Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Hi , good to hear from you and so happy you are doing so well., Wow! a bone marrow every two years, it doesn't get any better than that now, does it? I'm still every 3 months, comes up to somewhere in the middle 40's, but who's counting?? blessings,Bobby a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840 - Zavie's Zero Club 09/2006 - out of CCR 04/29/08 - XL228 Trial/ U.of Michigan 06/02/08 - CCR ( in 4 weeks) 02/13/09 - XL trial ended due to side effects From: gina demase <ginademase@...> Subject: [ ] hi all-update Date: Friday, February 20, 2009, 12:56 AM hi friends, its been a while, still think about you all. just went for my blood work and still undetectable now for 7 years consistently. my counts are great and i'm relieved. still on trial 0106, no bone marrow til aug 2010. they are letting me go every 2 years for bmb now which is fine for me. as long as i am pcr neg and undetectable, dr druker said its fine. it will be 9 years on march 24. i've had about 15 bone marrows so not having one for a while is great with me. i remember 1 year into cml, they thought i was progressing, i though i was going to die, now look at me. i really dont know how i got through those hard times except to give the thanks and grace to God for being there for me. all of you going through a tough time, keep your chin up and stay positive. i love all of you. i have a terrible cold and cannot sleep, but feel better that my tests are good. God bless you, gina demase Quote Link to comment Share on other sites More sharing options...
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