Re: Severe bone/joint/muscle pain

February 24, 2009

Sharon, I had to laugh when you talked about your little finger -- I had the

same thing. It would kind of seize up. My right foot too. I started taking

neurontin for that, which helped, but brought other side effects and in the end

it wasn't worth it. That bone pain will be around for a few weeks then leave for

a while. When it got really severe I paused on the Gleevec for a few days and

the interruption helped. When it gets bad I take ibuprofin, and if it gets

really bad an oxycodone.

From: serenitywon@...

Date: Tue, 24 Feb 2009 19:45:09 +0000

Subject: [ ] Severe bone/joint/muscle pain

Hello everyone,

I was Dx with CML May 29,08.I started on 400mg Gleevec then

advanced to 600mg Gleevec.I have alot of side effects.My current one

bothering me the most right now is Bone/joint/muscle pain.I have

swelling and such severe pain in my little fnger that I actually

thought I broke it.Went for xrays but it isn't broke..My entire body

just aches.Where ever you touch it hurts.Arms.legs and back worse

areas.

Here are my current CBC results and a few other labs that came back

abnormal.

Total white blood count is 6.9 up from 3.5 two weeks ago

Neutrophiles 4.7 up from 2.9 two weeks ago

Lympocytes 2.0 up from 1.3

Monocytes 0.2 up from 0.1

Hemoglobin 10.9 up from 10.5

Hematocrit 31.8 up from 30.3

Platelets 338 up from 270

My total protein level is low at 5.3

Globulin is low at 1.6

my ALT/SGPT is High at 58 (what does this mean?)

Ionized Calcium is high at 4.8

Ferritin is 142

I have such pain it feels like I have broken bones.Is this a normal

side effect from Gleevec? I have had to do iron infusions a few times

and it seems my pain level is higher when my hemoglobin drops below

12.I beg for more infusions as it helps control my pain level when my

hemoglobin is higher.I currently take M.S.Contin every 12 hours and

Norco every 3-4 hours.I am still in extreme pain even with daily

heavy narcotics.I have been on this pain meds for years prior to CML

and was helping with the pain it was perscribed for

(hips,back,knees).Since my Dx it isn't helping much it seems however

I wouldn't want to miss even one dose as I am in such pain with the

meds I can't imagine what I would be like without the meds.I see my

Onc today.Any ideas?

Thanks

SharonS

_________________________________________________________________

It’s the same Hotmail®. If by “same” you mean up to 70% faster.

http://windowslive.com/online/hotmail?ocid=TXT_TAGLM_WL_HM_AE_Same_022009

February 24, 2009

,

Thanks for sharing your experience..It has been about 3 weks for my

finger pain but the acheyness is getting worse the longer I remain on

gleevec.As i stated before I live on heavy nacrotics taken on a

regular schedule and am still suffering.I will ask the Dr today and

see if he does more than consult his palm pilot and shrug..

Thanks

SharonS

In , Rosen Lum <rrosenlum@...> wrote:

>

> Sharon, I had to laugh when you talked about your little finger --

I had the same thing. It would kind of seize up. My right foot too. I

started taking neurontin for that, which helped, but brought other

side effects and in the end it wasn't worth it. That bone pain will

be around for a few weeks then leave for a while. When it got really

severe I paused on the Gleevec for a few days and the interruption

helped. When it gets bad I take ibuprofin, and if it gets really bad

an oxycodone.

>

> From: serenitywon@...

> Date: Tue, 24 Feb 2009 19:45:09 +0000

> Subject: [ ] Severe bone/joint/muscle pain

>

> Hello everyone,

>

> I was Dx with CML May 29,08.I started on 400mg Gleevec then

>

> advanced to 600mg Gleevec.I have alot of side effects.My current

one

>

> bothering me the most right now is Bone/joint/muscle pain.I have

>

> swelling and such severe pain in my little fnger that I actually

>

> thought I broke it.Went for xrays but it isn't broke..My entire

body

>

> just aches.Where ever you touch it hurts.Arms.legs and back worse

>

> areas.

