Re: Replacing blood

[Guest guest]

Thanks Lottie for the explanation.  About wheel chairs, if I don't have one of

my kids with me, or Len's husband Ernie, I take a wheel chair and put all my

junk in it and push it, using it as a walker. I have a walker in my car I use

for rest areas on the turnpike, but it is an effort to haul it out of the car. 

My kids gave me a portable wheel chair for Xmas, it's so nice, pretty plaid, but

needs someone to push it, and they did not give me a chauffeur!!!  At MDACC you

could wait hours for transportation to come and get you if you were in a wheel

chair, at the U of Mich. it is not like that.  There is always someone to push

you, if not, the nurses take you where you want to go, real nice.

When I had to live in Houston for 3 months for the BMS trial, I  bought a second

hand wheel chair and took it with me.  After 3 months, when i could come home, I

was waiting outside the airport to be picked up, and was so excited when they

got there, and so excited to be with family again, I just got in the car and

never gave the wheel chair a thought.  About 3 days later I realized we left it

there!!  I have more funny wheel chairs in my travels, with my daughter, we

laugh about them all the time.  She has dumped me out at least 3 times, once in

Las Vegas when she thought the curb was a handy capped curb and it wasn't !! LOL

Bobby

a (Bobby) Doyle Brecksville, Ohio, USA DX 05/1995 02/2000 - Gleevec

Trial/OHSU 06/2002 - Gleevec/Trisenox Trial/OHSU 06/2003 - Gleevec/Zarnestra

Trial/OHSU 04/2004 - Sprycel Trial/MDACC, CCR in 10 months #840  -   Zavie's

Zero Club 09/2006 -  out of CCR 04/29/08 - XL228 Trial/ U.of Michigan

06/02/08 - CCR ( in 4 weeks)

02/13/09 - XL trial ended due to side effects

 

From: Lottie Duthu <lotajam@...>

Subject: [ ] Replacing blood

" CML " < >

Date: Wednesday, February 18, 2009, 4:16 PM

Dear Bobby,

Because there is a blood shortage, it's hospital policy that you replace the

blood after 2 transfusions. So far I haven't had a problem finding donors.

They open up a blood account in your name and when they go in to give blood,

they request that it go in your account. When they have enough, they call and

tell me I have enough for the rest of the year. Isn't it the pits what you have

to go through just to get in the infustion unit. The walking is what gets to

me. Now they want to put the oncologists in the hospital. I like it the way it

is now, it's adjacent to the hospital, but the parking garage is nearer and I

don't have to walk as far. Still trying to stay independent. They used to

have wheel chairs around the buildings, but they seem to have disappeared except

for the front of the hospital where the volunteers hang around. I could always

call for one, but then you have to sit and wait and I like to get up and go when

I am ready.

Blessings,

Lottie

[Guest guest]

When I was having my transfusions in Dec. 2007 I called my sons who

have been regular blood donors since high school to give in my name.

Our town had an agreement that as long as it supplied a given # of

pints there would be no charge for blood. That also had been

recended before 2007. They had done this when I had bypass surgery

in 1991 so we did know how it worked. They were told that here in

the US that they no longer provide the service of donating in a

persons name. I guess it became the tracking became more expense

than the value it orginally had. Now whenever I need transfusions I

tell everyone that I would appreciate anyone donating blood as it is

always needed. Medicare does pay for the transfusions and there is

no cost for the blood listed on the medicare billing. (I am on Part D

so my insurance company shows me an itemized billing.)

H.

dxd 2/03

400mg Gleevec 3/03

PCRU 11/03

Q-PCR undetectable 11/06

RT-PCR .000 11/07

Gleevec Vacation 11/07 - 1/08

Transfusions 11/07 - 5/08

RT-PCR .017 1/08

Gleevec 1/08 - 6/08

RT-PCR .000 9/08

Transfusion 6/08

Procrit 6/08 - 11/08

Gleevec Vacation 6/08 - Presend

RT-PCR .000 12/08

RT-PCR 2/08 Pending for 1 more week

Anniverasy 1 more week

In , " Lottie Duthu " <lotajam@...> wrote:

>

> Dear Bobby,

> Because there is a blood shortage, it's hospital policy that

you replace the blood after 2 transfusions. So far I haven't had a

problem finding donors. They open up a blood account in your name

and when they go in to give blood, they request that it go in your

account. When they have enough, they call and tell me I have enough

for the rest of the year. Isn't it the pits what you have to go

through just to get in the infustion unit. The walking is what gets

to me. Now they want to put the oncologists in the hospital. I like

it the way it is now, it's adjacent to the hospital, but the parking

garage is nearer and I don't have to walk as far. Still trying to

stay independent. They used to have wheel chairs around the

buildings, but they seem to have disappeared except for the front of

the hospital where the volunteers hang around. I could always call

for one, but then you have to sit and wait and I like to get up and

go when I am ready.

> Blessings,

> Lottie

>

>