Guest guest Posted February 26, 2009 Report Share Posted February 26, 2009 Hi to all, My name is Robin, I'm a 51 yr. old female from Indiana. I was diagnosed 2/12/09. Debbie, I'm sorry to hear about all the pain issues that you have. I only have pain in a few places so I can't image what it's like for you. My first symptoms were pain in my legs & tailbone. I went for an MRI, they found abnormal marrow then I was sent to an Onc. He did blood tests (white counts 141,000), tried a BMB but it was a dry tap. He did get plenty of bone though, still sore... I do work but I cut down to part-time a few mths. ago. I have pain issues but I seem to manage fine with just Advil. I asked my Onc if CML causes bone pain and he said it can. He said the marrow is so over-crowded it can cause pressure on the bone. (This is my laymans interpretation of his explanation). He said that hopefully..., when blood counts get evened out, the pain will get better. I don't know if that is his speech he gives to all his new patients or not. Maybe some of the other CML posters can give us an opinion to that. I have another question for the posters. I have scar tissue in the marrow, does that mean I have Myelofibrosis? Quote Link to comment Share on other sites More sharing options...
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