Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Hi ellen and welcome!! It's so good to hear from someone that has an older child as my son Tanner is now 11 and most here have little ones. It appears to me that you require a more specific evaluation which states exactly what type of language disorder your daughter has. And are they positive it's a language disorder and not a speech disorder? Over the years has she had any other diagnosis? Being that she is now 8 years old one would suspect that is the case -but let us know. Also how does she communicate today? Is she talking? If you go to a restaurant can she order for herself? Does she have friends and what does she excel at? (swimming, art etc.) You would want to know what is creating the delay in order to know for sure that the 1/2 hour a day of therapy is most appropriate for her needs. Not all speech therapy is the same. Please let us know and again welcome!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 It was shown that she incompises all language disfunction.Speach and language. Showing signs of aprexia and also short memory loss. She does speak now but is hard to understand. She can not say three sylable words, drops pronouns or misses them up, her grammer is terrible. I can not get into fine discription becuase I do not have the test infront of me. I did have a speach eval done bye Uconn speach and comunication school but do not have there report yet. I am not doing anything until I have all the reports and the speach therapist and rest on her team has read it. I am being pushed to have her serviced in the school but none will argue that homeschooling has not helped her. She is thriving and doing well but I think they are nervous I will not be able to do it and I am also not so sure If I can do this. She loves basketball and dance. I also will be starting horsebackriding with her. Thank you for being here. In Jesus Love: ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 nacd.org > > Hi ellen and welcome!! > > It's so good to hear from someone that has an older child as my son > Tanner is now 11 and most here have little ones. > > It appears to me that you require a more specific evaluation which > states exactly what type of language disorder your daughter has. And > are they positive it's a language disorder and not a speech > disorder? Over the years has she had any other diagnosis? Being > that she is now 8 years old one would suspect that is the case -but > let us know. Also how does she communicate today? Is she talking? > If you go to a restaurant can she order for herself? Does she have > friends and what does she excel at? (swimming, art etc.) > > You would want to know what is creating the delay in order to know > for sure that the 1/2 hour a day of therapy is most appropriate for > her needs. Not all speech therapy is the same. Please let us know > and again welcome!! > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Or actually torticollis resulting which causes the plagio. > > Hello i posted january 18th but i hadnt been online since > now im > > back..would like to hear from others with torticollis and > > plagiocephaly.. my osn is now 4..he went thru the pt etc and > helmet > > wearing startig at 6 mos but his head is still > indented..etc..anyone > > wanna chat let me know.. im in New jersey > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with > Mobile. Try it now. > > > > > > > > > > > > --------------------------------- > > Never miss a thing. Make your homepage. > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with > Mobile. Try it now. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2008 Report Share Posted February 3, 2008 Hi Ellen, I homeschool my soon to be 7 year old through a charter school... it is a homeschool option that you may have in your area. I could not figure out how to get the services through the school. No one around my area would work with us, so we went this route. I do have to turn in records for my daughter with the " Educational Supervisor " , but we go in to the special ed office once a week, and one day a week she comes to my house. She has been working on Earobics to help her auditory procecssing... I am not sure what you mean by a language disorder? My daughter is speaking well enough to be understood by a lot of people... Though, her sentances are wayyy " off " ... " We us done, mom? " (Are we done, mom?) " Me the bathroom " (I have to go to the bathroom) Things like that... I am actually about to sign off to make her a little posterboard for her room that will help her with her sentences: I / will go / to the store He / wantS / a cookie She / brusheS / her teeth. So she can see the first part of most sentences start with I, he, she, we, etc... the next part is an action word (She forgets her S's on words a lot so those will be underlined and in another color to draw her attention to it), and the next part is a phrase that can be changed, based on what she says during the week... We were told by the school my daughter would " never read " , wouldn't understand math, etc. They were wrong. She is reading at the same level as her non-apraxic sister. She is doing well with math... All kids are different, and I would not buy into the whole she " HAS " to be in school, if you are a homeschooler. There are lots of things that can be