Intro

[Guest guest]

Hello Benita! I sure do feel for you. You have so many challenges and still prove to be a wonderful Mother to your children. God bless you for that. I understand your sitution all too well, as I have a 14 year old son with AS who is also basically friendless, he has one friend whom he sees occasionally and will not use the phone either, does not like girls yet, or so he says, and does not speak to anyone at school. He wasn't diagnosed until he was almost 13. He still has his temper tantrums, although not real bad ones but enough to drive me nuts. It is very hard, the fact that he has no friends and has no desire to make any. It's a difficult road but we manage. Of course you have more of a challenge with your diabetic son also. You have had a rough road and I sure do feel for you! You are in my prayers for strength, patience, and peace. Keep up the work of being a good mom.

attstylmom@... wrote:

Hi All, My name is Benita. We live in upstate NY, near Albany. I think my oldest child, a dd, has Asperger's syndrome. She has all the characteristics on the Tony Attwood site and in the books that I'm just starting to read. I don't know where to go from here except that I did just make our first apt. at the pediatrician who specializes in disorders. Where else can I go? I don't need a referral to see specialists so who can I call? Anyway, it's been very difficult raising my dd, Brittany. She has always been super challenging since 1 yr old. Tantrums several times a week starting at age 1 til 12 years old. Now she's almost 15, no more tantrums but it's still very difficult. She has one close friend but the others are just acquaintances. She doesn't like to talk on the phone so she isn't making anymore friends really. And we have always

homeschooled so making new friends can be a challenge. It's not like she's not around any new people, but because she doesn't see them everyday, it's more difficult. Her best friend went to school so she doesn't get to see her that much now either. She's in Tae Kwon Do, Youth group at our church and our homeschooling co-op which is great (she has 4 classes a week plus has lunch with them). But she's been doing this for several years but still, doesnt' make any new close friends. That's hard when you don't make an effort to call anyone (she hates the phone)!!!! She also has no interest in boys. She's a good teen. I have 2 other kids too. 12 yr old girl and almost 9 yr old boy who has type 1 diabetes. Brittany just feels like he's a real pain, like most older sisters I guess. It's difficult. My son needs a lot of care with his diabetes (testing 9x a day, wears an insulin pump so he has to have a 'bolus of insulin' every time he eats and that all has to be changed every 4 days, new

insulin, new site change into his bottom, etc. Life is a handful! Benita, NY (upstate, near Albany!) Homeschooling Mom (our 10th yr!) of 3 (14, 12 and almost 9), plus newborn in Heaven, 9 yr old dx with type 1 Diabetes (juvenile, insulin dependent forever since 10-02), 12 yr old with IgA Nephritis (kidney disease) and one with Asperger's

Syndrome). A Mother can never be perfect, but there are a million things she can do to be a great Mommy!!!

[Guest guest]

Hi Benita,

I know what you are going through..... My son is 10 years old with ASD.... Do you homeschool through your school district or do you use a private program???? If you do it through the school district they can test your daughter and provide extra services if she qualifies such as resource, speech, social skills, etc...... Here in California we have a state program called The Regional Center which also helps to provide services. My son has recently started a social skills group with other boys his age who have AS to teach them the social skills they need all at no charge. You may want to look into what your stste provides.... I believe every state is different. There is alot you can do it just takes a little research. You are doing the right thing by seeing her pediatrician but do have her tested by an autism specialist as well. And do speak with the school district if you homeschool through them.. Sometimes you have to push hard to get them to provide what these kids need

but it is definately worth the fight... Good Luck to you!!!!!!

in Lancaster, Caattstylmom@... wrote:

Hi All, My name is Benita. We live in upstate NY, near Albany. I think my oldest child, a dd, has Asperger's syndrome. She has all the characteristics on the Tony Attwood site and in the books that I'm just starting to read. I don't know where to go from here except that I did just make our first apt. at the pediatrician who specializes in disorders. Where else can I go? I don't need a referral to see specialists so who can I call? Anyway, it's been very difficult raising my dd, Brittany. She has always been super challenging since 1 yr old. Tantrums several times a week starting at age 1 til 12 years old. Now she's almost 15, no more tantrums but it's still very difficult. She has one close friend but the others are just acquaintances. She doesn't like to talk on the phone so she isn't making anymore friends really. And we have always

homeschooled so making new friends can be a challenge. It's not like she's not around any new people, but because she doesn't see them everyday, it's more difficult. Her best friend went to school so she doesn't get to see her that much now either. She's in Tae Kwon Do, Youth group at our church and our homeschooling co-op which is great (she has 4 classes a week plus has lunch with them). But she's been doing this for several years but still, doesnt' make any new close friends. That's hard when you don't make an effort to call anyone (she hates the phone)!!!! She also has no interest in boys. She's a good teen. I have 2 other kids too. 12 yr old girl and almost 9 yr old boy who has type 1 diabetes. Brittany just feels like he's a real pain, like most older sisters I guess. It's difficult. My son needs a lot of care with his diabetes (testing 9x a day, wears an insulin pump so he has to have a 'bolus of insulin' every time he eats and that all has to be changed every 4 days, new

insulin, new site change into his bottom, etc. Life is a handful! Benita, NY (upstate, near Albany!) Homeschooling Mom (our 10th yr!) of 3 (14, 12 and almost 9), plus newborn in Heaven, 9 yr old dx with type 1 Diabetes (juvenile, insulin dependent forever since 10-02), 12 yr old with IgA Nephritis (kidney disease) and one with Asperger's

Syndrome). A Mother can never be perfect, but there are a million things she can do to be a great Mommy!!! __________________________________________________

[Guest guest]

megoonie99 wrote:

> Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

> speak, but I am looking for any info I can find.

>

Welcome, Meg. You may or may not need this group in the future -- but

you are in the right group to get answers until you get a better

diagnosis. This group has mostly been " through the wringer! " as far as

diagnostic tests. Because PID (primary immune deficiencies) are so

rare and under recognized -- our national average a few years ago was 7

years from onset to diagnosis! That's terrible -- so most of us have

seen just about every test out there!

Okay. What you know so far is that the clinical picture for your

daughter is not pretty. That's a clue. It sounds like your doctors are

taking the right approach. First they checked for the Ig's and found

that to be normal. That's good. But that alone doesn't tell the whole

picture. Most of our kids have low numbers. But a few of our kids have

perfectly beautiful numbers but no function.

The way you check function is to see if your daughter builds antibodies

to various vaccinations. The prevnar actually came out after my

daughter was through with that stage -- so others will have to tell you

what is considered to be a " good " response and what isn't. But

apparently it was poor enough of a response that the doctor is going to

try again and see if he can force her body to build antibodies. If not,

what that means is that even though you have the IgG -- it's not working

properly. Then they may recommend a trial of IVIG or prophylactic

antibiotics, etc. But to answer your question -- the vaccination was

the " exposure " to the germ. The titer measures whether she now has a

protection to that exposure -- so no, it doesn't take into account what

she has or has not been exposed to. And what that means is that for

some reason she's not making good strong antibodies to every exposure.

