Guest guest Posted August 15, 2009 Report Share Posted August 15, 2009 Hi Melynda: Yes, you were missed so much, and so important to all of us. I keep praying that you will get out of all that terrible pain. You have suffered much too long. Yes, you certainly have helped lots of people here. Now we will help you all we can. You are much loved, and have been such a good friend to me. I will call you Sun. or Monday. I look forward to our chatting. Say hello to Alyssa and for me. I know it is hot as h > > > > > > > > hi roby, welcome to our group. i hope you get some info. that > might > > > > help you. > > > > god bless,melynda gamez > > > > > > _ > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2009 Report Share Posted August 30, 2009 instead of preschool, you should check out your elementary school to see if they have a program you qualify for. When we were done with early intervention, that was the next step. It is a program specifically for speech issues. He was approved for 5 days a week for 3 hours, on top of that, they are giving him speech therapy one on one 3 days a week. I am about to have him tested to see if he qualifies for an ot/pt for his sensory issues. > > Hi and welcome! > > My son is 2 and also has apraxia and sensory issues. In addition to speech twice a week, he does OT with an OT who specializes in sensory issues. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Hi Sharen, Boy does your story sound familiar! We hear it all too often, and I'm sorry for that. I wish you didn't have to suffer in the same way that so many women have after getting breast implants of any kind. All of this is very common, and it is not a good thing at all...your body is laboring under the burden of those implants, and your immune system may be very negatively affected...sometimes for life. It is not something to play around with. I am glad to hear that you are under the care of a holistic doctor. They are the most knowledgeable and most effective in understanding what is going on with us and how to deal with it. You are on the right track. I wish there was an easy answer to confirm it is the implants making you ill...but it is just not that simple. That is why there has been court cases and lawsuits stuck in some kind of strange limboland forever...because the manufacturer's have exploited the fact that the implants can't be PROVEN to have caused all of these symptoms and illnesses for women. If we had a few simple tests to do to point directly to the implants, the manufacturers would have been in deep doo doo a long time ago, and women would have won in court easily. I WISH!!!! Alot of suffering could have been avoided. So, the mystery remains and women all over the planet are getting sick from their implants and nobody really quite understands it or cares enough in the medical world to stop the insanity. Thus the need for support groups like this one. You can get tests for autoimmunity...these are the most common areas of concern for women getting sick from implants. Many women have autoimmune thyroid disease, such as Hashimoto's, some have lupus, some have ms-like diseases, a few have gotten sjogren's syndrome, or scleroderma....fibromyalgia is rampant, as is chronic fatigue syndrome or multiple chemical sensitivity. Connective tissue disease is another term used for our particular kind of autoimmunity. so, any tests in this area might reveal something. Although there are many women who have completely normal blood tests while feeling like they are ready to die. This reason alone makes me believe that hormonal issues are huge. There is also a possibility of parasites, overloads of fungus, viruses, or other pathogens that are subclinical in nature. I hope this helps you get started on the pathway to healing and a greater understanding of what is happening with you. It is going to be important for you to consider completely removing the implants for good. I say this because in the long run, breast implants do nothing at all to contribute toward good health, and as we get older, well, let's just say that it never gets any easier to stay in good health. Every advantage we can get is a good one, and breast implants just gotta go eventually. The safest route is to be completely implant free for life. I wish you well, and welcome. I hope you find our group enlightening. Warmly, Patty > > Hi- > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In February 2009, I started to develop panic attacks, depression, inability to handle stress, hypersensitivity to noise, MS-like symptoms of alternating pain and feeling like my legs were going to sleep, muscle twitching, insomnia, nightsweats, fatigue, digestive problems. I have undergone all kinds of testing for thyroid, hormones, etc. and am actually getting a little better under the care of a holistic M.D. here in Virginia. I still have problems with insomnia, depression and some anxiety, as well as the nightsweats. These problems were originally attributed to fluctuating hormones and adrenal insufficiency, but I'm starting to wonder if my body may be reacting to the silicone bags housing the saline. My question is: What tests do I have my doctor request to find out if my implants are causing me problems? Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Dear Patty, I've been reading your responses to other people who are suffering with all these problems and really wanted to say: Bless your heart for taking your time out to help others and create awareness for what implants can do one's health. I've been considering implants for several years and after reading your blogs I got convinced to stay from implants. Thanks for so much for your kind hearted advices! I will continue to recommend this group to my friends who are considering implants. We just have to remember that we're all beautiful naturally From: glory2glory1401 <glory2glory1401@...