done with our kiddos in the home. My daughter needs a little more reinforcement of subjects than most in public school... It is a personal choice, and homeschooling her is a bit more work than my other daughter... but, seeing her succeed is worth it. Good luck... and if you need anymore info, there's an Apraxia Homeschooling group that has been VERY helpful to me apraxiahomeschooling/ Aubrey \\\ > > Hello: My youngest dd (8) just had her nero phyc eval and it showed > that she has total nerological language disorder and si. I have been > homeschooling her with help from the school system with therepy once > and day for 1/2 hour and reading 1 hour a day. She has been doing well > with this. However the evaluators are telling me she will probly need > to go to school full time. The school is also not obligated in giving > me these services and can stop at any time. If any one can tell me > there opinion in this matter in sending her to school benfits to > nonbenifits. Or if there are any language based cur. that I can bring > home for her. > > > In Jesus Love: > ellen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 yes i can post pictures..most lkely tomrrow since its 4am right now and im sleepylka_236 <lka_236@...> wrote: I've heard of plagio developing from the forceps but never where it would remain after helmet treatment. Could you post pictures? > Hello i posted january 18th but i hadnt been online since now im > back..would like to hear from others with torticollis and > plagiocephaly.. my osn is now 4..he went thru the pt etc and helmet > wearing startig at 6 mos but his head is still indented..etc..anyone > wanna chat let me know.. im in New jersey> > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now. > > > > > > ---------------------------------> Never miss a thing. Make your homepage. > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 ....its a hollowed dent above and behind the ear area..he had this dent since he came out of me.. i see many kids with flat heads but im not talking about just flat im tlaking dent pushed in..etc..as if the forcepts squeezed too hard kinda dentlka_236 <lka_236@...> wrote: Or actually torticollis resulting which causes the plagio.> > Hello i posted january 18th but i hadnt been online since > now im > > back..would like to hear from others with torticollis and > > plagiocephaly.. my osn is now 4..he went thru the pt etc and > helmet > > wearing startig at 6 mos but his head is still > indented..etc..anyone > > wanna chat let me know.. im in New jersey> > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with > Mobile. Try it now. > > > > > > > > > > > > ---------------------------------> > Never miss a thing. Make your homepage. > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with > Mobile. Try it now.> >> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2008 Report Share Posted February 4, 2008 Hello, I'm not sure if this is similar to what you are describing or not, but my son also has a " dent " . He was born with a very significant dent above his ear. You can see some pics of it here: http://hannahsnoggin.typepad.com/hannahs_noggin/2007/04/march_2007_jac k.html We banded him as young as we could specifically for this dent, as we were told it would be hard to correct. We were very pleased with how much it did fill in though. Here you can see it after five weeks in his DOCband: http://hannahsnoggin.typepad.com/hannahs_noggin/2007/07/july-2007-- amaz.html We were told that it was probably an imprint of my pelvic bone. I carried him very low my whole pregnancy. He was a quick L & D, no forceps, only pushed for four minutes, lol. Anyway, I can still feel the dent, but it's not nearly as noticable as it was before his helmet treatment. , mom to DOCgrads- Hannah (5yrs) and Jack (12mos) Cape Cod, Ma http://hannahsnoggin.typepad.com > > > Hello i posted january 18th but i hadnt been online since > > now im > > > back..would like to hear from others with torticollis and > > > plagiocephaly.. my osn is now 4..he went thru the pt etc and > > helmet > > > wearing startig at 6 mos but his head is still > > indented..etc..anyone > > > wanna chat let me know.. im in New jersey > > > > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with > > Mobile. Try it now. > > > > > > > > > > > > > > > > > > --------------------------------- > > > Never miss a thing. Make your homepage. > > > > > > > > > > > > > > > --------------------------------- > > > Be a better friend, newshound, and know-it-all with > > Mobile. Try it now. > > > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2008 Report Share Posted February 12, 2008 No, it's not a universal no-no. It's only something that gets removed as the diet gets refined if it's needed. So until Dr. G says to remove them, don't worry about it. Cheryl On Feb 7, 2008, at 9:21 AM, live4luke wrote: > Hey everyone.. > My name is Beth, mom to a 28-month-old ASD little boy. I'm going to > see Dr. Goldberg on April 1st. Just wanted to know what to > expect....also, Cheryl, I read your post about avocado's--are they a > big no-no? Of course my son LOVES them....thanks and looking forward > to chatting with you all. Beth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 Hi Kate, At the moment, there are no affiliated clinics anywhere in the U.S. besides Dr. Goldberg, who is in