>

> Here are my current CBC results and a few other labs that came back

>

> abnormal.

>

> Total white blood count is 6.9 up from 3.5 two weeks ago

>

> Neutrophiles 4.7 up from 2.9 two weeks ago

>

> Lympocytes 2.0 up from 1.3

>

> Monocytes 0.2 up from 0.1

>

> Hemoglobin 10.9 up from 10.5

>

> Hematocrit 31.8 up from 30.3

>

> Platelets 338 up from 270

>

> My total protein level is low at 5.3

>

> Globulin is low at 1.6

>

> my ALT/SGPT is High at 58 (what does this mean?)

>

> Ionized Calcium is high at 4.8

>

> Ferritin is 142

>

> I have such pain it feels like I have broken bones.Is this a normal

>

> side effect from Gleevec? I have had to do iron infusions a few

times

>

> and it seems my pain level is higher when my hemoglobin drops below

>

> 12.I beg for more infusions as it helps control my pain level when

my

>

> hemoglobin is higher.I currently take M.S.Contin every 12 hours and

>

> Norco every 3-4 hours.I am still in extreme pain even with daily

>

> heavy narcotics.I have been on this pain meds for years prior to

CML

>

> and was helping with the pain it was perscribed for

>

> (hips,back,knees).Since my Dx it isn't helping much it seems

however

>

> I wouldn't want to miss even one dose as I am in such pain with the

>

> meds I can't imagine what I would be like without the meds.I see my

>

> Onc today.Any ideas?

>

> Thanks

>

> SharonS

>

> _________________________________________________________________

> It's the same Hotmail®. If by " same " you mean up to 70% faster.

> http://windowslive.com/online/hotmail?

ocid=TXT_TAGLM_WL_HM_AE_Same_022009

>

February 24, 2009

Sheesh! If he doesn't, I say trade him in on a new model! Managing side effects

is such a huge part of cancer treatment.

From: serenitywon@...

Date: Tue, 24 Feb 2009 20:07:11 +0000

Subject: Re: [ ] Severe bone/joint/muscle pain

,

Thanks for sharing your experience..It has been about 3 weks for my

finger pain but the acheyness is getting worse the longer I remain on

gleevec.As i stated before I live on heavy nacrotics taken on a

regular schedule and am still suffering.I will ask the Dr today and

see if he does more than consult his palm pilot and shrug..

Thanks

SharonS

In , Rosen Lum <rrosenlum@...> wrote:

>

> Sharon, I had to laugh when you talked about your little finger --

I had the same thing. It would kind of seize up. My right foot too. I

started taking neurontin for that, which helped, but brought other

side effects and in the end it wasn't worth it. That bone pain will

be around for a few weeks then leave for a while. When it got really

severe I paused on the Gleevec for a few days and the interruption

helped. When it gets bad I take ibuprofin, and if it gets really bad

an oxycodone.

>

> From: serenitywon@...

> Date: Tue, 24 Feb 2009 19:45:09 +0000

> Subject: [ ] Severe bone/joint/muscle pain

>

> Hello everyone,

>

> I was Dx with CML May 29,08.I started on 400mg Gleevec then

>

> advanced to 600mg Gleevec.I have alot of side effects.My current

one

>

> bothering me the most right now is Bone/joint/muscle pain.I have

>

> swelling and such severe pain in my little fnger that I actually

>

> thought I broke it.Went for xrays but it isn't broke..My entire

body

>

> just aches.Where ever you touch it hurts.Arms.legs and back worse

>

> areas.

>

> Here are my current CBC results and a few other labs that came back

>

> abnormal.

>

> Total white blood count is 6.9 up from 3.5 two weeks ago

>

> Neutrophiles 4.7 up from 2.9 two weeks ago

>

> Lympocytes 2.0 up from 1.3

>

> Monocytes 0.2 up from 0.1

>

> Hemoglobin 10.9 up from 10.5

>

> Hematocrit 31.8 up from 30.3

>

> Platelets 338 up from 270

>

> My total protein level is low at 5.3

>

> Globulin is low at 1.6

>

> my ALT/SGPT is High at 58 (what does this mean?)