>Subject: Re: New to Group Date: Wednesday, September 16, 2009, 5:44 PM Hi Sharen,Boy does your story sound familiar! We hear it all too often, and I'msorry for that. I wish you didn't have to suffer in the same way thatso many women have after getting breast implants of any kind.All of this is very common, and it is not a good thing at all...yourbody is laboring under the burden of those implants, and your immunesystem may be very negatively affected...sometime s for life. It is notsomething to play around with.I am glad to hear that you are under the care of a holistic doctor. They are the most knowledgeable and most effective in understanding whatis going on with us and how to deal with it. You are on the righttrack.I wish there was an easy answer to confirm it is the implants making youill...but it is just not that simple. That is why there has been courtcases and lawsuits stuck in some kind of strange limbolandforever...because the manufacturer' s have exploited the fact that theimplants can't be PROVEN to have caused all of these symptoms andillnesses for women. If we had a few simple tests to do to pointdirectly to the implants, the manufacturers would have been in deep doodoo a long time ago, and women would have won in court easily. IWISH!!!! Alot of suffering could have been avoided.So, the mystery remains and women all over the planet are getting sickfrom their implants and nobody really quite understands it or caresenough in the medical world to stop the insanity. Thus the need forsupport groups like this one.You can get tests for autoimmunity. ..these are the most common areas ofconcern for women getting sick from implants. Many women haveautoimmune thyroid disease, such as Hashimoto's, some have lupus, somehave ms-like diseases, a few have gotten sjogren's syndrome, orscleroderma. ...fibromyalgia is rampant, as is chronic fatigue syndromeor multiple chemical sensitivity. Connective tissue disease is anotherterm used for our particular kind of autoimmunity.so, any tests in this area might reveal something. Although there aremany women who have completely normal blood tests while feeling likethey are ready to die. This reason alone makes me believe thathormonal issues are huge.There is also a possibility of parasites, overloads of fungus, viruses,or other pathogens that are subclinical in nature.I hope this helps you get started on the pathway to healing and agreater understanding of what is happening with you. It is going to beimportant for you to consider completely removing the implants for good.I say this because in the long run, breast implants do nothing at all tocontribute toward good health, and as we get older, well, let's just saythat it never gets any easier to stay in good health. Every advantage wecan get is a good one, and breast implants just gotta go eventually. The safest route is to be completely implant free for life.I wish you well, and welcome. I hope you find our group enlightening.Warmly,Patty>> Hi->> I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). InFebruary 2009, I started to develop panic attacks, depression, inabilityto handle stress, hypersensitivity to noise, MS-like symptoms ofalternating pain and feeling like my legs were going to sleep, muscletwitching, insomnia, nightsweats, fatigue, digestive problems. I haveundergone all kinds of testing for thyroid, hormones, etc. and amactually getting a little better under the care of a holistic M.D. herein Virginia. I still have problems with insomnia, depression and someanxiety, as well as the nightsweats. These problems were originallyattributed to fluctuating hormones and adrenal insufficiency, but I'mstarting to wonder if my body may be reacting to the silicone bagshousing the saline. My question is: What tests do I have my doctorrequest to find out if my implants are causing me problems? Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 My Dear Friend: Welcome to this wonderful group of women. I am sorry that you are sick from your implants, and your symptoms are the same as mine. We hope that you will do some research on these devices, because you will find that many women are very sick from their breast implants. Please stay close to us, and we will help you to get through this. Sending love always...Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~``````````` New to Group Hi- I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In February 2009, I started to develop panic attacks, depression, inability to handle stress, hypersensitivity to noise, MS-like symptoms of alternating pain and feeling like my legs were going to sleep, muscle twitching, insomnia, nightsweats, fatigue, digestive problems. I have undergone all kinds of testing for thyroid, hormones, etc. and am actually getting a little better under the care of a holistic M.D. here in Virginia. I still have problems with insomnia, depression and some anxiety, as well as the nightsweats. These problems were originally attributed to fluctuating hormones and adrenal insufficiency, but I'm starting to wonder if my body may be reacting to the silicone bags housing the saline. My question is: What tests do I have my doctor request to find out if my implants are causing me problems? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 , What a truly kind letter and one that I am sure will bring joy to so many women, knowing that you have made a wise choice to protect your health! You're a very smart woman! Thank you for such kind words, and thank you for being willing to help by sharing the truth that breast implants are dangerous to your friends! Every word spoken has an effect...and I pray that together, we make a difference in the lives of thousands of women everywhere. You're wonderful! God bless you! Patty > > > > Hi- > > > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In > February 2009, I started to develop panic attacks, depression, inability > to handle stress, hypersensitivity to noise, MS-like symptoms of > alternating pain and feeling like my legs were going to sleep, muscle > twitching, insomnia, nightsweats, fatigue, digestive problems. I have > undergone all kinds of testing for thyroid, hormones, etc. and am > actually getting a little better under the care of a holistic M.D. here > in Virginia. I still have problems with insomnia, depression and some > anxiety, as well as the nightsweats. These problems were originally > attributed to fluctuating hormones and adrenal insufficiency, but I'm > starting to wonder if my body may be reacting to the silicone bags > housing the saline. My question is: What tests do I have my doctor > request to find out if my implants are causing me problems? Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Thanks Patty- I've spoken with my MD today and he is willing to do the testing. I did have other issues going on in my life (a lot of stress) which is also a factor. With adrenal issues, it is hard to say what causes them....can be attributable to many causes. I already had underlying Hashimoto's and have been on hormone replacement since 1996 (planning on switching to Armour natural thyroid as soon as it becomes more readily available). I must point out that I am recovering and many of my most severe symptoms have gone away, which leads me to hope and my doctor to believe that, for now, the implants may not be affecting me adversely, but it doesn't hurt to test to make sure. And since I saw a common thread among the symptoms, I thought I should doublecheck. It should be noted that late-stage Lyme disease can cause many of these symptoms and I hope that others in this community make sure that they get tested for that. But, as you say, the implants aren't forever, so I've also contacted my plastic surgeon's office about explantation, should I decide to go that route. Thank you so much for your kind reply and information! Sharen From: glory2glory1401 <glory2glory1401@...