the Los Angeles area. He does work with many families over the phone, however (although an initial, in-person visit is required of all patients). Families who work with him long-distance have the lab work done locally and have it sent to him, and then he does a telephone consultation every 5-6 weeks. There is a clinic in Northern New York that uses a similar protocol to Dr. G (I think it's called " NNY Autism Center " ) and there's an office that I THINK is affiliated with that one in Texas. Dr. Bruce is the medical director of that one. They are not affiliated with Dr. G. http://www.nidsnnyclinic.org/index.html Hope that helps. Donna > > Hi, > > I just heard of this group and joined it. One of my sons has autism > (mercury poisoning, viral and fungal issues, immune system issues, > hearing issues, etc.), and I read on the website to call to find out > where a local clinic might be. The phone number is no longer in > service. We haven't had the best luck with the DAN! approach over the > past 5 years (he reacts badly to IV chelation, etc.), so we're going to > go see another top DAN! doctor and hope she can figure out the puzzle > for us, then maybe try homeopathy, or maybe drugs/meds that we haven't > tried (desperation--it's not the best solution). > > I read someone else talk about their " tough nut " and discussed the > group. I don't know much about it, and would like to learn more. Does > anyone know where the closest clinic is to Portland, OR? > > Thanks, > Cate > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2008 Report Share Posted February 19, 2008 There are only 3 places where you can see a practitioner. Dr. G in Tarzana, NNY Autism Clinic and they also have an office in Tx. That's it. About the only thing you're going to find to even get close to is someone very well versed in CFS. My son was a non-responder to DAN so we moved on to and my son started improving immediately. If you see Dr. G, you should know that it is *very* different from DAN and you'll really need to learn a new way of thinking. He does not chelate, either. If you're in OR you may just want to make a trip down to see Dr. G and then do phone consults. The number to the office is 818-343-1010. Cheryl On Feb 19, 2008, at 10:39 AM, Cate Hickman wrote: > Hi, > > I just heard of this group and joined it. One of my sons has autism > (mercury poisoning, viral and fungal issues, immune system issues, > hearing issues, etc.), and I read on the website to call to find out > where a local clinic might be. The phone number is no longer in > service. We haven't had the best luck with the DAN! approach over the > past 5 years (he reacts badly to IV chelation, etc.), so we're > going to > go see another top DAN! doctor and hope she can figure out the puzzle > for us, then maybe try homeopathy, or maybe drugs/meds that we haven't > tried (desperation--it's not the best solution). > > I read someone else talk about their " tough nut " and discussed the > > group. I don't know much about it, and would like to learn more. Does > anyone know where the closest clinic is to Portland, OR? > > Thanks, > Cate > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 --- Hi Sara it's nice to meet you! Right now typing this my fingers are stiff but I keep typing I'm not going to let RA win! I'm stronger than this! A positive attitude! Clare In , " sara " <sarakay1@...> wrote: > > hi my name is sara i hope to find some friends. i am so happy to find > that there is a group for us in pain all the time. i feel like soo > alone with what i am going through. i am so scared and my family says > that if i am scared that i am giving up. i don't see that. my friends > are no more basically no one that used to call, calls anymore. ever > since i was diagnosed i find that there is noone around anymore. i used > to have friends calling me on the phone, asking me to go out on the > weekends, not anymore. everyone is gone, why! boyfriends right not > one wants to deal with me being sick, they don't want to take on the > responsibility. i can't seem to meet any guys that want to stay > around. why! i feel soo alone. i do have to admit i have good > doctors, and my daughter is an angel, she really does more than > anyone. but she is just five and i want her to have more of a real > life or childhood rather than taking care of mom all the time. she is > always worrying about me alot, when friends ask her to come over and > play she doesn't want to go, she is afraid to leave me. she talks about > me dying. i am not dying, but she thinks i am sometimes when i get > really bad and can't move for a few days. anyhow enough of me whining > i hope that i find some friends and maybe i would be able to help > someone other than myself. signing hopeful > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi Sara So sorry you are feeling so alone but we are all here for you and will chat with you anytime. What meds are you taking? Maybe you need to find something to work better for you. Do you have a rheumatologist? Sometimes when you are in pain and diagnosed with this disease depression can set in too. Maybe you should talk to your doc about this too. Your friends will come around and if not then they aren't very good friends to begin with. I know in the winter a lot of my friends seem to hibernate a bit too, maybe that is the case. Hang