What was her response to the tetanus?

The other thing that they will need to check is whether or not she

" keeps " the titers up. Some of our kids make a pretty decent response

to the vaccinations, but 6 months later -- when you re-check -- they are

gone. So, no, if her titers come up -- she still needs to be checked

out in 6 months to see if they stay up. If they do stay up -- then you

are probably looking at starting over with allergy or something different.

So, there's lots more testing still to be done. And I wish that I could

tell you that it will all be over in a few weeks -- but, the testing is

vitally important and sometimes it takes a year or more of testing

before everyone agrees on the treatment plan.

Sounds like you've got a very knowledgable ped. Let him know that he

can use the Consulting Immunology number that I just posted for

Savannah's mom. That number is free to doctors 877-666-0866 and just

provides a consult with an Immunologist who specializes in PID.

You may want to call the the Immune Deficiency Foundation and order

their material or go online to www.primaryimmune.org to do your research.

I'm glad you felt comfortable asking your questions. Hope we can be of

help to you. Diagnosis is THE worst stage ever. It really does become

pretty routine and comfortable for most people after that stage is

over!!!! I promise.

Ask anything and know that we've " been there - done that! "

In His service,

Dale

[Guest guest]

Welcome Meg.

Intro

Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

speak, but I am looking for any info I can find.

I have three kids, all with asthma of varying severities, though

none really all that bad. My youngest is 7, and she is the one I am

most concerned about right now. She is now on a 21 day course of

augmentin-es, after having done two courses (amox, then augmentin)

back to back at Thanksgiving time. Her asthma started to flare the

week after Christmas, and she started to run another one of " her

fevers. " She will run about 100-101 for no apparent reason. The

first time, I quit taking her temp at 14 days. I really wish I had

written down how many she has had, but it will start from nowhere

and hang at 100-101 for some time.

We went to the ped. Jan 5, and he ordered a sinus x-ray (how we

found this infection), and some blood work--IgG,A,M,E and IgG

subclasses. Those all came back " normal. " (normal is a word I hate,

but won't get in to that now!) He also checked her tetnus and

pneumo. titers. Of the 7 in the prevnar shot, 4 were low, so we had

the shot again last Wed. to see if she makes those antibodies. Also

did 3 sweat tests because I couldn't get her to sweat (Jan in OH!).

Fortunately the last one had enough, so cystic fibrosis was ruled

out. phew!

I have a couple of questions I would like to ask ... should I be

concerned that of her pneumo titers, 7 of the 14 were low, or is it

that she is only 7 and hasn't been exposed to those yet? If she

porduces the antibodies, can I say well, that was it? I have no

idea what I am looking at, but am trying to find out everything I

can. I am just tired of her not looking well, sniffling, coughing,

huge bags underher eyes, and I feel bad sending her to school with a

fever. She feels fine, and even the ped said that if there is

nothing else I can see going on, send her. She has a fit if I come

near her with the thermometer, because she is " going to school,

Mom! "

With her asthma flaring again, she was put on a 5 day burst of

prednisone just today. I can't figure this out and am just looking

for any info you may have.

Thanks!

Meg

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

To unsubscribe

-unsubscribe@groups<mailto:-unsubscribe@groups>.

To search group archives go to:

/messages<PedP\

ID/messages>

[Guest guest]

Welcome to the group Meg!

I too have children that suffer from asthma and I know first hand what you are

going through with your 7 year old daughter. Here's a little history: My

little PID pumpkin is (age 3 1/2 years). He had pneumonia at birth,

eczema, chronic ear infections (tubes at 9 mos.), RSV (6 mos), food allergies,

environmental allergies, asthma and chronic sinus infections. He was on a cycle

of a runny nose that lasted 10 days then developed into an infection,

antibiotics for 14 days, healthy for 7 days and then showing symptoms again by

day 14. We never got more than 14 days in between antibiotics. The scariest

part was how the infections flared his asthma. Twice he was hospitalized from

really bad asthma attacks. The funny thing is that he never has any asthma

symptoms until he has an infection. For over a year, we never saw

without dark circles under his eyes and pale skin. In October, we had him

immune tested and he came back with low IgG and non responsive to several

vaccinations. We went from doctor to doctor (Pediatrician, ENT, Allergist,

Infectious Disease, Pediatric Immunologist) to get a proper diagnosis.

was responded well to the pneumococcal vaccine so we re-administered the

vaccinations (he responded well to those also). His treatment is a daily

Prophylactic antibiotic, Septra, as well as Zyrtec and Nasonex (for allergies),

and Pulmicort (for asthma). We have really focused on controlling '

environmental allergies (cat, dog, dust mites, grasses, ash, cockroaches, mold)

to reduce the mucus that gets caught in his sinus'. Whew!

So, I know what you are going through daily, and I am willing to help and/or

just provide support. You are not out there alone. This group and its members

are so great. They have all helped me so much. Please feel free to e-mail me

off-line at screising@... for questions too. Again welcome...you've

found a great home for support.

Mom to

, 3, CVID (low IgG), asthma, eczema, chronic sinus infections, peanut

allergy, environmental allergies

, 4, healthy

, 7, asthma, eczema, environ. allergies

www.caringbridge.org/visit/thomasreising

Intro

Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

speak, but I am looking for any info I can find.

------------------------------------------------------------------------------

[Guest guest]

Thank you, everyone, for the welcome! I really do appreicate it. I

hate the " nervous nelly " feeling of waiting for test results. I am

just waiting right now until enough time has passed so we can check

Annie's titers again. Not that I want the time to whiz by, it does

that anyway, but I do want to know. As you all know, waiting is the

hardest part. Her tetanus titers came back fine, it was her pneumo

that were low. Are there others that should be checked as well??

, sounds a lot like when he was a baby, asthma-

wise. He's 14 now, but that winter he was 2 was rough to say the

least----he was on some many antibiotics for sinus infections that

caused his asthma to flare, then the pred to calm the flare .... It

seems as though he was on pred once a month for about 5 months. We

made some big changes (I quit my job at the day care), and he

improved quite a bit!

Then I have who is 10. He looked awful this morning---he's

always been my pale one, most allergic, mildest asthma (appears that

way, but his allergic reactions to environmetnal stuff really scare

me sometimes!), with huge red circles under his eyes and a sore

throat (no fever or anything else). I am half tempted to have his

stuff checked, too, but I am also waiting for Annie's stuff to " be

done " before I do. I know, they are not the same child, but I just

feel like I have been to the ped SO MUCH, that they think I am a

loon! I know they trust my judgement with all the asthma stuff, but

treading into new territory is very scary to me. I find myself

second guessing everything lately!!!!!