>Subject: Re: New to Group Date: Wednesday, September 16, 2009, 8:44 PM Hi Sharen,Boy does your story sound familiar! We hear it all too often, and I'msorry for that. I wish you didn't have to suffer in the same way thatso many women have after getting breast implants of any kind.All of this is very common, and it is not a good thing at all...yourbody is laboring under the burden of those implants, and your immunesystem may be very negatively affected...sometime s for life. It is notsomething to play around with.I am glad to hear that you are under the care of a holistic doctor. They are the most knowledgeable and most effective in understanding whatis going on with us and how to deal with it. You are on the righttrack.I wish there was an easy answer to confirm it is the implants making youill...but it is just not that simple. That is why there has been courtcases and lawsuits stuck in some kind of strange limbolandforever...because the manufacturer' s have exploited the fact that theimplants can't be PROVEN to have caused all of these symptoms andillnesses for women. If we had a few simple tests to do to pointdirectly to the implants, the manufacturers would have been in deep doodoo a long time ago, and women would have won in court easily. IWISH!!!! Alot of suffering could have been avoided.So, the mystery remains and women all over the planet are getting sickfrom their implants and nobody really quite understands it or caresenough in the medical world to stop the insanity. Thus the need forsupport groups like this one.You can get tests for autoimmunity. ..these are the most common areas ofconcern for women getting sick from implants. Many women haveautoimmune thyroid disease, such as Hashimoto's, some have lupus, somehave ms-like diseases, a few have gotten sjogren's syndrome, orscleroderma. ...fibromyalgia is rampant, as is chronic fatigue syndromeor multiple chemical sensitivity. Connective tissue disease is anotherterm used for our particular kind of autoimmunity.so, any tests in this area might reveal something. Although there aremany women who have completely normal blood tests while feeling likethey are ready to die. This reason alone makes me believe thathormonal issues are huge.There is also a possibility of parasites, overloads of fungus, viruses,or other pathogens that are subclinical in nature.I hope this helps you get started on the pathway to healing and agreater understanding of what is happening with you. It is going to beimportant for you to consider completely removing the implants for good.I say this because in the long run, breast implants do nothing at all tocontribute toward good health, and as we get older, well, let's just saythat it never gets any easier to stay in good health. Every advantage wecan get is a good one, and breast implants just gotta go eventually. The safest route is to be completely implant free for life.I wish you well, and welcome. I hope you find our group enlightening.Warmly,Patty>> Hi->> I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). InFebruary 2009, I started to develop panic attacks, depression, inabilityto handle stress, hypersensitivity to noise, MS-like symptoms ofalternating pain and feeling like my legs were going to sleep, muscletwitching, insomnia, nightsweats, fatigue, digestive problems. I haveundergone all kinds of testing for thyroid, hormones, etc. and amactually getting a little better under the care of a holistic M.D. herein Virginia. I still have problems with insomnia, depression and someanxiety, as well as the nightsweats. These problems were originallyattributed to fluctuating hormones and adrenal insufficiency, but I'mstarting to wonder if my body may be reacting to the silicone bagshousing the saline. My question is: What tests do I have my doctorrequest to find out if my implants are causing me problems? Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Thank you so much Lea. I am getting some better, but I'm still going to undergo the testing to rule it out. Sharen From: Lea <leamary@...>Subject: Re: New to Group Date: Thursday, September 17, 2009, 9:54 AM My Dear Friend: Welcome to this wonderful group of women. I am sorry that you are sick from your implants, and your symptoms are the same as mine. We hope that you will do some research on these devices, because you will find that many women are very sick from their breast implants. Please stay close to us, and we will help you to get through this. Sending love always...Lea ~~~~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~~~ ~~~~~~~`` ````````` New to Group Hi- I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In February 2009, I started to develop panic attacks, depression, inability to handle stress, hypersensitivity to noise, MS-like symptoms of alternating pain and feeling like my legs were going to sleep, muscle twitching, insomnia, nightsweats, fatigue, digestive problems. I have undergone all kinds of testing for thyroid, hormones, etc. and am actually getting a little better under the care of a holistic M.D. here in Virginia. I still have problems with insomnia, depression and some anxiety, as well as the nightsweats. These problems were originally attributed to fluctuating hormones and adrenal insufficiency, but I'm starting to wonder if my body may be reacting to the silicone bags housing the saline. My question is: What tests do I have my doctor request to find out if my implants are causing me problems? Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Hi Sharen. I had all of your symptoms! I spent 4 years trying to find other causes for this myriad of symptoms. I've spent many thousands of dollars and a huge amount of time with holistic doctors and research and all. My constant detox, holistic helpers, and all .. did help .. but they essentially kept me functioning. But, I was spiralling down a path towards increasingly poor health. And, I was so afraid I would completely lose my brainpower before I could try to piece together what was wrong. I suspected the implants for almost 4 years, but I didn't have them removed until 2 months ago. It was a very hard decision, but I am SO glad I had the explant. It has been the single best thing I've done to improve my health. I am already so much better! My brain function and energy are back. Here are some words of wisdom from some smart doctors: 1. People with Hashmimoto's should not have implants 2. It's not a matter of IF your body will reject your implants, it is only a matter of WHEN I think you are lucky that you have connected the dots fairly quickly. Be careful not to wait too long as I did. Our bodies can only handle so much toxicity and carrying around silicone sacs just doesn't work for many of us. Good luck, > > Hi- > � > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008).