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This

is great news Shireen, many thanks for all your help and support, I’m sure it

really is appreciated by all users of the board :-)

Is

it you who runs this board? If so, you do a great job!

Wishing

you and everyone well,

,

London,

England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Shireen Mohandes

Sent: 24 September 2010 09:03

blepharophimosis

Subject: blepharophimosis the board

Hi

Over the past few weeks we’ve been through some changes in

how the board and its admin, where the messages appear.

We are now back to where we were before all the changes.

In other words, messages on this group are not appearing

anywhere else.

If you post a message here, the only people who see it are

members of this group.

Regards

Shireen

London, England

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Hi

The group was started by a long time ago. However,

there was another BPES group started by Lynne Schauble (in 1994, called BPES Family Support

Network), and I was part of that group. A few years

ago (2004), we decided to merge the groups.

At the time Lynne was moving home and changing jobs, so she took

a back seat for a while, and I took care of the new merged group. Pat Seville

who takes care of the Ohdo group also helps here with this board.

Thanks for your kind comments .

Shireen

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of

Sent: 24 September 2010 09:43

blepharophimosis

Subject: RE: blepharophimosis the board

This is great news Shireen, many thanks for all your help

and support, I’m sure it really is appreciated by all users of the board

:-)

Is it you who runs this board? If so, you do a great

job!

Wishing you and everyone well,

,

London, England

From: blepharophimosis

[mailto:blepharophimosis ] On Behalf Of Shireen Mohandes

Sent: 24 September 2010 09:03

blepharophimosis

Subject: blepharophimosis the board

Hi

Over the past few weeks we’ve been through some

changes in how the board and its admin, where the messages appear.

We are now back to where we were before all the changes.

In other words, messages on this group are not appearing

anywhere else.

If you post a message here, the only people who see it are

members of this group.

Regards

Shireen

London, England

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