Guest guest Posted February 23, 2009 Report Share Posted February 23, 2009 Hi : I guess you have to weigh out the positive from the negative. I am constantly depressed, and I do not blame it on the Gleevec. I think its life in general, and the fact that we were told we had Leukemia. I go through the spurts of ups and downs myself, and I have been doing this since Oct. of 2000. I have not tryed to figure out why. I am just thankful that its the Gleevec that has kept me around for 10 years. You never know what switching to another medication could do. If your stable on Gleevec, my advice would be to just keep doing what your doing. Thats just my opinion. I had a very bad day yesterday, but its a new day with new things to deal with. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Suzzie! You said something that made my head spin around: That Gleevec is the best first choice for treatment. I got the impression that as these meds develop, the newest are the best. Like Tasigna, I assumed that one was the best because it seems to have so few side effects. Sounds like I'm way out in left field here? From: suzzienovember@... Date: Fri, 27 Feb 2009 02:22:59 +0000 Subject: [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. _________________________________________________________________ Windows Live™: Discover 10 secrets about the new Windows Live. http://windowslive.com/connect/post/jamiethomson.spaces.live.com-Blog-cns!550F68\ 1DAD532637!7540.entry?ocid=TXT_TAGLM_WL_t2_ugc_post_022009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Suzzie thanks so much. To be honest based on what my physician told me I guess I expected to be back to normal very quickly. I also thought that the Hydrea would be more difficult than the Gleevec. I am suffering some of the depression as well. Maybe it is just beginning to hit me what has happened to me. My friends were all there for the first several weeks and now I am not hearing from them at all. I am sure that it is because they don't know what to say. I apprecieate the support that I have found on this site. ________________________________ From: suzzienovember <suzzienovember@...> Sent: Thursday, February 26, 2009 8:22:59 PM Subject: [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi , The best CML treatment is the one that works best for the patient. Gleevec is still front line treatment and has the longest track record which is why doctors will always prescribe it first. Tasigna and Sprycel are only indicated for patients who fail to respond to Gleevec or who cannot tolerate it. In time, it's possible that one of the newer drugs will replace Gleevec as front line treatment but for now, that's not the case. Tracey > > > Suzzie! You said something that made my head spin around: > That Gleevec is the best first choice for treatment. I got the impression that as these meds develop, the newest are the best. Like Tasigna, I assumed that one was the best because it seems to have so few side effects. Sounds like I'm way out in left field here? > > > From: suzzienovember@... > Date: Fri, 27 Feb 2009 02:22:59 +0000 > Subject: [ ] Re: Is it all Gleevec's fault > > > > > > > > > > > > > > > > > > > > > > Hi Debbie: You are so VERY NEW to all of this, and the beginning is so > > much adjusting to your treatment. As you go along, you should see a > > change with your joint pain. Some people still have it, but most of us > > do not have it so severe as we did at first. > > Gleevec is the best first choice for treatment. Just give it time. > > You will see as you read the posts how long some of us have been on > > Gleevec or some other treatment. It does wipe you out like you have > > the flu at first. Just keep talking to us and most of all to your > > doctor. You will get a lot of support on here, and we have some people > > who really know and understand everything to help answer your questions. > > When I was first diagnosed back in 1998, I went through all the > > emotions, depression which I still have at times. I never imagined > > that I could go on feeling like I did, and now I am starting my 11th > > year. Try to stay positive. Its so important to your well being. > > Just remember that we all know how you feel, and can relate to all > > your symptoms. Thats why being in the group will help you so much. > > > > > > > > > > > > > > > > > > > > > > > > > _________________________________________________________________ > Windows Live™: Discover 10 secrets about the new Windows Live. > http://windowslive.com/connect/post/jamiethomson.spaces.live.com- Blog-cns!550F681DAD532637!7540.entry? ocid=TXT_TAGLM_WL_t2_ugc_post_022009 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Hi Debbie: ITs not that your friends do not care. Sometimes, they feel lost for words. Naturally they think the worst because they do not know how treatable Leukemia is now. People hear Leukemia, and its like the end of the world to them. I see a lot of people trying to deal with their spouse's attitude, because they do not know what to expect or how to handle things either. Its all about support and to just keep moving on with what your doing. I have gone through that with friends, but I have to say my husband has been so fantastic since day 1. He is so encouraging and positive, and when he sees me getting down he reminds me of where I am and not where I used to be. Suzzie From: Debbie Segers <segersdebbie@...