Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 When I started Gleevec almost 5 years ago I went weekly. Till I stabilized. How long have you been on Gleevec? Sharon _____ From: [mailto: ] On Behalf Of longing4sunnsand Sent: Tuesday, March 03, 2009 3:02 PM Subject: [ ] Blood test protocol I'm curious as to how often Gleevec users had blood tests when they first started the treatment. When I started Gleevec, my Onc wants me to go back in one month for more blood tests. Is that the norm? It seems I've been reading weekly checks are the norm at first. Robin Dx: 2/12/2009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2009 Report Share Posted March 3, 2009 I've been on it 11 days. Robin > > When I started Gleevec almost 5 years ago I went weekly. Till I stabilized. > > > > How long have you been on Gleevec? > > Sharon > > > > _____ > > From: [mailto: ] On Behalf Of > longing4sunnsand > Sent: Tuesday, March 03, 2009 3:02 PM > > Subject: [ ] Blood test protocol > > > > I'm curious as to how often Gleevec users had blood tests when they first > started the treatment. When I started Gleevec, my Onc wants me to go back in > one month for more blood tests. Is that the norm? It seems I've been reading > weekly checks are the norm at first. > > Robin > Dx: 2/12/2009 > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Hi Robin, I had weekly tests for about 1 month and (asked twice to go to the ER in between). It may depend on your initial blood counts, I had 250k WBC. If you are close to the normal range (5k to 10k) the dr may be less concerned. The NCI guidelines say weekly tests until blood remission. Marcos. On Tue, Mar 3, 2009 at 3:53 PM, longing4sunnsand <rjkjak76@...> wrote: > I've been on it 11 days. > Robin > > >> >> When I started Gleevec almost 5 years ago I went weekly. Till I >> stabilized. >> >> >> >> How long have you been on Gleevec? >> >> Sharon >> >> >> >> _____ >> >> From: [mailto: ] On Behalf Of >> longing4sunnsand >> Sent: Tuesday, March 03, 2009 3:02 PM >> >> Subject: [ ] Blood test protocol >> >> >> >> I'm curious as to how often Gleevec users had blood tests when they first >> started the treatment. When I started Gleevec, my Onc wants me to go back >> in >> one month for more blood tests. Is that the norm? It seems I've been >> reading >> weekly checks are the norm at first. >> >> Robin >> Dx: 2/12/2009 >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 My white count was 141,000 so maybe that's why. Robin > >> > >> When I started Gleevec almost 5 years ago I went weekly. Till I > >> stabilized. > >> > >> > >> > >> How long have you been on Gleevec? > >> > >> Sharon > >> > >> > >> > >> _____ > >> > >> From: [mailto: ] On Behalf Of > >> longing4sunnsand > >> Sent: Tuesday, March 03, 2009 3:02 PM > >> > >> Subject: [ ] Blood test protocol > >> > >> > >> > >> I'm curious as to how often Gleevec users had blood tests when they first > >> started the treatment. When I started Gleevec, my Onc wants me to go back > >> in > >> one month for more blood tests. Is that the norm? It seems I've been > >> reading > >> weekly checks are the norm at first. > >> > >> Robin > >> Dx: 2/12/2009 > >> > >> > >> > >> > >> > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 I can't find the treatment guideline I was referring to, but below is a link to the current European one. They are now recommending blood test every two weeks until complete blood remission. It used to be every week but I guess with most patients doing well they relaxed it a bit. http://tinyurl.com/b7kqoa Marcos On Tue, Mar 3, 2009 at 4:42 PM, longing4sunnsand <rjkjak76@...