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Hello Pinar, that is so wonderful you were able to find peace thru this group.... we have such a wonderful collection of individuals that I know I love dearly.on my way to Check out your pictures...Tonikka (Lynden)Edmonton Alberta CANADA

On 2010-09-28, at 2:50 AM, PINAR SANRI wrote:

Hello,

I want to thank to the one(I think Shireen) who asteblished this group.My son

Poyraz was born with BPES two years ago.He was the one in our whole family so we

were shocked,disappointed...etc.I was crying all the time asking why did this

happen to us.At that times I found the group and started to learn about BPES and

see other children and adults,write mails to them in order to understand the

situation.

Today I am very happy.Maybe you will find this interesting but I am pleased to

have a child having BPES because he is different.Everyone looks at him,trying to

understand and I feel comfortable now because he is speaking and no one thinks

there is something wrong with him.His big brother says he does not want an

operation for him because we love him just the way his eyes are.When I read the

e-mails of new members I remember that times and can understand their feelings.

If you want to see my son's pictures or just write to me you can add me on

facebook.(you can search Pinar Sanri Yalcin)

Love

Pinar(Turkey,Istanbul)

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  • 2 weeks later...

Welcome Pinar, I have had all the same feelings!

Thankful for this group,

Kim Holmes, mother of McKenzie Holmes BPES born 6/23/05(USA, New York)

>

> Hello,

>

> I want to thank to the one(I think Shireen) who asteblished this group.My son

> Poyraz was born with BPES two years ago.He was the one in our whole family so

we

> were shocked,disappointed...etc.I was crying all the time asking why did this

> happen to us.At that times I found the group and started to learn about BPES

and

> see other children and adults,write mails to them in order to understand the

> situation.

>

> Today I am very happy.Maybe you will find this interesting but I am pleased to

> have a child having BPES because he is different.Everyone looks at him,trying

to

> understand and I feel comfortable now because he is speaking and no one thinks

> there is something wrong with him.His big brother says he does not want an

> operation for him because we love him just the way his eyes are.When I read

the

> e-mails of new members I remember that times and can understand their

feelings.

>

> If you want to see my son's pictures or just write to me you can add me on

> facebook.(you can search Pinar Sanri Yalcin)

>

> Love

> Pinar(Turkey,Istanbul)

>

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