> Subject: Re: [ ] Re: Is it all Gleevec's fault Date: Thursday, February 26, 2009, 9:33 PM Suzzie thanks so much. To be honest based on what my physician told me I guess I expected to be back to normal very quickly. I also thought that the Hydrea would be more difficult than the Gleevec. I am suffering some of the depression as well. Maybe it is just beginning to hit me what has happened to me. My friends were all there for the first several weeks and now I am not hearing from them at all. I am sure that it is because they don't know what to say. I apprecieate the support that I have found on this site. ____________ _________ _________ __ From: suzzienovember <suzzienovember> groups (DOT) com Sent: Thursday, February 26, 2009 8:22:59 PM Subject: [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Debbie... It is all part of the process of healing and adapting to the 'new you.'. Friends totally change and there are times of doubt for sure. You will prevail and the aches and pains become more manageable. We are here for you. Hope you are getting better everyday. Rhonda Sent from my Verizon Wireless BlackBerry [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Thanks Rhonda. ________________________________ From: " Sionito@... " <Sionito@...> Sent: Thursday, February 26, 2009 8:44:29 PM Subject: Re: [ ] Re: Is it all Gleevec's fault Debbie... It is all part of the process of healing and adapting to the 'new you.'. Friends totally change and there are times of doubt for sure. You will prevail and the aches and pains become more manageable. We are here for you. Hope you are getting better everyday. Rhonda Sent from my Verizon Wireless BlackBerry [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Oh I'm sure they do care.. I just feel very alone at this point. Being on the road and away from home at least until March 14, 2009 has been very difficult. I am going to stop whining now. Thanks for your support. ________________________________ From: Armour <suzzienovember@...> Sent: Thursday, February 26, 2009 8:44:48 PM Subject: Re: [ ] Re: Is it all Gleevec's fault Hi Debbie: ITs not that your friends do not care. Sometimes, they feel lost for words. Naturally they think the worst because they do not know how treatable Leukemia is now. People hear Leukemia, and its like the end of the world to them. I see a lot of people trying to deal with their spouse's attitude, because they do not know what to expect or how to handle things either. Its all about support and to just keep moving on with what your doing. I have gone through that with friends, but I have to say my husband has been so fantastic since day 1. He is so encouraging and positive, and when he sees me getting down he reminds me of where I am and not where I used to be. Suzzie From: Debbie Segers <segersdebbie> Subject: Re: [ ] Re: Is it all Gleevec's fault groups (DOT) com Date: Thursday, February 26, 2009, 9:33 PM Suzzie thanks so much. To be honest based on what my physician told me I guess I expected to be back to normal very quickly. I also thought that the Hydrea would be more difficult than the Gleevec. I am suffering some of the depression as well. Maybe it is just beginning to hit me what has happened to me. My friends were all there for the first several weeks and now I am not hearing from them at all. I am sure that it is because they don't know what to say. I apprecieate the support that I have found on this site. ____________ _________ _________ __ From: suzzienovember <suzzienovember> groups (DOT) com Sent: Thursday, February 26, 2009 8:22:59 PM Subject: [ ] Re: Is it all Gleevec's fault Hi Debbie: You are so VERY NEW to all of this, and the beginning is so much adjusting to your treatment. As you go along, you should see a change with your joint pain. Some people still have it, but most of us do not have it so severe as we did at first. Gleevec is the best first choice for treatment. Just give it time. You will see as you read the posts how long some of us have been on Gleevec or some other treatment. It does wipe you out like you have the flu at first. Just keep talking to us and most of all to your doctor. You will get a lot of support on here, and we have some people who really know and understand everything to help answer your questions. When I was first diagnosed back in 1998, I went through all the emotions, depression which I still have at times. I never imagined that I could go on feeling like I did, and now I am starting my 11th year. Try to stay positive. Its so important to your well being. Just remember that we all know how you feel, and can relate to all your symptoms. Thats why being in the group will help you so much. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2009 Report Share Posted February 27, 2009 Debbie, Your not whining so don't sweat it. Suzzie hit the nail on the head about friends. Nearly all of those I had did disappear but as Suzzie mentioned I think mainly it is because they do not know what to say or do. Suzzie your husband is a good man indeed, I wish my former wife would have been there for me like he has for you, but she decided to bale. Back on the subject of friends. My best friend and I talk once in a while but we have not seen each other in over two years. I think with him it is because before CML we would help each other out if something was wrong, and I do not think he knows how to handle things since there is nothing he can really do to help. I could tell it hit him hard when we did go out one evening. I had purchased two tickets to see my favorite band that had came to town. Since the wife left I called him up and ask him to go with me. We went and the show was great(I was able to seat down which made things easier). Well he wanted to go to a local club after the concert so we did. The problem was there was no place to sit down and after about an hour I had to ask him to take me home because I was very tired. Since then we talk once in a while but now that my son and I are now finally living in a permanent place I will most likely try to make it over to his house to visit. The bottom line is I cannot do allot of the things I used to do before I became ill. Now this is just my case and not everyone still have side effects as I do after being on Gleevec since 04. All I can say is Gleevec put me in remission fast. So fast my Doc used to tease me I should be the poster child for the drug but my picture might scare people..lol. Due to being a bit pale and having long dark hair rotl. I guess what I am trying to say is this group is here for the good and the bad. Suzzie tell your hubby for me he is a very good man:) Terry Dxed April 04 400mgs Gleevec from day one. On Thu, Feb 26, 2009 at 9:48 PM, Debbie Segers <segersdebbie@...>wrote: > Oh I'm sure they do care.. I just feel very alone at this point. Being > on the road and away from home at least until March 14, 2009 has been very > difficult. I am going to stop whining now. Thanks for your support. > > ________________________________ > From: Armour <suzzienovember@... <suzzienovember%40>> > <%40> > Sent: Thursday, February 26, 2009 8:44:48 PM > Subject: Re: [ ] Re: Is it all Gleevec's fault > > > Hi Debbie: ITs not that your friends do not care. Sometimes, they feel > lost for words. Naturally they think the worst because they do not know how > treatable Leukemia is now. People hear Leukemia, and its like the end of > the world to them. I see a lot of people trying to deal with their spouse's > attitude, because they do not know what to expect or how to handle things > either. Its all about support and to just keep moving on with what your > doing. > I have gone through that with friends, but I have to say my husband has > been so fantastic since day 1. He is so encouraging and positive, and when > he sees me getting down he reminds me of where I am and not where I used to > be. > Suzzie > > > > From: Debbie Segers <segersdebbie> > Subject: Re: [ ] Re: Is it all Gleevec's fault > groups (DOT) com > Date: Thursday, February 26, 2009, 9:33 PM > > Suzzie thanks so much. To be honest based on what my physician told me I > guess I expected to be back to normal very quickly. I also thought that the > Hydrea would be more difficult than the Gleevec. I am suffering some of the > depression as well. Maybe it is just beginning to hit me what has happened > to me. My friends were all there for the first several weeks and now I am > not hearing from them at all. I am sure that it is because they don't know > what to say. I apprecieate the support that I have found on this site. > > ____________ _________ _________ __ > From: suzzienovember <suzzienovember> > groups (DOT) com > Sent: Thursday, February 26, 2009 8:22:59 PM > Subject: [ ] Re: Is it all Gleevec's fault > > Hi Debbie: You are so VERY NEW to all of this, and the beginning is so > much adjusting to your treatment. As you go along, you should see a > change with your joint pain. Some people still have it, but most of us > do not have it so severe as we did at first. > Gleevec is the best first choice for treatment. Just give it time. > You will see as you read the posts how long some of us have been on > Gleevec or some other treatment. It does wipe you out like you have > the flu at first. Just keep talking to us and most of all to your > doctor. You will get a lot of support on here, and we have some people > who really know and understand everything to help answer your questions. > When I was first diagnosed back in 1998, I went through all the > emotions, depression which I still have at times. I never imagined > that I could go on feeling like I did, and now I am starting my 11th > year. Try to stay positive. Its so important to your well being. > Just remember that we all know how you feel, and can relate to all > your symptoms. Thats why being in the group will help you so much. > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.