NO subject

[Guest guest]

Hi Happy,

I hope the consultation works out for you, that is a heck of a long trip

when you are feeling awful. So glad you got a copy of Lang's book,

it is very good. Have you read Polly Murray's " The Widening Circle? " That

one will wake you up fast to the politics of Lyme. That woman was so

courageous. Also my all time favorite for great information is

Forschner's " Everything you Need to know about Lyme Disease and other Tick

Borne Disorders. " That is fairly new so the information is current. Check

them out at your Library to see if you want to buy them.

Best to you,

Marta

>From: HapsQuilt@...

>

>Hi All....

>I am still plugging along....heard from Dr. office today that I have an

>appt. with Dr. Donta....on Aug 25th!!! I told the receptionist that she

needs

>to tell my Dr. how far away the appt is and that I would appreciate a phone

>consultation. The lab work has been done at Igenex and is positive for WB

and

>babesia. I doubt that Dr. Donta needs more than that. She agreed and would

>check with my Dr. Will wait 2 days to hear, and then will make decision

with

>my LLMD (who is not actively practicing, but will co-manage me) I got the

>book " Coping With Lyme Disease " by Lang today....it is so frightening to

read

>this info. I think I am probably lucky to have any LLMD, practicing or not,

>and will have to go with her, even though it means traveling a little. I

was

>so hoping to get someone in this town.....largest hospital and teaching

>facility north of Portland.....and they don't get it!!!!!

>Happy

>

[Guest guest]

we had new people last nite at the support group.....they could not believe

how political lyme is.......the widening circle is a must read.......the

other problem is we have all been brought up to not ???? doctors .....when i

told these people that i now questions docs on lyme and most of the time knew

more than the docs they were stunned......i keep a copie of dr. b's protocol

in my truck.......grerat illness when we have to feel like crap and yet teach

all about our disease........i never would have ?????? a doc or disagreed

with one before this........now it is a constant thing and i get passionate

about it........they usuallly listenthey quote what they know( sigal steere

theory circa 1988) and then i tell them that sigal and steere don't even

believe that anymore) then i tell them the real scoop .......it is a sin that

med schools spend a total of 8 hours out of 4 years on lyme.........no wonder

we know better.....and most llmd have a vested interest in lyme the good one

either have it themselves or a family member does......so they have a stake

in keeping current on treatment.........boy am i just full of opinions today

huh........oh well......sorry if i offend anyone......thats why we have

delete buttons i guess...........love ya all......

Reid

[Guest guest]

--- HapsQuilt@... wrote:

> From: HapsQuilt@...

>

> Val and others,

> The good news is I made my appt today with a Dr. who

> will consult with LLMD.

> Not my regular doc of 25 years.....hard pill for me

> to swallow....but I guess

> it won't be the last one. I will see this doc and

> set up plan for getting

> port and IV rocephin for 3 months. My doctor wants

> me in the hospital for the

> first 3 days of treatment. Will plan to do that the

> next week. My neice is

> graduating the 5ht of June, and lots of relatives

> coming from out of state.

> Will try to get there for the festivities in between

> Dr. visits, but not

> anxious to participate like a bump on a log!

> I do appreciate this list.....it is great for

> keeping me focused.

> Happy

>

> Happy-

Glad you are getting treatment but have a question. Why is your doc

hospitalizing you for the first 3 days? Did he give you a reason ?

Just curious.

L

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> the word " subscribe " ( " normal " is the opposite of

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_________________________________________________________

[Guest guest]

In a message dated 5/27/1999 9:17:27 AM Eastern Daylight Time,

HapsQuilt@... writes:

<< My LLMD wants me to have a port inserted and remain in hospital for

initial

treatment so that I can be monitored for reactions to med and in case I have

a Herx in the begginning....just trying to be cautious I guess. Has anyone

else been admitted for the initial start of treatment?

Happy >>

is insurance going to cover it???? most hospital stays these days need to

pre-aproved...so I wonder if you have to get pre-approval and whether it is

covered...B

[Guest guest]

In a message dated 5/27/99 9:27:23 AM, BratDet@... writes:

<< My LLMD wants me to have a port inserted and remain in hospital for

initial

treatment so that I can be monitored for reactions to med and in case I have

a Herx in the begginning....just trying to be cautious I guess. Has anyone

else been admitted for the initial start of treatment?