in there! Joy [ ] new to group hi my name is sara i hope to find some friends. i am so happy to find that there is a group for us in pain all the time. i feel like soo alone with what i am going through. i am so scared and my family says that if i am scared that i am giving up. i don't see that. my friends are no more basically no one that used to call, calls anymore. ever since i was diagnosed i find that there is noone around anymore. i used to have friends calling me on the phone, asking me to go out on the weekends, not anymore. everyone is gone, why! boyfriends right not one wants to deal with me being sick, they don't want to take on the responsibility. i can't seem to meet any guys that want to stay around. why! i feel soo alone. i do have to admit i have good doctors, and my daughter is an angel, she really does more than anyone. but she is just five and i want her to have more of a real life or childhood rather than taking care of mom all the time. she is always worrying about me alot, when friends ask her to come over and play she doesn't want to go, she is afraid to leave me. she talks about me dying. i am not dying, but she thinks i am sometimes when i get really bad and can't move for a few days. anyhow enough of me whining i hope that i find some friends and maybe i would be able to help someone other than myself. signing hopeful Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Hi Sara, Welcome to the group. Real friends don't leave you because you are sick.There are also men out there who will love you in spite of the disease. If your daughter is afraid you are dying , why not take her to the Dr with you. He/She can explain that the disease may be painful and may render you bed bound for days at a time, it is not terminal. Just a thought. We are always here and to listen and try to help. send out tons of greats links to sites that offer help and an understanding of what our bodies are doing. So, welcome to the group and glad to meet you. Heidi M On Thu, Feb 21, 2008 at 3:56 PM, Joy <jhoorm01@...> wrote: > Hi Sara > So sorry you are feeling so alone but we are all here for you and will > chat with you anytime. > What meds are you taking? Maybe you need to find something to work better > for you. > Do you have a rheumatologist? > Sometimes when you are in pain and diagnosed with this disease depression > can set in too. > Maybe you should talk to your doc about this too. > Your friends will come around and if not then they aren't very good > friends to begin with. > I know in the winter a lot of my friends seem to hibernate a bit too, > maybe that is the case. > Hang in there! > > Joy > > > > [ ] new to group > > hi my name is sara i hope to find some friends. i am so happy to find > that there is a group for us in pain all the time. i feel like soo > alone with what i am going through. i am so scared and my family says > that if i am scared that i am giving up. i don't see that. my friends > are no more basically no one that used to call, calls anymore. ever > since i was diagnosed i find that there is noone around anymore. i used > to have friends calling me on the phone, asking me to go out on the > weekends, not anymore. everyone is gone, why! boyfriends right not > one wants to deal with me being sick, they don't want to take on the > responsibility. i can't seem to meet any guys that want to stay > around. why! i feel soo alone. i do have to admit i have good > doctors, and my daughter is an angel, she really does more than > anyone. but she is just five and i want her to have more of a real > life or childhood rather than taking care of mom all the time. she is > always worrying about me alot, when friends ask her to come over and > play she doesn't want to go, she is afraid to leave me. she talks about > me dying. i am not dying, but she thinks i am sometimes when i get > really bad and can't move for a few days. anyhow enough of me whining > i hope that i find some friends and maybe i would be able to help > someone other than myself. signing hopeful > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 --- In , " sara " <sarakay1@...> wrote: > > hi my name is sara i hope to find some friends. i am so happy to find > that there is a group for us in pain all the time. i feel like soo > alone with what i am going through. i am so scared and my family says > that if i am scared that i am giving up. i don't see that. my friends > are no more basically no one that used to call, calls anymore. ever > since i was diagnosed i find that there is noone around anymore. i used > to have friends calling me on the phone, asking me to go out on the > weekends, not anymore. everyone is gone, why! boyfriends right not > one wants to deal with me being sick, they don't want to take on the > responsibility. i can't seem to meet any guys that want to stay > around. why! i feel soo alone. i do have to admit i have good > doctors, and my daughter is an angel, she really does more than > anyone. but she is just five and i want her to have more of a real > life or childhood rather than taking care of mom all the time. she is > always worrying about me alot, when friends ask her to come over and > play she doesn't want to go, she is afraid to leave me. she talks about > me dying. i am not dying, but she thinks i am sometimes when i get > really bad and can't move