>

> Ionized Calcium is high at 4.8

>

> Ferritin is 142

>

> I have such pain it feels like I have broken bones.Is this a normal

>

> side effect from Gleevec? I have had to do iron infusions a few

times

>

> and it seems my pain level is higher when my hemoglobin drops below

>

> 12.I beg for more infusions as it helps control my pain level when

my

>

> hemoglobin is higher.I currently take M.S.Contin every 12 hours and

>

> Norco every 3-4 hours.I am still in extreme pain even with daily

>

> heavy narcotics.I have been on this pain meds for years prior to

CML

>

> and was helping with the pain it was perscribed for

>

> (hips,back,knees).Since my Dx it isn't helping much it seems

however

>

> I wouldn't want to miss even one dose as I am in such pain with the

>

> meds I can't imagine what I would be like without the meds.I see my

>

> Onc today.Any ideas?

>

> Thanks

>

> SharonS

>

> __________________________________________________________

> It's the same Hotmail®. If by " same " you mean up to 70% faster.

> http://windowslive.com/online/hotmail?

ocid=TXT_TAGLM_WL_HM_AE_Same_022009

>

February 25, 2009

Hi Sharon,

I'm sorry to hear of your struggles with pain. There are a few

people who have experienced similar problems but thankfully they are

few and far between. Such extreme pain is not the norm.

I'm not quite sure why you're getting iron infusions if your ferritin

is 142. That's a number I can only fantasize about! My ferritin has

only once been in the 30 range and recently was a mere 11.

Your ALT is only slightly elevated. This is a liver enzyme but yours

isn't nearly high enough to worry about. It has to triple and

quadruple before they start to worry about that.

Your total protein and globulin are barely low, not enough that would

concern me and could probably be attributed to lack of absorption

issues given your WLS.

Your calcium looks normal to me, maybe your lab has a different range

than mine but it doesn't look odd at all to me and the rest of your

counts are all normal.

Hope you find some relief from the pain soon,

Tracey

>

> Hello everyone,

> I was Dx with CML May 29,08.I started on 400mg Gleevec then

> advanced to 600mg Gleevec.I have alot of side effects.My current

one

> bothering me the most right now is Bone/joint/muscle pain.I have

> swelling and such severe pain in my little fnger that I actually

> thought I broke it.Went for xrays but it isn't broke..My entire

body

> just aches.Where ever you touch it hurts.Arms.legs and back worse

> areas.

> Here are my current CBC results and a few other labs that came back

> abnormal.

>

> Total white blood count is 6.9 up from 3.5 two weeks ago

> Neutrophiles 4.7 up from 2.9 two weeks ago

> Lympocytes 2.0 up from 1.3

> Monocytes 0.2 up from 0.1

> Hemoglobin 10.9 up from 10.5

> Hematocrit 31.8 up from 30.3

> Platelets 338 up from 270

> My total protein level is low at 5.3

> Globulin is low at 1.6

> my ALT/SGPT is High at 58 (what does this mean?)

> Ionized Calcium is high at 4.8

> Ferritin is 142

>

> I have such pain it feels like I have broken bones.Is this a normal

> side effect from Gleevec? I have had to do iron infusions a few

times

> and it seems my pain level is higher when my hemoglobin drops below

> 12.I beg for more infusions as it helps control my pain level when

my

> hemoglobin is higher.I currently take M.S.Contin every 12 hours and

> Norco every 3-4 hours.I am still in extreme pain even with daily

> heavy narcotics.I have been on this pain meds for years prior to

CML

> and was helping with the pain it was perscribed for

> (hips,back,knees).Since my Dx it isn't helping much it seems

however

> I wouldn't want to miss even one dose as I am in such pain with the

> meds I can't imagine what I would be like without the meds.I see my

> Onc today.Any ideas?