Again, thank you for the nice welcome. I appreciate all of the

support as I sit here waiting to see what will happen next. Any

suggestions, ideas, calming activities for mom (yeah right!) would

be warmly welcomed!

Meg

>

> Welcome to the group Meg!

> I too have children that suffer from asthma and I know first hand

what you are going through with your 7 year old daughter. Here's a

little history: My little PID pumpkin is (age 3 1/2 years).

He had pneumonia at birth, eczema, chronic ear infections (tubes at

9 mos.), RSV (6 mos), food allergies, environmental allergies,

asthma and chronic sinus infections. He was on a cycle of a runny

nose that lasted 10 days then developed into an infection,

antibiotics for 14 days, healthy for 7 days and then showing

symptoms again by day 14. We never got more than 14 days in between

antibiotics. The scariest part was how the infections flared his

asthma. Twice he was hospitalized from really bad asthma attacks.

The funny thing is that he never has any asthma symptoms until he

has an infection. For over a year, we never saw without dark

circles under his eyes and pale skin. In October, we had him immune

tested and he came back with low IgG and non responsive to several

vaccinations. We went from doctor to doctor (Pediatrician, ENT,

Allergist, Infectious Disease, Pediatric Immunologist) to get a

proper diagnosis. was responded well to the pneumococcal

vaccine so we re-administered the vaccinations (he responded well

to those also). His treatment is a daily Prophylactic antibiotic,

Septra, as well as Zyrtec and Nasonex (for allergies), and Pulmicort

(for asthma). We have really focused on controlling '

environmental allergies (cat, dog, dust mites, grasses, ash,

cockroaches, mold) to reduce the mucus that gets caught in his

sinus'. Whew!

>

> So, I know what you are going through daily, and I am willing to

help and/or just provide support. You are not out there alone.

This group and its members are so great. They have all helped me so

much. Please feel free to e-mail me off-line at screising@i... for

questions too. Again welcome...you've found a great home for

support.

>

>

>

> Mom to

> , 3, CVID (low IgG), asthma, eczema, chronic sinus

infections, peanut allergy, environmental allergies

> , 4, healthy

> , 7, asthma, eczema, environ. allergies

> www.caringbridge.org/visit/thomasreising

>

> Intro

>

>

> Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

> speak, but I am looking for any info I can find.

>

>

> -------------------------------------------------------------------

-----------

>

>

>

>

[Guest guest]

Meg, Just wondering...did she get the prevnar shot or the plain

pneumococcal shot? I was told that the prevnar only covers 7

pneumococcal bugs and that the pneumococcal vaccine contains 23....Just

a thought.

Mom to with Selective Antibody Deficiency, Hypogamm, subclass

deficiency and NK cell defect.

Intro

Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

speak, but I am looking for any info I can find.

I have three kids, all with asthma of varying severities, though

none really all that bad. My youngest is 7, and she is the one I am

most concerned about right now. She is now on a 21 day course of

augmentin-es, after having done two courses (amox, then augmentin)

back to back at Thanksgiving time. Her asthma started to flare the

week after Christmas, and she started to run another one of " her

fevers. " She will run about 100-101 for no apparent reason. The

first time, I quit taking her temp at 14 days. I really wish I had

written down how many she has had, but it will start from nowhere

and hang at 100-101 for some time.

We went to the ped. Jan 5, and he ordered a sinus x-ray (how we

found this infection), and some blood work--IgG,A,M,E and IgG

subclasses. Those all came back " normal. " (normal is a word I hate,

but won't get in to that now!) He also checked her tetnus and

pneumo. titers. Of the 7 in the prevnar shot, 4 were low, so we had

the shot again last Wed. to see if she makes those antibodies. Also

did 3 sweat tests because I couldn't get her to sweat (Jan in OH!).

Fortunately the last one had enough, so cystic fibrosis was ruled

out. phew!

I have a couple of questions I would like to ask ... should I be

concerned that of her pneumo titers, 7 of the 14 were low, or is it

that she is only 7 and hasn't been exposed to those yet? If she

porduces the antibodies, can I say well, that was it? I have no

idea what I am looking at, but am trying to find out everything I

can. I am just tired of her not looking well, sniffling, coughing,

huge bags underher eyes, and I feel bad sending her to school with a

fever. She feels fine, and even the ped said that if there is

nothing else I can see going on, send her. She has a fit if I come

near her with the thermometer, because she is " going to school,

Mom! "

With her asthma flaring again, she was put on a 5 day burst of

prednisone just today. I can't figure this out and am just looking

for any info you may have.

Thanks!

Meg

This forum is open to parents and caregivers of children diagnosed with

a Primary Immune Deficiency. Opinions or medical advice stated here are

the sole responsibility of the poster and should not be taken as

professional advice.

To unsubscribe -unsubscribegroups (DOT)

To search group archives go to:

/messages

[Guest guest]

Hi ,

Last Wednesday, she just got the prevnar shot. As far as I know,

when she was little, she also got the prevnar, but I am not 100%

sure. These are definitely questions that are going to be written

down and asked when we go back. The prevnar does only cover 7, and

of those 7, she is low on 4---that's why the dr. wanted her to have

another.

Thanks!

Meg

>

> Meg, Just wondering...did she get the prevnar shot or the plain

> pneumococcal shot? I was told that the prevnar only covers 7

> pneumococcal bugs and that the pneumococcal vaccine contains

23....Just

> a thought.

>

>

> Mom to with Selective Antibody Deficiency, Hypogamm, subclass

> deficiency and NK cell defect.

>

> Intro

>

>

> Hi, I'm Meg and I am new here. Maybe I am jumping the gun so to

> speak, but I am looking for any info I can find.

>

> I have three kids, all with asthma of varying severities, though

> none really all that bad. My youngest is 7, and she is the one I

am

> most concerned about right now. She is now on a 21 day course of

> augmentin-es, after having done two courses (amox, then augmentin)

> back to back at Thanksgiving time. Her asthma started to flare

the

> week after Christmas, and she started to run another one of " her

> fevers. " She will run about 100-101 for no apparent reason. The

> first time, I quit taking her temp at 14 days. I really wish I

had

> written down how many she has had, but it will start from nowhere

> and hang at 100-101 for some time.

>

> We went to the ped. Jan 5, and he ordered a sinus x-ray (how we

> found this infection), and some blood work--IgG,A,M,E and IgG

> subclasses. Those all came back " normal. " (normal is a word I

hate,

> but won't get in to that now!) He also checked her tetnus and

> pneumo. titers. Of the 7 in the prevnar shot, 4 were low, so we

had

> the shot again last Wed. to see if she makes those antibodies.

Also

> did 3 sweat tests because I couldn't get her to sweat (Jan in

OH!).