for a few days. anyhow enough of me whining > i hope that i find some friends and maybe i would be able to help > someone other than myself. signing hopeful > Hi Sara my name is Joy I too have RA and was just diagnosed with Fibromyalgia. I am a single parent who is blessed with a nine yr old daughter who is an angel like I am sure your little girl is. I am 40 yrs old and live with my mother also. I also have a 19 yr old but he does not live here but in NC. I know how you feel believe me. I sleep all the time that I am not at work. I work 40 hrs a week in the cooler no less and it wears me down. I feel like I am not giving my daughter the full attention that she needs and feel like I am letting her down. She is there for me and makes sure I take my medicines but she should not have to worry all the time that I do. I am lucky though I suppose I do have a wonderful boyfriend who is very supportive of me and trys to understand the pain that I am in and helps me with my daughter when I need the help.Don't give up hope they are out there I promise and there are more than one. So if you need a shoulder to cry on or word of advice here and there I am here if you need me. I think this group is great because you get to see how many others are out there feeling the same way we do. And in a weird way that helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 --- In , " sara " <sarakay1@...> wrote: > > hi my name is sara i hope to find some friends. i am so happy to find > that there is a group for us in pain all the time. i feel like soo > alone with what i am going through. i am so scared and my family says > that if i am scared that i am giving up. i don't see that. my friends > are no more basically no one that used to call, calls anymore. ever > since i was diagnosed i find that there is noone around anymore. i used > to have friends calling me on the phone, asking me to go out on the > weekends, not anymore. everyone is gone, why! boyfriends right not > one wants to deal with me being sick, they don't want to take on the > responsibility. i can't seem to meet any guys that want to stay > around. why! i feel soo alone. i do have to admit i have good > doctors, and my daughter is an angel, she really does more than > anyone. but she is just five and i want her to have more of a real > life or childhood rather than taking care of mom all the time. she is > always worrying about me alot, when friends ask her to come over and > play she doesn't want to go, she is afraid to leave me. she talks about > me dying. i am not dying, but she thinks i am sometimes when i get > really bad and can't move for a few days. anyhow enough of me whining > i hope that i find some friends and maybe i would be able to help > someone other than myself. signing hopeful > Hi Sara my name is Joy I too have RA and was just diagnosed with Fibromyalgia. I am a single parent who is blessed with a nine yr old daughter who is an angel like I am sure your little girl is. I am 40 yrs old and live with my mother also. I also have a 19 yr old but he does not live here but in NC. I know how you feel believe me. I sleep all the time that I am not at work. I work 40 hrs a week in the cooler no less and it wears me down. I feel like I am not giving my daughter the full attention that she needs and feel like I am letting her down. She is there for me and makes sure I take my medicines but she should not have to worry all the time that I do. I am lucky though I suppose I do have a wonderful boyfriend who is very supportive of me and trys to understand the pain that I am in and helps me with my daughter when I need the help.Don't give up hope they are out there I promise and there are more than one. So if you need a shoulder to cry on or word of advice here and there I am here if you need me. I think this group is great because you get to see how many others are out there feeling the same way we do. And in a weird way that helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 > > > > hi my name is sara i hope to find some friends. i am so happy to > find > > that there is a group for us in pain all the time. i feel like > soo > > alone with what i am going through. i am so scared and my family > says > > that if i am scared that i am giving up. i don't see that. my > friends > > are no more basically no one that used to call, calls anymore. > ever > > since i was diagnosed i find that there is noone around anymore. i > used > > to have friends calling me on the phone, asking me to go out on > the > > weekends, not anymore. everyone is gone, why! boyfriends right > not > > one wants to deal with me being sick, they don't want to take on > the > > responsibility. i can't seem to meet any guys that want to stay > > around. why! i feel soo alone. i do have to admit i have good > > doctors, and my daughter is an angel, she really does more than > > anyone. but she is just five and i want her to have more of a > real > > life or childhood rather than taking care of mom all the time. > she is > > always worrying about me alot, when friends ask her to come over > and > > play she doesn't want to go, she is afraid to leave me. she talks > about > > me dying. i am not dying, but she thinks i am sometimes when i get > > really bad and can't move for a few days. anyhow enough of me > whining > > i hope that i find some