> Thanks

> SharonS

>

February 25, 2009

Tracey,

Thanks for looking over my labs.My ferritin is currently 142 not

when I was having my infusions.I do have alot of vit/min deficiencies

due to wls.My levels drop real quick as I don't really absorb much of

what I eat of supplement.

I saw my Dr today and he went over my recent labs.My Primary Dr

ordered Thyroid panel and Arthritis panel.All came back ok.So they

don't explain the pain either.The Dr. says he really believes the

increased pain is due to Gleevec and even though I am having great

results with it at 600mg he wants to cut it back to 400 and hope we

keep the same levels.I have had a 3 log reduction and am barely

detecting the Philidelphia Chromosom at all.He wants to keep it that

way but is concerned with my QOL.So I will go back in 3 weeks for a

CBC.See the Dr again in 4 weeks.Retest PCRU in 2 months and hope for

pain/symptom improvement without decline in levels.

Thanks again

SharonS

In , " Tracey " <traceyincanada@...> wrote:

>

> Hi Sharon,

>

> I'm sorry to hear of your struggles with pain. There are a few

> people who have experienced similar problems but thankfully they

are

> few and far between. Such extreme pain is not the norm.

>

> I'm not quite sure why you're getting iron infusions if your

ferritin

> is 142. That's a number I can only fantasize about! My ferritin

has

> only once been in the 30 range and recently was a mere 11.

>

> Your ALT is only slightly elevated. This is a liver enzyme but

yours

> isn't nearly high enough to worry about. It has to triple and

> quadruple before they start to worry about that.

>

> Your total protein and globulin are barely low, not enough that

would

> concern me and could probably be attributed to lack of absorption

> issues given your WLS.

>

> Your calcium looks normal to me, maybe your lab has a different

range

> than mine but it doesn't look odd at all to me and the rest of your

> counts are all normal.

>

> Hope you find some relief from the pain soon,

> Tracey

>

> >

> > Hello everyone,

> > I was Dx with CML May 29,08.I started on 400mg Gleevec then

> > advanced to 600mg Gleevec.I have alot of side effects.My current

> one

> > bothering me the most right now is Bone/joint/muscle pain.I have

> > swelling and such severe pain in my little fnger that I actually

> > thought I broke it.Went for xrays but it isn't broke..My entire

> body

> > just aches.Where ever you touch it hurts.Arms.legs and back

worse

> > areas.

> > Here are my current CBC results and a few other labs that came

back

> > abnormal.

> >

> > Total white blood count is 6.9 up from 3.5 two weeks ago

> > Neutrophiles 4.7 up from 2.9 two weeks ago

> > Lympocytes 2.0 up from 1.3

> > Monocytes 0.2 up from 0.1

> > Hemoglobin 10.9 up from 10.5

> > Hematocrit 31.8 up from 30.3

> > Platelets 338 up from 270

> > My total protein level is low at 5.3

> > Globulin is low at 1.6

> > my ALT/SGPT is High at 58 (what does this mean?)

> > Ionized Calcium is high at 4.8

> > Ferritin is 142

> >

> > I have such pain it feels like I have broken bones.Is this a

normal

> > side effect from Gleevec? I have had to do iron infusions a few

> times

> > and it seems my pain level is higher when my hemoglobin drops

below

> > 12.I beg for more infusions as it helps control my pain level

when

> my

> > hemoglobin is higher.I currently take M.S.Contin every 12 hours

and

> > Norco every 3-4 hours.I am still in extreme pain even with daily

> > heavy narcotics.I have been on this pain meds for years prior to

> CML

> > and was helping with the pain it was perscribed for

> > (hips,back,knees).Since my Dx it isn't helping much it seems

> however

> > I wouldn't want to miss even one dose as I am in such pain with

the

> > meds I can't imagine what I would be like without the meds.I see

my

> > Onc today.Any ideas?