> wrote: > My white count was 141,000 so maybe that's why. > Robin > > >> >> >> >> When I started Gleevec almost 5 years ago I went weekly. Till I >> >> stabilized. >> >> >> >> >> >> >> >> How long have you been on Gleevec? >> >> >> >> Sharon >> >> >> >> >> >> >> >> _____ >> >> >> >> From: [mailto: ] On Behalf Of >> >> longing4sunnsand >> >> Sent: Tuesday, March 03, 2009 3:02 PM >> >> >> >> Subject: [ ] Blood test protocol >> >> >> >> >> >> >> >> I'm curious as to how often Gleevec users had blood tests when they >> >> first >> >> started the treatment. When I started Gleevec, my Onc wants me to go >> >> back >> >> in >> >> one month for more blood tests. Is that the norm? It seems I've been >> >> reading >> >> weekly checks are the norm at first. >> >> >> >> Robin >> >> Dx: 2/12/2009 >> >> >> >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 I went in once a week at the beginning. It seems to me that went on for at least a couple months. From: rjkjak76@... Date: Tue, 3 Mar 2009 23:02:09 +0000 Subject: [ ] Blood test protocol I'm curious as to how often Gleevec users had blood tests when they first started the treatment. When I started Gleevec, my Onc wants me to go back in one month for more blood tests. Is that the norm? It seems I've been reading weekly checks are the norm at first. Robin Dx: 2/12/2009 _________________________________________________________________ Windows Live™ Contacts: Organize your contact list. http://windowslive.com/connect/post/marcusatmicrosoft.spaces.live.com-Blog-cns!5\ 03D1D86EBB2B53C!2285.entry?ocid=TXT_TAGLM_WL_UGC_Contacts_032009 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 I went weekly for about two months, then every 2 weeks for several more months, then every 3 weeks for a few months. I only got to monthly tests around 9 months. I think when a person is brand newly diagnosed it's important to monitor the blood counts closely because you don't know how they will react to the drug. We've had members develop liver toxicity and didn't even know it because it was so long between blood tests. Others developed neutropenia (their blood counts went too low) and needed to take a break from the drug until their counts bounced back up. These problems can only be found if someone is being monitored closely. Tracey dx Jan 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 When someone is in remission, do they still take the Gleevec? Robin > >> >> > >> >> When I started Gleevec almost 5 years ago I went weekly. Till I > >> >> stabilized. > >> >> > >> >> > >> >> > >> >> How long have you been on Gleevec? > >> >> > >> >> Sharon > >> >> > >> >> > >> >> > >> >> _____ > >> >> > >> >> From: [mailto: ] On Behalf Of > >> >> longing4sunnsand > >> >> Sent: Tuesday, March 03, 2009 3:02 PM > >> >> > >> >> Subject: [ ] Blood test protocol > >> >> > >> >> > >> >> > >> >> I'm curious as to how often Gleevec users had blood tests when they > >> >> first > >> >> started the treatment. When I started Gleevec, my Onc wants me to go > >> >> back > >> >> in > >> >> one month for more blood tests. Is that the norm? It seems I've been > >> >> reading > >> >> weekly checks are the norm at first. > >> >> > >> >> Robin > >> >> Dx: 2/12/2009 > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2009 Report Share Posted March 4, 2009 Absolutely!!! Unfortunately you never go off your medication. Until they find a cure. Aloha Sharon _____ From: [mailto: ] On Behalf Of longing4sunnsand Sent: Wednesday, March 04, 2009 3:22 PM Subject: Re: [ ] Blood test protocol When someone is in remission, do they still take the Gleevec? Robin > >> >> > >> >> When I started Gleevec almost 5 years ago I went weekly. Till I > >> >> stabilized. > >> >> > >> >> > >> >> > >> >> How long have you been on Gleevec? > >> >> > >> >> Sharon > >> >> > >> >> > >> >> > >> >> _____ > >> >> > >> >> From: groups (DOT) <mailto:%40> com [mailto:groups (DOT) <mailto:%40> com] On Behalf Of > >> >> longing4sunnsand > >> >> Sent: Tuesday, March 03, 2009 3:02 PM > >> >> groups (DOT) <mailto:%40> com > >> >> Subject: [ ] Blood test protocol > >> >> > >> >> > >> >> > >> >> I'm curious as to how often Gleevec users had blood tests when they > >> >> first > >> >> started the treatment. When I started Gleevec, my Onc wants me to go > >> >> back > >> >> in > >> >> one month for more blood tests. Is that the norm? It seems I've been > >> >> reading > >> >> weekly checks are the norm at first. > >> >> > >> >> Robin > >> >> Dx: 2/12/2009 > >> >> > >> >> > >> >> > >> >> > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
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