> Fortunately the last one had enough, so cystic fibrosis was ruled

> out. phew!

>

> I have a couple of questions I would like to ask ... should I be

> concerned that of her pneumo titers, 7 of the 14 were low, or is

it

> that she is only 7 and hasn't been exposed to those yet? If she

> porduces the antibodies, can I say well, that was it? I have no

> idea what I am looking at, but am trying to find out everything I

> can. I am just tired of her not looking well, sniffling,

coughing,

> huge bags underher eyes, and I feel bad sending her to school with

a

> fever. She feels fine, and even the ped said that if there is

> nothing else I can see going on, send her. She has a fit if I

come

> near her with the thermometer, because she is " going to school,

> Mom! "

>

> With her asthma flaring again, she was put on a 5 day burst of

> prednisone just today. I can't figure this out and am just

looking

> for any info you may have.

>

> Thanks!

> Meg

>

>

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed

with

> a Primary Immune Deficiency. Opinions or medical advice stated

here are

> the sole responsibility of the poster and should not be taken as

> professional advice.

>

> To unsubscribe -unsubscribegroups (DOT)

> To search group archives go to:

> /messages

>

[Guest guest]

In a message dated 1/26/2006 9:34:14 AM Central Standard Time,

lmschatz@... writes:

> I was told that the prevnar only covers 7

> pneumococcal bugs and that the pneumococcal vaccine contains 23....Just

> a thought.

>

That's true but the Prevnar is a conjugated vaccine -- it's piggybacked onto

a protein antigen to " trick " the body into responding if it doesn't want to

respond to a pure polysaccharide (which is what Pneumovax is). My DD doesn't

respond to conjugated polysaccharide vaccines, let alone the pure polysaccharide

vaccines. Nobody ever explained why the " trick " doesn't work for some people.

(mom to , age 6-1/2, dairy intolerant-related GERD -- currently

has polysaccharide antibody def, previously had transient IgG, IgA, t-cell &

other defs... and also to Kate, age 3!, more dairy intolerant but very healthy!)

[Guest guest]

Hi ,

Welcome, pleased to " meet " you. I have twins, both are on the

spectrum but one has a lot more issues than the other so demands more

attention.

It is a good idea to make the older child (or the child that has less

problems in my case) your " helper " . Tell them how grateful you are

when they do help you with their younger sibling , how it makes

things things easier for you e.t.c. A little reward can also help.

Make sure you do make some time for the other siblings , even if it

means getting a family member to give you some respite and maybe

taking the older child to a movie , the younger children to the park

for example.You could take homework to the park .

It is very stressful when you do have people who stare and think a

child is just acting up. It still hurts me today when I hear

comments, sniggers e.t.c. but as time has lapsed I have learnt to

ignore it to a certain extent. Some people are just ignorant and I

used to explain to onlookers that my daughter had autism , but now I

don't feel the need to explain to onlookers. I sometimes make eye

contact with people who are staring and it makes them look away.

As for friends, I'm not sure if you mean for yourself or for your son.

The best support you will get from friends is in parents who have

children with autism. You can see if there is a support group in your

area , if not , leave your phone number with the therapists and tell

them you are interested in meeting other parents in your situation

and could they please pass your phone number on.

I pass my phone number and/or email address on to others with

children on the spectrum. It is so wonderful to talk to people who

know. You have taken the right step in joining this group. We all

understand .

Best wishes,

Kaz xxx

>

> i just wanted to say hi. my name is carrie and i have

> 4 children(ages 5,6 ,7 10), my 7 year old son has

> just been diagnosed with aspergers/adhd/sensory

> issues. i hope to be able to get some support from

> parents who have been there with all the different

> things that come up.no one seems to know/understand

> whats its like to have a child with hidden

> disabilities. all i hear is he is acting out for

> attention.any ideas on making /keeping friends or how

> to make time for the other children when you spend

> soooo much time with the other, back and forthe to

> therapy, homework, etc.... i think my oldes is

> starting to resent me.

>

>

> thanks

> carrie

>

> __________________________________________________

>

[Guest guest]

-I can offer you a sympathetic ear as I have

been there. My middle daughter is AS, her older sister

does resent me and the time spent. I have tried to

talk to her and explain but it wasn't until recently

as she got older that she seems to be starting to

understand what I have gone through. She is living at

her dads because of the situation with her sister and

not being able to deal with her and being angry with

me and with her sister. It was the hardest thing I

ever did, to let her go but I thought she would have a

chance to be a kid there and not a " little mom " . I

knew that she would be ok there where her sister would

not due to the household/personal situations etc

there. I don't recommend that course, I personally

just hope she realizes one day that I did what I did

BECAUSE I love them both and want them to be happy.

Until that day, I just do my best to make as much one

on one time for each of my children as I can.

Good Luck and God bless!

--- carrie stapp <carriestapp@...> wrote:

> i just wanted to say hi. my name is carrie and i

> have

> 4 children(ages 5,6 ,7 10), my 7 year old son has

> just been diagnosed with aspergers/adhd/sensory

> issues. i hope to be able to get some support from

> parents who have been there with all the different

> things that come up.no one seems to know/understand

> whats its like to have a child with hidden

> disabilities. all i hear is he is acting out for

> attention.any ideas on making /keeping friends or

> how

> to make time for the other children when you spend

> soooo much time with the other, back and forthe to

> therapy, homework, etc.... i think my oldes is

> starting to resent me.

>

>

> thanks

> carrie

>

> __________________________________________________

>

[Guest guest]

, Have you considered a social skills group for your son?? My son Warren (10) attends a weekly social skills group with other boys his age with AS. They work with a therapist who teaches them to read social cues, ask questions, show interest in other people, etc.... It has been really great for him. He has also made friends with the boys in the group which is nice. Warren also recieves a daily social skills group at school with other boys who have social issues. These groups have really helped him to learn what is appropriate behavior and what is not. Thsi has helped greatly in the socializing area. I have also worked closely with my sons teachers at school and purchased a video for kids between 3rd and 6th grade which explains to kids what AS is and how to help and make friends with kids who are a bit "different". This has lessened the bullying and his peers are much more patient and understanding of certain behaviors. The video was by coulter video. I am not

sure of the site but I am sure you can find it by searching for it that way. Good Luck!!!!! in Lancaster, Cacarrie stapp <carriestapp@...> wrote: i just wanted to say hi. my name is carrie and i have4 children(ages 5,6 ,7 10), my 7 year old son hasjust been diagnosed with aspergers/adhd/sensoryissues. i hope to be able to get some support fromparents who have been there with all the differentthings that come up.no one seems to know/understandwhats its like to have a child with hiddendisabilities. all i hear is he is acting out forattention.any ideas on making /keeping friends or howto make time for the other children when you spendsoooo much time with the other, back and forthe totherapy, homework, etc.... i think my oldes

isstarting to resent me. thanks carrie __________________________________________________

[Guest guest]

Welcome ! I'm Carey....Look forward to getting to know ya!

