BPES members in Belgium, France, Germany, Ireland, Israel, Italy, Oman, Portugal, Singapore, Spain, Turkey

[Guest guest]

Hi everyone. From time to time I post a list of people who

have wished to have their details on the “Database” section of the

site. Please feel free to add yourselves. If you need any help, do write

to me. On the site it is two rows below the link for photos. Please note that

there are about 930 members of the Group … but around 170 have their

information on the “Database” link on the site.

Regards, Shireen (London, England)

Name

Email

Address

& City

State

Country

People

in my family with BPES

Year of

birth / Gender

Surgery

information

Would

like to meet others in area

My ID

for

Messenger

valentin

herinckx

anne.pascale.schillings@...

Lasne

Belgium

Just

Valentin

1994 - male

2000 :

canthoplasty and frontal supension Brussels) - next operation next july( UZ

Gent )

yes

Jeroen and

Jens

jeroen.kleinen@...

Antwerp

Belgium

Me and my

son Jens

Jeroen:

1976 male; Jens: 2001 male

I had surgery

at the age of 6, 8 and 11 (first correction of the epicanthus inversus,

second lifting of the eyelids). For Jens surgery is planned in 2006

Yes

jeroenkleinen

de

Beukelaer

bdewergifosse@...

Brussels

-

Belgium

Audrey

2005/01

FEMALE

Silicone

sling suspension (january 2006 - Gent Belgium) and YV Canthoplasty (july 2008

- Gent Belgium)

YES

Hervé

Dupichaud

herve.dupichaud@...

Avranches

France

BPES Type

1: me, my 4 sisters and my Father (1929-1993)

November

1969

No surgery

- sight problem and blood (Von Willebrand disease)

YES

herve.dupichaud@...

a

anjashahin@...

Berlin

Germany

me

2002

/ Female

yes!

Helene

LangRegina@...

Leipzig

Germany

1

2002/Female

yes!

kleine_muellerin@...

O'Brien

hplisaobr@...

Maynooth,

County Kildare

Ireland

Daughter -

May 2006

Female

1st Sling

Surgery expected by 1yrs old

Yes please!

hplisaobr

Elinor

elinordomb@...

Tel Aviv

Israel

only me

1975/female

had a few, the

last one when I was 18y/o

yes

Girolamo

o

giro.martino@...

Via

Manzoni, 67 - Pesaro

Italy

Me

& my 3 yrs old son

1961/male

none

girodoc

Cecilia

Massaccio

cecilia_massaccio@...

Via

Carnevali, 91 - Bazzano (BO)

Italy

my

husband Gianluca Capodimonte and our daughter Caterina

CATERINA:

2009 / female

not

yet

yes

please

cecilia_massaccio

Francesco

fraolga@...

Milan

Italy

Italy

our

daughter Caterina

2004

first

one at 10 months, waiting the second one

yes

please

Radek/Alice

Liath_6@...

Milan

Italy/Czech

Rep.

Italy

2

- me and my daughter

me

in 1974 and my daughter in 2005

me

had 3 surgeris in Czech Rep. when I was child, last I had 12 yrs old. Alice

had frontal suspension on Dec 2005.

Yes

sure

bolas1212

Kasia

Cork

Now:

Ireland - Origin: Poland - In between: Germany

me, my

sister, my dad

1981,

female

2 surgeries,

when I was 3 and 4 or 5

yes

Anushka

deepak953@...

Muscat

Oman

None

2003

/ Female

None

as yet (first one in October, 2006)

Yes

Deepak

(Father)

Hogg

chogg@...

Porto

Portugal

just

me

1999/male

none

yet

yes

Naomi C.

ern_chang@...

Singapore

Singapore

One - Naomi

only

2002/Female

None to

date - lid taping only

Yes

llmmcc7@...

Madrid

Spain

just

me

1983

i

have 2, one when i was 6 old and the other one i was 8 years old

i'd

love it

Pinar

Yalcin

pinarsanri@...

Istanbul

Turkey

just my son

2008/M

no

surgeries yet

yes

pinarsanri