Re: Sue - PCRU continuing

[Guest guest]

>

> Good Afternoon All

>

> Had my 3 monthly appointment this week

>

> I am still PCRU but even better than that result is the BCR

> is now 0.0 as well

>

> Normally I am PCRU since late last year the BCR had results such as a negative

12, then negative 11 and then a negative 10 and this weeks result BCR was a 0.0

>

> Specialist could not believe it - even in the best of outcomes this is a great

outcome - he was a pretty happy man

>

> I asked if I could reduce dosage due to skin rashes and bleeds etc

> fragile skin etc - looked at me like I had three heads and said NO WAY

> - we are on a winner and not playing around with it - we will manage all

> side effects - hope he is right.

>

> Even though PCRU my general chemistry is going down with all other levels

lower than they were the test before - so medico will wait and see what the next

results are. I have to be careful that I do not get infections - neut levels

low again.

>

> Medicos excitement was infectious so thought I would share.

> I did not realise that BCR results were also important and not just the

> BCR/abl together

>

> Sue (Aussie)

_______________________________________________________________

March 09 Results

Added the info

I am PCRU % (continuing)which is the BCRabl/BCR % reading.

However just the BCRabl out of 530 000 or 540 000 BCR readings are at negative

10 or sometimes negative 11

and at another test out of 250 000 BCRabl reading at negative 10

This time out of 530 000 the BCRabl I was a big fat zero - 0.

The report states that this is the lowest incidence of disease progression - how

amazing is that.

Remember this has taken me some 19 months to get to this stage on commencing

treatment of glivec

at the 600mg dose not the lower dose

My white cell - neut / lymph/ eosin levels and calcium levels are reduced

further - still borderline neut so will have to be really careful of infection.

Love seeing those zeros everywhere

>

[Guest guest]

Congrats Sue, great news.

With the warmest regards,

Matt

CML of Florida

Dx January of 2005

Gleevec March of 2005

Tasigna November of 2007

Number 1078 in the Esteemed Zavie Zero Club

In a message dated 3/21/2009 3:34:02 A.M. Eastern Daylight Time,

hollie@... writes:

Good Afternoon All

Had my 3 monthly appointment this week

I am still PCRU but even better than that result is the BCR

is now 0.0 as well

Normally I am PCRU since late last year the BCR had results such as a

negative 12, then negative 11 and then a negative 10 and this weeks result BCR

was

a 0.0

Specialist could not believe it - even in the best of outcomes this is a

great outcome - he was a pretty happy man

I asked if I could reduce dosage due to skin rashes and bleeds etc

fragile skin etc - looked at me like I had three heads and said NO WAY

- we are on a winner and not playing around with it - we will manage all

side effects - hope he is right.

Even though PCRU my general chemistry is going down with all other levels

lower than they were the test before - so medico will wait and see what the

next results are. I have to be careful that I do not get infections - neut

levels low again.

Medicos excitement was infectious so thought I would share.

I did not realise that BCR results were also important and not just the

BCR/abl together

Sue (Aussie)

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