~Carey~Homeschooling Mom to (6) (4) Jordan (2) 3 Dogs, 2 cats, 2 Ferretts, 1 Lovebird, 1 Rabbit, a Turtle and some Fish :)Usborne Books ConsultantFun, Educational, Childrens Books! http://www.ubah.com/ecommerce/default.asp?sid=E2122 & gid=13972461

intro

i just wanted to say hi. my name is carrie and i have4 children(ages 5,6 ,7 10), my 7 year old son hasjust been diagnosed with aspergers/adhd/sensoryissues. i hope to be able to get some support fromparents who have been there with all the differentthings that come up.no one seems to know/understandwhats its like to have a child with hiddendisabilities. all i hear is he is acting out forattention.any ideas on making /keeping friends or howto make time for the other children when you spendsoooo much time with the other, back and forthe totherapy, homework, etc.... i think my oldes isstarting to resent me. thanks carrie __________________________________________________

[Guest guest]

- We experience the same issue with our younger child. She is now 5 and socially she and her 8 year old brother are probably about the same social level. We had to teach her to speak words like No even earlier to try to get her brother off of her. WE could never leave them alone. Now that they are older they play pretty well together and she often takes the emotional lead with him. She often says that she feels we love him more because we spend more time with him.

I actually work from home via remote and have started keeping her home from school on two days to spend individual time with her! It is a challenge to keep it all balanced. My biggest mistake was not asking for respite help and not taking time for myself! Try to reach out and get yourself support so you don't burn out!

Best of luck,

lj

[Guest guest]

thanks for the info. we don't have a weekly social

skills group around here. we did it as a trial for 6

weeks and i guess they didn't get enough people to do

it or they weren't satisfied. after 6 weeks it just

disappeared. i don't know. i don't know where to look

to find one. any ideas? he does speech at school but

that was more for turn taking etc... alittle social

skills but not a whole lot.

carrie , southern indiana

--- M Strahlendorf <pgnsht@...> wrote:

> ,

> Have you considered a social skills group for your

> son?? My son Warren (10) attends a weekly social

> skills group with other boys his age with AS. They

> work with a therapist who teaches them to read

> social cues, ask questions, show interest in other

> people, etc.... It has been really great for him. He

> has also made friends with the boys in the group

> which is nice. Warren also recieves a daily social

> skills group at school with other boys who have

> social issues. These groups have really helped him

> to learn what is appropriate behavior and what is

> not. Thsi has helped greatly in the socializing

> area. I have also worked closely with my sons

> teachers at school and purchased a video for kids

> between 3rd and 6th grade which explains to kids

> what AS is and how to help and make friends with

> kids who are a bit " different " . This has lessened

> the bullying and his peers are much more patient and

> understanding of certain behaviors. The video was by

> coulter video. I am not sure of the site but I

> am sure you can find it by searching for it that

> way. Good Luck!!!!!

>

> in Lancaster, Ca

>

> carrie stapp <carriestapp@...> wrote:

> i just wanted to say hi. my name is carrie and i

> have

> 4 children(ages 5,6 ,7 10), my 7 year old son has

> just been diagnosed with aspergers/adhd/sensory

> issues. i hope to be able to get some support from

> parents who have been there with all the different

> things that come up.no one seems to know/understand

> whats its like to have a child with hidden

> disabilities. all i hear is he is acting out for

> attention.any ideas on making /keeping friends or

> how

> to make time for the other children when you spend

> soooo much time with the other, back and forthe to

> therapy, homework, etc.... i think my oldes is

> starting to resent me.

>

>

> thanks

> carrie

>

> __________________________________________________

>

[Guest guest]

thanks for the support. yes it is nice to know that

what i am feeling is normal and there are other people

who can relate.

carrie

--- mum2twinsau <kaz67@...> wrote:

> Hi ,

> Welcome, pleased to " meet " you. I have twins, both

> are on the

> spectrum but one has a lot more issues than the

> other so demands more

> attention.

> It is a good idea to make the older child (or the

> child that has less

> problems in my case) your " helper " . Tell them how

> grateful you are

> when they do help you with their younger sibling ,

> how it makes

> things things easier for you e.t.c. A little reward

> can also help.

> Make sure you do make some time for the other

> siblings , even if it

> means getting a family member to give you some

> respite and maybe

> taking the older child to a movie , the younger

> children to the park

> for example.You could take homework to the park .

> It is very stressful when you do have people who

> stare and think a

> child is just acting up. It still hurts me today

> when I hear

> comments, sniggers e.t.c. but as time has lapsed I

> have learnt to

> ignore it to a certain extent. Some people are just

> ignorant and I

> used to explain to onlookers that my daughter had

> autism , but now I

> don't feel the need to explain to onlookers. I

> sometimes make eye

> contact with people who are staring and it makes

> them look away.

> As for friends, I'm not sure if you mean for

> yourself or for your son.

> The best support you will get from friends is in

> parents who have

> children with autism. You can see if there is a

> support group in your

> area , if not , leave your phone number with the

> therapists and tell

> them you are interested in meeting other parents in

> your situation

> and could they please pass your phone number on.

> I pass my phone number and/or email address on to

> others with

> children on the spectrum. It is so wonderful to talk

> to people who

> know. You have taken the right step in joining this

> group. We all

> understand .

> Best wishes,

> Kaz xxx

>

> >

> > i just wanted to say hi. my name is carrie and i

> have

> > 4 children(ages 5,6 ,7 10), my 7 year old son has

> > just been diagnosed with aspergers/adhd/sensory

> > issues. i hope to be able to get some support

> from

> > parents who have been there with all the different

> > things that come up.no one seems to

> know/understand

> > whats its like to have a child with hidden

> > disabilities. all i hear is he is acting out for

> > attention.any ideas on making /keeping friends or

> how

> > to make time for the other children when you spend

> > soooo much time with the other, back and forthe to

> > therapy, homework, etc.... i think my oldes is

> > starting to resent me.