Happy >>

is insurance going to cover it???? most hospital stays these days need to

pre-aproved...so I wonder if you have to get pre-approval and whether it is

covered...B

>>

In my own experiance my doctor makes me do the first treatment in the office

and the rest I can do at home Feel better-Val

[Guest guest]

In a message dated 5/27/99 9:32:03 AM, mlmccoy@... writes:

<< Hi Happy,

I had my port implanted Same Day Surgery, my surgeon had a bit of a

problem finding my heart.... ;-), my incision is 7 inches long, 11 staples

to close it, it should be about 1/4 inch. But that was my body, not his

fault. Because I had such a long incision, I had a rough time after the

surgery, I could not actually use the port for 4 weeks, and had to have

temporary lines in my arms during that period. I think it is a good idea

for you to be in the hospital, if you don't mind it, much safer than trying

to deal with all this stuff when you are at home.

Hugs,

Marta

>>

Marta is right . If your insurance will pay for it maby it is safer for you

to be in a hospital. do you really have to have the port. How long are you

scheduled for therapy. Did your doctor ever mention trying a picc line or

amidline? feel better-Val

[Guest guest]

Hi Happy,

I had my port implanted Same Day Surgery, my surgeon had a bit of a

problem finding my heart.... ;-), my incision is 7 inches long, 11 staples

to close it, it should be about 1/4 inch. But that was my body, not his

fault. Because I had such a long incision, I had a rough time after the

surgery, I could not actually use the port for 4 weeks, and had to have

temporary lines in my arms during that period. I think it is a good idea

for you to be in the hospital, if you don't mind it, much safer than trying

to deal with all this stuff when you are at home.

Hugs,

Marta

>From: HapsQuilt@...

>

>

>My LLMD wants me to have a port inserted and remain in hospital for initial

>treatment so that I can be monitored for reactions to med and in case I

have

>a Herx in the begginning....just trying to be cautious I guess. Has anyone

>else been admitted for the initial start of treatment?

>Happy

[Guest guest]

--- HapsQuilt@... wrote:

> From: HapsQuilt@...

>

>

> My LLMD wants me to have a port inserted and remain

> in hospital for initial

> treatment so that I can be monitored for reactions

> to med and in case I have

> a Herx in the begginning....just trying to be

> cautious I guess. Has anyone

> else been admitted for the initial start of

> treatment?

> Happy

>

> Happy-

Im glad your doc wants to be cautious. That is really a hard quality to

find in a doc these days. I also hope that you dont get a major hassel

from your ins co. I know it is hard enough to get treatment paid for

and I hope they will also approve your hospital stay. Let us know how

you are doing. Hope all goes well.

L

P.S.

Have someone bring you in food. Hospital food is

rotten.LOL----------------------------------------------------------------------\

--

> Campaign 2000 is here!

>

> Discuss your thoughts; get informed at ONElist. See

> our homepage.

>

------------------------------------------------------------------------

> Please send privately messages unrelated to lyme.

> /archives.cgi/

> /archives.cgi/Lyme-Docs

> Email: -subscribeonelist

> You may substitute " unsubscribe " , " digest " , or

> " normal " for

> the word " subscribe " ( " normal " is the opposite of

> " digest " )

>

_________________________________________________________

[Guest guest]

In a message dated 6/2/99 1:29:50 PM Central Daylight Time, Kato109@...

writes:

<< frequency of 3.5khz which I think is what Dr. Beck's is - but I don't

understand about the different frequencies. His web site is

www.mind.net/aware/parasite.htm and I'd love to hear from anyone, especially

Dusan since you clearly know a lot about zappers whether I could get this

more inexpensive one and still have it work?

Oh also, I am having the fillings slowly removed from my teeth, and just had

a CRT or thermalgram which showed a lot of heat where my wisdom teeth used

to

be (removed in my twenties) so something is wrong there too and maybe

affecting sinuses, so I'm very curious about all this cavitation stuff. Will

the zapper help that?

Anyhow, this is a long enough letter for now and I thank you all for

listening to my story.

Take care,

Katarina >>

Hi Katarina,

I have a Hulda zapper and used it faithfully for a long time but felt I

had reached a plateau, so I quit. Then I ordered the Beck silver pulser but

didn't use it because I wasn't sure what it would do. Then my already bad

health seemed to get worse . My back hurt so bad last week and I had no

energy. Finally I dragged that thing out and read directions. The first day

I used it for 1 hr and didn't notice anything and the next day my back was

much worse so I drank a qt. of ozanated water while wired for 2hrs. My back

was much better! I even took a walk to my daughters. The next morning I had

so much energy that I just flew into my house doing all those things I had

not been able to. As I write this, I am wired again for 2hr. I've kept my

5yr old grandson all day and he is spending the night.