> > Thanks

> > SharonS

> >

>

February 26, 2009

Sharon,

Sorry to hear your having such pain. My bone pain went away for a few months

but came back worse later. I take 4 500mgs of Loritab a day(sometimes more)

and that helps. I am trying to remain with the same pain medication level as

long as I can sense it does not seem like it is going to go away for good.

Hang in there and like was mentioned if your Doc is not listening get a new

one.

Terry

On Wed, Feb 25, 2009 at 12:23 AM, serenitywon <serenitywon@...> wrote:

> Tracey,

> Thanks for looking over my labs.My ferritin is currently 142 not

> when I was having my infusions.I do have alot of vit/min deficiencies

> due to wls.My levels drop real quick as I don't really absorb much of

> what I eat of supplement.

>

> I saw my Dr today and he went over my recent labs.My Primary Dr

> ordered Thyroid panel and Arthritis panel.All came back ok.So they

> don't explain the pain either.The Dr. says he really believes the

> increased pain is due to Gleevec and even though I am having great

> results with it at 600mg he wants to cut it back to 400 and hope we

> keep the same levels.I have had a 3 log reduction and am barely

> detecting the Philidelphia Chromosom at all.He wants to keep it that

> way but is concerned with my QOL.So I will go back in 3 weeks for a

> CBC.See the Dr again in 4 weeks.Retest PCRU in 2 months and hope for

> pain/symptom improvement without decline in levels.

> Thanks again

> SharonS

>

> In <%40>, " Tracey "

> <traceyincanada@...> wrote:

> >

> > Hi Sharon,

> >

> > I'm sorry to hear of your struggles with pain. There are a few

> > people who have experienced similar problems but thankfully they

> are

> > few and far between. Such extreme pain is not the norm.

> >

> > I'm not quite sure why you're getting iron infusions if your

> ferritin

> > is 142. That's a number I can only fantasize about! My ferritin

> has

> > only once been in the 30 range and recently was a mere 11.

> >

> > Your ALT is only slightly elevated. This is a liver enzyme but

> yours

> > isn't nearly high enough to worry about. It has to triple and

> > quadruple before they start to worry about that.

> >

> > Your total protein and globulin are barely low, not enough that

> would

> > concern me and could probably be attributed to lack of absorption

> > issues given your WLS.

> >

> > Your calcium looks normal to me, maybe your lab has a different

> range

> > than mine but it doesn't look odd at all to me and the rest of your

> > counts are all normal.

> >

> > Hope you find some relief from the pain soon,

> > Tracey

> >

> > >

> > > Hello everyone,

> > > I was Dx with CML May 29,08.I started on 400mg Gleevec then

> > > advanced to 600mg Gleevec.I have alot of side effects.My current

> > one

> > > bothering me the most right now is Bone/joint/muscle pain.I have

> > > swelling and such severe pain in my little fnger that I actually

> > > thought I broke it.Went for xrays but it isn't broke..My entire

> > body

> > > just aches.Where ever you touch it hurts.Arms.legs and back

> worse

> > > areas.

> > > Here are my current CBC results and a few other labs that came

> back

> > > abnormal.

> > >

> > > Total white blood count is 6.9 up from 3.5 two weeks ago

> > > Neutrophiles 4.7 up from 2.9 two weeks ago

> > > Lympocytes 2.0 up from 1.3

> > > Monocytes 0.2 up from 0.1

> > > Hemoglobin 10.9 up from 10.5

> > > Hematocrit 31.8 up from 30.3

> > > Platelets 338 up from 270

> > > My total protein level is low at 5.3

> > > Globulin is low at 1.6

> > > my ALT/SGPT is High at 58 (what does this mean?)