> >

> >

> > thanks

> > carrie

> >

> > __________________________________________________

> >

[Guest guest]

, You may want to try having social skills written into his IEP. What my sons school does is bring a group together daily for about 20 minutes and they do things like role-play, turntaking, staying on topic in a conversation etc. These are all children with similar issues. It is definately making a difference. But I did have to have it written into his IEP or they would stop the service in a heartbeat... Dont take their word for it get it in writing!!!!! Do you have health insurance??? Some health insurers offer group therapy for things like social skills. Good Luck!!!! in Lancaster, Cacarrie stapp <carriestapp@...> wrote: thanks for the info. we don't have a weekly socialskills group around here. we did it as a trial for 6weeks and i guess they didn't get enough people to doit or

they weren't satisfied. after 6 weeks it justdisappeared. i don't know. i don't know where to lookto find one. any ideas? he does speech at school butthat was more for turn taking etc... alittle socialskills but not a whole lot. carrie , southern indiana --- M Strahlendorf <pgnsht@...> wrote:> ,> Have you considered a social skills group for your> son?? My son Warren (10) attends a weekly social> skills group with other boys his age with AS. They> work with a therapist who teaches them to read> social cues, ask questions, show interest in other> people, etc.... It has been really great for him. He> has also made friends with the boys in the group> which is nice. Warren also recieves a daily social> skills group at school with other boys who have> social issues. These groups have really helped him> to learn what

is appropriate behavior and what is> not. Thsi has helped greatly in the socializing> area. I have also worked closely with my sons> teachers at school and purchased a video for kids> between 3rd and 6th grade which explains to kids> what AS is and how to help and make friends with> kids who are a bit "different". This has lessened> the bullying and his peers are much more patient and> understanding of certain behaviors. The video was by> coulter video. I am not sure of the site but I> am sure you can find it by searching for it that> way. Good Luck!!!!!> > in Lancaster, Ca> > carrie stapp <carriestapp@...> wrote:> i just wanted to say hi. my name is carrie and i> have> 4 children(ages 5,6 ,7 10), my 7 year old son has> just been diagnosed with

aspergers/adhd/sensory> issues. i hope to be able to get some support from> parents who have been there with all the different> things that come up.no one seems to know/understand> whats its like to have a child with hidden> disabilities. all i hear is he is acting out for> attention.any ideas on making /keeping friends or > how> to make time for the other children when you spend> soooo much time with the other, back and forthe to> therapy, homework, etc.... i think my oldes is> starting to resent me. > > > thanks > carrie > > __________________________________________________>

[Guest guest]

, You may want to try having social skills written into his IEP. What my sons school does is bring a group together daily for about 20 minutes and they do things like role-play, turntaking, staying on topic in a conversation etc. These are all children with similar issues. It is definately making a difference. But I did have to have it written into his IEP or they would stop the service in a heartbeat... Dont take their word for it get it in writing!!!!! Do you have health insurance??? Some health insurers offer group therapy for things like social skills. Good Luck!!!! in Lancaster, Cacarrie stapp <carriestapp@...> wrote: thanks for the info. we don't have a weekly socialskills group around here. we did it as a trial for 6weeks and i guess they didn't get enough people to doit or

they weren't satisfied. after 6 weeks it justdisappeared. i don't know. i don't know where to lookto find one. any ideas? he does speech at school butthat was more for turn taking etc... alittle socialskills but not a whole lot. carrie , southern indiana --- M Strahlendorf <pgnsht@...> wrote:> ,> Have you considered a social skills group for your> son?? My son Warren (10) attends a weekly social> skills group with other boys his age with AS. They> work with a therapist who teaches them to read> social cues, ask questions, show interest in other> people, etc.... It has been really great for him. He> has also made friends with the boys in the group> which is nice. Warren also recieves a daily social> skills group at school with other boys who have> social issues. These groups have really helped him> to learn what

is appropriate behavior and what is> not. Thsi has helped greatly in the socializing> area. I have also worked closely with my sons> teachers at school and purchased a video for kids> between 3rd and 6th grade which explains to kids> what AS is and how to help and make friends with> kids who are a bit "different". This has lessened> the bullying and his peers are much more patient and> understanding of certain behaviors. The video was by> coulter video. I am not sure of the site but I> am sure you can find it by searching for it that> way. Good Luck!!!!!> > in Lancaster, Ca> > carrie stapp <carriestapp@...> wrote:> i just wanted to say hi. my name is carrie and i> have> 4 children(ages 5,6 ,7 10), my 7 year old son has> just been diagnosed with

aspergers/adhd/sensory> issues. i hope to be able to get some support from> parents who have been there with all the different> things that come up.no one seems to know/understand> whats its like to have a child with hidden> disabilities. all i hear is he is acting out for> attention.any ideas on making /keeping friends or > how> to make time for the other children when you spend> soooo much time with the other, back and forthe to> therapy, homework, etc.... i think my oldes is> starting to resent me. > > > thanks > carrie > > __________________________________________________>

[Guest guest]

monica

we are do to meet to discuss a new iep for next year.

i am going to look into adding social skills. my case

manager wants me to take someone with me who knows

these iep plans (indiana resource center), i guess to

make sure everything gets put in there. this is new

for me. has anyone ever done that? my case manager

says they can take legal action if needed. i am

waiting on a letter from our ped. neurologist with

also other recommendations. i have been promised that

it would be mailed to me early next week.

yes, we have traditional insurance. blue cross blue

shield, he has secondary insurance of medicaid and we

have a support service waiver also for services. the

waiver used to be 14,000 a year but the state has cut

back to try to get more kids of the waiting list. i

won't find out til the end of the month what exactly

we have in that fund.

i have also been asked if he has ever had his vision

checked for depth perception? anyone ever done that?

these doctors appear hard to come by or atleast i have

been unsuccessful in finding one. my case manager

thinks that he has some depth perception problems

since he can't ride a bike(without training

wheels),terrible handwriting, the letters are all over

the page, some things capatilized others aren't.

again he's only 7, 2nd grade. this is also new for

me(visual problem) now he has eyes his eyes checked

at the eye doctor and is fine.

thanks

carrie

--- M Strahlendorf <pgnsht@...> wrote:

> , You may want to try having social skills

> written into his IEP. What my sons school does is

> bring a group together daily for about 20 minutes

> and they do things like role-play, turntaking,

> staying on topic in a conversation etc. These are

> all children with similar issues. It is definately

> making a difference. But I did have to have it

> written into his IEP or they would stop the service

> in a heartbeat... Dont take their word for it get it

> in writing!!!!! Do you have health insurance???

> Some health insurers offer group therapy for things

> like social skills. Good Luck!!!!

> in Lancaster, Ca

>

> carrie stapp <carriestapp@...> wrote:

> thanks for the info. we don't have a weekly

> social

> skills group around here. we did it as a trial for

> 6

> weeks and i guess they didn't get enough people to

> do

> it or they weren't satisfied. after 6 weeks it just

> disappeared. i don't know. i don't know where to

> look

> to find one. any ideas? he does speech at school

> but

> that was more for turn taking etc... alittle social

> skills but not a whole lot.

>

> carrie , southern indiana

>

> --- M Strahlendorf <pgnsht@...> wrote:

>

> > ,

> > Have you considered a social skills group for

> your

> > son?? My son Warren (10) attends a weekly social

> > skills group with other boys his age with AS. They

> > work with a therapist who teaches them to read

> > social cues, ask questions, show interest in other

> > people, etc.... It has been really great for him.