friends and maybe i would be able to help > > someone other than myself. signing hopeful > > > Hi Sara my name is Joy I too have RA and was just diagnosed with > Fibromyalgia. I am a single parent who is blessed with a nine yr old > daughter who is an angel like I am sure your little girl is. I am 40 > yrs old and live with my mother also. I also have a 19 yr old but he > does not live here but in NC. I know how you feel believe me. I > sleep all the time that I am not at work. I work 40 hrs a week in > the cooler no less and it wears me down. I feel like I am not giving > my daughter the full attention that she needs and feel like I am > letting her down. She is there for me and makes sure I take my > medicines but she should not have to worry all the time that I do. > I am lucky though I suppose I do have a wonderful boyfriend who is > very supportive of me and trys to understand the pain that I am in > and helps me with my daughter when I need the help.Don't give up > hope they are out there I promise and there are more than one. So if > you need a shoulder to cry on or word of advice here and there I am > here if you need me. I think this group is great because you get to > see how many others are out there feeling the same way we do. And in > a weird way that helps. >sara you r not alone.my name is MELYNDAGAMEZ im 38 yrs.im married to a great man & have an 11yr.old daughter,ALYSSA IS HER NAME.I CAN RELATE TO YOU CUZ SOMETIMES IM IN SOOOO MUCH PAIN & I CANT EVEN GET OUT OF BED.MY LIL ONE IS LIKE YOURS THEY WANT TO PROTECT & CARE FOR THIER MOMMYS.SHE TO GETS INVITED TO FRIENDS & SOMETIMES SHE WILL SAY I HAVE TO STAY HOME CUZ MY MOMMY IS ALONE.YES I FEEL BAD BUT ALYSSA SAYS IM O.K. MOMMY,I WANT TO B WITH U..I CRY ONCE SHES OUT OF THE ROOM!!!!SOMETIMES SARA I EVEN LIE & SAY IM NOT IN PAIN WHAT WOULD U LIKE TO DO?SHE WANTS TO PLAY MONOPOLY,CHECKERS,SCRABBLE OR THE WII..THEN IM LIKE WHAT DID I GET MYSELF INTO BUT TO SEE THAT SMILE ON HER FACE IS SOOO WORTH THE PAIN!!!IM HERE FOR YOU SARA,U GOT YOURSELF A FRIEND.THIS IS MY HUBS E-MAIL BUT MINE SHOULD B WORKING RIGHT SOON,HOPEFULLY!!ANY HOW HERE IS MY E-MAIL ADDRESS:melyndagamez & >good luck & god blessyou!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Diane:) I went through gold injections, plaquenil, and methotrexate before discovering antibiotic therapy. My best treatment was I.V. Clindamycin. Although it did not cure me, it took away the pain and the advance of deformity. I did the I.V. for 9 months a year (once a week) for 5 years. Now I take amoxicillan 2X/day and azithromycin 1X a day, and this regimen is keeping the symptoms at bay. Oh, I also take 4 mg. prednisone and 1 Celebrex per day. Prior to starting antibiotics, my R.A. factor, SED rate, CRP, etc., were off the charts. Now they are close to normal, and my hemoglobin is testing at normal for the first time in 31 years. **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 My doctor was an orthopedic doctor whose wife had a mixed connective tissue disease, and he was open to new therapies back in the early nineties. My insurance company, however, put a halt to my treatment, and I think they scared him. He wants to keep his job, so he no longer orders antibiotic treatment. Because I tested for Lyme, an infectious disease doctor is willing to do oral antibiotics. This doctor thinks R.A., Lupus, M.S, etc., are all a result of infections. Good luck--it's a battle. **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Someone said it best the other day; there are flavor of the day topics here and you may have joined at a time when that stuff is the flavor but this is a great board where all topics are covered. Please ask away about anything your interested, particularly the communication skills and I am sure many folks will speak up about what they know. There are a lot of great resources here. > > Hello, > > I joined this group because I am looking for information on apraxia. I > am a bit confused about all the specific autism and diet talk I've seen > recently. Apraxia does occur in children with a variety of other > concerns, but some of this conversation doesn't seem to be about > communication skills at all. Is this the norm for this group? > > Thanks, > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi , Where did you get your treatment? I think it's hard to find IV clindamycin therpy. > > Diane:) > > I went through gold injections, plaquenil, and methotrexate before > discovering antibiotic therapy. My best treatment was I.V. Clindamycin. Although it > did not cure me, it took away the pain and the advance of deformity. I did > the I.V. for 9 months a year (once a week) for 5 years. Now I take > amoxicillan 2X/day and azithromycin 1X a day, and this regimen is keeping the symptoms > at bay. Oh, I also take 4 mg. prednisone and 1 Celebrex per day. Prior to > starting antibiotics, my R.A. factor, SED rate, CRP, etc., were off the > charts. Now they are close to normal, and my hemoglobin is testing at normal for > the first time in 31 years. > > > > > > **************Ideas to please picky eaters. Watch video on AOL Living. > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ > 2050827?NCID=aolcmp00300000002598) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Hi , Where did you get your treatment? I think it's hard to find IV clindamycin