> > > Ionized Calcium is high at 4.8

> > > Ferritin is 142

> > >

> > > I have such pain it feels like I have broken bones.Is this a

> normal

> > > side effect from Gleevec? I have had to do iron infusions a few

> > times

> > > and it seems my pain level is higher when my hemoglobin drops

> below

> > > 12.I beg for more infusions as it helps control my pain level

> when

> > my

> > > hemoglobin is higher.I currently take M.S.Contin every 12 hours

> and

> > > Norco every 3-4 hours.I am still in extreme pain even with daily

> > > heavy narcotics.I have been on this pain meds for years prior to

> > CML

> > > and was helping with the pain it was perscribed for

> > > (hips,back,knees).Since my Dx it isn't helping much it seems

> > however

> > > I wouldn't want to miss even one dose as I am in such pain with

> the

> > > meds I can't imagine what I would be like without the meds.I see

> my

> > > Onc today.Any ideas?

> > > Thanks

> > > SharonS

> > >

> >

>

February 26, 2009

Terry,

Sorry to hear you are also having the same pain issues as I am.My

Dr. has decreased my dose of Gleevec from 600 mg to 400 and we hope

to remain at a 3 log reduction with these changes.I am worried but I

just can't deal with the pain.I am not unaccustumed to pain as I have

had this chronic pain since well before DX of CML however it has

gotten worse.Much worse and after 9 months of gleevec it has not

gotten better but worse yet.

My Dr seems to be listening well.He is not an expert but then

there are none in my area.Only a few Dr.s here that have any

knowledge of CML.I am not financially able to travel and probably

couldn't handle a long trip physically either so I will stick with

what I have available.

Thanks for your reply and hope you feel better.

SharonS

#1226

In , Terry Dailey <terrydailey@...> wrote:

>

> Sharon,

>

> Sorry to hear your having such pain. My bone pain went away for a

few months

> but came back worse later. I take 4 500mgs of Loritab a day

(sometimes more)

> and that helps. I am trying to remain with the same pain medication

level as

> long as I can sense it does not seem like it is going to go away

for good.

> Hang in there and like was mentioned if your Doc is not listening

get a new

> one.

>

> Terry

>

> On Wed, Feb 25, 2009 at 12:23 AM, serenitywon <serenitywon@...>

wrote:

>

> > Tracey,

> > Thanks for looking over my labs.My ferritin is currently 142 not

> > when I was having my infusions.I do have alot of vit/min

deficiencies

> > due to wls.My levels drop real quick as I don't really absorb

much of

> > what I eat of supplement.

> >

> > I saw my Dr today and he went over my recent labs.My Primary Dr

> > ordered Thyroid panel and Arthritis panel.All came back ok.So they

> > don't explain the pain either.The Dr. says he really believes the

> > increased pain is due to Gleevec and even though I am having great

> > results with it at 600mg he wants to cut it back to 400 and hope

we

> > keep the same levels.I have had a 3 log reduction and am barely

> > detecting the Philidelphia Chromosom at all.He wants to keep it

that

> > way but is concerned with my QOL.So I will go back in 3 weeks for

a

> > CBC.See the Dr again in 4 weeks.Retest PCRU in 2 months and hope

for

> > pain/symptom improvement without decline in levels.

> > Thanks again

> > SharonS

> >

> > In <%40>, " Tracey "

> > <traceyincanada@> wrote:

> > >

> > > Hi Sharon,

> > >

> > > I'm sorry to hear of your struggles with pain. There are a few

> > > people who have experienced similar problems but thankfully they

> > are

> > > few and far between. Such extreme pain is not the norm.

> > >

> > > I'm not quite sure why you're getting iron infusions if your

> > ferritin

> > > is 142. That's a number I can only fantasize about! My ferritin

> > has

> > > only once been in the 30 range and recently was a mere 11.

> > >

> > > Your ALT is only slightly elevated. This is a liver enzyme but

> > yours

> > > isn't nearly high enough to worry about. It has to triple and

> > > quadruple before they start to worry about that.

> > >

> > > Your total protein and globulin are barely low, not enough that

> > would

> > > concern me and could probably be attributed to lack of

absorption

> > > issues given your WLS.

> > >

> > > Your calcium looks normal to me, maybe your lab has a different

> > range

> > > than mine but it doesn't look odd at all to me and the rest of

your

> > > counts are all normal.

