Re: pharyngeal flap surgery

[Guest guest]

Hi Nicola

How are you? We live in Colchester now, we last saw you and Grace in 2006 in

Harrogate.

Kirsten had the same procedure at the LGI when she was 4 yrs old and Mr Smyth

did the operation. It made a huge difference to her speech and I have no

reservations recommending Mr Smyth. The staff at LGI were amazing. Kirsten

stayed in hospital for 3 days and went back to school about 2 weeks post op.

She had speech therapy for a year afterwards by the team from LGI. Catriona

Hansen was her speech therapist.

The surgery has honestly been a life saver because Kirsten had to rely on

makaton sign language till she was 4 yrs old. She can now speak clearly, can be

understood on the phone and by people she hasn't met. She is now assessed

annually by the cleft palate team at Chelmsford which is our closest centre.

I still have your home number and if it hasn't changed I will call you tonight.

Take care

x

--- In blepharophimosis , Nicola Horsley <nicola_horsley@...>

wrote:

>

> Hi

> Grace (5 years old) is due to have pharyngeal flap surgery on the 29th Sept.

This is because air escapes through her nose when she speaks making her sound as

if she has a cold.

> Has anyone else had this surgery and if so how did it go? Mr Smyth, the

consultant cleft palete surgeon at Leeds General, has operated on 2 other

children who have blepharophimosis.

> I would love to hear of your experiences as I am rather nervous about the

surgery

> Thanks

> Nicola and Grace, Bradford, England

>