� In February 2009, I started to develop panic attacks, depression, inability to handle stress, hypersensitivity to noise, MS-like symptoms of alternating pain and feeling like my legs were going to sleep, muscle twitching, insomnia, nightsweats, fatigue, digestive problems.�� I have undergone all kinds of testing for thyroid, hormones, etc. and am actually getting a little better under the care of a holistic M.D. here in Virginia.� I still have problems with insomnia, depression and some anxiety, as well as the nightsweats.� These problems were originally attributed to fluctuating hormones and adrenal insufficiency, but I'm starting to wonder if my body may be reacting to the silicone bags housing the saline.� My question is:� What tests do I have my doctor request to find out if my implants are causing me problems?� Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Sharen, Since there are no tests to see if it is the implants causing your symptoms, what tests is your MD talking about? Stress is certainly an issue for many people and can cause all kinds of problems, especially in our chemically, hormone laden world...and think about this for a second: Implants are a form of stress to your body, as it fights them 24/7. The immune system is always on alert against this foreign body inside you, creating stress of its own. I've taken Armour thyroid for years...it is readily available right now, but the secret is in finding a doctor willing to prescribe it for you. Many doctors prefer using the synthetics, such as Synthroid. There are other natural thyroid meds out there, such as Westhroid, or Naturethroid. http://thyroid.about.com/cs/thyroiddrugs/a/naturals.htm Lyme disease is considered often because the symptoms are so similar, but in reality, it is rare to actually have Lyme disease. Many people are not exposed to ticks. I'm a hunter's wife and even I've rarely been exposed to ticks, and I've spent many summers out in the wilderness! The truth is that implants, for reasons of political expedience alone, are often the last reason to be considered for ailing health by medical professionals, when it should be one of the first! It should never be forgotten that politics is a powerful force in every area of our life, because it centers on power, greed, and money. And that includes in the sacred field of healing, where money drives many decisions, much to our horror and dismay. I'm glad to hear you are considering explant as a possible course of action. In our experienc, it is the best one. Take care and God bless! Patty > > > > Hi- > > > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In > February 2009, I started to develop panic attacks, depression, inability > to handle stress, hypersensitivity to noise, MS-like symptoms of > alternating pain and feeling like my legs were going to sleep, muscle > twitching, insomnia, nightsweats, fatigue, digestive problems. I have > undergone all kinds of testing for thyroid, hormones, etc. and am > actually getting a little better under the care of a holistic M.D. here > in Virginia. I still have problems with insomnia, depression and some > anxiety, as well as the nightsweats. These problems were originally > attributed to fluctuating hormones and adrenal insufficiency, but I'm > starting to wonder if my body may be reacting to the silicone bags > housing the saline. My question is: What tests do I have my doctor > request to find out if my implants are causing me problems? Thanks! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Hi - Thanks for your email. I do have Hashimoto's. I see my doctor Wednesday and hopefully will get set up to have my testing done. Thanks again! Sharen From: <vioneering@...>Subject: Re: New to Group Date: Sunday, September 20, 2009, 11:31 PM Hi Sharen. I had all of your symptoms! I spent 4 years trying to find other causes for this myriad of symptoms. I've spent many thousands of dollars and a huge amount of time with holistic doctors and research and all. My constant detox, holistic helpers, and all .. did help .. but they essentially kept me functioning. But, I was spiralling down a path towards increasingly poor health. And, I was so afraid I would completely lose my brainpower before I could try to piece together what was wrong.I suspected the implants for almost 4 years, but I didn't have them removed until 2 months ago. It was a very hard decision, but I am SO glad I had the explant. It has been the single best thing I've done to improve my health. I am already so much better! My brain function and energy are back.Here are some words of wisdom from some smart doctors:1. People with Hashmimoto's should not have implants2. It's not a matter of IF your body will reject your implants, it is only a matter of WHENI think you are lucky that you have connected the dots fairly quickly. Be careful not to wait too long as I did. Our bodies can only handle so much toxicity and carrying around silicone sacs just doesn't work for many of us. Good luck,>> Hi-> �> I'm Sharen, a 48 y.o. with saline implants (BA in July 2008).� In February 2009, I started to develop panic attacks, depression, inability to handle stress, hypersensitivity to noise, MS-like symptoms of alternating pain and feeling like my legs were going to sleep, muscle twitching, insomnia, nightsweats, fatigue, digestive problems.�� I have undergone all kinds of testing for thyroid, hormones, etc. and am actually getting a little better under the care of a holistic M.D. here in Virginia.� I still have problems with insomnia, depression and some anxiety, as well as the nightsweats.� These problems were originally attributed to fluctuating hormones and adrenal insufficiency, but I'm starting to wonder if my body may be reacting to the silicone bags housing the saline.� My question is:� What tests do I have my doctor request to find out if my implants are causing me problems?� Thanks!> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Hi Patty- I did find specific tests on the web being done to check for silicone poisoning and we also discussed testing for metal toxicity. He says it is a pretty good sign that I continue to get better that it is probably not the implants making me sick at this time, but as you say...it isn't a matter of if, but when. My doctor plans on switching me to Armour thyroid, but the maker has on their website a notice regarding availability. He has had reports from his other patients who were having trouble getting it in our area. You're lucky that you haven't experienced this shortage at your pharmacy. Thanks! Sharen From: glory2glory1401 <glory2glory1401@...>Subject: Re: New to Group Date: Monday, September 21, 2009, 9:56 AM Sharen,Since there are no tests to see if it is the implants causing your symptoms, what tests is your MD talking about?Stress is certainly an issue for many people and can cause all kinds of problems, especially in our chemically, hormone laden world...and think about this for a second: Implants are a form of stress to your body, as it fights them 24/7. The immune system is always on alert against this foreign body inside you, creating stress of its own.I've taken Armour thyroid for years...it is readily available right now, but the secret is in finding a doctor willing to prescribe it for you. Many doctors prefer using the synthetics, such as Synthroid. There are other natural thyroid meds out there, such as Westhroid, or Naturethroid. http://thyroid. about.com/ cs/thyroiddrugs/ a/naturals. htmLyme disease is considered often because the symptoms are so similar, but in reality, it is rare to actually have Lyme disease. Many people are not exposed to ticks. I'm a hunter's wife and even I've rarely been exposed to ticks, and I've spent many summers out in the wilderness! The truth is that implants, for reasons of political expedience alone, are often the last reason to be considered for ailing health by medical professionals, when it should be one of the first! It should never be forgotten that politics is a powerful force in every area of our life, because it centers on power, greed, and money. And that includes in the sacred field of healing, where money drives many decisions, much to our horror and dismay. I'm glad to hear you are considering explant as a possible course of action. In our experienc, it is the best one.Take care and God bless!Patty> >> > Hi-> >> > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> February 2009, I started to develop panic attacks, depression, inability> to handle stress, hypersensitivity to noise, MS-like symptoms of> alternating pain and feeling like my legs were going to sleep, muscle> twitching, insomnia, nightsweats, fatigue, digestive problems. I have> undergone all kinds of testing for thyroid, hormones, etc. and am> actually getting a little better under the care of a holistic M.D. here> in Virginia. I still have problems with insomnia, depression and some> anxiety, as well as the nightsweats. These problems were originally> attributed to fluctuating hormones and adrenal insufficiency, but I'm> starting to wonder if my body may be reacting to the silicone bags> housing the saline. My question is: What tests do I have my doctor> request to find out if my implants are causing me problems? Thanks!> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Sharen, There are silicone antibody tests...are these what he is referring to? These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone. If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants. No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me! Patty > > > > > > Hi- > > > > > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In > > February 2009, I started to develop panic attacks, depression, inability > > to handle stress, hypersensitivity to noise, MS-like symptoms of > > alternating pain and feeling like my legs were going to sleep, muscle > > twitching, insomnia, nightsweats, fatigue, digestive problems. I have > > undergone all kinds of testing for thyroid, hormones, etc. and am > > actually getting a little better under the care of a holistic M.D. here > > in Virginia. I still have problems with insomnia, depression and some > > anxiety, as well as the nightsweats. These problems were originally > > attributed to fluctuating hormones and adrenal insufficiency, but I'm > > starting to wonder if my body may be reacting to the silicone bags > > housing the saline. My question is: What tests do I have my doctor > > request to find out if my implants are causing me problems? Thanks! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 hi patty; i dont know for sure, but was led to believe that that dr. shanklin was able to determine silicone poisioning. that is why i was trying to get ahold of him when i wrote you once, and you said you thot he was no longer doing this and you were going to check with someone (colleen i think was her name) who either lives in TN or knew something about him. i never heard back from you on that. i've also heard back some years ago when if first got the silicone shot, of dr. lykissa in TX who takes some fluid samples (dont know how reliable he is, but do know hes expensive). he supposedly can tell how 'silicone laden' you are. but like i said, dont know how reliable he is - has anyone done testing with him or know someone who has, that may read this? thanks, patty. gg Re: New to Group Sharen,There are silicone antibody tests...are these what he is referring to?These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone.If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants.No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me!Patty> > >> > > Hi-> > >> > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> > February 2009, I started to develop panic attacks, depression, inability> > to handle stress, hypersensitivity to noise, MS-like symptoms of> > alternating pain and feeling like my legs were going to sleep, muscle> > twitching, insomnia, nightsweats, fatigue, digestive problems. I have> > undergone all kinds of testing for thyroid, hormones, etc. and am> > actually getting a little better under the care of a holistic M.D. here> > in Virginia. I still have problems with insomnia, depression and some> > anxiety, as well as the nightsweats. These problems were originally> > attributed to fluctuating hormones and adrenal insufficiency, but I'm> > starting to wonder if my body may be reacting to the silicone bags> > housing the saline. My question is: What tests do I have my doctor> > request to find out if my implants are causing me problems? Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Hi GG, I did hear back from Colleen about Dr. Shanklin. Here is her reply to me. Her email is dated September 17th, a little over a week ago: Hi Patty, Good to hear from you! How are you doing? I'm sorry I have been so disconnected. I've been focusing 100% of my energy on getting better. I have the BEST doctor and he is working with me to get my health back. He is not covered by insurance but he is well worth the cost. He uses conventional medicine along with alternative treatments. He is also an artist and we talk like old friends when I go see him. He truly works WITH you and treats the whole person. This is his website -- http://www.thestoneinstitute.com/ I'm doing much better, the improvement has been gradual so it's hard to tell the difference day to day but I know I am improving. I'm working on getting my hormone levels balanced -- I think that will make a big difference in how I feel! I've made big changes in my life in the past year in order to have less stress, which does a number on me! So I'm just taking the best possible care of myself and putting " me " first which I'd never really done. I am still with Will, he has definitely changed my world just by supporting and loving me! I haven't heard anything about Dr. Shanklin in a long time. I think he retired but I'm not sure. I can give you the last contact info I had for him: R. Shanklin, M.D., F.R.S.M. UT Health Science Center 930 Madison Ave. #512 Memphis, TN 38163 901-448-6300 dshanklin@... Also, Memphis Pathology Laboratory (now American Esoteric Laboratories) is where the silicone sensitivity test was done and I think they still do it there. Here's their info: American Esoteric Laboratories 5846 Distribution Drive Memphis, TN 38141 901-405-8200 http://www.mpllab.com/ I've had a lot of people ask me for info about the silicone sensitivity test. I understand the desire for a test to tell you for sure that your implants are making you sick before you go through having them removed. It is expensive and really only tells you what you already know . . . your implants are making you sick! Anyway, it is way past my bed time! I hope you are doing well!! Love, Colleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 Hi again gg, I think the correct term for the testing is silicone sensitivity, rather than silicone poisoning. It would seem to me to be the same as a silicone antibody test, which shows that you have an abnormal reaction to the presence of silicone. What most detractors argue is that: 1) these tests is not credible, and not offered at most labs. 2) the test only shows that the patient has a sensitivity to silicone as a generality, and NOT specifically from the implants, based on the fact that silicone products are used everywhere in different forms. (Such as dimethicone, simethicone, etc.) Silicone has been used from hygiene products to anti-foaming agents in foods, to baby pacifier nipples. Therefore, it is argued, that the implants cannot be specifically implicated, or SOLELY implicated. Here are some internet articles regarding this. http://www.nytimes.com/1993/12/14/science/blood-test-to-check-implants-reported.\ html http://www.fasebj.org/cgi/content/abstract/7/13/1265 http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=338 This last one is worth posting to the group in its entirety. Patty Re: Re: New to Group hi patty; i dont know for sure, but was led to believe that that dr. shanklin was able to determine silicone poisioning. that is why i was trying to get ahold of him when i wrote you once, and you said you thot he was no longer doing this and you were going to check with someone (colleen i think was her name) who either lives in TN or knew something about him. i never heard back from you on that. i've also heard back some years ago when if first got the silicone shot, of dr. lykissa in TX who takes some fluid samples (dont know how reliable he is, but do know hes expensive). he supposedly can tell how 'silicone laden' you are. but like i said, dont know how reliable he is - has anyone done testing with him or know someone who has, that may read this? thanks, patty. gg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2009 Report Share Posted September 29, 2009 I looked at the website Colleen listed, and it does have a test called " Silicone Hypersensitivity " . If anyone calls them to discuss it, or schedule a draw, could you please let us know how the results turn out, and what you were told by the lab regarding the interpretation of the results? Thanks! Patty > > Hi GG, > I did hear back from Colleen about Dr. Shanklin. Here is her reply to me. Her email is dated September 17th, a little over a week ago: > > Hi Patty, > > Good to hear from you! How are you doing? > > I'm sorry I have been so disconnected. I've been focusing 100% of my energy on getting better. I have the BEST doctor and he is working with me to get my health back. He is not covered by insurance but he is well worth the cost. He uses conventional medicine along with alternative treatments. He is also an artist and we talk like old friends when I go see him. He truly works WITH you and treats the whole person. This is his website -- http://www.thestoneinstitute.com/ > > I'm doing much better, the improvement has been gradual so it's hard to tell the difference day to day but I know I am improving. I'm working on getting my hormone levels balanced -- I think that will make a big difference in how I feel! I've made big changes in my life in the past year in order to have less stress, which does a number on me! So I'm just taking the best possible care of myself and putting " me " first which I'd never really done. I am still with Will, he has definitely changed my world just by supporting and loving me! > > I haven't heard anything about Dr. Shanklin in a long time. I think he retired but I'm not sure. I can give you the last contact info I had for him: > > R. Shanklin, M.D., F.R.S.M. > UT Health Science Center > 930 Madison Ave. #512 > Memphis, TN 38163 > 901-448-6300 > dshanklin@... > > Also, Memphis Pathology Laboratory (now American Esoteric Laboratories) is where the silicone sensitivity test was done and I think they still do it there. Here's their info: > > American Esoteric Laboratories > 5846 Distribution Drive > Memphis, TN 38141 > 901-405-8200 > http://www.mpllab.com/ > > I've had a lot of people ask me for info about the silicone sensitivity test. I understand the desire for a test to tell you for sure that your implants are making you sick before you go through having them removed. It is expensive and really only tells you what you already know . . . your implants are making you sick! > > Anyway, it is way past my bed time! I hope you are doing well!! > > Love, > Colleen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 That's it; silicone antibodies. My mistake. From: glory2glory1401 <glory2glory1401@...