All different

[Guest guest]

Dear Dory,

We all have different issues to deal with and as you explained to us how you

came to know what your strengths and weaknesses are, it's because you were

interested enough in finding out what in truth was best for you. That's

certainly to be applauded, because sometimes we don't get the support we need

from people in healthcare.

Sometimes I think I can go too far with my advice. I went to see about my

sister yesterday and there was a gallon of distilled water on the cabinet.

Right away I told her she shouldn't be drinking distilled water as it was too

acidic and she babbled something, so I found some bottled water for her to

drink. When her daughter came in, I again prattled off something about the

gallon of distilled water. She said, " But Aunt Lottie, it's for her asthma

nebulizer. " I went back to see about her today and there was no one there, all

the lights were on and her breakfast was still on the table, so I knew that was

not a good sign. I went to the front desk and inquired about her and they said

she had gone to the hospital. I called the hospital and they are keeping her

overnight and doing more testing. I thought she should have been there last

night, but I think I had done enough with the distilled water and kept my mouth

shut. Nothing I say to them about their mother's healthcare amounts to a hill of

beans.

I take grape seed extract, but I am not sure I should be taking it with the

trial I am in. Some things are contraindicated. Most of the TKI's have the

same warnings about what to avoid, but I have not seen that, so far. I have

never heard of anyone relapsing so quickly on TKI's, but I suppose it is

possible. I know when I stopped taking Hydrea for the washout period before

taking Inteferon, my WBC escalated so much so quickly, they put me back on a

double dose of Hydrea and I broke out in brown spots, and looked like I had

reverse vitaligo. It's a known fact that Hydrea only controls the WBC and does

nothing for the Ph chromosomes, so I can understand the quick escalation, but

Gleevec actually kills the PH +. Fortunately for you this relapse was only

temporary. Anyway, I am glad you found the article interesting and maybe some

one else saw a light bulb go off. I think we all have digestive issues some or

all of the time. I know I talk to my doctors about articles I read and even

bring them a copy. I think they leave a lot to be desired if they don't listen

to what their patients have to say. Sometimes it's time constraints. One

specialist I see has the number of minutes alloted to a visit on my appointment

slip.

Stay well and keep warm in the midwest, DST is starting this weekend, so spring

is near,

Blessings,

Lottie