Also kept neighbors grand child while she worked. Don't ask me how it

works?? i don't know.

edith

[Guest guest]

Katarina, I am in the LA area too, and if you are concerned about the

cavitation thing Dr. Raveco ( a holistic dentist ) can give you a clear

diagnoses of this. 310-826-8418, I'm not sure if he does the sugery or not.

There is also a Dr. Keramati in LA..310-914-9246 who can diagnose too, (

he diagnosed me ) but he charges a lot of money for surgery. I found a

bilological dentist in Carlsbad, CA, Dr. Lawrence, 760-729-9050. He

does the currative surgery and is affordable. I am thinking about having him

do my cavitations. Finding these Dr.s in LA took me months, so I thought it

may save you some time to share them with you. Yes cavitations can cuase

sinus trouble. The bacteria in cavitations..upper extraction site, can get

into sinuses. I was diagnosed originally with sinus infection on a cat scan,

which I thought was weird since all these health problems began after having

wisdom teeth removed. If it wasn't for the internet I never would have known

of this cavitation being the cause of sinus infection. This cavitation thing

is very strange, but from what I understand that along wth the mercury can

mess up the whole body and completely through it off balance. To help with

sinuses, allthough you said you cleared that up, that is wonderful, to keep

it cleared up, or if you ever notice it comming back I found this great thing

called a nasal irragator. It is a nasal tip that is attached to an electric

water pik, and it sprays up in the nasal area in a pulsating motion and

loosens the mucous, breaks it up and helps it flow more productivly, and

hopefully cure the problem. It is about $17.00. It was invented by Dr.

Grossman an

<A HREF= " http://www.pharmacy-solutions.com/sinus-instr.htm " >AT LAST...SINUS

RELIEF!</A> ENT who is in LA area too, coincidently. I wish I could give you

some more helpful information about he bowel cleanse, but I am still learning

about bowlcleanse and have just begun experimenting with the cleanse. Cloves

flaxseed, ect. but am too new at it to notice anything yet. I am sure other

people on this list will give you great information with that. But for now I

know a lot about the cavitation thing, and sinusitis. I will send you some

links about cavitations and the nasal irragator. Good luck here in LA. Did

you go to the 'china town herbalist', and try that tea yet? If not, I will

give you his info too. I have to drive down there to get the correct name.

Good luck, and try not to overwhelm yourself with all the choas involved

with all these approaches. I know how frustrating that can be. Thank god we

have access to information though. Good luck..Julee

<A HREF= " http://www.maxillofacialcenter.com/NICOhome.html " >NICO Home Page</A>

this is about cavitations. an overload of information on it. It explains

in here somewhere about how it effects the sinuses.

[Guest guest]

In a message dated 6/7/99 11:28:58 PM Central Daylight Time, Kato109@...

writes:

<< Hi Edith,

Thanks so much for your reply about the silver pulser. Is it still helping?

Do you have any idea what the difference is between it and the Hulda

one? Does it feel different? Do you use it for the 7 minutes on and 20 off

cycle like the Hulda one? I admit I am very baffled by all this and

definitely want more advice before I buy anything. Do you use the colloidal

silver too? I was interested in the post I think Marcus had saying

that the magnetizer was more effective for teeth. I wonder why?

Anyhow, thanks for the information and I'm glad you are feeling better!

Katarina

>>

Katarina,

Yes, am still using silver pulser evry day. I make a qt of ozonated water

and drink it right down when I start the pulser but I use it for two hrs each

day. I have it on now. I feel so much better than when I first started. I

do have a Hulda zapper but this, in my opinion, is light yrs ahead of

that.

edith

[Guest guest]

Hi Edith. Can you tell me how you make the ozonated water please? I'm

curious if it is adding food grade hydrogen peroxide to water, or if it is

something eles.

Julee

[Guest guest]

In a message dated 6/9/99 12:49:37 AM Central Daylight Time,

DreamsAvA@... writes:

<< From: DreamsAvA@...

Hi Edith. Can you tell me how you make the ozonated water please? I'm

curious if it is adding food grade hydrogen peroxide to water, or if it is

something eles.