>Subject: Re: New to Group Date: Monday, September 28, 2009, 5:05 PM Sharen,There are silicone antibody tests...are these what he is referring to?These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone.If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants.No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me!Patty> > >> > > Hi-> > >> > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> > February 2009, I started to develop panic attacks, depression, inability> > to handle stress, hypersensitivity to noise, MS-like symptoms of> > alternating pain and feeling like my legs were going to sleep, muscle> > twitching, insomnia, nightsweats, fatigue, digestive problems. I have> > undergone all kinds of testing for thyroid, hormones, etc. and am> > actually getting a little better under the care of a holistic M.D. here> > in Virginia. I still have problems with insomnia, depression and some> > anxiety, as well as the nightsweats. These problems were originally> > attributed to fluctuating hormones and adrenal insufficiency, but I'm> > starting to wonder if my body may be reacting to the silicone bags> > housing the saline. My question is: What tests do I have my doctor> > request to find out if my implants are causing me problems? Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009 patty: am wondering if you;ve heard of E.. Lykissa in TX. (i think hes a toxicologist) - i think he claims he can tell how poisoned one is with silicone if you send him certain bodily fluid samples. i've never used him, but have heard of people who have - he was too expensive for me, but i considered it. or, like i posted on other message, has anyone else out there heard of or used him.? am wondering if maybe Ilena has heard of him. gg Re: New to Group Date: Monday, September 28, 2009, 5:05 PM Sharen,There are silicone antibody tests...are these what he is referring to?These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone.If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants.No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me!Patty> > >> > > Hi-> > >> > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> > February 2009, I started to develop panic attacks, depression, inability> > to handle stress, hypersensitivity to noise, MS-like symptoms of> > alternating pain and feeling like my legs were going to sleep, muscle> > twitching, insomnia, nightsweats, fatigue, digestive problems. I have> > undergone all kinds of testing for thyroid, hormones, etc. and am> > actually getting a little better under the care of a holistic M.D. here> > in Virginia. I still have problems with insomnia, depression and some> > anxiety, as well as the nightsweats. These problems were originally> > attributed to fluctuating hormones and adrenal insufficiency, but I'm> > starting to wonder if my body may be reacting to the silicone bags> > housing the saline. My question is: What tests do I have my doctor> > request to find out if my implants are causing me problems? Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2009 Report Share Posted September 30, 2009  Gayle, I have spoken to Dr. Lykissa, and he is an Angel. That was several years ago, but you could try to contact him if you have his number. I am trying to get back to give more support, but things are not that good here at this time. Honey, stay close to us...love you....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Re: New to Group Date: Monday, September 28, 2009, 5:05 PM Sharen,There are silicone antibody tests...are these what he is referring to?These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone.If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants.No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me!Patty> > >> > > Hi-> > >> > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> > February 2009, I started to develop panic attacks, depression, inability> > to handle stress, hypersensitivity to noise, MS-like symptoms of> > alternating pain and feeling like my legs were going to sleep, muscle> > twitching, insomnia, nightsweats, fatigue, digestive problems. I have> > undergone all kinds of testing for thyroid, hormones, etc. and am> > actually getting a little better under the care of a holistic M.D. here> > in Virginia. I still have problems with insomnia, depression and some> > anxiety, as well as the nightsweats. These problems were originally> > attributed to fluctuating hormones and adrenal insufficiency, but I'm> > starting to wonder if my body may be reacting to the silicone bags> > housing the saline. My question is: What tests do I have my doctor> > request to find out if my implants are causing me problems? Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 GG: Oh yes, I've heard of him for sure! One of our local ladies has sent tons of info on his work, personally to me and perhaps on the group as well. If you do a search through the archives for his name, you will see what has been discussed. It's mostly platinum that he is concerned with, from my understanding. But, as usual, these experts and their work are rarely acknowledged by those who have a vested interest in keeping breast implants on the market and out of courts. I believe their science is sound, but they can only work on us one at a time, and most of us can't afford their services, unfortunately. Patty patty: am wondering if you;ve heard of E.. Lykissa in TX. (i think hes a toxicologist) - i think he claims he can tell how poisoned one is with silicone if you send him certain bodily fluid samples. i've never used him, but have heard of people who have - he was too expensive for me, but i considered it. or, like i posted on other message, has anyone else out there heard of or used him.? am wondering if maybe Ilena has heard of him. gg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 Lea, I am so sorry to hear that you are struggling again. Are you treating for the H. Pylori? I hope your does not have the flu. I appreciate every effort you make to support all of these women that come for help. I love you Lea, and hope you get better. Stay in touch and let us know how you are doing. Hugs, Patty > > > > > > > > Hi- > > > > > > > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In > > > February 2009, I started to develop panic attacks, depression, inability > > > to handle stress, hypersensitivity to noise, MS-like symptoms of > > > alternating pain and feeling like my legs were going to sleep, muscle > > > twitching, insomnia, nightsweats, fatigue, digestive