> He

> > has also made friends with the boys in the group

> > which is nice. Warren also recieves a daily social

> > skills group at school with other boys who have

> > social issues. These groups have really helped him

> > to learn what is appropriate behavior and what is

> > not. Thsi has helped greatly in the socializing

> > area. I have also worked closely with my sons

> > teachers at school and purchased a video for kids

> > between 3rd and 6th grade which explains to kids

> > what AS is and how to help and make friends with

> > kids who are a bit " different " . This has lessened

> > the bullying and his peers are much more patient

> and

> > understanding of certain behaviors. The video was

> by

> > coulter video. I am not sure of the site but I

> > am sure you can find it by searching for it that

> > way. Good Luck!!!!!

> >

> > in Lancaster, Ca

> >

> > carrie stapp <carriestapp@...> wrote:

> > i just wanted to say hi. my name is carrie and

> i

> > have

> > 4 children(ages 5,6 ,7 10), my 7 year old son has

> > just been diagnosed with aspergers/adhd/sensory

> > issues. i hope to be able to get some support

> from

> > parents who have been there with all the different

> > things that come up.no one seems to

> know/understand

> > whats its like to have a child with hidden

> > disabilities. all i hear is he is acting out for

> > attention.any ideas on making /keeping friends or

> > how

> > to make time for the other children when you spend

> > soooo much time with the other, back and forthe to

> > therapy, homework, etc.... i think my oldes is

> > starting to resent me.

> >

> >

> > thanks

> > carrie

> >

> > __________________________________________________

> >

[Guest guest]

My Aspie daughter had crossed-eyes as a

child. The pediatric Ophthalmologist who operated on my daughter has

routinely checked her for depth perception. I would recommend finding one

in your area. If you’re in the Detroit area, O’Malley is one of

the very best. While her depth perception is fine, she can’t ride a

bike either! She’s now 12 and has no interest in biking….she

roller blades instead.

From: Autism and Aspergers Treatment [mailto:Autism and Aspergers Treatment ] On Behalf Of carrie stapp

Sent: Saturday, March 11, 2006

9:53 AM

Autism and Aspergers Treatment

Subject: Re:

intro

monica

we are do to meet to discuss a new iep for next

year.

i am going to look into adding social

skills. my case

manager wants me to take someone with me who knows

these iep plans (indiana resource center), i guess to

make sure everything gets put in there. this

is new

for me. has anyone ever done that? my

case manager

says they can take legal action if needed. i am

waiting on a letter from our ped. neurologist with

also other recommendations. i have been promised

that

it would be mailed to me early next week.

yes, we have traditional insurance. blue cross

blue

shield, he has secondary insurance of medicaid and

we

have a support service waiver also for

services. the

waiver used to be 14,000 a year but the state has

cut

back to try to get more kids of the waiting

list. i

won't find out til the end of the month what

exactly

we have in that fund.

i have also been asked if he has ever had his

vision

checked for depth perception? anyone ever

done that?

these doctors appear hard to come by or atleast i

have

been unsuccessful in finding one. my case

manager

thinks that he has some depth perception problems

since he can't ride a bike(without training

wheels),terrible handwriting, the letters are all

over

the page, some things capatilized others aren't.

again he's only 7, 2nd grade. this is also

new for

me(visual problem) now he has eyes his eyes

checked

at the eye doctor and is

fine.

thanks

carrie

--- M Strahlendorf <pgnsht@...> wrote:

> , You may want to try having social

skills

> written into his IEP. What my sons school

does is

> bring a group together daily for about 20

minutes

> and they do things like role-play,

turntaking,

> staying on topic in a conversation etc. These

are

> all children with similar issues. It is

definately

> making a difference. But I did have to have

it

> written into his IEP or they would stop the

service

> in a heartbeat... Dont take their word for it

get it

> in writing!!!!! Do you have health

insurance???

> Some health insurers offer group therapy for

things

> like social skills. Good Luck!!!!

> in Lancaster, Ca

>

> carrie stapp <carriestapp@...>

wrote:

> thanks for the info. we

don't have a weekly

> social

> skills group around here. we did it as

a trial for

> 6

> weeks and i guess they didn't get enough

people to

> do

> it or they weren't satisfied. after 6 weeks

it just

> disappeared. i don't know. i don't know where

to

> look

> to find one. any ideas? he does

speech at school

> but

> that was more for turn taking etc...

alittle social

> skills but not a whole lot.

>

> carrie , southern indiana

>

> --- M Strahlendorf <pgnsht@...>

wrote:

>

> > ,

> > Have you considered a social

skills group for

> your

> > son?? My son Warren (10) attends a

weekly social

> > skills group with other boys his age

with AS. They

> > work with a therapist who teaches them

to read

> > social cues, ask questions, show

interest in other

> > people, etc.... It has been really great

for him.

> He

> > has also made friends with the boys in

the group

> > which is nice. Warren also recieves a daily social

> > skills group at school with other boys

who have

> > social issues. These groups have really

helped him

> > to learn what is appropriate behavior

and what is

> > not. Thsi has helped greatly in the

socializing

> > area. I have also worked closely with my

sons

> > teachers at school and purchased a video

for kids

> > between 3rd and 6th grade which explains

to kids

> > what AS is and how to help and make

friends with

> > kids who are a bit

" different " . This has lessened

> > the bullying and his peers are much more

patient

> and

> > understanding of certain behaviors. The

video was

> by

> > coulter video. I am not sure of the site

but I

> > am sure you can find it by

searching for it that

> > way. Good Luck!!!!!

> >

> > in Lancaster, Ca

> >

> > carrie stapp <carriestapp@...>

wrote:

> > i just wanted to say

hi. my name is carrie and

> i

> > have

> > 4 children(ages 5,6 ,7 10), my 7

year old son has

> > just been diagnosed with

aspergers/adhd/sensory

> > issues. i hope to be able to get

some support

> from

> > parents who have been there with all the

different

> > things that come up.no one seems to

> know/understand

> > whats its like to have a child with

hidden

> > disabilities. all i hear is he is acting

out for

> > attention.any ideas on making /keeping

friends or

> > how

> > to make time for the other children when

you spend

> > soooo much time with the other, back and

forthe to

> > therapy, homework, etc.... i think my

oldes is

> > starting to resent me.

> >

> >

> > thanks

> > carrie

> >

> >

__________________________________________________

> >

[Guest guest]

We also have this as part of IEP as well.

Our goals are written in areas like - self modulation and control. That will learn to ask for help or a break rather than melting down. We have the goal that he would make good choices say 50% of the time. When he begins to have success we may adjust it to reflect new issues.

will be respectful of other peoples' space and keep hands to himself with no kissing or hugging. Will ask permission first if he does want to hug someone and will respect the other child's answer.

I could dig out my actual copy if you would like more info.