Julee >>

Julee,

I have an ozone machine with a ceramic attachment that bubbles ozone into

water.

Don't know about the other. Some one else will have to answer that.

edith

[Guest guest]

> From: Kato109@...

>

> Dear Marcus,

> Thank you for the reference to the patent for the silver

> pulser. I went and read it - but the weird thing is that the

> patent is entirely for a process of electifying blood which

> is removed from the body and then replaced. It doesn't

> mention anything at all about being able to clean blood from

> the outside without removing it. I guess this is because it

> is the original patent which you were referring to, and Dr.

> Beck adapted his work from theirs. Also, as an application it

> doesn't seem to have to prove in any way the truth of its

> claims or the safety of the process.

1) Yes, Dr Beck spent a lot of his OWN money modifying

this technique so that the process could be done in

vivo (in the body), so that it didn't require a M.D.'s

supervision. The reason he did this is because he feels

very strongly about people not being forced to rely on

any monopolistic industry for their health. The Silver

Pulser is the result. He has since discovered its

beneficial effects when combined with drinking

colloidal silver or ozonated water, and so has

incorporated these into a 4-pronged treatment:

1) Blood electrification

2) Magnetic pulsing

3) Colloidal silver, and

4) Ozonated water.

> So now I am more confused than ever!! Has anyone actually

> studied the safety of either of these machines? Ones that

> remove blood to clean it, or ones that attempot to clean it

> through the skin?

Like I said, Dr Becks spent lots of his own money

developing his devices. The ONLY problems people have

had are from herxheimers syndrome (cleansing reactions)

and failing to heed the warnings regarding drugs and/or

medicinal herbs, etc.

> I guess I'm not so worried about studies

> about efficacy because the worst thing with that would be

> that I try it and it doesn't work. But I am definitely

> concerned about any kind of irreversible negative effect.

As long as you heed the warnings, you'll be fine...

> Also, I am wondering about electroporation, and if that means

> that I would have to stop my parasite treatment herbs while I

> am using the pulser?

No offense, Kat, but use your head and answer your own

question. ALL medicinal herbs means just that...ALL of

them. Period. This is how you can get yourself into

trouble. Don't fall into the mentality that a drug is

not a drug just because it is prescribed by a doctor,

or grows naturally in the ground. If it has medicinal

properties, IT CAN BE DANGEROUS when using the pulser.

Colloidal silver is one exception. It actually works

better when taken with the pulser.

To make it easy, just plan on eating NOTHING but fresh,

raw fruits and vegetables while using it.

> I do know that I am electromagnetically

> sensitive. Although I don't understand how it works, when I

> am in stressful situations I stop wristwatches. They will

> work fine on anyone else, but on me they stop running. It's

> happened several times. So could running electricity through

> me have a negative effect? Is there anything else I can read

> about it? I've read Dr. Beck's research paper and it was very

> interesting, but entirely theoretical and didn't talk at all

> about safety or dangers except for electroporation.

It HAS to be 'theoretical', as anything else would land

him in jail. He is a physicist, not an M.D., though he

has worked closely with many M.D.s while developing

these devices.

> Thanks

> for your help. I really appreciate any and all info on the

> subject. Ps. If Dusan sees this, could you respond about the

> safety of the pulser as well?

> Thanks,

> Katarina

Take care, and all my best!

--

Marcus

[Guest guest]

Happy are you any relation to Steve Brockman?

Smiles

& Russ

----------

> From: HapsQuilt@...

> lyme-aidonelist

> Subject: [Lyme-aid] No Subject

> Date: Friday, June 11, 1999 4:52 PM

> Happy

[Guest guest]

Jolee,

This is jab in TX. My computer is down so I am on a friends. Please let me

know what you have been doing and how it is working. I feel great and

recommend you keep up the good work and it is great that you are passing

information on to others.

JA

[Guest guest]

I agree with your every word, Happy, but why do doctors take so darn long to

diagnose you?

" Hey doc, ... I am dying of pain over here! " while you slowly decide what

is wrong with me which some other doctor already found out before ... etc.,

etc., etc. ad nauseum!

Kiana

-----Original Message-----

>From: HapsQuilt@...

>As hard as it is for us to

>understand we have to remember that if our doctors treat with

unsubstantiated

>medical practice they are committing malpractice!!

.......