therpy. > > Diane:) > > I went through gold injections, plaquenil, and methotrexate before > discovering antibiotic therapy. My best treatment was I.V. Clindamycin. Although it > did not cure me, it took away the pain and the advance of deformity. I did > the I.V. for 9 months a year (once a week) for 5 years. Now I take > amoxicillan 2X/day and azithromycin 1X a day, and this regimen is keeping the symptoms > at bay. Oh, I also take 4 mg. prednisone and 1 Celebrex per day. Prior to > starting antibiotics, my R.A. factor, SED rate, CRP, etc., were off the > charts. Now they are close to normal, and my hemoglobin is testing at normal for > the first time in 31 years. > > > > > > **************Ideas to please picky eaters. Watch video on AOL Living. > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ > 2050827?NCID=aolcmp00300000002598) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Welcome Deb! This a great group. Every child is different and some have apraxia diagnoses alone or along with other delays, difficulties or disorders. Some have no diagnosis as of yet and are search and researching. Apraxia appears to be common in children with autism. Also, because autism is the diagnosis that seems to have the funding and research backing right now, and because some " treatments " and " causes " may be similar to those applicable to apraxia, you naturally and often see an overlap in the discussions. I recommend that you start with The Late Talker book for a general overview and good discussion of apraxia and suggested first line therapies, including supplementation. Also, under the " Links " portion of this site, you will find numerous folders compiling useful information on a variety of relevant topics. While possibly overwhelming, perusing the posts will likely be very informative and helpful as well. I know it has been for me! You should feel free to ask any questions you may have. The members of this group are very generous with their time and experience! Again welcome! > > Hello, > > I joined this group because I am looking for information on apraxia. I > am a bit confused about all the specific autism and diet talk I've seen > recently. Apraxia does occur in children with a variety of other > concerns, but some of this conversation doesn't seem to be about > communication skills at all. Is this the norm for this group? > > Thanks, > Deb > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 I am just getting my feet wet regarding the bio-med things but books that really helped me were these books: Children With Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorder by Jaquelyn McCandless Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders by Bock and Cameron Stauth These books really helped me get oriented and see the potential for helping my kids. I haven't ever had my kids specifically diagnosed with anything other than celiac yet there are many " quirks " we are working through including dyslexia like issues, vision, speech, ADHD and now sensory integration issues. I have implemented the Houston enzyme trio and observed amazing results. We have also received benefits from various vitamins, minerals, yeast control (very good) and food allergy identification and elimination. Next on our to do list is heavy metals screening. Basically I've just taken what works for parents in this group and the info from the books and it has really helped my kids. We recently found a DAN! doctor in our area we are using for support with the chelation efforts. I don't know if this helps -- basically for us it has worked well to proceed without formal diagnosis and I have been amazed that kid can get 4 years of speech and then take supplements and progress faster in a few weeks than a few years. Regarding dyslexia our solution has been vision therapy, Cod Liver Oil and son Reading program. Others with more experience may provide a lot more insights on all this! Good luck! --------------------------------- Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2008 Report Share Posted February 24, 2008 Dear , Thank you so much for taking the time to write. I am glad you finally found relief. I guess everyone has to find the cocktail that works for them. I am hoping my doctor will be up for the antibiotic therapy, because that is what I want to try. Wish me luck in convincing him. Thanks, diane > > Diane:) > > I went through gold injections, plaquenil, and methotrexate before > discovering antibiotic therapy. My best treatment was I.V. Clindamycin. Although it > did not cure me, it took away the pain and the advance of deformity. I did > the I.V. for 9 months a year (once a week) for 5 years. Now I take > amoxicillan 2X/day and azithromycin 1X a day, and this regimen is keeping the symptoms > at bay. Oh, I also take 4 mg. prednisone and 1 Celebrex per day. Prior to > starting antibiotics, my R.A. factor, SED rate, CRP, etc., were off the > charts. Now they are close to normal, and my hemoglobin is testing at normal for > the first time in 31 years. > > > > > > **************Ideas to please picky eaters. Watch video on AOL Living. > (http://living.aol.com/video/how-to-please-your-picky-eater/rachel- campos-duffy/ > 2050827?NCID=aolcmp00300000002598) > > > Quote Link to comment Share on other sites More sharing options...
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