We have him also do a special computer program that helps with spelling for 20 minutes 4 times per day. He has social skills - only 1 time per week now. He can have up to 1 sensory break with OT per day. (used to be 3).

We also used to do another computer program that did math too, but he is doing much better now.

Hope this helps.

[Guest guest]

, I have heard about the depth of perception thing. My son learned how to ride a bike very early. He never seemed to have any trouble with balance. He has also been riding a motorcycle for 3 years now. His balance has always been unusually acute even as a toddler. He would sometimes do dangerous things like walk along a brick wall at the tender age of two like a high wire act. Very scary. His writing has always been terrible...... Very messy and all over the place. He has to write very slowly in order for it to be somewhat neat. When he has extensive writing to do in class he uses an alpha smart. You may want to ask about that. Good luck to you!!!!! Let me know how the IEP goes.... in Lancaster, Cacarrie stapp <carriestapp@...> wrote: monicawe are do to meet to discuss a

new iep for next year. i am going to look into adding social skills. my casemanager wants me to take someone with me who knowsthese iep plans (indiana resource center), i guess tomake sure everything gets put in there. this is newfor me. has anyone ever done that? my case managersays they can take legal action if needed. i amwaiting on a letter from our ped. neurologist withalso other recommendations. i have been promised thatit would be mailed to me early next week.yes, we have traditional insurance. blue cross blueshield, he has secondary insurance of medicaid and wehave a support service waiver also for services. thewaiver used to be 14,000 a year but the state has cutback to try to get more kids of the waiting list. iwon't find out til the end of the month what exactlywe have in that fund. i have also been asked if he has ever had his

visionchecked for depth perception? anyone ever done that? these doctors appear hard to come by or atleast i havebeen unsuccessful in finding one. my case managerthinks that he has some depth perception problemssince he can't ride a bike(without trainingwheels),terrible handwriting, the letters are all overthe page, some things capatilized others aren't. again he's only 7, 2nd grade. this is also new forme(visual problem) now he has eyes his eyes checkedat the eye doctor and is fine. thankscarrie --- M Strahlendorf <pgnsht@...> wrote:> , You may want to try having social skills> written into his IEP. What my sons school does is> bring a group together daily for about 20 minutes> and they do things like role-play, turntaking,> staying on topic in a conversation etc. These are> all children with similar

issues. It is definately> making a difference. But I did have to have it> written into his IEP or they would stop the service> in a heartbeat... Dont take their word for it get it> in writing!!!!! Do you have health insurance???> Some health insurers offer group therapy for things> like social skills. Good Luck!!!!> in Lancaster, Ca> > carrie stapp <carriestapp@...> wrote:> thanks for the info. we don't have a weekly> social> skills group around here. we did it as a trial for> 6> weeks and i guess they didn't get enough people to> do> it or they weren't satisfied. after 6 weeks it just> disappeared. i don't know. i don't know where to> look> to find one. any ideas? he does speech at school> but> that was more for turn taking etc... alittle social> skills

but not a whole lot. > > carrie , southern indiana > > --- M Strahlendorf <pgnsht@...> wrote:> > > ,> > Have you considered a social skills group for> your> > son?? My son Warren (10) attends a weekly social> > skills group with other boys his age with AS. They> > work with a therapist who teaches them to read> > social cues, ask questions, show interest in other> > people, etc.... It has been really great for him.> He> > has also made friends with the boys in the group> > which is nice. Warren also recieves a daily social> > skills group at school with other boys who have> > social issues. These groups have really helped him> > to learn what is appropriate behavior and what is> > not. Thsi has helped greatly in the socializing> > area. I have also worked

closely with my sons> > teachers at school and purchased a video for kids> > between 3rd and 6th grade which explains to kids> > what AS is and how to help and make friends with> > kids who are a bit "different". This has lessened> > the bullying and his peers are much more patient> and> > understanding of certain behaviors. The video was> by> > coulter video. I am not sure of the site but I> > am sure you can find it by searching for it that> > way. Good Luck!!!!!> > > > in Lancaster, Ca> > > > carrie stapp <carriestapp@...> wrote:> > i just wanted to say hi. my name is carrie and> i> > have> > 4 children(ages 5,6 ,7 10), my 7 year old son has> > just been diagnosed with aspergers/adhd/sensory> >

issues. i hope to be able to get some support> from> > parents who have been there with all the different> > things that come up.no one seems to> know/understand> > whats its like to have a child with hidden> > disabilities. all i hear is he is acting out for> > attention.any ideas on making /keeping friends or > > how> > to make time for the other children when you spend> > soooo much time with the other, back and forthe to> > therapy, homework, etc.... i think my oldes is> > starting to resent me. > > > > > > thanks > > carrie > > > > __________________________________________________> >

[Guest guest]

ajodiandsam <a4givensinner@...> wrote: Hi. I'm Jodi, I have three kids and my 7yo dd is my autistic one. I joined this list because I'm interested in finding out more about the viral aspect of autism because my daughter has never been vaccinated and is not metal toxic, and I suspect that there may be a viral aspect to her autism. I ordered Virastop and have OLE but I'm not using any of it until the Virastop arrives. I am really excited by the posts I've read so far...they're exactly the kind of information I've been looking for!jodi><}}}> there is good information from the autism research institute in san diego dr baker and pangborn have written an excellent book available from them get J McCandless children with starving brains. its a good read. Lots of good

things to read on the ARI site if you have done done so already

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice.

[Guest guest]

ajodiandsam <a4givensinner@...> wrote: Hi. I'm Jodi, I have three kids and my 7yo dd is my autistic one. I joined this list because I'm interested in finding out more about the viral aspect of autism because my daughter has never been vaccinated and is not metal toxic, and I suspect that there may be a viral aspect to her autism. I ordered Virastop and have OLE but I'm not using any of it until the Virastop arrives. I am really excited by the posts I've read so far...they're exactly the kind of information I've been looking for!jodi><}}}> there is good information from the autism research institute in san diego dr baker and pangborn have written an excellent book available from them get J McCandless children with starving brains. its a good read. Lots of good

things to read on the ARI site if you have done done so already

Blab-away for as little as 1¢/min. Make PC-to-Phone Calls using Messenger with Voice.

[Guest guest]

Hi Jodi and welcome. Please do read Anita's post number 5749 if you have

not already done so, it is full of useful information!

Best of luck,

Natasa

>

> Hi. I'm Jodi, I have three kids and my 7yo dd is my autistic one. I

> joined this list because I'm interested in finding out more about the

> viral aspect of autism because my daughter has never been vaccinated

> and is not metal toxic, and I suspect that there may be a viral aspect

> to her autism.

>

> I ordered Virastop and have OLE but I'm not using any of it until the

> Virastop arrives. I am really excited by the posts I've read so

> far...they're exactly the kind of information I've been looking for!

>

> jodi

> ><}}}>

>