>Dr.s will not change their

>practice on anecdotal information in this litiginous society. Now don't get

>me wrong......I feel just as WRONGED as everyone else here.....misdiagnosed

>for 5 years after 2 tick bites and a rash......but in our efforts to get

the

>message out we need medically supported research to support our claims.

>Happy

[Guest guest]

Probably vitamins.com with free shipping.

You may want to take advantage of their $25 promotion. But in order to get

it, you must register and spend $25.01 or over. If you don't register, you

will not get the $25 off.

good luck

lea

PS we've not taken advantage of it since when we ordered, we didn't register

and didn't get the $25 off.

<< Can anyone recommend the cheapest place online to buy vitamins.

Specifically

B's, borage oil, fish oil, co-q 10.

thanks,

D- >>

[Guest guest]

In a message dated 12/18/99 2:13:13 PM Eastern Standard Time,

Fchickens@... writes:

<< vitamins. Specifically

B's, borage oil, fish oil, co-q 10. >>

I got my borage oil from the vitamin shoppe...b's fish oil and co-q-10 from

costco Bernadette

[Guest guest]

I get all my vits and Mins from Wal-mart same dose much less $. Pepi

[Lyme-aid] No Subject

> From: Fchickens@...

>

> Can anyone recommend the cheapest place online to buy vitamins.

Specifically

> B's, borage oil, fish oil, co-q 10.

>

> thanks,

> D-

>

> > Send to -Offtopiconelist messages unrelated to lyme, please.

> /archive/lyme-aid

> /archives.cgi/Lyme-Documents

> To unsubscribe, send email to -unsubscribeonelist

> You may substitute " subscribe " , or " digest " or " normal " for

> the word " unsubscribe " ( " normal " is the opposite of " digest " ). Leave

blank both the message and subject header.

>

[Guest guest]

Hi Pepi & All,

LLMD nurse told me to be careful about EPA (fish oil) - can get heavy metal

toxicity if fish is gotten from bad waters. Can supply a couple of names of

good, safe brands if anyone wants to email privately. (No affiliation to

these either.)

Blessings & velcros,

Chris

[Guest guest]

My dad orders stuff from drugstore.com as he

lives in the ines. Apparently, he has

researched this area some and found them

to have good prices and good delivery. I know

I sent him a package with a digital camera he

bought from Wal-Mart, nice at 218.00, and a

blood pressure machine, 3 small bottles of

supplements and 3 large bottles of supplements.

The blood pressure thing and all the supplements

came to just over 70.00 with shipping and handling.

It cost me more to send the package to the ines

via Fedex than the stuff from drugstore.com!

Have you ever tried Source of Life Mini-Tabs vitamin

and mineral supplement? The regular ones are

like horse pills, too big, even my hubby won't

take them. But, he had throat cancer in 1990

and after radiation, when he was totally drained

my ex sister in law recommended these vitamins.

Boy they're great, in a seaweed base, and all

natural sources for the vitamins. We take just

2 mini tabs per day. Before I got so sick, I could

take two and fell a burst of energy throughout

the day, it's just an excellent combination of

vitamins and minerals. In fact, we both learned

not to take after mid day if we wanted to go to sleep

at the normal time each night. I recommend them

to everyone because they are so great. Hope you

will give them a try. My husband is a steelworker

and all those " tough guys " working in such a

dangerous setting would come back to work

after the flu or upper respiratory infections and

they would be just dragging. My husband

started carrying some extra vitamins and would

offer the guys a couple to try to see if it helped

them any. They would take a couple and then

would come back in a couple of hours feeling

pretty good, and ask him for the name of the

vitamins again so they could get themselves

some too. Half his shop is taking this kind of

vitamin/mineral supplement too.

With the Lyme, that I didn't know I had andw

went undiagnosed and untreated most of my

life, I was still able to benefit from this supplement

until my downward spiral Sept 97 that finally

led me to a doctor who referred me to a Lyme

literate doctor and I was diagnosed with late

Lyme April 15, 1998. Now, when i take the

supplement each morning with my hubby,

I can't tell how much they help so easily

unless I stop taking them for a while. Kind

of like the abx while you're on them, they

don't seem to be doing that much, especially

if you herx the whole time as i do, until

you stop taking them to give your body a

rest or they're changed. I do not eat right

and neither does he, we both have Lyme

so we are sure to take the Source of Life

vitamin and mineral supplement as well

as Vitamin E 1,000IU, Vitamin C 1,000IU,

lecithin 21 grain capsules (they help bind the

cholesterol and take it out of your body, help

with elimination due to the oil, and I have a

female friend who cannot take HRT due to

cancer who tells us the lecithin helps her

alot with the symptoms as she had to have

a complete hystorectomy, and we also take

the EPO 1500 Evening Primrose Oil supplement

that I believe Dr. B. recommends in his treatment

guidelines, not the brand or strength but the

evening primrose oil itself. And, because I am

so lactose intolerant, I take Kyo-Dophilus in place

of normal dairy based acidophilus to help replace

the friendly flora that the abx kills along with the

spirochetes. We read in a study found in Sciencs

News, late 70's about a study performed in the

South African Diamond Mines, where they gave

the workers 1,000 IU of Vitamin C daily to see if

it would help with heat prostration. It really did,

so since my hubby works out in the Texas heat

a lot over the years, one Summer after reading about

the study he started taking the extra Vitamin C, and

did find that it helped quite a bit with the heat

prostration, and once again, got his fellow workers

to try it instead of the salt tablet the company

wanted everyone to take, and to this day they

mostly all still take the vitamin C. His dad who

still works in the same industry and is in mid 70's

tried it for the first time this last Summer and he

had been where he could barely put one foot in

front of the other by the time he got home around

2pm. After a week to 10 days on the Vitamin C,

he was amazed at himself! Also, my husbands

mother takes up to 2 x daily 1000 IU as she is

diabetic and even with the diuretic, her legs were

swollen. So, I recommended she try the Vitamin

C, and it started helping her to rid her body of the

excess fluid, which we know is a sign of her heat

not bing in great shape. But it was wonderful that

she could just take 2 Vitamin C caps daily instead

of having to go up on the strength or amount of the

diuretic. After all, at some point it won't help her so

if we postpone her needing more with the Vitamin

C, then she's ahead of the game and a person

cannot build up toxic levels of vitamin C because

the kidneys excrete what your body doesn't need,

it's a good way to keep the pipes open and working!

So, much for all my unasked for advice. I believe

you will never be sorry if you try Source of Live vitamin

and mineral supplement. Also, meant to say that due

to my problem with acidic stuff we buy Twinlab

Allergy-C Caps, as they are buffered and corn free

for people like me and the C comes from sago palm.

All this stuff comes in large sizes, in fact the lecithin

21 grain is only at the health food store because we

buy two bottles every month, or 6 weeks, one for

us and one for our friend. One more thing, since I

take so many medications due to asthma, anxiety

etc along with the abx, it concerns me about my

liver. I was on a pain list where everyone was talking

about Milk Thistle helping with their liver enzymes.

I had my gall bladder removed a year ago this month

as it was diseased and taking Rocephin didn't help.

But because of all that the people wrote who had

Hepatitis, I thought to give it a try. I bought Simply

Milk Thistle (gel caps) from EnzymaticTherapy

(mfgr) and stopped needing the tiny blue pills

I neede before and after gall bladder surgery due

to pain in my right side below my ribs. I thought

it was all due to my gall bladder, but probably

liver and pancreas both getting a work out with

all the meds! I take 2 of the caps 3 x day when

I take the most of my medications and I do not

have anymore pain or discomfort on right side

unless I run out of the supplement. I've had the

catch in my right side since 12 years old, so do

believe I've had Lyme since my family stationed

in Germany and France when I was between

3 - 6 years old. Hope something in this helps

you some. I would not suggest another brand

of the Vitamins, the C, or the Milk Thistle or

lechitin (made by schiff, comes in brown glass

bottle), because all brands are not alike, and

that is one of the problems with health food

stores. The only time I didn't take the Kyo-Dophilus

instead of acidophillus and took some the doctor

recommended (from milk) I got a terrible problem

with diahreea lasting 10 days and they wanted

to put me in the hospital thinking I was reacting

to the abx infusions with a super bug, but it was

just using so much of the acidophilus and for so

long that got me. On the 10th day back on the

Kyo-Dophilus, I finally got over the problem and

as long as I take it, I do fine. So many people

do not realize there are substitutes for the

acidophilus!

Wishing us all health and freedom from pain,

both physical and emotional -

[Guest guest]

Would like to get brand names of safe fish oil. Thanks a lot.

beth

> LLMD nurse told me to be careful about EPA (fish oil) - can get heavy

metal

> toxicity if fish is gotten from bad waters. Can supply a couple of names

of

> good, safe brands if anyone wants to email privately. (No affiliation to

>

[Guest guest]

In a message dated 99-12-19 17:18:21 EST, you write:

<< elsbeth@... >>

Dear Elsbeth,

LLMDs nurse suggested Shaklee (they do NOT sell it, so no apparent interest)

- because this co has bought up all the fishing rights they could get around

Japan where waters are not polluted with heavy metals. This is a world-wide

organization with distributors / salespeople everywhere. Check phone book.

If none close to you, someone can ship to you, I'm sure. Perhaps they even

have a website.

There is another company - I think in NV that LLMDs office recommended too -

have a catalog, but it's out in very cold car. If I forget to send info,

just email me until I remember to send name. It's a mail order thing.

For now, we purchased Carlson's from local healthfood store. Has made a

world of difference - so super good for heart, nerves, brain. (with GLAs -

whatever they are - can't remember (surprise? LOL!) - I do remember reading

they're super for lyme / candida / heart / nerves).

I have purchased their (Shaklee) nutritional products before - many Olympic

athletes use it - & they have an impeccable reputation for quality,

sanitation, easy absorption & purity of products. Super multi-vitamin - I

can feel when it wears off - like someone turning off a light switch.

Blessings & velcros,

Chris

PS - I believe Shaklee has a catalog - perhaps a distributor can send you one?

[Guest guest]

Great letter, I may steal some of it.

Thanks for posting it,

Marta

> From: HapsQuilt@...

>

> In the effort to keep the ball rolling I am posting my letter to the

editors

> and politicians of NY.

> Happy

>

> The New York Times

> 229 West 43rd St

> NewYork, NY 10036

>

> Dear Editor,

>

> I am compelled to write to your publication in an effort to bring to you

and

> your readers attention the abhorrent behavior of the Office of

Professional

> Medical Conduct of N.Y. This organization appears to be on a " witch

> hunt " .....against the doctors of your state that are caring for and

treating

> Lyme Disease patients. Under the guise of numerous frivolous complaints,

> these doctors are being investigated for treating Lyme Disease.

> Lyme Disease is a devastating illness.....or so the advertisements for

> Lymerix Vaccine state. But one of the physicians who developed this

vaccine

> is one of the (mis)leading researchers of this tick borne illness, who

> erroneously recommends short term antibiotic treatment for lyme disease,

and

> states that the resulting effects of the disease are " post lyme syndrome "

or

> depression. Apparently, the OPMC agrees with these assumptions.

> I can personally attest that Lyme Disease is a devastating illness and

that

> short term antibiotic therapy does NOT work for late disseminated disease.

> After 2 tick bites and a rash I was misdiagnosed for 5 years. I now am in

> pain, have severe fatigue, and have severe neurological symptoms. I am now

a

> burden to myself, my family, and to society. After 3 months of antibiotic

> therapy I noticed a slight improvement in my symptoms, and after 7 months

I

> have noticed a most significant improvement. Significant in that I have

gone

> from less than 10% of my normal functioning to about 30% on a good

> day.......unfortunately that is inconsistent.

> Dr. ph Burrascano of N.Y. is one of the most noted physicians leading

the

> way in the investigation of long term antibiotics for lyme disease. He

treats

> thousands of patients, and has many other physicians consulting with him

and

> using his guidelines for the treatment of lyme disease patients all over

this

> country. He has seen first hand that patients relapse when treated

improperly

> or for not long enough with antibiotics. Medicine is an ever evolving

science

> and this debate over research and treatment of lyme disease has no

business

> being held in the OPMC or the newspapers or anywhere else but professional

> medical forums. There is a huge divide amongst those physicians doing the

> research and treating patients and those who are doing narrow, flawed

studies

> and writing guidelines for treatment.

> It is unfair to patients and doctors everywhere to be a victim of this

scam.

> We deserve the proper research and treatment. Long term antibiotic therapy

> for some illnesses is not a new phenomenon.....TB, syphilis (which is a

> spirochetal disease much like lyme disease), and even acne are all treated

> with long term antibiotics.

> I beseech you to expose this tragedy to the public in the hopes that Dr.

> Burrascano and other physicians who know lyme disease will be spared the

> inappropriate investigations and to let physicians practice good medicine

in

> the search for an ultimate cure. I would ask that your politicians demand

an

> independent investigation of the OPMC and it's authority to decide

> appropriate medical treatment in an ever evolving complex illness like

lyme

> disease.

>

> Thank you,