Re: To everyone taking Prednisone

[Guest guest]

Hi everyone,

I totally agree with Melt. I have been on between 40-80 mg of pred. for the

last 5 yrs & can honestly say that the side effects have driven me to

insanity--I now have gastric issues & have gained 90 pounds, not to mention

other problems--however, without this medication, I can't walk and the stiffness

is unbearable. I absolutely HATE being on this stuff, however, whenever my

doctor tells me I have to " up the dose " , I go with it, only because I want to

walk (even if that attempt to walk is pitiful).

Yes, the side effects are difficult to handle, but then again, so are the side

effects of the other meds we take. Each and every one of these meds have there

own " issues " , but we are willing to take them....so why not the prednisone?

Because of the weight? Well, I hate being this big, but unfortunately, it's a

necessary evil to be able to move. Think about it......most (if not ALL) of the

NSAIDS & DMARDS cause weight gain, even though the docs don't tell you that.

Would we all stop taking them just because of the weight? Personally, I

wouldn't. MTX Has it's own horrible side effects, but does that stop us from

trying it in the hopes that it will help? No.....

Please, don't go against your doctor's attempt to help you. Stop and think

about where we would all be if none of these medications existed. Our docs are

only trying to help us. Maybe one day the " experts " will come up with a

solution that will eliminate the side effects we currently deal with. Until

then, I'll deal with them, and accept my new " look " . Please don't jeopardize

your health by going against your doctors............I would rather look at all

of you in a " prednisone puff up " than see you all in hospital beds, crippled

beyond belief..............

with love,

Chris

greywolf70@...

My dear friends; Marilyn, , Traci, and I know of others that

have stated lately they may not take the prescribed dose of

Prednisone thier doctors have told them to take. You all know I love

you dearly and have had my years of Prednisone, but I am very

conserned when so many say they shall go against doctors treatment

because of weight gain, etc, so forth and side affects. When we

choose to put our lives in someones hands, we should listen and if we

don't agree with the treatment seek another opinion. I have hated

this disease over and over just as much as any one of us but you must

know that this disease is not kind and does not care what you look

like or what you want, just as we ourselfs should only do what is

recommended regarless of our looks. If you were told you had cancer

and yes you would lose your hair or die then I would hope it wouldn't

matter about your hair. Well the medication Prednisone is the same.

We hate it!!! BUT we take it in hopes of living a less crippled pain

filled life. I would rather hug you big or small than mourn the

effects of this illness with you. Always with love, Pattymelt

[Guest guest]

FYI: I had a lot of problems and side effects from prednisone. I switched to

Methylprednisone, and the swelling and weight gain subsided a great deal. If

you are having problems with PREDNISONE, ask your doc about switching to

METHYPREDNSONE.

-Brent

Re: To everyone taking Prednisone

Hi everyone,

I totally agree with Melt. I have been on between 40-80 mg of pred. for the

last 5 yrs & can honestly say that the side effects have driven me to

insanity--I now have gastric issues & have gained 90 pounds, not to mention

other problems--however, without this medication, I can't walk and the

stiffness is unbearable. I absolutely HATE being on this stuff, however,

whenever my doctor tells me I have to " up the dose " , I go with it, only

because I want to walk (even if that attempt to walk is pitiful).

Yes, the side effects are difficult to handle, but then again, so are the

side effects of the other meds we take. Each and every one of these meds

have there own " issues " , but we are willing to take them....so why not the

prednisone? Because of the weight? Well, I hate being this big, but

unfortunately, it's a necessary evil to be able to move. Think about

it......most (if not ALL) of the NSAIDS & DMARDS cause weight gain, even

though the docs don't tell you that. Would we all stop taking them just

because of the weight? Personally, I wouldn't. MTX Has it's own horrible

side effects, but does that stop us from trying it in the hopes that it will

help? No.....

Please, don't go against your doctor's attempt to help you. Stop and think

about where we would all be if none of these medications existed. Our docs

are only trying to help us. Maybe one day the " experts " will come up with a

solution that will eliminate the side effects we currently deal with. Until

then, I'll deal with them, and accept my new " look " . Please don't

jeopardize your health by going against your doctors............I would

rather look at all of you in a " prednisone puff up " than see you all in

hospital beds, crippled beyond belief..............

with love,

Chris

greywolf70@...

My dear friends; Marilyn, , Traci, and I know of others that

have stated lately they may not take the prescribed dose of

Prednisone thier doctors have told them to take. You all know I love

you dearly and have had my years of Prednisone, but I am very

conserned when so many say they shall go against doctors treatment

because of weight gain, etc, so forth and side affects. When we

choose to put our lives in someones hands, we should listen and if we

don't agree with the treatment seek another opinion. I have hated

this disease over and over just as much as any one of us but you must

know that this disease is not kind and does not care what you look

like or what you want, just as we ourselfs should only do what is

recommended regarless of our looks. If you were told you had cancer

and yes you would lose your hair or die then I would hope it wouldn't

matter about your hair. Well the medication Prednisone is the same.

We hate it!!! BUT we take it in hopes of living a less crippled pain

filled life. I would rather hug you big or small than mourn the

effects of this illness with you. Always with love, Pattymelt

[Guest guest]

Melt, Brent and everybody else on steroids,

Ditto here, Brent, on the methylprednisolone. I find I get a lot less edema,

though I also don't get the euphoria I used to with prednisone. I had switched

due to some info from someone here on the list. With the prednisone, I swelled

so bad that the " bottom " of my feet were round and swollen! On prednisone I

definitely gained weight! On methylprednisolone, I am losing weight, slowly but

surely! That's the best of both worlds!

They may be in the same drug category, but all meds do react different. It

might be a good idea for everyone to remember that if they're having a problem

with one particular medication, to ask their doc to try another med in that same

genre of medications.

Jul

(lilac_rose@... )

RE: To everyone taking Prednisone