> > >

> > > Hope you find some relief from the pain soon,

> > > Tracey

> > >

> > > >

> > > > Hello everyone,

> > > > I was Dx with CML May 29,08.I started on 400mg Gleevec then

> > > > advanced to 600mg Gleevec.I have alot of side effects.My

current

> > > one

> > > > bothering me the most right now is Bone/joint/muscle pain.I

have

> > > > swelling and such severe pain in my little fnger that I

actually

> > > > thought I broke it.Went for xrays but it isn't broke..My

entire

> > > body

> > > > just aches.Where ever you touch it hurts.Arms.legs and back

> > worse

> > > > areas.

> > > > Here are my current CBC results and a few other labs that came

> > back

> > > > abnormal.

> > > >

> > > > Total white blood count is 6.9 up from 3.5 two weeks ago

> > > > Neutrophiles 4.7 up from 2.9 two weeks ago

> > > > Lympocytes 2.0 up from 1.3

> > > > Monocytes 0.2 up from 0.1

> > > > Hemoglobin 10.9 up from 10.5

> > > > Hematocrit 31.8 up from 30.3

> > > > Platelets 338 up from 270

> > > > My total protein level is low at 5.3

> > > > Globulin is low at 1.6

> > > > my ALT/SGPT is High at 58 (what does this mean?)

> > > > Ionized Calcium is high at 4.8

> > > > Ferritin is 142

> > > >

> > > > I have such pain it feels like I have broken bones.Is this a

> > normal

> > > > side effect from Gleevec? I have had to do iron infusions a

few

> > > times

> > > > and it seems my pain level is higher when my hemoglobin drops

> > below

> > > > 12.I beg for more infusions as it helps control my pain level

> > when

> > > my

> > > > hemoglobin is higher.I currently take M.S.Contin every 12

hours

> > and

> > > > Norco every 3-4 hours.I am still in extreme pain even with

daily

> > > > heavy narcotics.I have been on this pain meds for years prior

to

> > > CML

> > > > and was helping with the pain it was perscribed for

> > > > (hips,back,knees).Since my Dx it isn't helping much it seems

> > > however

> > > > I wouldn't want to miss even one dose as I am in such pain

with

> > the

> > > > meds I can't imagine what I would be like without the meds.I

see

> > my

> > > > Onc today.Any ideas?

> > > > Thanks

> > > > SharonS

> > > >

> > >

> >

>

February 26, 2009

WOW, what a relief! Thanks,

From: hughes.jessica@...

Date: Thu, 26 Feb 2009 12:09:24 -0800

Subject: Re: [ ] Re: Severe bone/joint/muscle pain

Oxycodone

I have been taking one a day for the past year for arthritis and on golf days, I

take two. It is not a problem for me. I don't feel that it is at all addictive

at this level. I too, was concerned, and spoke to my Doctor and have been

assured it is o.k. It really works.

________________________________

From: Rosen Lum <rrosenlum@...>

Sent: Thursday, February 26, 2009 3:04:46 PM

Subject: RE: [ ] Re: Severe bone/joint/muscle pain

My doc prescribed oxycodone for my bone and joint pain, but I'm afraid to take

it! I never take two any closer than a week apart. Isn't that stuff highly

addictive? Is there something else that is effective but is not addictive?

groups (DOT) com

From: terrydailey@ gmail.com

Date: Thu, 26 Feb 2009 10:14:18 -0500

Subject: Re: [ ] Re: Severe bone/joint/muscle pain

Sharon,

Sorry to hear your having such pain. My bone pain went away for a few months

but came back worse later. I take 4 500mgs of Loritab a day(sometimes more)

and that helps. I am trying to remain with the same pain medication level as

long as I can sense it does not seem like it is going to go away for good.

Hang in there and like was mentioned if your Doc is not listening get a new

one.

Terry

On Wed, Feb 25, 2009 at 12:23 AM, serenitywon <serenitywon> wrote: