Tasigna and plurel effusion

February 16, 2009

Hello all

It has been a while since I posted. Many things happening, some good

and some not so pleasant. Suffice it to say, life happens and we just

have learned to roll with the flow. My thoughts have been about my

kids, their needs and safety lately and not necessarily CML. Must

say, it was kind of nice not to focus on CML for a while.

I have not posted in a while - and I apologize. I read and think,

pray for some of you and think fondly of you as my friends. Lottie,

it is so good to see you back on line and running foot races around

us all. I have kept up with your posts.

I have a question. I had a check up just two weeks ago. Had the

normal 5 vials of blood drawn, the usual tests and all came back

good. I am still PCRU on 400 mg of tasigna. Side effects are there

but not as bad as gleevec. I am incredibly grateful.

I have had some back pain, not in the bone or spine but in the lower

lobe of what I would call my left lung space. It felt much like a

pulled muscle - and if I would roll on it a certain way, or bend a

certain way, the pain was excruciating. The oncologist thought

maybe plurel effusion. I thought symptoms of that would occur in the

front of my chest and not in my back. They took chest XRays and they

showed nothing - but of course, it cleared up about a week before the

X-Ray. My question to the group: has anyone had it? What did it

feel like?

Any thoughts, wisdom or advice from anyone would be appreciated.

I will try to keep in touch better.

Love

Barb

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