Re: Re: Severe bone/joint/muscle pain

February 26, 2009

The medicine can be addictive at least I have seen patients addicted to it.

I have always just used Motrin/ibuprofen on days that the muscle/bone pain

is not tolerable. It takes the edge off so that I can tolerate the pain

better. I don't get stomach upset with it and it does the job. I find that

with

narcotics like percocet and lortab and such, they make me drowsy and dopey

and I cant stand feeling like that. Ibuprofen doesn't give me that " hung over "

feeling.

Hope that helps-

That is just my experience!

Hugs & Hope

36

Wife and mom to 3 (13,10,8)

CML 5/13/05

Gleevec 800mg until 8/07

Sprycel 100mg since 9/07

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February 26, 2009

My doc prescribed oxycodone for my bone and joint pain, but I'm afraid to take

it! I never take two any closer than a week apart. Isn't that stuff highly

addictive? Is there something else that is effective but is not addictive?

From: terrydailey@...

Date: Thu, 26 Feb 2009 10:14:18 -0500

Subject: Re: [ ] Re: Severe bone/joint/muscle pain

Sharon,

Sorry to hear your having such pain. My bone pain went away for a few months

but came back worse later. I take 4 500mgs of Loritab a day(sometimes more)

and that helps. I am trying to remain with the same pain medication level as

long as I can sense it does not seem like it is going to go away for good.

Hang in there and like was mentioned if your Doc is not listening get a new

one.

Terry

On Wed, Feb 25, 2009 at 12:23 AM, serenitywon <serenitywon@...> wrote:

> Tracey,

> Thanks for looking over my labs.My ferritin is currently 142 not

> when I was having my infusions.I do have alot of vit/min deficiencies

> due to wls.My levels drop real quick as I don't really absorb much of

> what I eat of supplement.

>

> I saw my Dr today and he went over my recent labs.My Primary Dr

> ordered Thyroid panel and Arthritis panel.All came back ok.So they

> don't explain the pain either.The Dr. says he really believes the

> increased pain is due to Gleevec and even though I am having great

> results with it at 600mg he wants to cut it back to 400 and hope we

> keep the same levels.I have had a 3 log reduction and am barely

> detecting the Philidelphia Chromosom at all.He wants to keep it that

> way but is concerned with my QOL.So I will go back in 3 weeks for a

> CBC.See the Dr again in 4 weeks.Retest PCRU in 2 months and hope for

> pain/symptom improvement without decline in levels.

> Thanks again

> SharonS

>

> In <%40>, " Tracey "

> <traceyincanada@...> wrote:

> >

> > Hi Sharon,

> >

> > I'm sorry to hear of your struggles with pain. There are a few

> > people who have experienced similar problems but thankfully they

> are

> > few and far between. Such extreme pain is not the norm.

> >

> > I'm not quite sure why you're getting iron infusions if your

> ferritin

> > is 142. That's a number I can only fantasize about! My ferritin

> has

> > only once been in the 30 range and recently was a mere 11.

> >

> > Your ALT is only slightly elevated. This is a liver enzyme but

> yours

> > isn't nearly high enough to worry about. It has to triple and

> > quadruple before they start to worry about that.

> >

> > Your total protein and globulin are barely low, not enough that

> would

> > concern me and could probably be attributed to lack of absorption

> > issues given your WLS.

> >

> > Your calcium looks normal to me, maybe your lab has a different

> range

> > than mine but it doesn't look odd at all to me and the rest of your

> > counts are all normal.

> >

> > Hope you find some relief from the pain soon,

> > Tracey

> >

> > >

> > > Hello everyone,

> > > I was Dx with CML May 29,08.I started on 400mg Gleevec then

> > > advanced to 600mg Gleevec.I have alot of side effects.My current

> > one

> > > bothering me the most right now is Bone/joint/muscle pain.I have

> > > swelling and such severe pain in my little fnger that I actually

> > > thought I broke it.Went for xrays but it isn't broke..My entire

> > body

> > > just aches.Where ever you touch it hurts.Arms.legs and back

> worse

> > > areas.

> > > Here are my current CBC results and a few other labs that came

> back

> > > abnormal.

> > >

> > > Total white blood count is 6.9 up from 3.5 two weeks ago

> > > Neutrophiles 4.7 up from 2.9 two weeks ago

> > > Lympocytes 2.0 up from 1.3

> > > Monocytes 0.2 up from 0.1

> > > Hemoglobin 10.9 up from 10.5

> > > Hematocrit 31.8 up from 30.3

> > > Platelets 338 up from 270

> > > My total protein level is low at 5.3

> > > Globulin is low at 1.6

> > > my ALT/SGPT is High at 58 (what does this mean?)

> > > Ionized Calcium is high at 4.8

> > > Ferritin is 142

> > >

> > > I have such pain it feels like I have broken bones.Is this a

> normal

> > > side effect from Gleevec? I have had to do iron infusions a few

> > times

> > > and it seems my pain level is higher when my hemoglobin drops

> below

> > > 12.I beg for more infusions as it helps control my pain level

> when

> > my

> > > hemoglobin is higher.I currently take M.S.Contin every 12 hours

> and

> > > Norco every 3-4 hours.I am still in extreme pain even with daily

> > > heavy narcotics.I have been on this pain meds for years prior to

> > CML

> > > and was helping with the pain it was perscribed for

> > > (hips,back,knees).Since my Dx it isn't helping much it seems

> > however

> > > I wouldn't want to miss even one dose as I am in such pain with

> the

> > > meds I can't imagine what I would be like without the meds.I see

> my

> > > Onc today.Any ideas?

> > > Thanks

> > > SharonS

> > >

> >

>

February 26, 2009

Oxycodone

I have been taking one a day for the past year for arthritis and on golf days, I

take two. It is not a problem for me. I don't feel that it is at all addictive

at this level. I too, was concerned, and spoke to my Doctor and have been

assured it is o.k. It really works.

________________________________

From: Rosen Lum <rrosenlum@...>

Sent: Thursday, February 26, 2009 3:04:46 PM

Subject: RE: [ ] Re: Severe bone/joint/muscle pain

My doc prescribed oxycodone for my bone and joint pain, but I'm afraid to take

it! I never take two any closer than a week apart. Isn't that stuff highly

addictive? Is there something else that is effective but is not addictive?

groups (DOT) com

From: terrydailey@ gmail.com

Date: Thu, 26 Feb 2009 10:14:18 -0500

Subject: Re: [ ] Re: Severe bone/joint/muscle pain

Sharon,

Sorry to hear your having such pain. My bone pain went away for a few months

but came back worse later. I take 4 500mgs of Loritab a day(sometimes more)

and that helps. I am trying to remain with the same pain medication level as

long as I can sense it does not seem like it is going to go away for good.

Hang in there and like was mentioned if your Doc is not listening get a new

one.

Terry

On Wed, Feb 25, 2009 at 12:23 AM, serenitywon <serenitywon> wrote: