Guest guest Posted December 26, 2004 Report Share Posted December 26, 2004 Hi , It's nice to hear from you, and it's great to hear that and his noggin are doing well! Congratulations on your new baby. I also have a new baby, born just a month before your daughter. Just like you, I'm a bit paranoid about my son's head. Since we repo'd our daughter Remy's head to treat her plagio, I already have a few repo moves under my belt. I never realized until I had my son how much we put our daughter in the bouncie and swing, and even the same arm all the time for bottle feeding - all of it contributed to her head flattening! We're doing things differently this time, and so Gunner's head is staying nice and round so far. Stay in touch, Christie (Mom to Repo'd Remy) > > I just wanted to say hello to everyone here! I'm not sure if anyone > remembers me, or , now 16 months and a nice little head! We > unexpectedly got pregnant last year and gave birth to a healthy baby > girl on November 10th! I am so paranoid that she will need a helmet > too that I am much more conscientious of how she lays, where she > lays, etc. Anyways, Merry Christmas and Happy New Year! > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Hi . Sure I remember you and ! Great to hear from you. Congratulations on your baby girl!!!!! With all of your plagio knowledge now, I am sure your little girl will be fine. Keep us posted!! , mom to Makenna LLUMC helmet grad '03 > > I just wanted to say hello to everyone here! I'm not sure if anyone > remembers me, or , now 16 months and a nice little head! We > unexpectedly got pregnant last year and gave birth to a healthy baby > girl on November 10th! I am so paranoid that she will need a helmet > too that I am much more conscientious of how she lays, where she > lays, etc. Anyways, Merry Christmas and Happy New Year! > > - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Judi, Was wondering what was going on with you. Thank you for updating us. I hope that will get a good job in Gainesville, and maybe her luck will change for the better. I hope you soon feel better. Hang in there. Sue On Friday, March 3, 2006, at 04:53 PM, nonny46 wrote: > It seems like so long since I have posted here. I hardly ever even > get a chance to read the posts or check my email! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2006 Report Share Posted March 3, 2006 Judi, what part of the country do you,reside in, I'm from Florida near Orlando and what about you Sue,From Kathy Sue <marysue@...> wrote: Judi, Was wondering what was going on with you. Thank you for updating us. I hope that will get a good job in Gainesville, and maybe her luck will change for the better. I hope you soon feel better. Hang in there. Sue On Friday, March 3, 2006, at 04:53 PM, nonny46 wrote: > It seems like so long since I have posted here. I hardly ever even > get a chance to read the posts or check my email! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Kathy, I live in the middle of the state of North Carolina. I've been to Florida only once, and stayed at Ormond Beach and went from there to St. Augustine, Orlando, and the space center. I loved all of it. Sue On Saturday, March 4, 2006, at 12:07 AM, Kat Murt wrote: > Judi, what part of the country do you,reside in, I'm from Florida near > Orlando and what about you Sue,From Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2006 Report Share Posted March 4, 2006 Hi Judi. It's no wonder you don't have time for email. Taking care of almost 3 year old triplets is a full time job. I wish a lot of luck with her move. I hope she has someone to help her when she gets there. I can't imagine moving so far away from family with 4 young children and no one to help. It was pretty scary when we moved to Florida, but it turned out the be the best thing we ever did. I hope has the same great luck. Sorry about your leg injury. I hope it doesn't cause any damage. You have enough on your plate! I've been offline most of the last 2 months since I had a house full of family visiting. It was fun but exhausting. Take care of yourself! I can't believe the triplets will be 3 already. It doesn't seem that long ago when they were born. Time marches to fast. a On Mar 3, 2006, at 4:53 PM, nonny46 wrote: > It seems like so long since I have posted here. I hardly ever even > get a chance to read the posts or check my email! Our daughter had > lined up a babysitter for her kids (triplets will be 3 on Sunday, TJ > is 5 going on 16) but the sitter was not dependable and not good to > the kids. So we have been doing child care 12 hours a day, 5 days a > week. The only difference between 2-year old attitude and 3-year old > attitude is vocabulary! > > Meanwhile, amid bouts of stomach flu and colds that the kids passed > along to their Nonny, the stress of the job sent me into a major > flare of my Dercum's Disease, and on top of everything else, when I > was trying out a new elliptical trainer at the health center, a pedal > broke off due to improper installation, and I injured my leg. > > so we have dipped into our savings, and are paying for the little > ones to go to a quality daycare center near our home so that Ron and > I can recover and get some strength back. Meanwhile, daughter > has decided to move to Gainesville Georgia and start a new life for > her and her kids. She has job interviews in 2 weeks, and hopes to > make a move by the 1st of April. While I hate to have her and the > kids so far away, I think it is a good move for her--she wants to put > as much distance between her and her exes as possible and start again > in an area that has more promise. Our little town is a dying town, > and we may join her...after we see how things go for her there. > > Well, this has turned into a novel, but I do think of all of you > often and hope you are getting a break from these lousy diseases. To > the new people, don't lose hope or give up--there is always a reason > to take just one more step, even if it's in a motorized chair (my > next step if the 2 new meds I started last week don't help.) > > Peace and grace, > Judi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 Prayers for you and your family, Judi! I enjoy reading your novels and await the very happy one to follow. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hi everyone! > It seems like so long since I have posted here. I hardly ever even > get a chance to read the posts or check my email! Our daughter had > lined up a babysitter for her kids (triplets will be 3 on Sunday, TJ > is 5 going on 16) but the sitter was not dependable and not good to > the kids. So we have been doing child care 12 hours a day, 5 days a > week. The only difference between 2-year old attitude and 3-year old > attitude is vocabulary! > > Meanwhile, amid bouts of stomach flu and colds that the kids passed > along to their Nonny, the stress of the job sent me into a major > flare of my Dercum's Disease, and on top of everything else, when I > was trying out a new elliptical trainer at the health center, a pedal > broke off due to improper installation, and I injured my leg. > > so we have dipped into our savings, and are paying for the little > ones to go to a quality daycare center near our home so that Ron and > I can recover and get some strength back. Meanwhile, daughter > has decided to move to Gainesville Georgia and start a new life for > her and her kids. She has job interviews in 2 weeks, and hopes to > make a move by the 1st of April. While I hate to have her and the > kids so far away, I think it is a good move for her--she wants to put > as much distance between her and her exes as possible and start again > in an area that has more promise. Our little town is a dying town, > and we may join her...after we see how things go for her there. > > Well, this has turned into a novel, but I do think of all of you > often and hope you are getting a break from these lousy diseases. To > the new people, don't lose hope or give up--there is always a reason > to take just one more step, even if it's in a motorized chair (my > next step if the 2 new meds I started last week don't help.) > > Peace and grace, > Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 sounds like you are doing great - thanks for the encouragement. Many of us need to hear that in time the pain will be just a memory and not a day to day event. Go glad to hear about your dance lessons - if I lived near you, I'd be in one of your classes. Cherie > > I haven't been able to keep up with the goings on here on the group, > but you are all in my thoughts daily! > > I am continuing to heal wonderfully! I am up to teaching 5-6 times a > week now and am in the process of purchasing my own dance studio. > Wow, I've come a LONG way!! The best part of it all is that in every > one of my classes I have had women with implants. Not all of them > are ill or interested in my story, and I don't push it. But I am > making everyone aware of my story and those that want to come to me > asking for more info and help are welcome to. I honestly can't > believe how many women have them! When I got mine in '94 it was > mostly models/strippers and cancer victims, or at least that's how > it seemed back then. I have been shocked by most of the women who > have approached me to tell me they are implanted. I wouldn't have > known just by looking at them. > > In a few short weeks it will be one year ago that I found this group > thanks to Kacey's story on CNN. Looking back on myself a year ago I > can't believe that I was even alive. My body was in constant agony. > Now when someone asks me to list my symptoms, I can't even remember > them all! I've even noticed that I am not losing anywhere near as > much hair when I shower... I hadn't even thought that I suffered > from hair loss until it stopped happening. I smile a lot more now, I > laugh so much, I enjoy being around other people again, and I have a > huge new circle of friends. Last year I was a lonely, sickly, > victim. I still spend most of my time at home, and I rest a lot. But > I think that is also why I am doing so well. I am not overdoing it > and I still pay close attention to what my body is telling me. > > I hope everyone is well. For those of you looking forward to > explanting... it is the most difficult time to go through, but there > is a bright and shining light on the other side of that long tunnel. > > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi , I'm so glad to hear from you, and happy that you're spending so much time dancing, and that you're buying your own studio!! This certainly gives me hope, and I'm sure gives hope to those who haven't explanted yet, too. I remember when I first started posting, you had explanted a couple of months earlier, I think, and were going through some tough times. It's such a pleasure to hear that life is good again for you, and I'm sure you appreciate it more than ever. Thanks for keeping us posted, you've been missed! Sis > > I haven't been able to keep up with the goings on here on the group, > but you are all in my thoughts daily! > > I am continuing to heal wonderfully! I am up to teaching 5-6 times a > week now and am in the process of purchasing my own dance studio. > Wow, I've come a LONG way!! The best part of it all is that in every > one of my classes I have had women with implants. Not all of them > are ill or interested in my story, and I don't push it. But I am > making everyone aware of my story and those that want to come to me > asking for more info and help are welcome to. I honestly can't > believe how many women have them! When I got mine in '94 it was > mostly models/strippers and cancer victims, or at least that's how > it seemed back then. I have been shocked by most of the women who > have approached me to tell me they are implanted. I wouldn't have > known just by looking at them. > > In a few short weeks it will be one year ago that I found this group > thanks to Kacey's story on CNN. Looking back on myself a year ago I > can't believe that I was even alive. My body was in constant agony. > Now when someone asks me to list my symptoms, I can't even remember > them all! I've even noticed that I am not losing anywhere near as > much hair when I shower... I hadn't even thought that I suffered > from hair loss until it stopped happening. I smile a lot more now, I > laugh so much, I enjoy being around other people again, and I have a > huge new circle of friends. Last year I was a lonely, sickly, > victim. I still spend most of my time at home, and I rest a lot. But > I think that is also why I am doing so well. I am not overdoing it > and I still pay close attention to what my body is telling me. > > I hope everyone is well. For those of you looking forward to > explanting... it is the most difficult time to go through, but there > is a bright and shining light on the other side of that long tunnel. > > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 , That is great news about your plans to own your own dance studio. I sure wish I could go to your class! I think it would be alot of fun! You have come a long way, and I am so excited for you. I am so glad that you are sharing your hope of a brighter future with so many women here who need to hear that. We do miss you when you aren't posting! But we know that it only means that life is keeping you on your toes! Hugs, Patty > I haven't been able to keep up with the goings on here on the group, > but you are all in my thoughts daily! > > I am continuing to heal wonderfully! I am up to teaching 5-6 times a > week now and am in the process of purchasing my own dance studio. > Wow, I've come a LONG way!! The best part of it all is that in every > one of my classes I have had women with implants. Not all of them > are ill or interested in my story, and I don't push it. But I am > making everyone aware of my story and those that want to come to me > asking for more info and help are welcome to. I honestly can't > believe how many women have them! When I got mine in '94 it was > mostly models/strippers and cancer victims, or at least that's how > it seemed back then. I have been shocked by most of the women who > have approached me to tell me they are implanted. I wouldn't have > known just by looking at them. > > In a few short weeks it will be one year ago that I found this group > thanks to Kacey's story on CNN. Looking back on myself a year ago I > can't believe that I was even alive. My body was in constant agony. > Now when someone asks me to list my symptoms, I can't even remember > them all! I've even noticed that I am not losing anywhere near as > much hair when I shower... I hadn't even thought that I suffered > from hair loss until it stopped happening. I smile a lot more now, I > laugh so much, I enjoy being around other people again, and I have a > huge new circle of friends. Last year I was a lonely, sickly, > victim. I still spend most of my time at home, and I rest a lot. But > I think that is also why I am doing so well. I am not overdoing it > and I still pay close attention to what my body is telling me. > > I hope everyone is well. For those of you looking forward to > explanting... it is the most difficult time to go through, but there > is a bright and shining light on the other side of that long tunnel. > > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 , I'm thrilled for you! . . . I remember how scared and sick you were last year. I KNOW you've come a long way! Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Good to hear from you again! It has been awhile. It sure sounds like you are so much happier than you were and that is a true blessing! Keep getting the word out and I know you will continue to feel better and better as time goes by. Hugs, Kathy > > I haven't been able to keep up with the goings on here on the group, > but you are all in my thoughts daily! > > I am continuing to heal wonderfully! I am up to teaching 5-6 times a > week now and am in the process of purchasing my own dance studio. > Wow, I've come a LONG way!! The best part of it all is that in every > one of my classes I have had women with implants. Not all of them > are ill or interested in my story, and I don't push it. But I am > making everyone aware of my story and those that want to come to me > asking for more info and help are welcome to. I honestly can't > believe how many women have them! When I got mine in '94 it was > mostly models/strippers and cancer victims, or at least that's how > it seemed back then. I have been shocked by most of the women who > have approached me to tell me they are implanted. I wouldn't have > known just by looking at them. > > In a few short weeks it will be one year ago that I found this group > thanks to Kacey's story on CNN. Looking back on myself a year ago I > can't believe that I was even alive. My body was in constant agony. > Now when someone asks me to list my symptoms, I can't even remember > them all! I've even noticed that I am not losing anywhere near as > much hair when I shower... I hadn't even thought that I suffered > from hair loss until it stopped happening. I smile a lot more now, I > laugh so much, I enjoy being around other people again, and I have a > huge new circle of friends. Last year I was a lonely, sickly, > victim. I still spend most of my time at home, and I rest a lot. But > I think that is also why I am doing so well. I am not overdoing it > and I still pay close attention to what my body is telling me. > > I hope everyone is well. For those of you looking forward to > explanting... it is the most difficult time to go through, but there > is a bright and shining light on the other side of that long tunnel. > > Love, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2008 Report Share Posted June 14, 2008 Welcome, . What is your condition? I would strongly consider finding a doctor who will prescribe bio-equivalent hormones rather than synthetics like Premarin. My wife used to work for Upjohn back when they developed Premarin. It was developed on a horse farm outside Kalamazoo, MI. It is a contraction of "pregnant mare urine"! Many of the studies that suggest hormone replacement therapy is not all it's cracked up to be were based on the use of synthetics. One of the most important principles in taking care of your health, and which applies doubly for the chronically ill, is to put things into your body that are as natural and gentle as possible. By and large what Big Pharma promotes is what makes them money first, and what makes you well is a distant secondary consideration. Hormones are a case in point. You can't patent a hormone since they exist in nature. To market some molecule for HRT they have to change it, often for no other purpose than that to make it patentable. Premarin has a fairly bad reputation, side effects wise -- Google around about it and you'll see. Don't be too angry with your doctor, he is courted every day by pretty sales reps with free samples. It wears them down. But, a little skepticism is in order. Best, --Bob jaygirljones wrote: My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hm. My daughter had something like this several years ago and I believe she found some sort of resolution via a specialist clinic in Ann Arbor, MI. If you want I can ping her about any experience she might have to share. In the meantime an integrative health approach is a good start. The question is, is the locus of infection where it seems to be or is that just a weak spot in your constitution that is manifesting something more pervasive? I'd look at perhaps some long term antibiotics and antifungals as well as try to get a handle on the state of your gut flora. In my unprofessional opinion. But see what your new doc says. This business of bacterial and yeast infections simultaneously can be rather tricky ... treating for one can encourage the other. And there can be an issue with parasites on top of it all. As an extreme case, my late wife, who eventually succumbed effectively to general immune system collapse, was treated at one point with Allinia (sp? going from memory) to treat a giardia infestation and ended up shitting worms -- she had a previously undetected tapeworm infection and that drug was coincidentally a secondary treatment for tapeworm. So the advice I always leave people with is, treat aggressively while you can still tolerate it. Don't take half measures sufficient only to, so to speak, piss off whatever you're infected with and teach it how to deal with adversity. Take the little sucker's heads right off ;-) Many doctors are afraid to use the tools at their disposal (understandably, but you need what you need). I myself risked a long-term antibiotic treatment (6 mos) that was totally successful in eliminating a lifelong problem with (what was diagnosed as) rheumatoid arthritis. And it's still holding three years later. Was it RA? Was it chronic Lyme? Something else? Who cares, it's GONE. I think we have more problems with intracellular bacteria and other hardy organisms than we realize. Sometimes you have to bathe your tissues to really kill them off because they don't all live in your blood. This is something mainstream doctors usually don't have much of a grip on. Unlike many on this list you aren't (yet) burdened with CFS or FM or MCS or some other horrible catch-22. You should be able to get well with the right treatment, or even a sort-of-right treatment. That's the good news. You have margin for error -- take advantage of it. Best, --Bob jaygirljones@... wrote: Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Hi , your symptoms are classic . Your problems stem from inappropriate gut flora . I am a recovered yeast and Lyme victim who used to contribute quite a bit to this and other groups...I give you my web site ..it explains the reason behind reoccurring vaginal infections and why using topical drugs on skin conditions just hide symptoms for a while ..I would urge you to drink raw goats milk together with supplementing with Brewers yeast large amounts of Vit C and minerals ...Your altered gut flora affects the synthesizing of vitamins the shortage of which leads to oxidative stress, supplementing is essential .. as is contro;ong inflammation ...anyway read the site get back to me if you need more info ..Cheers .. http://www.yeast-candida-infections-uk.co.uk/ Check out PMID: 18344620 Re: [infections] Hi everyone! Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! No virus found in this incoming message.Checked by AVG. Version: 8.0.100 / Virus Database: 270.3.0/1503 - Release Date: 14/06/2008 18:02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Hi , I haven't contributed much to this group to this point, but enjoy reading what everyone has to say. My husband is recovering from osteomyelitis of the spine. The infection is gone at this point, but there is still a lot of pain and inflamation. Anyway, we were actually given a bottle of Mona Vie a couple months ago by some friends of ours and it has done wonders for my husband as far as helping with inflamation and pain in his back....his blood pressure is also back to normal and no longer takes medication to control it as well. Feel free to check out http://www.monavie.com to get more info on the juice. It's very interesting and has the science behind it to support using this as an herbal treatment. It's primary ingredient is the acai berry from Brazil, which is loaded with antioxidants and anti-inflamatory properties. Anyway, it's amazing stuff and you just made me think about it when you metioned looking some type of anti-inflammatory miracle herb/suppliment Check out the website or email me if you have any other questions or want to try it....I can sure send a bottle to you. Take care, Suzi “As long as you’re going to be thinking anyway, think big.” -- Trump Re: [infections] Hi everyone! Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Oh wow! Yes, if your daughter has any information that could be helpful, it would be greatly appreciated. I'd even be willing to go to the same specialist if need be...lol. Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Thank you Suzi! For sending that info my way! I clicked on the website, but didn't see where I could order any. Think I'll get on Google and see where and how I could buy some! And maybe the new doctor I'll see this Friday, who practices natural healing, will have heard of this stuff as well.... My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Thank you for sending some info my way! Your message has given me hope that I can get this thing under control and get my life back!!! My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! No virus found in this incoming message.Checked by AVG. Version: 8.0.100 / Virus Database: 270.3.0/1503 - Release Date: 14/06/2008 18:02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2008 Report Share Posted June 16, 2008 Suzi, You HAVE enjoyed this group, REALLY? I am so touched somebody cares! I think I am so touched I'm going to buy HEAPS of whatever it is you are selling Thanks you SO MUCH for CARING about US all Nelly Re: [infections] Hi everyone! Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2008 Report Share Posted June 20, 2008 Nelly, Hi! Yes, I really enjoy this group Both my husband and I love connecting with people. We live in Sacramento, CA and it was so hard to find anyone we could talk to about recovering from an infection or from chronic inflamation and not many people get osteomyelitis of the spine so they are hard to find too! So we are glad to have found this group. Anyone is sure welcome to check out our website http://www.mymonavie.com/suzicope/ although it was in the last email I posted also. Don't want this to turn into an "advertisement," but we just enjoy sharing it with others. The company takes care of us and gives back as well. Hope everyone has a happy Friday! Take care, Suzi Re: [infectionAndInflam mation2] Hi everyone! Hey Bob! Thanks for the information. I was diagnosed with chronic inflammation last year, but had been having chronic yeast and bacterial infections for about 10 yrs or so. This past Feb., symptoms worsened and my doctor thinks I have Lychen's disease or excema, but none of the topical creams have worked and she didn't find it in the biopsy. She never even mentioned to me that some people unexplained vulvodynia and I feel I've been misdiagnosed. Because the pain really only exists around the vulva area -- nowhere else. Last week, I had an appt at an Integrative Health place and am hoping she can help me naturally. I believe she can. Maybe there's some type of anti-inflammatory miracle herb or supplement or something. Thank you, My name is and I'm new to the group! I'm actually new to a group like this period! It's nice to know that I'm not alone, as I wasn't even aware that health problems like this existed until a few months ago. I had chronic problems for about 10 yrs, but it's obviously progressed and now my life is different altogether because of it. Any suggestions of how to manage the pain or any type of treatments that have actually worked would be greatly appreciated. I've used steroid creams and am now on Elidel, but they're not working. So I'm now soaking in bath water with dead sea salt and epsom salt and it seems to provide some relief. I've also been prescribed an estrogen cream called Premarin and it helps a little bit. Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 I have a question? my name is dante! im a cml paturnt.. can you guys tell me wat is PCR? they will do pcr on me. on April 2009 today I had a check up? my blood count is good & also my doc said the chromo is not detected anymore? that why they will do pcr? thanks! Sent From My Iphone Quote Link to comment Share on other sites More sharing options...
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