Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 How great to hear a positive result to a very difficult sittuation, especially at this time of the year, when many can't even enjoy the Holidays Season because they are feeling so bad. Thank you for a very shherful message. Happy Holidays. Clara from OR [ ] 6th Anniversary Hello Gang! Today Randy and I celebrate the 6th anniversary of our surgery (12-14-99)! In some ways it is hard to believe it has been so long but in other ways it seems so short. Last week the chief transplant surgeon and his wife visited us at home. We had a reprieve from all the snow that day-- blue skies and not windy. By the luck of the draw, that particular day was a maintenance day on the big telescope and Randy was able to get permission for the 4 of us to go up on the telescope. What a treat! You had the feeling you were on top of the world looking down on the most beautiful place on earth. You can see the telescope at www.nrao.edu and click on the Green Bank site button on the left. We have been very blessed with excellent health. Except for Randy taking his meds in the morning and evening, the transplant has not affected our lifestyle. We do whatever we want only hindered by our own timetables not medical issues. We donate back to the transplant community in many ways and think of our many friends and aquintenances we have made along the way. We have rejoiced with the successes and cried with the ones which were not. But we have never lost or given up on hope. I truly believe that within each of us is that voice that tells us that even though today was not a good day, I will try again tomorrow. Our sincerest hope to each of you is that today--- you have a great day! We thank God for each and every one he has given us. Life is good. Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2005 Report Share Posted December 19, 2005 Oh WOW! I am late getting back to this message, but CONGRATULATIONS! What an honor to have the surgeon come to your home! WOW...you two are such an inspiration...for those who are new, these good people were written up in a National magazine...I still reel when I think of what you both went through....a true love story. They need to make a movie about you two! Again, thank you for your wonderful words of encouragement!!! Debby [ ] 6th Anniversary Hello Gang! Today Randy and I celebrate the 6th anniversary of our surgery (12-14-99)! In some ways it is hard to believe it has been so long but in other ways it seems so short. Last week the chief transplant surgeon and his wife visited us at home. We had a reprieve from all the snow that day-- blue skies and not windy. By the luck of the draw, that particular day was a maintenance day on the big telescope and Randy was able to get permission for the 4 of us to go up on the telescope. What a treat! You had the feeling you were on top of the world looking down on the most beautiful place on earth. You can see the telescope at www.nrao.edu and click on the Green Bank site button on the left. We have been very blessed with excellent health. Except for Randy taking his meds in the morning and evening, the transplant has not affected our lifestyle. We do whatever we want only hindered by our own timetables not medical issues. We donate back to the transplant community in many ways and think of our many friends and aquintenances we have made along the way. We have rejoiced with the successes and cried with the ones which were not. But we have never lost or given up on hope. I truly believe that within each of us is that voice that tells us that even though today was not a good day, I will try again tomorrow. Our sincerest hope to each of you is that today--- you have a great day! We thank God for each and every one he has given us. Life is good. Cheryl & Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2009 Report Share Posted February 24, 2009 This week marks my sixth anniversary of my CML diagnosis. What a ride it has been. Thanks to Gleevec I have remained close very low and undetectable PCR's. The latest is at .009 and in October it was .001. In September the reading was .017, and the puzzlement is that I have been on Gleevec Vacation since the end of June. We always know that there are a few abnormal cells even it we are at .000. I will redo the test the end of March and if it remains up then I will restart Gleevec and be prepared to start the Procrit shots when my HGB reaches 9.0. I have an ONC that has treated me since my diagnosis and an ONC with the VA that monitors me to prescribe the Gleevec and this is the protocol they agreed upon about Aug. 2008. The Procrit did it's job building My HGB to 11 in November and my system has started building all the red blood factors on its own. My last CBC indicated that my HGB had risen to 11.1 without assistance. Will post again when I have more results. Thanks to all that have been there before me so that their experiences are there to guide my way. H. dxd 2/03 400mg Gleevec 3/03 PCRU 11/03 Q-PCR undetectable 11/04 RT-PCR .014 11/05 RT-PCR .000 11/06 RT-PCR .001 11/07 Gleevec Vatation 11/07-1/08 Transfusions 12/07-5-08 RT-PCR 1/08 .017 Gleevec 400mg 1/08-6/08 Gleevec Vacation 6/08 - Unknown Transfusion 8/08 Procrit 6/08 - 11/08 RT-PCR .001 10/08 RT-PCR .009 2/09 Quote Link to comment Share on other sites More sharing options...
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