problems. I have > > > undergone all kinds of testing for thyroid, hormones, etc. and am > > > actually getting a little better under the care of a holistic M.D. here > > > in Virginia. I still have problems with insomnia, depression and some > > > anxiety, as well as the nightsweats. These problems were originally > > > attributed to fluctuating hormones and adrenal insufficiency, but I'm > > > starting to wonder if my body may be reacting to the silicone bags > > > housing the saline. My question is: What tests do I have my doctor > > > request to find out if my implants are causing me problems? Thanks! > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 patty; does he not test for silicone itself, and if so, has it been found to be high in most women? is that how he reads it - like high, low, etc.? do the ladies who've done the testing feel he's worth it and that he's probably pretty accurate? thanks. gg Re: New to Group GG:Oh yes, I've heard of him for sure! One of our local ladies has sent tons of info on his work, personally to me and perhaps on the group as well.If you do a search through the archives for his name, you will see what has been discussed. It's mostly platinum that he is concerned with, from my understanding. But, as usual, these experts and their work are rarely acknowledged by those who have a vested interest in keeping breast implants on the market and out of courts. I believe their science is sound, but they can only work on us one at a time, and most of us can't afford their services, unfortunately. Pattypatty:am wondering if you;ve heard of E.. Lykissa in TX. (i think hes a toxicologist) - i think he claims he can tell how poisoned one is with silicone if you send him certain bodily fluid samples. i've never used him, but have heard of people who have - he was too expensive for me, but i considered it. or, like i posted on other message, has anyone else out there heard of or used him.? am wondering if maybe Ilena has heard of him.gg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2009 Report Share Posted October 1, 2009 hi lea; sorry to hear you're still not feeling well - hope you recover soon. but if you feel like answering, how is Lykissa an angel? he's very expensive. do you think he measures silicone in the body accurately? have a lot of ladies used him for that purpose? to me, it would be very interesting to see how much silicone one has, and where the most of it is. I dont think he can tell where it is, but maybe how much? take care. gg Re: Re: New to Group  Gayle, I have spoken to Dr. Lykissa, and he is an Angel. That was several years ago, but you could try to contact him if you have his number. I am trying to get back to give more support, but things are not that good here at this time. Honey, stay close to us...love you....Lea ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Re: New to Group Date: Monday, September 28, 2009, 5:05 PM Sharen,There are silicone antibody tests...are these what he is referring to?These don't show poisoning, only that your immune system may have an abnormal reaction to the presence of silicone.If it isn't the silicone antibody test, I'd really like to know what he is talking about, as I have never, ever heard of a test for silicone poisoning. I will say it again...if there were such a test that could PROVE the silicone implants for causing our illnesses, we would have won in court decades ago and there would never have been thousands of women fighting for their rightful remuneration for all of their pain and suffering over the years since getting sick from implants.No doctor has ever been able to prove or disprove the implants as a cause for illness, ever. If anyone knows otherwise, please enlighten me!Patty> > >> > > Hi-> > >> > > I'm Sharen, a 48 y.o. with saline implants (BA in July 2008). In> > February 2009, I started to develop panic attacks, depression, inability> > to handle stress, hypersensitivity to noise, MS-like symptoms of> > alternating pain and feeling like my legs were going to sleep, muscle> > twitching, insomnia, nightsweats, fatigue, digestive problems. I have> > undergone all kinds of testing for thyroid, hormones, etc. and am> > actually getting a little better under the care of a holistic M.D. here> > in Virginia. I still have problems with insomnia, depression and some> > anxiety, as well as the nightsweats. These problems were originally> > attributed to fluctuating hormones and adrenal insufficiency, but I'm> > starting to wonder if my body may be reacting to the silicone bags> > housing the saline. My question is: What tests do I have my doctor> > request to find out if my implants are causing me problems? Thanks!> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 gg, I don't know for certain...what I do remember was the focus on the platinum toxicity. You might be able to call his lab and find out more info from them. I don't know enough women who have seen or worked with him, but I am under the impression that he is good at what he does. Check out the posts, if you can, or call their office for more assistance and if you do, please let us know if you find out anything significant. Thanks gg! Patty Re: Re: New to Group patty; does he not test for silicone itself, and if so, has it been found to be high in most women? is that how he reads it - like high, low, etc.? do the ladies who've done the testing feel he's worth it and that he's probably pretty accurate? thanks. gg Re: New to Group GG: Oh yes, I've heard of him for sure! One of our local ladies has sent tons of info on his work, personally to me and perhaps on the group as well. If you do a search through the archives for his name, you will see what has been discussed. It's mostly platinum that he is concerned with, from my understanding. But, as usual, these experts and their work are rarely acknowledged by those who have a vested interest in keeping breast implants on the market and out of courts. I believe their science is sound, but they can only work on us one at a time, and most of us can't afford their services, unfortunately. Patty patty: am wondering if you;ve heard of E.. Lykissa in TX. (i think hes a toxicologist) - i think he claims he can tell how poisoned one is with silicone if you send him certain bodily fluid samples. i've never used him, but have heard of people who have - he was too expensive for me, but i considered it. or, like i posted on other message, has anyone else out there heard of or used him.? am wondering if maybe Ilena has heard of him. gg Quote Link to comment Share on other sites More sharing options...
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