I was wondering what lovely side effects I can look forward to with the embrel if anyone here is taking it. I alreay lost my hair from the Elmiron (IC Drug)and gained 30 lbs from the Fibro drugs.. Life just gets more fun.Any advice would be appreciated. Thanks Heidi ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Heidi, The main side effect that I have from Enbrel is relief from pain and inflammation! I have absolutely no bad side effects from it. I don't have frequent infections, in spite of a low normal white blood cell count. There is no hair loss and no weight gain. I hope that you have the same results. Let us know how it goes. Sue On Wednesday, May 9, 2007, at 03:47 PM, heidibug46 wrote: > I was wondering what lovely side effects I can look forward to with > the embrel if anyone here is taking it. I alreay lost my hair from > the Elmiron (IC Drug)and gained 30 lbs from the Fibro drugs.. Life > just gets more fun.Any advice would be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Heidi, I have no advice...(sorry) However, welcome to the group! Bonnie >From: " heidibug46 " <hmendelsohn@...> >Reply- > >Subject: [ ] New to group >Date: Wed, 09 May 2007 19:47:51 -0000 > >Hi Ya'll, > This is just to introduce myself to the group. I am 50 years young >and live in Dumont NJ.and I am a nurse in a homecare. I have IC, >Fibro, Osteoarthritis, Type 2 diabetes, High blood presure, had a >stroke in 03 and was diagnosed about 4 months ago with RA. I am a >walking poster child on how NOT to live your youth LOL.. > >Treatments, geeze I'm on so many pills I think they are going to have >to make me a board member of CVS. I started Metotrexate 2 months ago >and it makes me really sick for about two days. I am or was taking >Foilc Acid to try to avoid the days of cramps and Diarrhea but to no >avail.My Rheumy is going to try Folitinic acid ( think thats what he >said) once a week after 24 hours post methotrexate. If not I will go >to the injectable form. I will also start Embrel once he can get the >insurance to pay for it. > > I was wondering what lovely side effects I can look forward to with >the embrel if anyone here is taking it. I alreay lost my hair from >the Elmiron (IC Drug)and gained 30 lbs from the Fibro drugs.. Life >just gets more fun.Any advice would be appreciated. > > Thanks Heidi > _________________________________________________________________ More photos, more messages, more storage—get 2GB with Windows Live Hotmail. http://imagine-windowslive.com/hotmail/?locale=en-us & ocid=TXT_TAGHM_migration_HM\ _mini_2G_0507 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2007 Report Share Posted May 10, 2007 Welcome Heidi,....I'm so happy you joined the group. This is a great place to be. I'm like you, have a lot of different medical problems. I also take methotrexate, along with folic acid. I do have diarrhea, but I just live with it. I take the mtx on the weekend, when I know I'm close to the house. I hope the Folitinic helps you, let us know. I have heard from many the mtx injections are a lot better, so that might be the best choice for you. I hope you do well on Enbrel, never have tried it. I've heard a lot of good words about it though. Yes, we just keep having more and more fun:) You take care, and check back in, Tawny Quote Link to comment Share on other sites More sharing options...
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